RE: Re: TSH suppression for thyroid cancer on NDT?

[Guest guest]

- go to our FILES section and open the folder 'Discounts

on Tests and Supplements' and check out Blue Horizon. You can get a kit to test

your own thyroid function, this is a finger prick test that is relatively new,

but it is being highly recommended. Check it out and see what you think.

Luv - Sheila

Thanks for such a comprehensive reply. Funnily enough I spoke to Jill the other

day who was saying how much you'd helped her switch to NDT. There's one

complicating factor - I forgot to mention my TED. My eyes are stabilising and

they are much improved post op. I can't risk my levels dropping too much as it

sends my eyes haywire (hence them wanting to use thyrogen injections pre RAI to

get my TSH up artificially to improve uptake - I've refused to come off my meds

- which is how they normally do it!) so I'd be nervous of coming off levo and

taking such a low dose?

I read on STTM that some patients can tolerate a pretty much straight swap but

I'm nervous of that too. I think your idea of one grain split and playing it by

ear, seeing what I can tolerate might be the way?.

I'm trying to find a local clinic that will do private blood tests (I'm back

with my parents in Shropshire recuperating, had to give up work) so that I can

keep track of how I'm doing.

[Guest guest]

Dear

If you scored high

on the Adrenal Questionnaire, then yes, if you can afford it, I would

definitely get the 24 h our salivary adrenal profile done to see what changes

there are since you had your last test done. A lot has happened to you in the

last 18 months, so it could well s how that you are suffering with adrenal

fatigue. If you telephone (or email) them today, they will send the kit out to

you and you can get on with it straight away. Tell them that Thyroid Patient

Advocacy is your practitioner to claim your discount. Once you get the results

back post them here together with the reference range and we will help with

their interpretation.

Luv - Sheila

Thanks for both messages. My surgeon and my cancer doc are open to T3, they are

saying I don't currently need it as my T3 is 4.4. But they've promised to

listen to me, and I believe they will, I have had absolutely excellent care

(finally!).

I've just been reading your TPA Guidebook and I've also filled in the adrenal

questionnaire in the files. I score as severe!! I also feel shaky on T4 so I'm

a bit worried about adrenals. I had a genova test about 18 months ago that came

back normal and they did all the relevant hospital blood tests recently (inc 24

hour urine) and all was normal (although in again in Tues so will get a print

out). Do you think I need to test again with Genova? I'm taking supplements but

not specific adrenal support.

Sorry, so many questions! Thanks for getting back to me, I'll keep you posted.

..

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