Re: Mums thyroid consult tomorrow input needed.

[Guest guest]

Hello 2 (we have other 's)

We are due to go up to the hospital tomorrow. My mum has not

been feeling well at all, her temperature varies a lot. (Just read about

charting temp, had no idea!) She has lost the confidence to drive. We

have always been emotional but she has become hypersensitive - all I have put

down to thyroid. She initially lost a lot of weight, lately has gained, had a

craving for whole tubs of ice cream. She has also had IBS symptoms. We

have asked about changing diet the consultant said no point. (Hmm!)

Could be that she is suffering with Candida. She needs to get

tested for this, because Candida Albicans lines the gut and thyroid hormone replacement

cannot be properly absorbed until this has been treated. Craving sweet stuff is

a big symptom. Go to our FILES section of this forum thyroid treatment/files/

and scroll down to the CANDIDA Folder. Read all the information about it there

and see how it is treated and how important diet is. Also, she may be

gluten intolerant as many Hashimoto's sufferers are, and your Mum obviously has

antibodies to her thyroid, as probably you have too.

She has never been offered a 24 hour urine test.

Are you talking here about the 24 hour adrenal test?

Shes been taking a drug beginning with C - will find

details of needed.

Was this Carbimazole?

I am searching your website but what I want to know is

what do we need to ask tomorrow, before she had the last radioactive iodine

treatment we were told her levels are now normal, but that she should have the

treatment as she will be on the drugs for her whole life, but this way she can

just be on hormones - which have been tested as safer for longer use!

First thing you need to do is to ask exactly what her thyroid

function test results were and you should also get the reference range for each

of the tests done and post them here. Doctors have a habit of telling patients

their blood tests are " normal " just because their results ARE within

the reference range, but we need to know whether they are at the bottom, the

middle or the top of the range. This REALLY MATTERS! Has your Mum now become

hyPOThyroid, rather than hyPERthyroid?

I am cynical at all of what they have suggested by the

consultant as I am support people who have had bad experiences with the NHS but

through maternity/ breastfeeding, so this is not my area of expertise at all.

We would be happier of mum was well but she is feeling ill, spending a lot of

time in bed.

Tell us what symptoms she is suffering. Take her basal

temperature for four or five mornings before she gets out of bed and before she

has anything to eat or drink and let us have these. What signs is she showing

(check the symptoms and signs of hypothyroidism in our web site www.tpa-uk.org.uk under 'Hypothyroidism'.

She needs to ask for TSH, free T4, free T3 and TPO and TgAb

(antibodies). She also needs to have her levels of iron, transferrin

saturation%, ferritin, vitamin B123, vitamin D3, magnesium, folate, copper and

zinc tested to see whether any of these are low in the range. If they are, they

will need to be supplemented in order that thyroid hormone can work. Again,

when you get these results, post them here with the reference range.

Lately she is having high blood pressure too and a

headache she describes as like a band around her head. Last time we saw the

consultant he said she would probably have to take blood pressure tablets for the

rest of her life and to see GP about getting this. She took them for

2 weeks, got the headaches again, GP put her back on them, but he isn't happy

at the consultant and says he is going to ring them.

BP tablets are notorious for causing problems. Your Mum might

want to try the natural route, and Mukta Vati comes highly recommended http://www.muktavati.com/muktavati_herbal_remedy_for_hypertension.html

.. Also, high dose Niacin (vitamin B3) around 350mgs daily (the flushing

variety) and CoEnzymeQ10 300mgs daily. All of these are natural and will cause

her no harm at all.

Sorry this is so long, what do we need to ask tomorrow?

I apologise for only getting to your message just now, which is

probably too late for the appointment, but even so, ask her to ask her GP to do

these tests, because I very much doubt the endocrinologist will have requested

them.

Hope this helps.

Luv - Sheila

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[Guest guest]

Thank you, my dad got tha date wrong and so they are going tomorrow, she does not want me to go with her so I have made them into a few questions for her to ask, you never know she may agree for me to go? - Her confidence levels vary, as do emotions..

 Thank you so much I will get back to you, also seen in your list of good docs that we have one near us, we may be consulting him!! It was Carbimazole she was on. 

Thank you thank you x x x x x  2 x x x x

 

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[Guest guest]

My mum who I posted about a few weeks ago finally got some answer to some of the questions which you suggested she ask her consultant. Apparently he sat up and took notice and asked what I did for a living when handed the sheet with your queries on! He has since sent a letter to her GP CC to my mum , I OCR scanned it so sorry some of it went a bit weird! This is what it says:

Diagnoses: Thyrotoxicosis requiring 2nd dose of radioactive iodine treatment in Jan 2012. Medications: Amlodipine 5mg daily. Propanol 80 mg od - to be gradullay weaned down and stopped.

Off Carmimazole treatment. Results 28.2.12 TSH 0.58 mU/L Cholesterol 6.0 mmoI/L Mrs # was reviewed in the endocrine clinic today. She remains well in herself except for feeling increasingly tired more recently. She had a second dose of radio-iodine in January 2012 and the most recent TFTs show that she is biochemically euthyroid. She is also clinically euthyroid. There is always a chance that she could become hypothyroid or the second dose of radio-iodine may not have worked and we will have to wait and see what her thyroid function tests are like in a few weeks' time.

She brought along a list of questions from her daughter and, as mentioned earlier, the TFTs show that the TSH is within the reference range and she is now euthyroid. As the TSH was normal, the free T4 and T3 levels were not done.

I have arranged for the following tests.

1) 1 have requested repeat blood tests including haematinics and vitamin D profile.

2) 1 have requested TPO antibodies and the results will be appended to this letter.

3) 1 have given her blood forms for repeat TFTs before her next clinic appointment in 6 to 8 weeks' time.

4) The daughter had requested for trace elements to be measured but I doubt whether we could do this through the lab as an indication for thyroid disease and therefore I think it would be more appropriate, if it is essential in the future, for this to be done through the practice.

She will be reviewed again 6 to 8 weeks' time with repeat blood tests beforehand.

 

PTH 9. 09 pmoI/L (0 - 6.4)

Serum B12 444 pg/ml (200-900)

Serum Folate 7.7 ng/ml (3-12)

Ferritin 55 ng/ml (10-300)

Transferrin 3.23 g/L (1.68-3.36)

Serum iron 17 umol/L (10-25)

Transferrin saturation 20.2 %

Anti TPO antibodies Negative

Vitamin D No results available

She has a cold currently, she feels a bit better she says but still has times where she has little energy, any comments or suggestions? Do you need to know more symptoms?

Thank you so much,

2 x x

 

  

 

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More results today Vit D3 profile low 28.9 nmol/L Vit D3 deficiency. He wants her to have 2 daily Calcichew d3 forte' any thoughts on this too? J x

On 28 March 2012 22:50, Jenn <jennifern7r@...> wrote:

My mum who I posted about a few weeks ago finally got some answer to some of the questions which you suggested she ask her consultant. Apparently he sat up and took notice and asked what I did for a living when handed the sheet with your queries on! He has since sent a letter to her GP CC to my mum , I OCR scanned it so sorry some of it went a bit weird! This is what it says:

Diagnoses: Thyrotoxicosis requiring 2nd dose of radioactive iodine treatment in Jan 2012. Medications: Amlodipine 5mg daily. Propanol 80 mg od - to be gradullay weaned down and stopped.

Off Carmimazole treatment. Results 28.2.12 TSH 0.58 mU/L Cholesterol 6.0 mmoI/L Mrs # was reviewed in the endocrine clinic today. She remains well in herself except for feeling increasingly tired more recently. She had a second dose of radio-iodine in January 2012 and the most recent TFTs show that she is biochemically euthyroid. She is also clinically euthyroid. There is always a chance that she could become hypothyroid or the second dose of radio-iodine may not have worked and we will have to wait and see what her thyroid function tests are like in a few weeks' time.

She brought along a list of questions from her daughter and, as mentioned earlier, the TFTs show that the TSH is within the reference range and she is now euthyroid. As the TSH was normal, the free T4 and T3 levels were not done.

I have arranged for the following tests.

1) 1 have requested repeat blood tests including haematinics and vitamin D profile.

2) 1 have requested TPO antibodies and the results will be appended to this letter.

3) 1 have given her blood forms for repeat TFTs before her next clinic appointment in 6 to 8 weeks' time.

4) The daughter had requested for trace elements to be measured but I doubt whether we could do this through the lab as an indication for thyroid disease and therefore I think it would be more appropriate, if it is essential in the future, for this to be done through the practice.

She will be reviewed again 6 to 8 weeks' time with repeat blood tests beforehand.

 

PTH 9. 09 pmoI/L (0 - 6.4)

Serum B12 444 pg/ml (200-900)

Serum Folate 7.7 ng/ml (3-12)

Ferritin 55 ng/ml (10-300)

Transferrin 3.23 g/L (1.68-3.36)

Serum iron 17 umol/L (10-25)

Transferrin saturation 20.2 %

Anti TPO antibodies Negative

Vitamin D No results available

She has a cold currently, she feels a bit better she says but still has times where she has little energy, any comments or suggestions? Do you need to know more symptoms?

Thank you so much,

2 x x

 

  

 

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