New member

[Guest guest]

Joanne,

First take a deep breath. You are just starting week 9? Many women

say they didn't see their biggest changes until about where you are,

so there could be a wonderful surprise in store for you over the next

four weeks (someone on here once say that " one day...whooossh! the

fat was gone! " )

I agree with the others that you need to look at your free day, if

you are really going wild on free day it can effect your efforts. Are

you drinking at all? Alcohol does more than give you empty carbs,

there is some evidence that a moderate consupmption of alcohol can

slow your fat burning for DAYS afterward (check out

http://www.ivillage.com/diet/experts/askdiet/articles/0,5050,76126,00.

html for more info.)

In your posts you said something that puzzle me. First you say that

your cloths are not fitting any differently, and then you say that

you've lost inches. Hmmm....any chance that skirt from last summer

would not have fit you at all in April? I know that my weight gains

sneek up on me, before I know it I have no cloths to wear at the

change of seasons.

You say that your BF tells you that he can see the changes, but you

cannnot. You took before pics, right? Have you taken any progress

pics? If not, do so. Once you get them back, have your BF take the

pictures and cover the faces. Once he's done that take a good look

at them. I'll bet you see all sorts of changes that you have not

noticed in the mirror.

Last I would look at your menue. It is possible to be absolutely sure

that you are sticking with BFL nutrition to the letter, but still

there are places that can be improved. Are you doing palm/fist?

Perhaps you need to be calibrated (I can never tell if something is

the size of my fist.) Perhaps you are having lots of procecced carbs

(breads and pastas), and it is not working for you (some of us find

that really sticking with whole grains and fruits for carbs works

better.) So, as someone else asked, give us a couple of days menues

to go by.

I truely believe that this program works for everyone. For me it is

plain old logic. If you have a bucket with a hole in it, and the

hole lets out water at a faster pace than you are filling it, the

water level goes down. If you are consistently creating a caloric

deficit, the fat has to go away.

Alys

[Guest guest]

Hi Joanne - first of all congrats on losing a few inches! That's no small feat.

I'll take your word for it that you are eating and working out correctly ...

after all even your husband notices a change in your body!

How overboard are you going on Sundays? Sometimes that alone can change

someone's results and keep them from getting the ones they should be getting.

Try a free meal that day instead of a whole day. And give us an example of

exactly what you are eating in a regular day.

Don't give up! BFL RULES and you WILL see results - maybe not in 12 weeks but

you will see a change.

Rita

New Member

Hello All,

I am a new member to this group. I am beginning the 9th week of the

challenge and I am totally discouraged. I am 5 " 10 and weigh about 166

lbs. Last week I weighed 164..My BF is doing this w/me. He started

before me. he has been working out his entire life, and has always

been in great shape. I on the other hand have been struggling w/10-15

lbs for over 10 years. I feel so discouraged and upset right now. I

feel like this is all for not. My clothes are not fitting differently

at all!!! I am working my butt off and I am restricting everything. I

cannot get past the same weight I was when I was drinking every night

and eating apps. I started the challenge at about 170 and I never

checked my bodyfat% until I was about 6 weeks in and I have 25%

bodyfat. I feel like this is never going to get me the results I

want.I feel like joining some commercial weight loss plan to get this

10-15 lbs. off me. My BF has been complimenting me all the way

through and saying how my body is changing etc. I have lost some

inches but I am just so discouraged....My skirt from last summer is

still tight just like it was and I have been busting butt for 8

weeks. Last summer I may have done cardio 3-4 times a week for 30

minutes that's it, and I drank almost evry night. What can I do. I am

positive I am eating, and working out correctly. The only thing I may

have done is gone a little overboard on Sundays but that is stopping

as of this week. Please give me any advice or suggestions you may

have ...Thank you!

[Guest guest]

There ya go!!!

Rita

Re: New Member

> > Hello All,

> > I am a new member to this group. I am beginning the 9th week of

> the

> > challenge and I am totally discouraged. I am 5 " 10 and weigh about

> 166

> > lbs. Last week I weighed 164..My BF is doing this w/me. He

started

> > before me. he has been working out his entire life, and has

always

> > been in great shape. I on the other hand have been struggling

w/10-

> 15

> > lbs for over 10 years. I feel so discouraged and upset right now.

I

> > feel like this is all for not. My clothes are not fitting

> differently

> > at all!!! I am working my butt off and I am restricting

everything.

> I

> > cannot get past the same weight I was when I was drinking every

> night

> > and eating apps. I started the challenge at about 170 and I never

> > checked my bodyfat% until I was about 6 weeks in and I have 25%

> > bodyfat. I feel like this is never going to get me the results I

> > want.I feel like joining some commercial weight loss plan to get

> this

> > 10-15 lbs. off me. My BF has been complimenting me all the way

> > through and saying how my body is changing etc. I have lost some

> > inches but I am just so discouraged....My skirt from last summer

is

> > still tight just like it was and I have been busting butt for 8

> > weeks. Last summer I may have done cardio 3-4 times a week for 30

> > minutes that's it, and I drank almost evry night. What can I do.

I

> am

> > positive I am eating, and working out correctly. The only thing I

> may

> > have done is gone a little overboard on Sundays but that is

> stopping

> > as of this week. Please give me any advice or suggestions you may

> > have ...Thank you!

>

>

>

[Guest guest]

That was such an awesome response. Thank you sooo much for taking the

time for that. No, I have not been drinking which was a mojor step

for me to give this up. All I mean is wine w/the girls, a margarita

here a few beers there. I used to socialize frequently and that

always included social drinks. Now, I have completely cut this out

except on free day and ,may be a beer or glass of wine on Sat. night.

So, it's not that. I do not eat any processed carbs. I eat brown

rice, veggies, fruits, and whole grain bread or crackers once in a

while...Oh- also a potatoe here and there. I am very careful about

this. My meals go like this...

1.Myolplex lite shake

2.ff yogurt, cottage cheese (light n lively single serv)

3.can tuna, apple

4.myoplex EAS advantedge bar

5.Chicken, fish(Whichever) May be brown rice, veggies, salad or

potatoe

I may sometimes later have a little more chicken and some

almonds...or peanutbutter on a whole grain ry-vita cracker and some

almonds..I also take 2 tbsps. of flax oil a day and various vitamins.

Of course my menu does vary but this is basically it during the week.

I also will add 2 tbsp. of ground flax seed to my yogurt when I

remember. Sometimes I do feel thinner than other days but, no the

clothes are right about the same...Nothing is hanging or really

loose. I do have progress pics I need to develop. I am really

motivated fro these last 4 weeks, and then to do CH.2 and keep this

for life. I really appreciate your time, and helpful ideas, and

suggestions thanks also for that link I always wondered the truth

about alscohol and weight loss.

> Joanne,

>

> First take a deep breath. You are just starting week 9? Many

women

> say they didn't see their biggest changes until about where you

are,

> so there could be a wonderful surprise in store for you over the

next

> four weeks (someone on here once say that " one day...whooossh! the

> fat was gone! " )

>

> I agree with the others that you need to look at your free day, if

> you are really going wild on free day it can effect your efforts.

Are

> you drinking at all? Alcohol does more than give you empty carbs,

> there is some evidence that a moderate consupmption of alcohol can

> slow your fat burning for DAYS afterward (check out

>

http://www.ivillage.com/diet/experts/askdiet/articles/0,5050,76126,00.

> html for more info.)

>

> In your posts you said something that puzzle me. First you say that

> your cloths are not fitting any differently, and then you say that

> you've lost inches. Hmmm....any chance that skirt from last summer

> would not have fit you at all in April? I know that my weight

gains

> sneek up on me, before I know it I have no cloths to wear at the

> change of seasons.

>

> You say that your BF tells you that he can see the changes, but you

> cannnot. You took before pics, right? Have you taken any progress

> pics? If not, do so. Once you get them back, have your BF take

the

> pictures and cover the faces. Once he's done that take a good look

> at them. I'll bet you see all sorts of changes that you have not

> noticed in the mirror.

>

> Last I would look at your menue. It is possible to be absolutely

sure

> that you are sticking with BFL nutrition to the letter, but still

> there are places that can be improved. Are you doing palm/fist?

> Perhaps you need to be calibrated (I can never tell if something is

> the size of my fist.) Perhaps you are having lots of procecced

carbs

> (breads and pastas), and it is not working for you (some of us find

> that really sticking with whole grains and fruits for carbs works

> better.) So, as someone else asked, give us a couple of days

menues

> to go by.

>

> I truely believe that this program works for everyone. For me it is

> plain old logic. If you have a bucket with a hole in it, and the

> hole lets out water at a faster pace than you are filling it, the

> water level goes down. If you are consistently creating a caloric

> deficit, the fat has to go away.

>

> Alys

[Guest guest]

Joanne:

I too was a social drinker. My husband is a big beer drinker. It is an every

weekend thing. Occasionally we like to go out to a restaurant bar type place to

eat and I used to drink then. But since BFL I have stopped completely. I know

there may be a time when I will want a beer or glass of wine even on a free day

but I am striving to do this whole 12 weeks without any alcohol.

I think that even on a free day it's not good. I know that does not go with the

food stuff, eat all the chocolate you want but don't drink a beer. But I have

been reading allot on these body building web sites. One good one is

www.bodybuilding.com and there is a guy who writes articles on there that

addresses this very issue because he just started college and that is the

biggest party there is 24/7. I can't think of his name right now but you should

check out that site. It is pretty good and that is what helped me decide to try

and not drink the next 12 weeks.

Noelle

Re: New Member

That was such an awesome response. Thank you sooo much for taking the

time for that. No, I have not been drinking which was a mojor step

for me to give this up. All I mean is wine w/the girls, a margarita

here a few beers there. I used to socialize frequently and that

always included social drinks. Now, I have completely cut this out

except on free day and ,may be a beer or glass of wine on Sat. night.

So, it's not that. I do not eat any processed carbs. I eat brown

rice, veggies, fruits, and whole grain bread or crackers once in a

while...Oh- also a potatoe here and there. I am very careful about

this. My meals go like this...

1.Myolplex lite shake

2.ff yogurt, cottage cheese (light n lively single serv)

3.can tuna, apple

4.myoplex EAS advantedge bar

5.Chicken, fish(Whichever) May be brown rice, veggies, salad or

potatoe

I may sometimes later have a little more chicken and some

almonds...or peanutbutter on a whole grain ry-vita cracker and some

almonds..I also take 2 tbsps. of flax oil a day and various vitamins.

Of course my menu does vary but this is basically it during the week.

I also will add 2 tbsp. of ground flax seed to my yogurt when I

remember. Sometimes I do feel thinner than other days but, no the

clothes are right about the same...Nothing is hanging or really

loose. I do have progress pics I need to develop. I am really

motivated fro these last 4 weeks, and then to do CH.2 and keep this

for life. I really appreciate your time, and helpful ideas, and

suggestions thanks also for that link I always wondered the truth

about alscohol and weight loss.

> Joanne,

>

> First take a deep breath. You are just starting week 9? Many

women

> say they didn't see their biggest changes until about where you

are,

> so there could be a wonderful surprise in store for you over the

next

> four weeks (someone on here once say that " one day...whooossh! the

> fat was gone! " )

>

> I agree with the others that you need to look at your free day, if

> you are really going wild on free day it can effect your efforts.

Are

> you drinking at all? Alcohol does more than give you empty carbs,

> there is some evidence that a moderate consupmption of alcohol can

> slow your fat burning for DAYS afterward (check out

>

http://www.ivillage.com/diet/experts/askdiet/articles/0,5050,76126,00.

> html for more info.)

>

> In your posts you said something that puzzle me. First you say that

> your cloths are not fitting any differently, and then you say that

> you've lost inches. Hmmm....any chance that skirt from last summer

> would not have fit you at all in April? I know that my weight

gains

> sneek up on me, before I know it I have no cloths to wear at the

> change of seasons.

>

> You say that your BF tells you that he can see the changes, but you

> cannnot. You took before pics, right? Have you taken any progress

> pics? If not, do so. Once you get them back, have your BF take

the

> pictures and cover the faces. Once he's done that take a good look

> at them. I'll bet you see all sorts of changes that you have not

> noticed in the mirror.

>

> Last I would look at your menue. It is possible to be absolutely

sure

> that you are sticking with BFL nutrition to the letter, but still

> there are places that can be improved. Are you doing palm/fist?

> Perhaps you need to be calibrated (I can never tell if something is

> the size of my fist.) Perhaps you are having lots of procecced

carbs

> (breads and pastas), and it is not working for you (some of us find

> that really sticking with whole grains and fruits for carbs works

> better.) So, as someone else asked, give us a couple of days

menues

> to go by.

>

> I truely believe that this program works for everyone. For me it is

> plain old logic. If you have a bucket with a hole in it, and the

> hole lets out water at a faster pace than you are filling it, the

> water level goes down. If you are consistently creating a caloric

> deficit, the fat has to go away.

>

> Alys

[Guest guest]

Joanne, read this:

" I used to socialize frequently and that always included social

drinks. Now, I have completely cut this out except on free day

and ,may be a beer or glass of wine on Sat. night. "

So you are drinking, on free day and occassionaly on Saturday night.

Even moderate drinking can lead to slowing the fat burning process.

Your liver is highly involved in metabolizing fat, but when you take

a drink of booze it has to switch to getting rid of the toxin you

have just ingested. Fat burning comes to a screeching hault. I know

that some women say they have the occassional drink and don't have a

problem with it, but you are looking for trouble spots and this is

one of them. I know that Bill says the occassional glass of wine is

okay, and I guess if you have 8% body fat it is... but that ain't me,

and I'm guessing it is not you either.

It was hard for me to cut out booze too, not that I had a drinking

problem, but it is a big part of how we socialize. However, I had to

decide what was more important to me, getting this fat off, or asking

my friends to understand my possition. My friends have been very

proud of me, by the way. Your's will be too.

Alys

[Guest guest]

Bev, welcome to the "A" Group. I too am a senior citizen

and live in Alabama. I have been seeing a Gastroenterologist

at UAB in Birmingham. I would be interested to know what

surgeon you are seeing in Atlanta and would very much like

to hear from you after your visit and surgery if you have it

there.

I have had two Botox shots which were unsuccessful and

a dilatation which has been successful for 9 months but I

am beginning to have difficulty swallowing again. I have not

talked to a surgeon yet and am not sure if there is one with experience in doing the Myotomy in Birmingham. Atlanta

would be just as convenient for me. Would you please let me

know what you think after you have your appointment. Feel

free to write me directly.

I am sorry you have this horrible disease, but glad you have

found the group. You will get a lot of support and important

information here.

Magg

[Guest guest]

Hey Bev,

Welcome! This is a great group. Read some of the archives and you will get

lots of answers. Also if you go to files some of us have posted our

stories. Tanja has posted her surgery report which is a BIG HUGE blessing to

us all.

Were here for you!

JC

New Member

> Hi everyone. So nice to have someone to write to that can share some

> of the problems we have with achalasia. All these years I thought I

> had a hiatal hernia only to find out that it is achalasia. I had

> never heard of this disease until now. After a barium swallow, two

> manomatry's,( the first one didn't work as they couldn't get the tube

> down),and a eating a horrible scrambled egg, I was diagnosed with

> this. Kind of scary.I am a 65 year old female and working full

> time in an office.

>

> I have a doctor's appointment on July 2nd. in Atlanta to discuss

> surgery. I hope we can be friends. I will need them and hope you do

> too. Since I have had six c-sections and one total hysterectomy in

> the past, surgery is not exciting for me anymore. Thanks, Bev.

>

>

>

>

>

>

[Guest guest]

Dear Magg:

I would be happy to let you know what happens when I go see Dr. at Emory. My gastroenterologist recommended him. I will keep in touch with you and sorry you have this miserable disease too. I opted to not have Botox or dilation because I knew it was a short term fix. I am in it for the long haul. Bev.

[Guest guest]

Thank you so much. Good to hear from you. I will keep you posted on my outcome. Bev.

[Guest guest]

Hi ,

Thanks for the encouragement. I needed it as I am getting older and for the first time in my life, surgery scares me. Your letter helped so much. Great to hear from you and I will indeed let you know when the surgery takes place. My boss said I can't have it in July as we have inventory. It will probably be in August. I am so happy to hear that you are doing so well. Your right, this should be a piece of cake for me now. I don't go anywhere without water like you do. I have done that for years and years. I should be water logged by now. It's good for us anyway. I remember the first time the pain hit my years ago. I was driving the car and I could hardly drive the pain was so bad. I pulled off and bought something to drink. You never forget the first time, that's for sure.

Take care and thanks ever so much for writing. You made my day. Bev.

[Guest guest]

Hi Bev, and welcome!

I too decided to go for the " inevitable " first, and I have had great

results from my surgery. As to your comment about your hysterectomy and C

sections...if you have no complications, this surgery is a CAKEWALK compared to

your other ones. I woke up with not even a sore throat, had some discomfort

whenever I moved, but not bad, and was able to walk out of the hospital the next

day. For four days, I just laid around and watched movies, read books (what a

luxury!), talked to friends, and did some artwork. It was WONDERFUL to be off

work for a while and not feel horrible, as I did with my other surgeries. I

totally enjoyed my recuperation period, and had to remember to sound worse than

I felt when I talked to people at work so as to not have them thinking I needed

to be back too soon! NO KIDDING! It's different for everyone, but if you don't

have any problems, it's so easy to get over this one. It's been over six months

for me now, and I often forget that I have " A " . The only time I remember is if I

eat too much without drinking anything. But the gallons of water it used to

take me to " process " food are no longer necessary. I was hoping to give up the

waterbottle that went everywhere I go, but I still have it. Occasionally I get

a spasm and it is the only way to stop it for me. If I am somewhere with no

water quickly available, I get sort of panicky if I feel the slightest twinge,

so I always make sure I have water in my purse. Funny, I don't buy purses very

often, and I just bought a new one. THe major criteria was...will it be big

enough for a squirt bottle? Who'd a thunk? When is your surgery? Be sure and

let us know your day so you'll have lots of prayers and good vibes going along

with you. On the day of my surgery I felt like I had all of this group with me

in the operating room. It was amazing.

in Houston

> Hi everyone. So nice to have someone to write to that can share some

> of the problems we have with achalasia. All these years I thought I

> had a hiatal hernia only to find out that it is achalasia. I had

> never heard of this disease until now. After a barium swallow, two

> manomatry's,( the first one didn't work as they couldn't get the tube

> down),and a eating a horrible scrambled egg, I was diagnosed with

> this. Kind of scary.I am a 65 year old female and working full

> time in an office.

>

> I have a doctor's appointment on July 2nd. in Atlanta to discuss

> surgery. I hope we can be friends. I will need them and hope you do

> too. Since I have had six c-sections and one total hysterectomy in

> the past, surgery is not exciting for me anymore. Thanks, Bev.

[Guest guest]

Hi there Bev, this is a great place for moral support and

information. It's so amazing when you first are diagnosed, and

absolutely no one you know has ever heard of it, and can not

understand it, to come here and read all those symptoms you were

beginning to wonder were in your head, are real. After my recent

round of hospital visits, I think I explained Achalasia to 6

ambulance attendants, 3 doctors, and I can't even remember how many

nurses, lab techs etc. none of them had heard of it. One of them

tried to tell me " achalasia just means you can't swallow, it's not a

disease. " I began to think I should print out the article that's

linked to here and have copies ready to hand out!! lol I'll be going

to see my A dr. on July 8th, I need to have the myotomy done, 6

dilatations have been completely unsuccessful. Janet -

-- In achalasia@y..., " tedbevboo " <tedbevboo@a...> wrote:

> Hi everyone. So nice to have someone to write to that can share

some

> of the problems we have with achalasia. All these years I thought I

> had a hiatal hernia only to find out that it is achalasia. I had

> never heard of this disease until now. After a barium swallow, two

> manomatry's,( the first one didn't work as they couldn't get the

tube

> down),and a eating a horrible scrambled egg, I was diagnosed with

> this. Kind of scary.I am a 65 year old female and working full

> time in an office.

>

> I have a doctor's appointment on July 2nd. in Atlanta to discuss

> surgery. I hope we can be friends. I will need them and hope you do

> too. Since I have had six c-sections and one total hysterectomy in

> the past, surgery is not exciting for me anymore. Thanks, Bev.

[Guest guest]

Hi ...welcome to the group. Lexington, what a beautiful place.

Christie

*Momi* of Sara 9, Sabaa 6, Alia 5, Hana 3 mos (DS/AV Canal Defect

scheduled to be repaired July 31st) and Lily the cat!!!

On Fri, 28 Jun 2002 09:05:11 -0400 " Brewer " <wkbx@...>

writes:

>

> Hi group. I am a new member from Lexington, Kentucky. My daughter

> is 4

> 1/2 with Down Syndrome. I am looking forward to learning more from

> the group

> and sharing with some other families.

> 's Dad ()

> wktitan@...

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger:

> http://messenger.msn.com

>

>

>

[Guest guest]

Does she have small cell or non-small cell lung cancer?

[Guest guest]

I believe it is not small cell. She starts Chemo on the 15th.

> Does she have small cell or non-small cell lung cancer?

>

>

>

[Guest guest]

,

Although it is not an alternative treatment, the investigational drug Iressa is

very promising for non-small-cell lung cancer. It is not a chemotherapy, but

there may be clinical trials combining it with chemotherapy. It affects a

growth factor and has minimal side effects. There is also an expanded access

program, but it may be available only after chemotherapy or instead of

chemotherapy. I would strongly encourage looking into it before starting chemo.

Cheryl

shidacresteds wrote:Hello all,

My sister has very recently been diagnosed with lung cancer that has

now spread to her brain. Sha has always been a heath food / organic

food advocate. She is very new to the internet and she asked if I

could help her find a good support / discussion list to help her find

alternative therapys. Is this a good list for this kind of

information? Can anyone recomend any other lists / groups? Any help

would be gratefully appreciated.

Young

California

Get HUGE info at http://www.cures for cancer.ws, and post your own links there.

Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by

visiting http://www.bobhurt.com/subunsub.mv

[Guest guest]

Helga,

I am glad to see you post. I was diagnosised with Achalasia at 17, I am now

40. I am still around too. I also had the op " the hard way " . These guys

have no idea how good they have it these days. Of course, nothing about

Achalasia is easy, but the treatments have improved soooooo much. I am glad

to have another " old timer " around.

JC

New member

Hi everyone,

I discovered this group a few days ago. Started reading the messages

and was amazed to see how many of us there are, and no real relief

anywhere.

I am a 58 year old woman, and my problems started when I was about 20

years old. It took about 5 years of chest pain and swallowing

troubles till they found I have Achalasia. I had 2 dilatations that

helped somewhwt for a few months, but finally I had the Heller op.

It was done the hard way (at that time there was no lap alternative),

and I am happy to say that it almost completely solved the swallowing

problem. Unfortunately I still have spasms all these years,

sometimes light ones but sometimes extremely painful, and all the

medications I tried didn't REALLY help. Lately I started using sub-

lingual Cordile (Isocardide), but I'm not yet sure if it helps or not.

Anyway, as you see I'm 30 years after the operation and still around

(hopefully for a long time), so don't despair.

B.t.w, I'm from Israel.

Greetings to you all,

Helga

[Guest guest]

Hi Helga and welcome. I hope you find the group useful. I am here

because my 5yo daughter has achalasia and I hope to understand more of

how she feels by hearing adults discuss their symptoms.

>B.t.w, I'm from Israel.

My husband is working in Israel at the moment. He stays in Caesarea but

works a short drive inland from there, from what I can gather.

Geography is not his strong point so he's not very good at telling me

much more than that. I gather the weather is pretty dry out there right

now (there, you can tell I'm a Brit - we are renowned for talking about

the weather!

--

Sue

mum to Steffi the Pomwi

[Guest guest]

Hi,

Do you still have these terrible chest pains? Does something really

help with them?

Thanks, Helga

> Helga,

> I am glad to see you post. I was diagnosised with Achalasia at

17, I am now

> 40. I am still around too. I also had the op " the hard way " .

These guys

> have no idea how good they have it these days. Of course, nothing

about

> Achalasia is easy, but the treatments have improved soooooo much.

I am glad

> to have another " old timer " around.

>

> JC

>

> New member

>

>

> Hi everyone,

> I discovered this group a few days ago. Started reading the

messages

> and was amazed to see how many of us there are, and no real relief

> anywhere.

> I am a 58 year old woman, and my problems started when I was about

20

> years old. It took about 5 years of chest pain and swallowing

> troubles till they found I have Achalasia. I had 2 dilatations

that

> helped somewhwt for a few months, but finally I had the Heller op.

> It was done the hard way (at that time there was no lap

alternative),

> and I am happy to say that it almost completely solved the

swallowing

> problem. Unfortunately I still have spasms all these years,

> sometimes light ones but sometimes extremely painful, and all the

> medications I tried didn't REALLY help. Lately I started using

sub-

> lingual Cordile (Isocardide), but I'm not yet sure if it helps or

not.

> Anyway, as you see I'm 30 years after the operation and still

around

> (hopefully for a long time), so don't despair.

> B.t.w, I'm from Israel.

> Greetings to you all,

> Helga

>

>

>

>

>

>

[Guest guest]

Hi,

Sorry to hear about your daughter. It's not an illness I would wish

to a child, but then what is?

About the things she feels, I know of 2 symptoms:

1) not being able to get your food down. As I remember it (it was 30

years ago) that wasn't painful, but very unconfortable, because in

the end every meal ended by being thrown up. I didn't get to the

point that I couldn't swallow anything at all, because I had

dilatations and the surgery before that. The dilatations didn't

help much, but the surgery about solved this problem.

2) Chest pains, sometimes mild, like something pressing from inside,

like something stuck in the throat. Not nice, but supportable.

Sometimes terrible, tearing you apart, I almost think worse than

giving birth! there at least you can get some help, and you know it

will be over in a little while. With these pains I still suffer,

and sometimes nothing helps, till they decide to go away.

I really hope your girl doesn't have these pains, because looking at

the postings I see that not many complain about them, so maybe you

can have A without them.

Anyway, I always carry a small bottle of water with me. This helps

getting the food down when eating, and many times it also helps when

I feel a spasm coming. I observed that if I drink some water

immediately, before it develops, I have a better chance of it

passing quickly. Also there are some foods that my esophagus likes

less than others. By example, I have problems with most fruits and

raw vegetables, so I avoid them, definitely not a healthy diet.

Hope your daughter doesn't feel too bad,

Helga

> Hi Helga and welcome. I hope you find the group useful. I am here

> because my 5yo daughter has achalasia and I hope to understand

more of

> how she feels by hearing adults discuss their symptoms.

>

> >B.t.w, I'm from Israel.

>

> My husband is working in Israel at the moment. He stays in

Caesarea but

> works a short drive inland from there, from what I can gather.

> Geography is not his strong point so he's not very good at telling

me

> much more than that. I gather the weather is pretty dry out there

right

> now (there, you can tell I'm a Brit - we are renowned for talking

about

> the weather!

>

> --

> Sue

> mum to Steffi the Pomwi

[Guest guest]

Hi,

Sorry to hear about your daughter. It's not an illness I would wish

to a child, but then what is?

About the things she feels, I know of 2 symptoms:

1) not being able to get your food down. As I remember it (it was 30

years ago) that wasn't painful, but very unconfortable, because in

the end every meal ended by being thrown up. I didn't get to the

point that I couldn't swallow anything at all, because I had

dilatations and the surgery before that. The dilatations didn't

help much, but the surgery about solved this problem.

2) Chest pains, sometimes mild, like something pressing from inside,

like something stuck in the throat. Not nice, but supportable.

Sometimes terrible, tearing you apart, I almost think worse than

giving birth! there at least you can get some help, and you know it

will be over in a little while. With these pains I still suffer,

and sometimes nothing helps, till they decide to go away.

I really hope your girl doesn't have these pains, because looking at

the postings I see that not many complain about them, so maybe you

can have A without them.

Anyway, I always carry a small bottle of water with me. This helps

getting the food down when eating, and many times it also helps when

I feel a spasm coming. I observed that if I drink some water

immediately, before it develops, I have a better chance of it

passing quickly. Also there are some foods that my esophagus likes

less than others. By example, I have problems with most fruits and

raw vegetables, so I avoid them, definitely not a healthy diet.

Hope your daughter doesn't feel too bad,

Helga

> Hi Helga and welcome. I hope you find the group useful. I am here

> because my 5yo daughter has achalasia and I hope to understand

more of

> how she feels by hearing adults discuss their symptoms.

>

> >B.t.w, I'm from Israel.

>

> My husband is working in Israel at the moment. He stays in

Caesarea but

> works a short drive inland from there, from what I can gather.

> Geography is not his strong point so he's not very good at telling

me

> much more than that. I gather the weather is pretty dry out there

right

> now (there, you can tell I'm a Brit - we are renowned for talking

about

> the weather!

>

> --

> Sue

> mum to Steffi the Pomwi

[Guest guest]

Thanks for your response Helga.

>I observed that if I drink some water

>immediately, before it develops, I have a better chance of it

>passing quickly.

My daughter has had an excellent week, this week. She has brought back

barely any food although in the preceding week it was around 50% of what

she ate and prompted me to go to the doctor and ask for some kind of

supplement (not that that is likely to be much use as when it's bad,

it's very, very bad, IYSWIM).

Unfortunately the only thing she is bringing back is water (not even

saliva, just the water). And she often has to cover her mouth with a

napkin as she waits for the food to disappear - she burps, maybe brings

up some water and then everything is fine.

As I said - a good week.

> Also there are some foods that my esophagus likes

>less than others. By example, I have problems with most fruits and

>raw vegetables, so I avoid them, definitely not a healthy diet.

We are harvesting tiny tomatoes from a trailing plant outside our house

at the moment. DD loves them and they are the first veg (fruit) she has

eaten for ages except satsumas. Actually both the satsumas and tomatoes

have really only been popular this 'good' week.

I am pleased to see, though, that she is not losing her taste for

healthy foods and is taking the opportunity when she can, to eat them.

>Hope your daughter doesn't feel too bad,

She's taking it all in her stride. I am very proud of the way she is

accepting her condition and I hope with all my heart that the surgery

(15 days and counting!) is going to help her no end.

I am always interested to hear of how others are coping. Who knows

which little tip might be the one we need today?

Best wishes,

--

Sue

mum to Steffi the Pomwi

[Guest guest]

My goodness Pattie, you've been though alot!

There is hope. There is a member of this group who is going to be

treated by Dr. Allan Dunn in Florida. Dr. Dunn has had success

treating knees such as yours (bone on bone) with injections of human

growth hormone. I've been in contact (via E-mail) with three of his

former patients, and they all have had good success. One went from

bone on bone to a 4mm space between the bones.

I guess the best thing to do is wait a month or so (its already been

40 years) until Chuck is finished with his treatments. At that

point, we'll all have an unbiased opinion of Dr. Dunn's treaments.

For more information on Dr. Dunn, see his website at:

http://www.iagh.com

Also, look back through some of the old posts for IAGH, HGH, Dr.

Dunn and things like that.

In the meantime, try to keep thinking positively. There are ways of

fixing up your knee and we'll help you find them.

Good luck to you,

Doug

> Hi my name is Pattie and I just joined the group.

> My knee problems go back to birth. I started surgery when I was

> 13 yrs old and have had at least 10 of them. Never with any real

> success just a cleaner knee joint. I have just turned 40 and have

> severe pain. It is chronic and radiated up my entire legs many

> nights I do not sleep. I have been on pain killers and

> anti-depressants for a long time. Mostly I walk with a cane,

> some days I can get around a little without it and some days I am

> unable to walk at all.

> I have a few questions for everyone.

> 1. Are many of you at the same stage as me?

> 2. Do we eventually progress to a wheel chair and just waste

> away?

> 3. Do any of you receive social security?

>

> I am unable to work, the pain of riding in a car and getting

around

> well enough to get to a bathroom etc make everything so difficult.

>

> I have been on DSHS which has helped me so much, now they

> are cutting all disabled people from the program. I have no way

> to bring money in. I have been a musician for a large part of my

> life but with pain and trouble consintrating it is too difficult

for

> me

> now. How do you all get be financially?

>

> I have grade 4 condromalacia.

> I look forward to being part of this group.

> Pattie Vail

[Guest guest]

Hi Hannah,

The same thing happened to me in June-the doctor first told me " Oh you just

sprained something " give it a few days and you should be fine. Well I gave it a

weekend and I wasn't fine. I had an MRI done and there are several things wrong

with my knee and also chondromalacia (I am 27 years old) so I was upset. Then

I joined this group which has alot of info..When I went back to the doctor he

gave me a prescription for Physical Therapy which I have started-it hurts but

the PT said that they have to strenghtn the muscles around the patella. May be

you should ask the doctor for an exercise program or PT and see if that helps ?

I am not sure since I have all of the other things wrong with me knee-but i do

know that my PT is for the chondromalacia.. Also my PT told me something

interesting-try not to sit with your knee bent all the time staighten it out. I

work with kids so I am sitting on the floor all of the time (indian style ) and

apparently this is a no no for me. I guess my suggestion is talk to your doctor

againd because it is not worth to be in that much pain for several days and not

know if there is anything you can do. The second time I went to the doctor he

listened and I am glad I complained about the pain-We are going to need our

knees for a loooooong time so I wanted to try something before it gets worse.

Sorry to ramble on....

Hope I helped..

Priscilla

hannah_k_lawrence wrote:Hi

I have had bad knees for a week now (13 July) last Thursday (17

July) I went to the doctor and he diagnosed chondromalacia

patellae. I had never heard of this before, and he gave me little

information. In these 7 days my mobility has been so reduced it is

a struggle to walk between rooms in my house, let alone go out. I

can recall a handful of occasions in my life (I'm 24) when I had

knee problems. Bad knees and joints (arthritis) run in my family. In

7 days I have gone from a little pain and swollen joints to being

virtually unable to walk at all. I have tubular bandages on both

knees which enables me to hobble, but every step and even sitting is

painful. Can anyone suggest anything?

Hannah