Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 hey de i so happy that you are in a good mood with the great news best of luck katVickie Gray <onelildeltagirl@...> wrote: Mmmmmmmmmm! Interesting. Hugs, VickieG Motley <dmotleybellsouth (DOT) net> wrote: I finally got my biopsy results. I have low grade something ( 1 on a scale of 1 to 5), but negative for dysplasia, which I believe means no pre-cancerous cells. And I don’t have to re-test in 3 months as originally planned, I get to wait 6, so this is good news. I left the report at the office, so when I bring it home, I’ll see if any of you ladies know what one of the things they said is. The most important thing is that the conversation with the nurse didn’t tell me the most important thing – it wasn’t until I read the report I insisted she fax that I read the negative for dysplasia part. ALWAYS GET COPIES OF YOUR REPORTS!!!!! Do not ask God to guide your footsteps if you are not willing to move your feet! De Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 de!!!!!!!!!! May I steal, errrrr, I mean 'borrow' your tagline? It touched my spirit and was definitely an 'ahhhh' 'lightbulb' moment. lol "Do not ask God to guide your footsteps if you are not willing to move your feet!" Anya~~~~~~~~~~~"I saw the angel in the marble and carved until I set him free."~Michelangelo~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 Thanks for reporting to us;Good you got some much needed sleep & rest too;take care Hugs Dort Alene Stowell <preciousdaughter86040@...> wrote: Hello Everyone,Sorry it took me so long to update you my doctors visit. It went very well. She told me everything looked great. She told me that my MS was not getting worse and she thought my spacing epoisdes were caused from me being real tired or not eating like I should. I have gotten a couple of good nights sleep I guess I needed it. Alot of stress has been lifted off my shoulders. Alene Stowell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 Ellen, I wish you well. It would be a good idea to keep tabs on your blood pressure. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Ellen I will wait a little while to hear any comments, then I will unsubscribe from the list. If anyone would like to contact me afterwards, please e-mail me at rhudy@... <mailto:rhudy%40mdo.net> . Be well, Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 Good news I think. when you get 2 tests that differ one always wonders which was right and a third may help. Let us know if we can help in the future. Really well tested alternative medical approaches to leukemia would seem to me to be rare. But not my area of expertise. The reasons we have made so many rapid advances in Cancer since I started in medicine is due large scale multicenter trials. Indeed the cancer folks have led the way in this. Many " promising " new meds have bombed out when subjected to rigorus trials. Recommend you consult with your heme onc person about what is new in CLL and how it should be managed. On May 24, 2008, at 9:51 AM, Ellen wrote: > Well, thank the good Lord above, it now appears that I do NOT have > hyperaldosteronism or Conn's. > I was worried because back in late January, the bloodtest showed > that my aldosterone was 50 with a range of <=28, and renin was 1.8, > with > a range of 0.65-5.0 for non-hypertensive adults. The report also said > that my aldosterone/pra ratio was 27.8 with a range of 1.5-18.2. At > that same time, I was diagnosed with autoimmune thyroiditis, even > though > bloodwork for thyroid was all normal, including antibodies. It appears > that my autoimmune thyroiditis is tied in with the chronic lymphocytic > leukemia that I was dxed. with back in 5/00 (never have had > conventional > treatment, it's pretty benign), because people with cll are very prone > to all sorts of autoimmune conditions.. Plus, I had had a few b.p. > readings that were in the 130s and a couple in the 140s. So I was > worried. That's why I joined this group. > Fast forward to today..........just got bloodwork results back. > Plus, all recent b.p. readings have been normal, or only a tiny bit > above. Here are the results, with ranges in parentheses. ACTH 21 > (5-27), aldosterone 11 (< or = 28), renin 1.1 (.65-5.0), > aldosterone/pra > ratio 10.0 (1.5-18.2), potassium 4.2 (3.5-5.5), sodium 141 (135-146), > chloride 106 (98-110), free T3 310 (230-420), free T4 1.5 > (0.8-1.8), TSH > 2.67 (0.40-4.50), free cortisol serum 0.40 (0.07-0.93), thyroid > stimulating immunoglobulin 99% (<=125). So I'm very confident that I > don't have hyperaldosteronism.............my bad results in Jan. were > due to EXTREME stress at that time, which I'm sure whacked them > out. My > parasympathetic nervous system was seriously askew. I was stressed > because I knew I had a fritzy thyroid, but PCP is not an expert, so > took > matters in hand and saw a top endocrinologist, who confirmed the > autoimmune condition, and I had to wait NEARLY 3 mos. to see him, all > the while having a fast heartbeat and bad anxiety. He told me that the > antibodies tests for thyroid are often inaccurate, due to the > antibodies > not circulating constantly or consistently in your blood. He dxed. me > based on past thyroid history (I did have hyper, then hypo once 11 > yrs. > ago, a thorough exam which showed a slightly enlarged painful thyroid, > and actually listening to all my symptoms). He did not recommend any > treatment with replacement hormone, because I wasn't hypo, just > said to > come back in 3 mos. and maybe consult with my TCM doc. Once he dxed. > me, the stress started to dissipate, then my TCM oncologist created a > formula that had herbs to deal with the thyroid, and they worked in > less > than a month. I am back on top of my game. I also took p.s. and holy > basil concentrate to get me over the hump of the anxiety, which worked > in spades. I'm now confident that I don't have hyperaldosteronism. > I wish everyone with this condition the best of luck, it's no > fun. Neither is the leukemia I have...........even though all the > above > test results were great, my WBCs have shot up within the last 6 > mos., so > I'm getting ready to start some alternative treatments that are > based on > science, and I predict I'll conquer that also. > I will wait a little while to hear any comments, then I will > unsubscribe from the list. If anyone would like to contact me > afterwards, please e-mail me at rhudy@.... > Be well, > Ellen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 Don't worry. I've been researching cll for 8 years, and I've got it covered. If you're interested in which alternative therapies work for cll, let me know. I'm also well aware of standard care and go to Hopkins for that. Ellen Clarence Grim wrote: > Good news I think. when you get 2 tests that differ one always > wonders which was right and a third may help. > > Let us know if we can help in the future. > > Really well tested alternative medical approaches to leukemia would > seem to me to be rare. But not my area of expertise. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 My son is a heme onc specialist at the Hutch in Seattle and I will ask him. On May 24, 2008, at 5:05 PM, Ellen wrote: > Don't worry. I've been researching cll for 8 years, and I've got it > covered. If you're interested in which alternative therapies work > for cll, > let me know. I'm also well aware of standard care and go to Hopkins > for > that. > Ellen > > Clarence Grim wrote: > > > Good news I think. when you get 2 tests that differ one always > > wonders which was right and a third may help. > > > > Let us know if we can help in the future. > > > > Really well tested alternative medical approaches to leukemia would > > seem to me to be rare. But not my area of expertise. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Hey e, If you are certain it may be your kidney you need more than just the "strippy" test. They need to do a culture and/or amybe an x-ray to see if you maybe hav a idney stone. Maybe you need to see a nephrologist. Are you going to a GP right now? D From: kristine franklin-ross <krisross50@...>Subject: test resultsLipitor Date: Tuesday, August 19, 2008, 1:26 PM Hi, I got the results back from the stool sample and my urine today, (urine only tested with one of those strip thingys) both are clear of infection, I don't know what to think now, I have pain in my kidney area and can't sleep in my bed all night. I think I'll have to go back and tell the doc about this, it's a bit of a worry as I only have the one kidney...... .What do you all think??? e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Do an ultra sound of the kidney area. Maybe something might show up. phine > > > > Hi, > > I got the results back from the stool sample and my urine today, (urine only tested with one of those strip thingys) both are clear of infection, I don't know what to think now, I have pain in my kidney area and can't sleep in my bed all night. I think I'll have to go back and tell the doc about this, it's a bit of a worry as I only have the one kidney.......What do you all think??? > > e > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Hi phine,Just to let you know I'm having the ultrsound tomorrow, have been quite unwell and hopingthis will shed some light on things.best,eFrom: jlkinkona <josephine@...>Subject: Re: test resultsLipitor Date: Wednesday, August 20, 2008, 5:24 AM Do an ultra sound of the kidney area. Maybe something might show up. phine > > > > Hi, > > I got the results back from the stool sample and my urine today, (urine only tested with one of those strip thingys) both are clear of infection, I don't know what to think now, I have pain in my kidney area and can't sleep in my bed all night. I think I'll have to go back and tell the doc about this, it's a bit of a worry as I only have the one kidney...... .What do you all think??? > > e > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Hi phine,Just to let you know I'm having the ultrsound tomorrow, have been quite unwell and hopingthis will shed some light on things.best,eFrom: jlkinkona <josephine@...>Subject: Re: test resultsLipitor Date: Wednesday, August 20, 2008, 5:24 AM Do an ultra sound of the kidney area. Maybe something might show up. phine > > > > Hi, > > I got the results back from the stool sample and my urine today, (urine only tested with one of those strip thingys) both are clear of infection, I don't know what to think now, I have pain in my kidney area and can't sleep in my bed all night. I think I'll have to go back and tell the doc about this, it's a bit of a worry as I only have the one kidney...... .What do you all think??? > > e > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Hi e, I hope everything goes ok. Best wishes. Bill From: jlkinkona <josephinepoidogs (DOT) com>Subject: [TakingLipitorAndHa teIt] Re: test resultsTakingLipitorAndHat eItgroups (DOT) comDate: Wednesday, August 20, 2008, 5:24 AM Do an ultra sound of the kidney area. Maybe something might show up.phine>> > > Hi,> > I got the results back from the stool sample and my urine today,(urine only tested with one of those strip thingys) both are clear ofinfection, I don't know what to think now, I have pain in my kidneyarea and can't sleep in my bed all night. I think I'll have to goback and tell the doc about this, it's a bit of a worry as I only havethe one kidney...... .What do you all think???> > e> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Hi e, I hope everything goes ok. Best wishes. Bill From: jlkinkona <josephinepoidogs (DOT) com>Subject: [TakingLipitorAndHa teIt] Re: test resultsTakingLipitorAndHat eItgroups (DOT) comDate: Wednesday, August 20, 2008, 5:24 AM Do an ultra sound of the kidney area. Maybe something might show up.phine>> > > Hi,> > I got the results back from the stool sample and my urine today,(urine only tested with one of those strip thingys) both are clear ofinfection, I don't know what to think now, I have pain in my kidneyarea and can't sleep in my bed all night. I think I'll have to goback and tell the doc about this, it's a bit of a worry as I only havethe one kidney...... .What do you all think???> > e> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Good luck e with your ultra sound. Pamela > > > > > > > > > > > > Hi, > > > > > > I got the results back from the stool sample and my urine today, > > (urine only tested with one of those strip thingys) both are clear of > > infection, I don't know what to think now, I have pain in my kidney > > area and can't sleep in my bed all night. I think I'll have to go > > back and tell the doc about this, it's a bit of a worry as I only have > > the one kidney...... .What do you all think??? > > > > > > e > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Good luck e with your ultra sound. Pamela > > > > > > > > > > > > Hi, > > > > > > I got the results back from the stool sample and my urine today, > > (urine only tested with one of those strip thingys) both are clear of > > infection, I don't know what to think now, I have pain in my kidney > > area and can't sleep in my bed all night. I think I'll have to go > > back and tell the doc about this, it's a bit of a worry as I only have > > the one kidney...... .What do you all think??? > > > > > > e > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hi e, I am glad you are getting that much needed ultra sound. It should help with determining what's going on with your poor kidney. Please keep us posted. phine > > > > > > > > > > > > Hi, > > > > > > I got the results back from the stool sample and my urine today, > > (urine only tested with one of those strip thingys) both are clear of > > infection, I don't know what to think now, I have pain in my kidney > > area and can't sleep in my bed all night. I think I'll have to go > > back and tell the doc about this, it's a bit of a worry as I only have > > the one kidney...... .What do you all think??? > > > > > > e > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Hi , FYI, they are able to test the blood specifically for parasites, testing the IgG levels. Don't know if they would consider this allergy test or not for you? These IgG levels are markers our body produces to anything foreign, so they can test IgG for many different types of very specific allergies. Tim > > I went to the doctor last week to get a full blood work done. > Everything was working properly and all levels of whatever in my body > were fine. They said the only thing that was bad was I had high > cholesterol of 220 and a high " nonspecific allergy test " . Allergic > reaction to what? There is nothing going on in my life that could be > causing it to produce high levels of histamines. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 > > I went to the doctor last week to get a full blood work done. > Everything was working properly and all levels of whatever in my body > were fine. They said the only thing that was bad was I had high > cholesterol of 220 and a high " nonspecific allergy test " . Allergic > reaction to what? There is nothing going on in my life that could be > causing it to produce high levels of histamines. > HI AMANDA, HOPE U DONT MIND ME ASKING...HAVE U BEEN TAKING A GOOD MULTI VITAMIN LATELY? SINCE REALIZING WHAT IS GOING ON? I know if I were to get tested now, my numbers would be good BUT when this 'mitetruck' hit my ass, those would have been terrible! I was not eating right, maybe once a day, drinking coke like crazy, no water, definitely not taking vitamins and having a couple brewskies at night with that one meal. BAD,BAD,BAD I KNOW. And have u ever had an anemia problem? Now, dear, what could u possibly be allergic to? hmmm chasity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 She said mitetruck, haha <3 chas On Tue, 13 Jan 2009 11:17 pm, dammitgrl2001 wrote: > >> >> I went to the doctor last week to get a full blood work done. >> Everything was working properly and all levels of whatever in my body >> were fine. They said the only thing that was bad was I had high >> cholesterol of 220 and a high " nonspecific allergy test " . Allergic >> reaction to what? There is nothing going on in my life that could be >> causing it to produce high levels of histamines. >> > HI AMANDA, HOPE U DONT MIND ME ASKING...HAVE U BEEN TAKING A GOOD MULTI > VITAMIN LATELY? SINCE REALIZING WHAT IS GOING ON? I know if I were to > get tested now, > my numbers would be good BUT when this 'mitetruck' hit my ass, those > would have been > terrible! I was not eating right, maybe once a day, drinking coke like > crazy, no water, > definitely not taking vitamins and having a couple brewskies at night > with that one meal. > BAD,BAD,BAD I KNOW. And have u ever had an anemia problem? Now, dear, > what could u > possibly be allergic to? hmmm chasity > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 I got blood work done in the summer and was not talking multivitamins. Everything was fine then. My temperature was 97.6 though.From: dammitgrl2001 <dammitgrl2001@...>Subject: Re: Test Resultsbird mites Date: Wednesday, January 14, 2009, 7:17 AM > > I went to the doctor last week to get a full blood work done. > Everything was working properly and all levels of whatever in my body > were fine. They said the only thing that was bad was I had high > cholesterol of 220 and a high "nonspecific allergy test". Allergic > reaction to what? There is nothing going on in my life that could be > causing it to produce high levels of histamines. > HI AMANDA, HOPE U DONT MIND ME ASKING...HAVE U BEEN TAKING A GOOD MULTI VITAMIN LATELY? SINCE REALIZING WHAT IS GOING ON? I know if I were to get tested now, my numbers would be good BUT when this 'mitetruck' hit my ass, those would have been terrible! I was not eating right, maybe once a day, drinking coke like crazy, no water, definitely not taking vitamins and having a couple brewskies at night with that one meal. BAD,BAD,BAD I KNOW. And have u ever had an anemia problem? Now, dear, what could u possibly be allergic to? hmmm chasity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 I got my temp taken yesterday and it was 95.4 . I was thinking if I got a far infered mat and slept on it every night it would help raise my temp when i was sleeping. Has anyone on here tried this before? tommyFrom: dammitgrl2001 <dammitgrl2001>Subject: Re: Test Resultsbird mitesDate: Wednesday, January 14, 2009, 7:17 AM > > I went to the doctor last week to get a full blood work done. > Everything was working properly and all levels of whatever in my body > were fine. They said the only thing that was bad was I had high > cholesterol of 220 and a high "nonspecific allergy test". Allergic > reaction to what? There is nothing going on in my life that could be > causing it to produce high levels of histamines. > HI AMANDA, HOPE U DONT MIND ME ASKING...HAVE U BEEN TAKING A GOOD MULTI VITAMIN LATELY? SINCE REALIZING WHAT IS GOING ON? I know if I were to get tested now, my numbers would be good BUT when this 'mitetruck' hit my ass, those would have been terrible! I was not eating right, maybe once a day, drinking coke like crazy, no water, definitely not taking vitamins and having a couple brewskies at night with that one meal. BAD,BAD,BAD I KNOW. And have u ever had an anemia problem? Now, dear, what could u possibly be allergic to? hmmm chasity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 I don't think low body temperature is a problem for me. I always have warmer skin than others. From: tommy morrow <tommy02141@...>bird mites Sent: Thursday, January 15, 2009 5:55:35 PMSubject: Re: Re: Test Results I got my temp taken yesterday and it was 95.4 . I was thinking if I got a far infered mat and slept on it every night it would help raise my temp when i was sleeping. Has anyone on here tried this before? tommy From: dammitgrl2001 <dammitgrl2001>Subject: Re: Test Resultsbird mitesDate: Wednesday, January 14, 2009, 7:17 AM >> I went to the doctor last week to get a full blood work done. > Everything was working properly and all levels of whatever in my body> were fine. They said the only thing that was bad was I had high> cholesterol of 220 and a high "nonspecific allergy test". Allergic> reaction to what? There is nothing going on in my life that could be> causing it to produce high levels of histamines.>HI AMANDA, HOPE U DONT MIND ME ASKING...HAVE U BEEN TAKING A GOOD MULTI VITAMIN LATELY? SINCE REALIZING WHAT IS GOING ON? I know if I were to get tested now, my numbers would be good BUT when this 'mitetruck' hit my ass, those would have been terrible! I was not eating right, maybe once a day, drinking coke like crazy, no water, definitely not taking vitamins and having a couple brewskies at night with that one meal. BAD,BAD,BAD I KNOW. And have u ever had an anemia problem? Now, dear, what could u possibly be allergic to? hmmm chasity Ask a question on any topic and get answers from real people. Go to Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 I also went to an allergist. They said I am allergic to dust mites and grass. From: dammitgrl2001 <dammitgrl2001>Subject: Re: Test Resultsbird mitesDate: Wednesday, January 14, 2009, 7:17 AM >> I went to the doctor last week to get a full blood work done. > Everything was working properly and all levels of whatever in my body> were fine. They said the only thing that was bad was I had high> cholesterol of 220 and a high "nonspecific allergy test". Allergic> reaction to what? There is nothing going on in my life that could be> causing it to produce high levels of histamines.>HI AMANDA, HOPE U DONT MIND ME ASKING...HAVE U BEEN TAKING A GOOD MULTI VITAMIN LATELY? SINCE REALIZING WHAT IS GOING ON? I know if I were to get tested now, my numbers would be good BUT when this 'mitetruck' hit my ass, those would have been terrible! I was not eating right, maybe once a day, drinking coke like crazy, no water, definitely not taking vitamins and having a couple brewskies at night with that one meal. BAD,BAD,BAD I KNOW. And have u ever had an anemia problem? Now, dear, what could u possibly be allergic to? hmmm chasity Ask a question on any topic and get answers from real people. Go to Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Tommy - I've been sleeping on mine every night for a year! I do know that my body temp rises at night when I sleep on it, but don't know if the effect carries over. FarInfrared has powerful detoxifying effects, and I am hoping that my system has cleared enough to allowing it to function more properly. Bessie ps - it's not too " comfy! " > > > > > > I went to the doctor last week to get a full blood work done. > > > Everything was working properly and all levels of whatever in my body > > > were fine. They said the only thing that was bad was I had high > > > cholesterol of 220 and a high " nonspecific allergy test " . Allergic > > > reaction to what? There is nothing going on in my life that could be > > > causing it to produce high levels of histamines. > > > > > HI AMANDA, HOPE U DONT MIND ME ASKING...HAVE U BEEN TAKING A GOOD MULTI > > VITAMIN LATELY? SINCE REALIZING WHAT IS GOING ON? I know if I were to get tested now, > > my numbers would be good BUT when this 'mitetruck' hit my ass, those would have been > > terrible! I was not eating right, maybe once a day, drinking coke like crazy, no water, > > definitely not taking vitamins and having a couple brewskies at night with that one meal. > > BAD,BAD,BAD I KNOW. And have u ever had an anemia problem? Now, dear, what could u > > possibly be allergic to? hmmm chasity > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 Your Primary Care should be able to handle it and we can help him.I don't recall if you have a family Hx of HTN and low K?Do you have exact numbers to add to our data base?On Jun 16, 2009, at 3:44 PM, Bindner wrote: I did not suppress Aldosterone in salt suppression test, so I do have Primary Aldosteronism (goodbye salt, hello Spiro (have not had discussion on meds yet with doctor, not sure if this should be with Endo or Primary Care)). Scheduled for a CT on June 25. Barium down the hatch. More will be revealed. Bindner Quote Link to comment Share on other sites More sharing options...
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