Guest guest Posted March 3, 2012 Report Share Posted March 3, 2012 Hi Lynn Sorry to say, I'm not feeling great this week. Last weekend was brilliant but I may have over done it up at my allotment! I also may have eaten some gluten when we went out for a Japanese meal on Saturday. This is possible, when we start to feel better, it is so easy to overdo things having found energy from somewhere we had forgotten we had. Always take things very carefully, or you really can set yourself back to square one, until your health has fully returned. I woke up feeling groggy on Tuesday and haven't been able to fully pick up since. Today, I am feeling really down, like I am a wrung out dish cloth, and actually burst into tears this afternoon which hasn't happened in a while. Think adrenals! Go to our files section thyroid treatment/files/ and on the page that opens, scroll down to the one entitled 'MEDICAL QUESTIONNAIRES' and answer all the questions in the Adrenal questionnaire to see how you score. Whilst you are there, also complete the magnesium, and candida questionnaires too. Let us know how you got on. (Oh, I also got the letter from the endo saying " your suppressed TSH at 0.02 does indicate over replacement of your thyroid hormone and is not advisable " . I will need to go back to my GP and have a chat about what to do. I have decided to find out whether going back to see Dr Skinner will be an option, but last year when I spoke with my GP about it, he said he was no longer happy to refer patients to Dr Skinner... It is all so exhausting...) Same old, same old! When will they learn that for anybody taking T3 (whether synthetic or natural) their TSH will be naturally suppressed because there simply is no need for the pituitary to secrete any thyroid stimulating hormone when it recognises there is sufficient thyroid hormone in the blood. Copy out the attached paper and show it to your endocrinologist who has obviously done little to no research lately http://www.endocrinology.org/press/pressreleases/2010-03-16_Thyroxine.pdf. If he wants to worry about it, let him get on with it, but this is nothing for you to worry about. Also, tell your GP that you are very happy with Dr Skinner and wish him to refer you again. Dr Skinner is the one who is making patients better, and your GP is not and he should be pleased that there is somebody out there who knows what he is doing and how the greater thyroid system works. I have had a week off the progesterone cream, so maybe I will feel better in a few days after being back on it? Why did you stop the progesterone cream. Are you back on it again now? I have also noticed increased tingling in my feet, which is a symptom I have had on and off over the years. It seems a bit of a random thing. I had a few muscle twitches during the week. I have been very tired - feeling increasingly hopeless! If you have not had your vitamin B12 level checked, ask your GP to do this. The reference range is very, very wide i.e. 175 to 800 and your level should be right at the top of the range. You can buy sublingual B12 and you should take 1000mcgs daily as a maintenance dose, but if your level is found to be very low, you might need B12 injections. Also, while getting blood drawn for B12, ask the GP to also check your iron, transferrin saturation, ferritin, vitamin D3, magnesium, folate, copper and zinc. If any of these are low in the range, your thyroid hormone cannot work properly until whatever is low has been supplemented. When you get these results, post them here with the reference range and we will help with their interpretation. At times I have had lots of intestinal goings on. This seemed to start around the time of taking the iron and I've been putting up with it, but starting to feel worried that I may have candida in addition to everything else! Are you taking high doses of vitamin C with the iron and are you taking your iron with food. Also, are you taking your iron at least four hours away from your thyroid replacements? This is vital. I had a dull ache in the sacrum area last night. Also have had some hip discomfort. This can happen to many people who are not getting sufficient of the active thyroid hormone T3. People suffering with chronic fatigue, fibromyalgia and ME have found that when they started taking T3, they got better. You may need to think about stopping the thyroxine if it is not converting and increasing your natural thyroid extract, or even changing to T3 only. I also have a feeling there's something in the back of my throat and it's a bit sore and achy. Maybe I have a bit of a bug. The inside of my mouth feels a bit odd as if there is something coating it. Do you have Hashimoto's thyroiditis. This is a cause of hypothyroidism. Thyroid antibodies see the thyroid gland as public enemy number one and sets about its complete destruction. As the antibodies attack your thyroid gland this can cause discomfort and soreness as the thyroid becomes inflamed and can cause a feeling of soreness. Have you looked inside your mouth to see if it is coated and checked the colour? This morning I checked my pulse and it was around the mid 50s. At the moment it's around the mid 60s. I've checked my morning temperature a couple of times this week. It has been 36.4 and then 36.0 today. The pulse seems low for me. A couple of years ago when I was on a higher dose of Nature-throid, it would have been in the mid 70 or even the 80s. Check out Dr Rind's metabolic temperature chart to see whether this is adrenal or thyroid related. http://www.drrind.com/therapies/metabolic-temperature-graph I'm wondering if I should invest in an adrenal saliva test? Or is all this to be expected when going through the menopause?! If you can afford it, then most definitely get this done. This will measure your level of cortisol and DHEA at four specific times during the day, i.e. 8.00a.m. - 12 noon - 4.00p.m. and again at midnight. Having low adrenal reserve can be a cause of most of your symptoms and will stop the thyroid hormone from being properly utilised at the cellular level. Go to the FILES SECTION again, and scroll down to the folder entitled 'Discounts on Tests and Supplements' and on that page, scroll down to the 'Genova Diagnostics' file. Follow the instructions for ordering and tell them that Thyroid Patient Advocacy is your practitioner. Hope this helps. Luv - Sheila No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1913 / Virus Database: 2114/4848 - Release Date: 03/03/12 1 of 1 File(s) It's OK to have lower TSH when taking thyroxine.doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 Dear Sheila Thank you so much for getting back to me and nudging me forward! I did the adrenal stress questionnaire today. The number of questions I answered positively totalled 67. And the total points came to 106 indicating moderate adrenal fatigue. My asterisk total was 9. I don’t have any of the Addinson’s symptoms. I did the skin scratch test and it was normal – skin went red within seconds. I also did the pupil reflex test and my pupil stayed contracted normally for 3 minutes. I scored 55 in the magnesium questionnaire. I have just recently started taking some magnesium – 250mcg each day. I scored 214 on the candida questionnaire (over 180 indicative of candida connected health problems) Is there a blood test for candida? I really dread going on the candida diet on top of being gluten free! I’ll check out Dr Rind’s metabolic temperature chart over the next few days. I have noticed in the past that there is quite a difference between my underarm temperature and my under the tongue temperature. I have been using the temperature reading from under my tongue which is the higher of the two. Is that OK? I do have Hashimoto’s - the Anti TPO antibodies were one of the first things to appear in blood tests: Aug 2004 221 KU/l (<32.0) Jan 2005 278KU/l (<32.0) Sept 2005 147LU/l (<32.0) May 2006 309 Ku/L (<32.0) June 2007 223 KU/l (<60) Thank you for the article. I’ve printed it out. I’ll show it to my GP (not sure about showing it to the endo as they don't want to see me again!) I hope a TSH of .02 is not a problem even though it is lower than the 0.04 level in the article. I did drop my meds last summer and the TSH rose to around 0.06 but by that time I was getting really quite hypo again. I’m back on the progesterone cream. I was taking a week off after being on it for 24 days. I started back on it on Friday and I am feeling better today, - more positive mood - although still a bit drained. My B12 was 599ng/L 9 (130 – 900) on 10th February this year. I have been taking 1000mcg a day of methylcobalamin by Yarrow formulas for the last couple of months. My ferritin on 10th February was 28mg/L (15-300) and I have been taking 1 x 305mg of ferrous fumerate twice a day, for about 5 weeks, along with 1g of vitamin C each time. I also take 1g of vit C with my breakfast. I take the first dose of iron at around 11.30am – 12noon which is 4-5 hours after my morning Nature-throid. I take another dose of Nature-throid at 3.30- 4pm and then the second iron dose in the evening at around 9pm. I don’t take the iron with food. It says on the packet to take without food before meals – which I manage with the 11.30 – 12 noon dose. But haven’t really bothered to take food sometime after the evening dose. My GP wouldn’t run the tests for transferring saturation or the other test for iron. Nor the magnesium, copper or zinc. My D3 on 10/2/2012 was 45.5 mcg/L (30 – 100mcg/L) I had been taking 2000IU of vitamin D3 daily for around 6 months. For the last month I’ve upped that to 4000IU. The D2 came back as not detected. I have been taking 10mcg of zinc a day for the last few days. When I looked at my tongue this morning, it was a bit coated with white stuff first thing. Later on it looked greyish and a bit puffy. I went back to taking 2 grains of Nature-throid in February, after feeling terrible on the thyroxine/Nature-throid combi – which I’d been on from November – February. I take the first dose of Nature-throid very first thing when I wake up at least half hour before eating. I was on 2.5 Grains of Nature-throid up until I saw the endos last May. I think that the 2 grains which I’ve been back on for around 5 weeks, is pretty much the bare minimum dose. Maybe I just ran really low of thyroid hormones after some extra physical activity last weekend up the allotment? It’ll be interesting what the Dr Rind charting shows, plus the adrenal saliva test.I've been taking 2 x 100mg of adrenal with breakfast and one at 12-1pm (don't always remember) Plus B vits at breakfast, including 400mcg of folate. Thanks again! Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2012 Report Share Posted March 5, 2012 http://www.drrind.com/therapies/metabolic-temperature-graph#summaryDear SheilaThank you for the link to the Dr Rind page. Brilliant, it looks just what I need - and I found the answer to my question about how to take temperature (under tongue is preferable to armpit!) Lynne xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2012 Report Share Posted March 5, 2012 If this was me, I would be starting Nutri Adrenal Extra which you can buy from Nutri Ltd with a 33% discount - these will do you no harm but will probably do you a world of good. Yes, I do think you should check to see if you have candida antibodies. If you have candida, thyroid hormone cannot be fully utilised at the cellular level until the candida has been treated. Go back to the files section and click on 'Genova Diagnostics' to order the test for Candida Antibodies. They send the kit and you pay when you send the sample back thyroid treatment/files/ Start taking your temperature in the way recommended by Dr Rind and use his temperature chart. If your problems are adrenal related, you will see your temperature slowly start to rise, which will show that the tablets are doing the job they are supposed to. This will be an interesting exercise. If your symptoms are all related to your thyroid, they temperature will probably not change very much. Use the 'under the tongue' temperature is best. The magnesium tablets should help keep your levels stable. It appears that you are tackling everything in the right way, so hope there will be improvements showing soon. However, it is When I looked at my tongue this morning, it was a bit coated with white stuff first thing. Later on it looked greyish and a bit puffy. Check out this web site http://www.icanm.com/pages/samples/ch6ObsTongue.asp I was on 2.5 Grains of Nature-throid up until I saw the endos last May. I think that the 2 grains which I’ve been back on for around 5 weeks, is pretty much the bare minimum dose. Maybe I just ran really low of thyroid hormones after some extra physical activity last weekend up the allotment? Lynne, you need to take the amount of thyroid hormone that takes away all of your symptoms, and you should not be titrating your dose according to the results of any blood tests. Blood tests are useless once you are taking any form of T3. We recommend increasing natural thyroid hormone by half a grain (30mgs) every 3 to 4 weeks. You do this until after one increase, a couple of hours or so afterwards, you start to get symptoms of hyperthyroidism, i.e. palpitations, feeling 'spaced-out', sweaty, dizzy, and generally pretty Yuk! This will last only a couple of hours or so and then it will fade so you feel normal again. During that time, take it easy, and be calm in that you understand what is happening. Don't take anymore thyroid hormone that day, and the following day, go back onto the dose you were taking before that last increase and that is how you find the correct dose of thyroid hormone that your body requires. Endocrinologists cause more suffering for their patients by following the results of blood tests only and making them drop their dose, or stopping them using NDT and putting them back onto the thyroxine again, that doesn't work for them. If you have been taking your 2 grains for at least 3 to 4 weeks, now is the time to try an increase again of 30mgs. Good luck Luv - Sheila It’ll be interesting what the Dr Rind charting shows, plus the adrenal saliva test. I've been taking 2 x 100mg of adrenal with breakfast and one at 12-1pm (don't always remember) Plus B vits at breakfast, including 400mcg of folate. Thanks again! Lynne No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1913 / Virus Database: 2114/4850 - Release Date: 03/04/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2012 Report Share Posted March 5, 2012 I've printed out the Dr Rind temperature charts. I recognise them and realise I tried plotting my temperatures 5 or 6 years ago. They were very up and down and made a graph which looked like a hedgehog! I've ordered a Fahrenheit digital thermometer on Amazon which I think will be more useful than my Celcius one.Should I stick on what I am currently doing dosage wise and plot temperatures for about a week before making any further dosage changes? I am feeling OK today. Slept OK. As I'm currently fragile - would it make sense if I try the Nutri adrenal Extra before increasing the Nature-throid? Or would it be OK to make both changes at around the same time? There's also a lot to read on Dr Rind's page - I'll try to look at it all over the next few days. Lynne x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2012 Report Share Posted March 5, 2012 If you are taking Nutri Adrenal Extra, you should not take any thyroid hormone replacement for 7 days but start again on the 8th day. So yes, that would make sense to wait to increase your Nature Throid. After 7 days, go back onto the dose you were taking and in another week, increase your dose of Nature Throid by 30mcgs. Otherwise, carry on with what you are doing. Luv - Sheila. As I'm currently fragile - would it make sense if I try the Nutri adrenal Extra before increasing the Nature-throid? Or would it be OK to make both changes at around the same time? There's also a lot to read on Dr Rind's page - I'll try to look at it all over the next few days. Lynne x No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1913 / Virus Database: 2114/4851 - Release Date: 03/04/12 Quote Link to comment Share on other sites More sharing options...
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