Re: Confused, tired and emotional

[Guest guest]

I know people who have had problems after having a mirena coil fitted. Has it been removed? If not I would have that done asap.Hang on in there, yes it is annoying when you're struggling to look after a little one and feel awful. I was in that position for years. If you had a leg in plaster people would be offering help, but because it's not visibIe you feel like there's pressure to just to crack on. I was so out of it with hypothyroidism I felt like a zombie and had a toddler to look after and a stressful shift job. I had eye problems as well, artificial tears might be worth trying.

Do what I wish I had done, and ask for help from friends and family, and book childcare to give yourself a break if you have to. Tell them what you've told us, that you're waiting for blood test results and in the meantime feel lousy and any help would be appreciated. If you're in the UK you would have childcare vouchers for your daughters age group so do what I didn't (doh!) and use them. 

HTHJackie

On 21 March 2012 10:48, missingticket@... <missingticket@...> wrote:

 

At risk of a really long email, i'll start at the beginning. I've been a 'tired' person since my teens but since I had quite a traumatic time (which I wont go into here) I have always put this down to stress. This is usually interspersed with high periods where I feel like I have ants in my pants. When I was 22 (i am 30 now), I suddenly put on a vast amount of weight and shortly after had my first seizure and shortly after was diagnosed with epilepsy (eeg & mri normal but the diagnosis was made after medical staff observed several fits in hospital). Two and a half years ago, I had my daughter and all the symptoms became ramped up, despite breast feeding, I gained 2st and began having panic attacks esp at night when I would wake up unable to breathe. This was blamed on pnd. I then lost a vast amount of weight despite eating more and suddenly had loads of energy again although the panic/anxiety persisted so I started seeing a therapist. I have been oscillating like this ever since although have with the help of the terapist learned to manage the anxiety symptoms and so my life began to improve. I began an MA (which has been going very well) and became more comfortable as a mum. I have a lovely circle of friends and a loving husband (this is not showing off but to show that I am not living in circumstances that would cause depression).

Then I had a Mirena coil fitted. Since this has happened, it is like a magnifying glass has been put on my symptoms - My eyes are swollen and have become different sizes and the optician said my tears aren't working properly, there is permanent pressure around them and my face is swollen and yellow, my shoulder is incredibly painful and two of my fingers are numb, I am so tired that I can barely climb the stairs and I am weak to the point of exhaustion. All this makes me want to cry esp since my TSh came back normal (1.3) which lead my doctor to tell me that I am depressed and need anti-depressants/therapy (all this with no physical exam whatsoever). In a bizzare twist, my therapist is so worried about my physical health, she advised me to change doctors and get a second opinion. He check my heartrate (very high), throat (enlarged) and blood pressure (normal). He said he thinks I have a hormone problem and now i'm having among other things several thyroid tests (but I don't know what) which take up to 10 days to come back. I am terrified that if nothing shows up, I will be labelled a crank, meanwile every day I feel more ill and the thought of waiting 10 days is a nightmare. I just want to live my happy and fulfilling life without being written off as depressed again. The only thing that is making me miserable are the physical symptoms and not the other way around. I am scared that I am unable to look after my daughter properly...how ill do you need to be before someone helps. Oh and my aunt had Hashimoto's.

Sorry this has been such a long post, i've been holding this all in for a long time.

[Guest guest]

Thanks Jackie,

I am planning to get the mirena removed asap, but have to wait until the right

time in my cycle otherwise apparently it's a nightmare to remove. A couple of

friends have offered to help, but I'm worried if I ask to much of them now and

it gets worse later then they might get p'd off with me. Can you get the

vouchers if you aren't going to work? She isn't 3 until sept so free hours don't

start until jan. Thanks for the tears advice, will give it a go.

Other than hooking up to a caffeine drip, do you have any advice on how I might

help myself a bit with energy levels since I imagine I'm a long way from getting

treatment yet.

Thanks again

Lori

>

> I know people who have had problems after having a mirena coil fitted. Has

> it been removed? If not I would have that done asap.

>

> Hang on in there, yes it is annoying when you're struggling to look after a

> little one and feel awful. I was in that position for years. If you had a

> leg in plaster people would be offering help, but because it's not visibIe

> you feel like there's pressure to just to crack on.

[Ed]

[Guest guest]

Hi Lori,

I had a Mirena coil fitted which resulted in severe stabbing pains - but anyway

the reason I am responding to your message is that although the coil was

inserted by the gynae consult at hospital - it was removed by my GP the day I

went to an appt to see him when I could stand it no longer (5 months) - there

was no issue about time in cycle, he just removed it. Incidently, he examined

me after to discover large fibroids which resulted in me electing to have a

hysterectomy (6 yrs ago).

So I don't think you need to wait for a time in the cycle.

Good luck Lori.

Stacey

[Guest guest]

Dear Missing Ticket....

There is a disease, which of course is ignored by endocrinology, that produces

the symptoms of hypothyroidism while the thyroid is " normal. " It is euthyroid

(your thyroid is OK) hypometabolism (but you are dragging anyway). Please go to

the main page of TPA and look near the bottom for the Greater Thyroid System and

get its diagram. You will see that there is more to this system than what

endocrinology admits to. Further, there is quite a bit of supporting chemistry

that can be tested. The tests, however, are metabolic as in the production of

energy. That would be the production of carbone dioxide (CO2) and the use of

Oxygen (O2). Basal Body Temperature is also an indicator.... But not an

absolute indicator....

Have a great day,

>

> At risk of a really long email, i'll start at the beginning. I've been a

'tired' person since my teens but since I had quite a traumatic time (which I

wont go into here) I have always put this down to stress. This is usually

interspersed with high periods where I feel like I have ants in my pants. When I

was 22 (i am 30 now), I suddenly put on a vast amount of weight and shortly

after had my first seizure and shortly after was diagnosed with epilepsy (eeg &

mri normal but the diagnosis was made after medical staff observed several fits

in hospital). Two and a half years ago, I had my daughter and all the symptoms

became ramped up, despite breast feeding, I gained 2st and began having panic

attacks esp at night when I would wake up unable to breathe. This was blamed on

pnd. I then lost a vast amount of weight despite eating more and suddenly had

loads of energy again although the panic/anxiety persisted so I started seeing a

therapist. I have been oscillating like this ever since although have with the

help of the terapist learned to manage the anxiety symptoms and so my life began

to improve. I began an MA (which has been going very well) and became more

comfortable as a mum. I have a lovely circle of friends and a loving husband

(this is not showing off but to show that I am not living in circumstances that

would cause depression).

>

> Then I had a Mirena coil fitted. Since this has happened, it is like a

magnifying glass has been put on my symptoms - My eyes are swollen and have

become different sizes and the optician said my tears aren't working properly,

there is permanent pressure around them and my face is swollen and yellow, my

shoulder is incredibly painful and two of my fingers are numb, I am so tired

that I can barely climb the stairs and I am weak to the point of exhaustion. All

this makes me want to cry esp since my TSh came back normal (1.3) which lead my

doctor to tell me that I am depressed and need anti-depressants/therapy (all

this with no physical exam whatsoever). In a bizzare twist, my therapist is so

worried about my physical health, she advised me to change doctors and get a

second opinion. He check my heartrate (very high), throat (enlarged) and blood

pressure (normal). He said he thinks I have a hormone problem and now i'm having

among other things several thyroid tests (but I don't know what) which take up

to 10 days to come back. I am terrified that if nothing shows up, I will be

labelled a crank, meanwile every day I feel more ill and the thought of waiting

10 days is a nightmare. I just want to live my happy and fulfilling life without

being written off as depressed again. The only thing that is making me miserable

are the physical symptoms and not the other way around. I am scared that I am

unable to look after my daughter properly...how ill do you need to be before

someone helps. Oh and my aunt had Hashimoto's.

>

> Sorry this has been such a long post, i've been holding this all in for a long

time.

>

[Guest guest]

HiMy Daughter had the Miren Coil fitted, this to supposedly help with her painful periods, and had an awful time with it, it caused so much pain and made her periods worse not better. After 2 months of it she went to our GP and asked him to remove it there and then and this he did, he had no problem with removing it, didn't say anything about the right time of the cycle, just removed it without any problems at all. The repercussions of having the mirena coil even for such a short time were very bad for her. I wouldn't recommend it to anybody.Just tell your GP that it is so painful and that you need it to be taken out straight away, it is adversely affecting your health. It can be done, the right time of cycle doesn't come into the equation at all, certainly if you are feeling so unwell.Good luck and be

firm.Vickyanne

From:

missingticket@... <missingticket@...>;

To:

<thyroid treatment >;

Subject:

Re: Confused, tired and emotional

Sent:

Wed, Mar 21, 2012 4:19:36 PM

Thanks Jackie,

I am planning to get the mirena removed asap, but have to wait until the right time in my cycle otherwise apparently it's a nightmare to remove. A couple of friends have offered to help, but I'm worried if I ask to much of them now and it gets worse later then they might get p'd off with me. Can you get the vouchers if you aren't going to work? She isn't 3 until sept so free hours don't start until jan. Thanks for the tears advice, will give it a go.

[Ed]

[Guest guest]

Thanks everyone

It was the GP that I am no longer seeing that said I had to wait so on your

advice, will get the mirena asap.

Thanks also to , I'll wait for these thyroid tests to come back and if they

appear normal will definitely take your advice.

Fingers crossed

Lori

[Guest guest]

Another question - my (resting)heart rate is really fast 128bpm and my face

looks like i've been hit but test result not back for another 8 days. Should I

sit it out or go back to the docs? Also yesterday had massive rush of energy

(shoulder and face still bad but much easier to cope with) but today seem to be

going back downhill again.

Any advice welcome

Lori

>

> Thanks everyone

>

> It was the GP that I am no longer seeing that said I had to wait so on your

advice, will get the mirena asap.

>

> Thanks also to , I'll wait for these thyroid tests to come back and if

they appear normal will definitely take your advice.

>

> Fingers crossed

>

> Lori

>

[Guest guest]

Dear

missingticket (do you have a name we can call you?)

First,

read the warnings and also the side effects in this article about the Merina

coil http://www.netdoctor.co.uk/sex-and-relationships/medicines/mirena.html

and discuss with your doctor whether this should be removed.

I

have pasted below a list of some of the problems that go along with having

symptoms of hypothyroidism.

There

are MANY reasons and many medical conditions associated with thyroid disease

that stop thyroid hormone from getting into the cells, where it does its work.

I mention these over and over and over again - ad nauseum - people must be

bored with the same old stuff, but as each new member joins us, they need to

know about these.

The

main condition responsible for stopping thyroid hormone from working is, quite

simply, a patient’s thyroid hormone dose is too low because the doctor or

consultant refuses to increase it, because the serum thyroid function test

results appear OK. Sometimes, the thyroxine dose is too high, yet patients

still don't feel well. They continue to suffer. Some reasons for this:

1.

You may be suffering with low adrenal reserve, so first, check out the attached

document and answer all the questions there to see how you score.

The

production of T4, its conversion to T3, and the receptor uptake requires a

normal amount of adrenal hormones, notably, of course, cortisone. (Excess cortisone

can shut production down, however.) This is what happens if the adrenals are

not responding properly, and provision of cortisone usually switches it on

again. But sometimes it doesn’t. If the illness has been

going on for a long time, the enzyme seems to fail. This conversion

failure (inexplicably denied by many endocrinologists) means the thyroxine

builds up, unconverted. So it doesn’t work, and T4 toxicosis

results. This makes the patient feel quite unwell, toxic, often with

palpitations and chest pain. If provision of adrenal support doesn’t

remedy the situation, the final solution is the use of the active thyroid

hormone, already converted, T3 - either synthetic or natural. You can check for

such a possibility by going to the FILES SECTION of our forum http://health.grouops//thyroid treatment/files/

and scroll down to the folder entitled 'Medical Questionnaires' and complete

the Adrenal one. Let us know how you score. You can also get the 24 hour

salivary adrenal profile from Genova Diagnostics. See the File entitled

'Discounts on Tests and Supplements'. When ordering, write that Thyroid Patient

Advocacy is your medical practitioner. They will send out a kit to you and the

results will be sent direct to you. When you receive these, post the results on

the forum with the reference ranges and we will help with their interpretation.

2.

Then, we have systemic candidiasis. This is where candida albicans, yeast,

which causes skin infections almost anywhere in the body, invades the lining of

the lower part of the small intestine and the large intestine. Here, the

candida sets up residence in the warmth and the dark, and demands to be

fed. Loving sugars and starches, candida can make you suffer terrible

sweet cravings. Candida can produce toxins which can cause very many

symptoms of exhaustion, headache, general illness, and which interfere with the

uptake of thyroid and adrenal treatment. Sometimes the levels - which we

usually test for - can be very high, and make successful treatment difficult to

achieve until adequately treated. As above, do the 'Candida Questionnaire' and

let us know how you score, and again, you can be tested by Genova Diagnostics

to give you diagnosis.

3.

Then there is receptor resistance which could be a culprit. Being

hypothyroid for some considerable time may mean the biochemical mechanisms

which permit the binding of T3 to the receptors, is downgraded - so the T3

won’t go in. With slow build up of T3, with full adrenal support

and adequate vitamins and minerals, the receptors do come on line again.

But this can be quite a slow process, and care has to be taken to build the

dose up gradually.

4.

And then there are Food allergies. The most common food allergy is allergy to

gluten, the protein fraction of wheat. The antibody generated by the body, by a

process of molecular mimicry, cross reacts with the thyroperoxidase enzyme,

(which makes thyroxine) and shuts it down. So allergy to bread can make

you hypothyroid. There may be other food allergies with this kind of effect,

but information on these is scanty. Certainly allergic response to

certain foods can affect adrenal function and imperil thyroid production and

uptake.

5.

Then we have hormone imbalances. The whole of the endocrine system is linked;

each part of it needs the other parts to be operating normally to work

properly. An example of this we have seen already, with cortisone.

But another example is the operation of sex hormones. The imbalance that

occurs at the menopause with progesterone running down, and a relative

dominance of oestrogen is a further case in point – oestrogen dominance

downgrades production, transportation and uptake of thyroid hormones.

This is why hypothyroidism may first appear at the menopause; the symptoms

ascribed to this alone, which is then treated – often with extra

oestrogen, making the whole thing worse. Deficiency in progesterone most

especially needs to be dealt with, since it reverses oestrogen dominance,

improves many menopausal symptoms like sweats and mood swings, and reverses

osteoporosis. Happily natural progesterone cream is easily obtained: when

used it has the added benefit of helping to stabilise adrenal function.

6.

Then, there is the possibility of mercury poisoning, caused through amalgam

fillings - these might need to be removed but you need to seek a Dentist who

specialises in the removal of amalgam fillings.

7.

One of the main reasons why thyroid hormone is not being utilised at the

cellular level is because you might be suffering with low levels of iron,

transferring saturation%, ferritin, vitamin B12, vitamin D3, magnesium, folate,

copper and zinc - these have to be tested for, and treated.

When

you have been quite unwell for a long time, all these problems have to be dealt

with, and since each may affect the other, it all has to be done very

carefully.

Ask

your doctor to work with you to help you find the cause. The balancing of these

variables is as much up to you as to your doctor – which is why a check

of morning, day and evening temperatures and pulse rates, together with

symptoms, good and bad, can be so helpful. To this end, check out Dr Rind's

Metabolic Metabolic Temperature Graph http://www.drrind.com/therapies/metabolic-temperature-graph

If

your doctor tries to tell you that low levels of the above mentioned nutrients

have nothing to do with your low thyroid state, copy out the following of just

a few references to the research/studies that have been done to show that there

is a very big connection. Doctors are not taught about this at medical school,

so we have to help them where we can - so they, in turn, can help their other

patients.

Low

iron/ferritin: Iron deficiency is shown to significantly reduce T4 to T3

conversion, increase reverse T3 levels, and block the thermogenic (metabolism

boosting) properties of thyroid hormone (1-4). Thus, iron deficiency, as

indicated by an iron saturation below 25 or a ferritin below 70, will result in

diminished intracellular T3 levels. Additionally, T4 should not be considered

adequate thyroid replacement if iron deficiency is present (1-4)).

1.

Dillman E, Gale C, Green W, et al. Hypothermia in iron deficiency due to

altered triiodithyroidine metabolism. Regulatory, Integrative and Comparative

Physiology 1980;239(5):377-R381.

2.

SM, PE, Lukaski HC. In vitro hepatic thyroid hormone deiodination

in iron-deficient rats: effect of dietary fat. Life Sci 1993;53(8):603-9.

3.

Zimmermann MB, Köhrle J. The Impact of Iron and Selenium Deficiencies on Iodine

and Thyroid Metabolism: Biochemistry and Relevance to Public Health. Thyroid

2002;12(10): 867-78.

4.

Beard J, tobin B, Green W. Evidence for Thyroid Hormone Deficiency in

Iron-Deficient Anemic Rats. J. Nutr. 1989;119:772-778.

Low

vitamin B12: http://www.ncbi.nlm.nih.gov/pubmed/18655403

Low

vitamin D3: http://www.eje-online.org/cgi/content/abstract/113/3/329

and http://www.goodhormonehealth.com/VitaminD.pdf

Low

magnesium: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC292768/pdf/jcinvest00264-0105.pdf

Low

folate: http://www.clinchem.org/cgi/content/full/47/9/1738

and http://www.liebertonline.com/doi/abs/10.1089/thy.1999.9.1163

Low

copper http://www.ithyroid.com/copper.htm

http://www.drlwilson.com/articles/copper_toxicity_syndrome.htm

http://www.ithyroid.com/copper.htm

http://www.rjpbcs.com/pdf/2011_2(2)/68.pdf

http://ajplegacy.physiology.org/content/171/3/652.extract

Low

zinc:http://www.istanbul.edu.tr/ffdbiyo/current4/07%20Iham%20AM%C4%B0R.pdf

and http://articles.webraydian.com/article1648-Role_of_Zinc_and_Copper_in_Effective_Thyroid_Function.html

NOTE:

When your blood tests come back, ask your doctor for a copy and remember to

always get the reference range and post them on the forum. This is because

doctors will often tell you that there is not a problem because blood tests

have come back within the reference range. You need to know where about in the

reference range they are. We will again, help with their interpretation.

Last,

ask your GP to refer you to an endocrinologist, but meanwhile, take high doses

of vitamin C (2/3000mgs daily), 200mcgs Selenium, B Complex zinc and Siberian

Ginseng, plus liquorice root or tincture, as these should help both your

adrenals and thyroid function.

Any

chance you could see either Dr Skinner in Birmingham or Dr Peatfield (Crawley)?

Luv

- Sheila

In a bizzare twist, my therapist is so worried about my physical health, she

advised me to change doctors and get a second opinion. He check my heartrate

(very high), throat (enlarged) and blood pressure (normal). He said he thinks I

have a hormone problem and now i'm having among other things several thyroid

tests (but I don't know what) which take up to 10 days to come back. I am

terrified that if nothing shows up, I will be labelled a crank, meanwile every

day I feel more ill and the thought of waiting 10 days is a nightmare. I just

want to live my happy and fulfilling life without being written off as

depressed again. The only thing that is making me miserable are the physical

symptoms and not the other way around. I am scared that I am unable to look

after my daughter properly...how ill do you need to be before someone helps. Oh

and my aunt had Hashimoto's.

Sorry this has been such a long post, i've been holding this all in for a long

time.

No

virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12

1 of 1 File(s)

ADRENAL QUESTIONNAIRE.doc

[Guest guest]

Hey there

the first thing that struck me would be your bilirubin ie jaundice mentioned in

your post so I looked up the link that Shiela gave you and sure enough.......

You should inform your doctor immediately if you experience any of the following

symptoms while you have the Mirena coil fitted: migraine or severe headaches;

stabbing pains and/or unusual swelling in one leg; pain on breathing or

coughing; sudden breathlessness; sudden severe chest pain; sudden weakness or

numbness affecting one side or part of the body; increase in blood pressure;

yellowing of the skin or eyes (jaundice); severe abdominal complaints; severe

depression; or if you think you could be pregnant.

.... it is in there, as is the weakness, you sound v poorly, and I would

definately see another Dr as you have been advised and show him this paragraph

which states you should inform one immediately.

Hope you feel better soon

luv Dawnx