Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 At 11:13 PM 01/28/2003 -0000, you wrote: >WELL, IF, I was going to go the selective vaccination route, I would >not get Prevnar if I was nursing and my child was not in daycare. >And since Polio is not prevalalent, I would skip that one as well, >something a child can get later in life if internation travel is >called for. Hopefully, your ped will be flexible with this??? > >Excellent it is thimerosal free, but there are concerns at Aluminum >as an adjuvant as well. And then there is the whole - vaccination >interfering with immune system stuff - which I obviously agree with >at this point - after a long time of struggling with it, I might add. > >Ethan is 4.75 > is 3.25 >Jeanne is 9 mos > > THERE is NO guarantee that you can actually selectively vaccinate safely. I think people are greatly deceived if they think they can. I have seem damage, autism, or death from any vaccine - single, combo, live or killed. And an older age is not helpful. Please, please research. Sheri -------------------------------------------------------- Sheri Nakken, R.N., MA, Classical Homeopath Vaccination Information & Choice Network, Nevada City CA & Wales UK $$ Donations to help in the work - accepted by Paypal account vaccineinfo@... voicemail US 530-740-0561 (go to http://www.paypal.com) or by mail Vaccines - http://www.nccn.net/~wwithin/vaccine.htm Homeopathy course - http://www.nccn.net/~wwithin/homeo.htm ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. ****** " Just look at us. Everything is backwards; everything is upside down. Doctors destroy health, lawyers destroy justice, universities destroy knowledge, governments destroy freedom, the major media destroy information and religions destroy spirituality " .... Ellner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 Hi Christi, Welcome. You've come to the right place. Lots of good advise as well as a place to vent. Take it slo and easy the answers you are looking for will come. From one fairly new member to another this is the place to get the support you need. Good luck. Nancee, New Hampshire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 Dawn welcome. Some do deal a meal and some do foodmover. SAME theory. Check out richards message of the day. AND the other files listed at our sites for neat weight loss sites. NH Mommy to Abby Liz 10-25-94 Mommy to Anne 7-1-99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 Dawn, welcome! you are going to love these ladies! I just joined as well and they are all so supportive. ~dd -----Original Message-----From: Dawn [mailto:dmm316@...]Sent: Tuesday, March 11, 2003 2:22 PM100-plus Subject: New memberHi, my name is Dawn and I just joined. I have about 115 lbs. to lose and need support. I'm on my 3rd day on Deal a Meal program. To unsubscribe DO NOT send a message to the list.Please click on this link and unsubscribe:100-plus/join Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 > Hi, my name is Dawn and I just joined. Welcome, Dawn #2! Or maybe New Dawn? We *just* had our first " Dawn " join last week (but we have about 4 each of 's and 's). At least you each have different screen names so it should be fairly easy to keep you apart. >I have about 115 lbs. to lose and need support. You've come to the right place. All of here, with the exception of 1 or 2 (# counting who has hit goal) are at the same point you're at. I'm on my 3rd day on Deal a Meal > program. The old Deal A Meal cards? Great! It's the same program as the FoodMover but you carry a wallet of cards around instead of a plastic box. The info booklets are slightly different with each version, with new foods added, other foods removed. I still suggest you, and anyone else using the DAM cards or FoodMover gadgets, pick up a diabetic exchange book for the foods that aren't included in the info booklets. There's also a pretty good web site with exchange info: http://www.netusa1.net/~pater/foodlist.htm Also, stop by the Files and Links sections on our web site for loads of other goodies. Again, welcome. Sue in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Thanks for the warm welcome! I thought I'd tell a little more about myself. I'm 24 and live in Michigan. I've been on and off diets since I was 11. I've been on Weight Watchers, Slim Fast, Food Mover, and now Deal-A-Meal. My dad was recently diagnosed with type 2 diabetes and extremely high blood pressure and it really opened my eyes. I don't want that to happen to me in 20 years and I am more determined than ever to get this extra weight off once and for all. Like I mentioned before, I was on the Food Mover program a couple of years ago and lost 30 pounds. That was the most success I have ever had at losing weight. I eventually went back to my old ways of eating and ended up selling most of my food mover set (minus the 2 videos and cookbook which I still have) on eBay. When I decided to get back on track I decided to go for a similar program because I had a good experience in the past. I got a great deal on a Deal-A-Meal set on eBay and I also just purchased the Deal- A-Meal cd-rom on Auctions. The only problem I have is exercising regularly. In warm weather I love to walk, but in the winter I always have a problem motivating myself to do one of my videos or use my mini stepper. Sorry this is so long, just thought I'd let you all get to know me a little better. -Dawn (I think I'm Dawn #2, or should I go by my screen name to avoid confusion?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2003 Report Share Posted March 23, 2003 Hi Marie! Welcome to BFL for women. You'll get alot of incouragement here. I have. And you'll find out these ladies really know their stuff. They are doing the program to the letter and doing great! Good luck to you! Vikki > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 Welcome Marie. Robin from Little Rock, AR here. I'm just starting a challenge tomorrow. It's not my first challenge, but first one in a while. This board is great motivation. Good luck to you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 hi robin! i'm in little rock too! i started my challenge yesterday - it's really my second one - but the first one was sort of half-assed so i'm counting this as my first challenge. i'm really excited - looking forward to seeing my body change - finally! what's your story? - anna > Welcome Marie. Robin from Little Rock, AR here. I'm just starting a > challenge tomorrow. It's not my first challenge, but first one in a while. > This board is great motivation. Good luck to you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 what state are you from? Welcome. You are doing great. Keep it up. NH Mommy to Abby Liz 10-25-94 Mommy to Anne 7-1-99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 welcome! this is a great group!! My name is and I live on the East coast too. I am in NYS. Where are you? New member > Hi everyone, > > I am new to the group and thought I would introduce myself. I just > joined a bunch of groups, so if you have to read this more than > once, I appologize. > > My name is and I am 29 and on the East Coast. I have quite a > bit of weight to lose but I am on my way. I started out at 353 (my > highest weight) and have lost 60 pounds as of last week. I started > at Curves last year and then ended up tearing a muscle in my lower > abdomen in January (not at Curves by the way lol) and had to stop > for a while. So, for now all I can do is walk until I am healed, but > it helps a lot. > > I am not following one specific diet. It is more like a combination > of several. I do WW Points and try to eat as few carbs as possible. > I am one of those people who could probably eat steak my entire life > and not gain a pound but if I have one bite of the potatoes, I go up > a size! So, I threw out my salt shaker and have limited myself to > only two cans of Mt. Dew a week as opposed to up to a six pack a > day. That was hard, but it has really helped with the weight loss. > > The hardest part has been learning not to be a stress eater. In the > last 6 months I have lost my grandfather and my aunt, my mother had > to have heart surgery, I broke up with my fiance, I was laid off > from my job and then got the torn muscle injury. It has been insane. > I think the exercise helped to keep me from losing it to tell the > truth. > > Anyway, I just wanted to say Hi to you all. Good luck on your > journeys! > > > > > > To unsubscribe DO NOT send a message to the list.Please click on this link and unsubscribe: > 100-plus/join > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 > Hi everyone, Welcome, . >I started out at 353 (my > highest weight) and have lost 60 pounds as of last week. Looks like a good start. I started > at Curves last year and then ended up tearing a muscle in my lower > abdomen in January Ouch! I hope healing is going well for you. > It is more like a combination > of several. I do WW Points and try to eat as few carbs as possible. A lot of people combine either WW or the FoodMover with other plans. Portion control is very important to most people. > from my job and then got the torn muscle injury. It has been insane. To ay the least! A lesser person would have collapsed with the strain, but it looks like you;ve pulled yourself through in one piece. > I think the exercise helped to keep me from losing it to tell the > truth. Sometimes one needs to just turn their brain off and run on remote control for a while. And exercise *does* release those " feel good " endorphins to help take the edge off, too. Sue in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 Welcome it is good to have you with us. peace Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 I was born and raised in stown PA peace pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 ----- Original Message ----- From: " scarlet_hunter " <scarlet_hunter@...> > The hardest part has been learning not to be a stress eater. In the > last 6 months I have lost my grandfather and my aunt, my mother had > to have heart surgery, I broke up with my fiance, I was laid off > from my job and then got the torn muscle injury. It has been insane. > I think the exercise helped to keep me from losing it to tell the > truth. Sheesh , if you can lose 60 pounds through all that you are doing unbelievably well. Great job! Curves sounds like fun but I have a 3 year old who is only in preschool 2 days a week so it would be hard to fit it in. I told my dh that I want to join a gym (with childcare) for my 50 pound reward and he wholeheartedly agreed. I have 20 more pounds to go to get there. I've lost 30 but I've been stuck here since Jan. so I need to kick it up a notch and get moving! I just checked my insurance info (Aetna) because they have some health club discounts. Unfortunately none of the really convenient gyms are included. One that is a possibility has a $100 initiation fee even with the insurance discount. Sheesh. Does anyone go to Lady of America? As I get closer to the 50 pound mark I'll search more seriously. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 no i have no feet probs what is the other simtoms u are having i dont know what i have yet but the spero helped me with my b\p and gave me a lode of other pros. mark ps welcome to the sight New Member Hi everyone, my name is Fran and I have just joined the group. I can’t tell you how happy to find this group. I am 56 years old and live in Virginia (USA). I am single with no children. I have to apologize in the beginning because it is so long. I was (finally) diagnosed with hyperaldosteronism last October by a nephrologist. He ordered an MRI of my adrenal glands and said that he does not see a tumor so he started me on 25 mg Spironolactone. I have had high blood pressure since 1989 but it was easily controlled with a beta blocker and a diuretic. Then in the spring of 1998 my BP started going up gradually and nothing would help. In May, 2000 it suddenly jumped way up. I was finally put on nifedipine (calcium channel blocker) and it helped a lot but my BP was still much too high and I started having problems with my feet swelling. They were also hurting and feeling numb at the same time. I was taken off nifedipine and put on an something else but my BP went way up again so my doctor put me back on it. I am fortunate to have good insurance and I don’t need a referral to see a doctor. I changed my primary physician and also saw two cardiologists who did have a clue as to what was wrong, but had a lot of drugs to treat it. Most of them didn’t work and many of them sent my BP higher. I thought from the beginning that my BP might be hormone related but, unfortunately, I picked the wrong endocrinologist. He did a test to see if I had a tumor and it came back negative. He said that he couldn’t do any more tests because I was taking too many drugs. Finally I went back again last year to see if he could find any reason my BP was so high. Since I was off of the ACE Inhibitor, he did a renin-aldo test. He said that the renin and aldosterone weren’t balanced but he didn’t think it was a problem since they were both within normal limits. I asked if he thought I should see a kidney specialist and he said no. I blame him most of all because when I went to a new doctor, I told them that I had been to an endocrinologist and didn’t have a tumor. When I started seeing a new doctor, I always gave them a paper that I wrote listing all of the drugs I took and the results and side effects. I am very happy with the nephrologist I am seeing except that he is going very slow with Sprironolactone. Finally last week he increased it to 150 mg. My BP has been doing pretty good but there’s still room for improvement. It has been out of what I call the danger range since the first of the year. However while the BP is doing good, I have a lot of other problems and I wonder if they are related to hyperaldosteronism. Many of them started within a few months of when my BP first went real high. My biggest problem now is my feet. When I started taking the nifedipine, I started having a burning sensation in my hands and feet. I figured it was a side effect of the drug and just lived with it. Sometime later, I don’t know just when, I noticed that my feet hurt when I was on them for a couple of hours. Then they started swelling and my doctor took me off of nefidipine and put me on something else. After 2 or 3 weeks, my feet felt normal but my BP was way up again so I went back on the nefidipine. The burning started again shortly after I took the first pill then about a week later they started hurting really bad on the bottom. I hung in there until I retired the end of 2001. Then I wanted to do all the things I wanted to do but didn’t have the time to do. After going off nefidipine for good about a year ago, my feet gradually get a little better and then some doctor would give me something else that made them worse. I went to see a neurologist and she ran a bunch of tests and decided that even though I don’t have diabetes, I have diabetic neuropathy and that I must lose weight and exercise to avoid getting diabetes. When I went first went to the nephrologist, he did a bunch of tests including an A1C which tells the average blood sugar for the past 3 months. That was normal so I don’t see how I can be having this much pain from diabetes. I finally gave up with her and went to see another neurologist with more experience. He ran a bunch of tests and said that I have a neuropathy and since he can’t find anything wrong, he assumes it is diabetes. Everyone says that they are finding a lot of people with diabetic neuropathy years before they have diabetes. My new internist (who I only saw 4 times) jumped on that bandwagon right away. All he can do is lecture me to lose weight and exercise. Finally yesterday I went back to the internist that I was going to when all of this started. He said that he has friends who have neuropathy and they don’t have diabetes. I asked if they knew what caused it and he said no. He suggested that I go to a teaching hospital like s Hopkins. I have found some things on the internet that said hyperaldosteronism causes neuropathy but need to do more research. I am first going to try to e-mail someone at s Hopkins and see if anyone can help me. It is about 60+ miles away but there are other teaching hospitals closer so I may try there also. I need to find a neurologist who has experience with hyperaldosteronism. My feet start to get better and then someone gives me a drug that makes them worse again and I don’t know what is causing it. Since they all think it is diabetic neuropathy, I assume they wouldn’t give me a drug that would make it worse.. I think it is sodium related because the day after I started spiro I noticed that I could be on my feet longer. Then they improved again the day after I started 50 mg. I was getting to the point were I could go for a 20 walk and still get a few other things done when a neurologist prescribed Zoloft for hot flashes and the burning started again about an hour after I took the first (and last) pill. That is when I went to the second neurologist. By the time I saw him, they were getting a little better again and he prescribed Neurontin. I took it a couple of days and didn’t have any burning but the other pain was worse again. It feels like the balls of my feet are inflamed, but doctors say I don’t have an inflammation. That is why I went back to my original internest. Now, I can only stand on them for about 20 minutes. Does anyone else have pain and numbness in their feet?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Hi Fran, My name is and I live in TN. I had hyperaldostronism when I was a baby and now my three year old little girl does too. If I read your letters correctly your nephrologist was unable to find a tumor in your adrenals? Did he say what was causing your hyperaldostronism? Has he ever said anything to you about GRA or dexamethesone suppression? I know these are odd questions but this is what my daughters doctors tought she had for a while. It is a form of Hyperaldo. Please be careful taking in too much potassium. Drugs such as Spironolactone and Amiloride are potassium sparing drugs and if you also consume high potassium foods you can have too much. Too much means 6.5 or over and you will have a heart attack. Too little stroke, too much heart attack. If you have no tumor then something else is causing it. W. > > no i have no feet probs what is the other simtoms u are having i > dont know what i have yet but the spero helped me with my b\p and > gave me a lode of other pros. > > > > mark > > ps welcome to the sight > > New Member > > > > > > Hi everyone, my name is Fran and I have just joined the group. I > can't tell you how happy to find this group. I am 56 years old and > live in Virginia (USA). I am single with no children. I have to > apologize in the beginning because it is so long. I was (finally) > diagnosed with hyperaldosteronism last October by a nephrologist. He > ordered an MRI of my adrenal glands and said that he does not see a > tumor so he started me on 25 mg Spironolactone. I have had high blood > pressure since 1989 but it was easily controlled with a beta blocker > and a diuretic. Then in the spring of 1998 my BP started going up > gradually and nothing would help. In May, 2000 it suddenly jumped way > up. I was finally put on nifedipine (calcium channel blocker) and it > helped a lot but my BP was still much too high and I started having > problems with my feet swelling. They were also hurting and feeling > numb at the same time. I was taken off nifedipine and put on an > something else but my BP went way up again so my doctor put me back > on it. I am fortunate to have good insurance and I don't need a > referral to see a doctor. I changed my primary physician and also saw > two cardiologists who did have a clue as to what was wrong, but had a > lot of drugs to treat it. Most of them didn't work and many of them > sent my BP higher. I thought from the beginning that my BP might be > hormone related but, unfortunately, I picked the wrong > endocrinologist. He did a test to see if I had a tumor and it came > back negative. He said that he couldn't do any more tests because I > was taking too many drugs. Finally I went back again last year to see > if he could find any reason my BP was so high. Since I was off of the > ACE Inhibitor, he did a renin-aldo test. He said that the renin and > aldosterone weren't balanced but he didn't think it was a problem > since they were both within normal limits. I asked if he thought I > should see a kidney specialist and he said no. I blame him most of > all because when I went to a new doctor, I told them that I had been > to an endocrinologist and didn't have a tumor. When I started seeing > a new doctor, I always gave them a paper that I wrote listing all of > the drugs I took and the results and side effects. I am very happy > with the nephrologist I am seeing except that he is going very slow > with Sprironolactone. Finally last week he increased it to 150 mg. My > BP has been doing pretty good but there's still room for improvement. > It has been out of what I call the danger range since the first of > the year. However while the BP is doing good, I have a lot of other > problems and I wonder if they are related to hyperaldosteronism. Many > of them started within a few months of when my BP first went real > high. My biggest problem now is my feet. When I started taking the > nifedipine, I started having a burning sensation in my hands and > feet. I figured it was a side effect of the drug and just lived with > it. Sometime later, I don't know just when, I noticed that my feet > hurt when I was on them for a couple of hours. Then they started > swelling and my doctor took me off of nefidipine and put me on > something else. After 2 or 3 weeks, my feet felt normal but my BP was > way up again so I went back on the nefidipine. The burning started > again shortly after I took the first pill then about a week later > they started hurting really bad on the bottom. I hung in there until > I retired the end of 2001. Then I wanted to do all the things I > wanted to do but didn't have the time to do. After going off > nefidipine for good about a year ago, my feet gradually get a little > better and then some doctor would give me something else that made > them worse. I went to see a neurologist and she ran a bunch of tests > and decided that even though I don't have diabetes, I have diabetic > neuropathy and that I must lose weight and exercise to avoid getting > diabetes. When I went first went to the nephrologist, he did a bunch > of tests including an A1C which tells the average blood sugar for the > past 3 months. That was normal so I don't see how I can be having > this much pain from diabetes. I finally gave up with her and went to > see another neurologist with more experience. He ran a bunch of tests > and said that I have a neuropathy and since he can't find anything > wrong, he assumes it is diabetes. Everyone says that they are finding > a lot of people with diabetic neuropathy years before they have > diabetes. My new internist (who I only saw 4 times) jumped on that > bandwagon right away. All he can do is lecture me to lose weight and > exercise. Finally yesterday I went back to the internist that I was > going to when all of this started. He said that he has friends who > have neuropathy and they don't have diabetes. I asked if they knew > what caused it and he said no. He suggested that I go to a teaching > hospital like s Hopkins. I have found some things on the internet > that said hyperaldosteronism causes neuropathy but need to do more > research. I am first going to try to e-mail someone at s Hopkins > and see if anyone can help me. It is about 60+ miles away but there > are other teaching hospitals closer so I may try there also. I need > to find a neurologist who has experience with hyperaldosteronism. My > feet start to get better and then someone gives me a drug that makes > them worse again and I don't know what is causing it. Since they all > think it is diabetic neuropathy, I assume they wouldn't give me a > drug that would make it worse.. I think it is sodium related because > the day after I started spiro I noticed that I could be on my feet > longer. Then they improved again the day after I started 50 mg. I was > getting to the point were I could go for a 20 walk and still get a > few other things done when a neurologist prescribed Zoloft for hot > flashes and the burning started again about an hour after I took the > first (and last) pill. That is when I went to the second neurologist. > By the time I saw him, they were getting a little better again and he > prescribed Neurontin. I took it a couple of days and didn't have any > burning but the other pain was worse again. It feels like the balls > of my feet are inflamed, but doctors say I don't have an > inflammation. That is why I went back to my original internest. Now, > I can only stand on them for about 20 minutes. Does anyone else have > pain and numbness in their feet?? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Hi Fran, My name is and I live in TN. I had hyperaldostronism when I was a baby and now my three year old little girl does too. If I read your letters correctly your nephrologist was unable to find a tumor in your adrenals? Did he say what was causing your hyperaldostronism? Has he ever said anything to you about GRA or dexamethesone suppression? I know these are odd questions but this is what my daughters doctors tought she had for a while. It is a form of Hyperaldo. Please be careful taking in too much potassium. Drugs such as Spironolactone and Amiloride are potassium sparing drugs and if you also consume high potassium foods you can have too much. Too much means 6.5 or over and you will have a heart attack. Too little stroke, too much heart attack. If you have no tumor then something else is causing it. W. > > no i have no feet probs what is the other simtoms u are having i > dont know what i have yet but the spero helped me with my b\p and > gave me a lode of other pros. > > > > mark > > ps welcome to the sight > > New Member > > > > > > Hi everyone, my name is Fran and I have just joined the group. I > can't tell you how happy to find this group. I am 56 years old and > live in Virginia (USA). I am single with no children. I have to > apologize in the beginning because it is so long. I was (finally) > diagnosed with hyperaldosteronism last October by a nephrologist. He > ordered an MRI of my adrenal glands and said that he does not see a > tumor so he started me on 25 mg Spironolactone. I have had high blood > pressure since 1989 but it was easily controlled with a beta blocker > and a diuretic. Then in the spring of 1998 my BP started going up > gradually and nothing would help. In May, 2000 it suddenly jumped way > up. I was finally put on nifedipine (calcium channel blocker) and it > helped a lot but my BP was still much too high and I started having > problems with my feet swelling. They were also hurting and feeling > numb at the same time. I was taken off nifedipine and put on an > something else but my BP went way up again so my doctor put me back > on it. I am fortunate to have good insurance and I don't need a > referral to see a doctor. I changed my primary physician and also saw > two cardiologists who did have a clue as to what was wrong, but had a > lot of drugs to treat it. Most of them didn't work and many of them > sent my BP higher. I thought from the beginning that my BP might be > hormone related but, unfortunately, I picked the wrong > endocrinologist. He did a test to see if I had a tumor and it came > back negative. He said that he couldn't do any more tests because I > was taking too many drugs. Finally I went back again last year to see > if he could find any reason my BP was so high. Since I was off of the > ACE Inhibitor, he did a renin-aldo test. He said that the renin and > aldosterone weren't balanced but he didn't think it was a problem > since they were both within normal limits. I asked if he thought I > should see a kidney specialist and he said no. I blame him most of > all because when I went to a new doctor, I told them that I had been > to an endocrinologist and didn't have a tumor. When I started seeing > a new doctor, I always gave them a paper that I wrote listing all of > the drugs I took and the results and side effects. I am very happy > with the nephrologist I am seeing except that he is going very slow > with Sprironolactone. Finally last week he increased it to 150 mg. My > BP has been doing pretty good but there's still room for improvement. > It has been out of what I call the danger range since the first of > the year. However while the BP is doing good, I have a lot of other > problems and I wonder if they are related to hyperaldosteronism. Many > of them started within a few months of when my BP first went real > high. My biggest problem now is my feet. When I started taking the > nifedipine, I started having a burning sensation in my hands and > feet. I figured it was a side effect of the drug and just lived with > it. Sometime later, I don't know just when, I noticed that my feet > hurt when I was on them for a couple of hours. Then they started > swelling and my doctor took me off of nefidipine and put me on > something else. After 2 or 3 weeks, my feet felt normal but my BP was > way up again so I went back on the nefidipine. The burning started > again shortly after I took the first pill then about a week later > they started hurting really bad on the bottom. I hung in there until > I retired the end of 2001. Then I wanted to do all the things I > wanted to do but didn't have the time to do. After going off > nefidipine for good about a year ago, my feet gradually get a little > better and then some doctor would give me something else that made > them worse. I went to see a neurologist and she ran a bunch of tests > and decided that even though I don't have diabetes, I have diabetic > neuropathy and that I must lose weight and exercise to avoid getting > diabetes. When I went first went to the nephrologist, he did a bunch > of tests including an A1C which tells the average blood sugar for the > past 3 months. That was normal so I don't see how I can be having > this much pain from diabetes. I finally gave up with her and went to > see another neurologist with more experience. He ran a bunch of tests > and said that I have a neuropathy and since he can't find anything > wrong, he assumes it is diabetes. Everyone says that they are finding > a lot of people with diabetic neuropathy years before they have > diabetes. My new internist (who I only saw 4 times) jumped on that > bandwagon right away. All he can do is lecture me to lose weight and > exercise. Finally yesterday I went back to the internist that I was > going to when all of this started. He said that he has friends who > have neuropathy and they don't have diabetes. I asked if they knew > what caused it and he said no. He suggested that I go to a teaching > hospital like s Hopkins. I have found some things on the internet > that said hyperaldosteronism causes neuropathy but need to do more > research. I am first going to try to e-mail someone at s Hopkins > and see if anyone can help me. It is about 60+ miles away but there > are other teaching hospitals closer so I may try there also. I need > to find a neurologist who has experience with hyperaldosteronism. My > feet start to get better and then someone gives me a drug that makes > them worse again and I don't know what is causing it. Since they all > think it is diabetic neuropathy, I assume they wouldn't give me a > drug that would make it worse.. I think it is sodium related because > the day after I started spiro I noticed that I could be on my feet > longer. Then they improved again the day after I started 50 mg. I was > getting to the point were I could go for a 20 walk and still get a > few other things done when a neurologist prescribed Zoloft for hot > flashes and the burning started again about an hour after I took the > first (and last) pill. That is when I went to the second neurologist. > By the time I saw him, they were getting a little better again and he > prescribed Neurontin. I took it a couple of days and didn't have any > burning but the other pain was worse again. It feels like the balls > of my feet are inflamed, but doctors say I don't have an > inflammation. That is why I went back to my original internest. Now, > I can only stand on them for about 20 minutes. Does anyone else have > pain and numbness in their feet?? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Fran GRA is Gluco-corticoremedial Aldostronism, I know I spelled that wrong. It is a type of hyperaldo that is genetic. I was the first known case in my family although the doctors feel that someone in our family may have had it and died a long time ago and it was just written off to some other cause. The best thing about this type is that you can test for it in a blood test that is sent to Yale. It is also Dexamethesone suppressible. Which means that you may be able to normalize BP and aldostrone by taking a very small dose of dex for the rest of your life. It is refered to as PA-II or GRA. (primary aldostronism type II) Most doctors have never heard of it but my daughters doctor is in on that study with Dr Lifton of Yale Genetics. There are several articles on a site called PUBMED, you may have to imput aldostrone first, then look for articles dealing with GRA or familial hyperaldo. , When you locate one it the related articles link and then it will pull like 100 artlicles up. Read through them some are over our heads but others are not. I hope this helps some. W > Hi , > What is GRA? The endocrinologist that I went to gave me > dexamathasone to take the night before he did the renin aldo test and > It made me real hyper and I didn't sleep all night plus had to get up > to pee every hour. He said the renin and aldo were not balanced but > they were within normal limits so he didn't think it was a problem > and didn't think I should have any more tests. My nephrologist > didn't say what was causing it, but I will ask him when I see him > next month. He checks my potassium every 2 months and the last time > it was 4 and he said that was good. I am trying to find a good endo > around here. I e-mailed town U Med Sch GW Med School to see if > they had anyone with experience with hyperaldosteronism. town > answered and said they didn't, GW hasn't answered but I did find a > doctor on their web site so I am going to try to see him. What was > causing yours and did it just go away? Let me know what GRA is and > I'll check into it. Thanks. > > Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Fran GRA is Gluco-corticoremedial Aldostronism, I know I spelled that wrong. It is a type of hyperaldo that is genetic. I was the first known case in my family although the doctors feel that someone in our family may have had it and died a long time ago and it was just written off to some other cause. The best thing about this type is that you can test for it in a blood test that is sent to Yale. It is also Dexamethesone suppressible. Which means that you may be able to normalize BP and aldostrone by taking a very small dose of dex for the rest of your life. It is refered to as PA-II or GRA. (primary aldostronism type II) Most doctors have never heard of it but my daughters doctor is in on that study with Dr Lifton of Yale Genetics. There are several articles on a site called PUBMED, you may have to imput aldostrone first, then look for articles dealing with GRA or familial hyperaldo. , When you locate one it the related articles link and then it will pull like 100 artlicles up. Read through them some are over our heads but others are not. I hope this helps some. W > Hi , > What is GRA? The endocrinologist that I went to gave me > dexamathasone to take the night before he did the renin aldo test and > It made me real hyper and I didn't sleep all night plus had to get up > to pee every hour. He said the renin and aldo were not balanced but > they were within normal limits so he didn't think it was a problem > and didn't think I should have any more tests. My nephrologist > didn't say what was causing it, but I will ask him when I see him > next month. He checks my potassium every 2 months and the last time > it was 4 and he said that was good. I am trying to find a good endo > around here. I e-mailed town U Med Sch GW Med School to see if > they had anyone with experience with hyperaldosteronism. town > answered and said they didn't, GW hasn't answered but I did find a > doctor on their web site so I am going to try to see him. What was > causing yours and did it just go away? Let me know what GRA is and > I'll check into it. Thanks. > > Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Sorry I did not finish reading your letter before I posted. Mine was " cured " by removing my adrenal glands completly. I now have s Disease instead. I believe there is a doctor at the Mayo Clinic in Rochester who is familiar with hyperaldo. > Hi , > What is GRA? The endocrinologist that I went to gave me > dexamathasone to take the night before he did the renin aldo test and > It made me real hyper and I didn't sleep all night plus had to get up > to pee every hour. He said the renin and aldo were not balanced but > they were within normal limits so he didn't think it was a problem > and didn't think I should have any more tests. My nephrologist > didn't say what was causing it, but I will ask him when I see him > next month. He checks my potassium every 2 months and the last time > it was 4 and he said that was good. I am trying to find a good endo > around here. I e-mailed town U Med Sch GW Med School to see if > they had anyone with experience with hyperaldosteronism. town > answered and said they didn't, GW hasn't answered but I did find a > doctor on their web site so I am going to try to see him. What was > causing yours and did it just go away? Let me know what GRA is and > I'll check into it. Thanks. > > Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Sorry I did not finish reading your letter before I posted. Mine was " cured " by removing my adrenal glands completly. I now have s Disease instead. I believe there is a doctor at the Mayo Clinic in Rochester who is familiar with hyperaldo. > Hi , > What is GRA? The endocrinologist that I went to gave me > dexamathasone to take the night before he did the renin aldo test and > It made me real hyper and I didn't sleep all night plus had to get up > to pee every hour. He said the renin and aldo were not balanced but > they were within normal limits so he didn't think it was a problem > and didn't think I should have any more tests. My nephrologist > didn't say what was causing it, but I will ask him when I see him > next month. He checks my potassium every 2 months and the last time > it was 4 and he said that was good. I am trying to find a good endo > around here. I e-mailed town U Med Sch GW Med School to see if > they had anyone with experience with hyperaldosteronism. town > answered and said they didn't, GW hasn't answered but I did find a > doctor on their web site so I am going to try to see him. What was > causing yours and did it just go away? Let me know what GRA is and > I'll check into it. Thanks. > > Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 What does adrenal vein samping involve? Im booked for one on may 23 I had an iodo-cholesterol scan and the have seen something on my right adrenal glan but the pictures were not a clear as they would like so on to the next test. Im hoping this goes well so i can have the right out and get on with life. Im sick of test after test it's almost been 2 years now. Shell > > IM TAKING DIOVAN 80 MG AND TOPEROL 50MG BUT I HAVE LOOKED UP THE > MEDS AND SEE SOME THINGS THERE BUT NOT ALL MY B\P IS HI AT TIME BUT > NOT OFFTEN > > I GESS ITS CALLED SPIKES OR NO I HAVE BEEN TRYING TO FIND OUT WHAT > IS A SPIKE AND JUST A NORMAL INCREASE BUT I NEVER GET A STRAIGHT ANSER > > MAYBE U CAN TELL ME I KNOW IT WILL GO UP DURING THE DAY BUT HOW > MUCH???????? > > DOES ANYONE KNOW OR IS IT ALL DIFF > > Re: New Member > > > > > > Mark, > > > > What other drugs are you taking for your bp? The tingling > sensation > > is called paresthesia and it is listed as a side effect of a lot > of > > drugs. I had it when I started taking Procardia and thought it > was > > coming from that, but I also read somewhere that > hyperaldosteronism > > can cause it bucause it upsets the body's PH balance. I don't > have > > that anymore, but not I have the numbness. I just ordered a book > > called " Aldosterone and aldosteronism " from Amazon.com so I hope > to > > learn a lot from that. My bp is doing good right now although > when I > > went back to my original GP Thursday it went up to 190/100. I am > so > > angry at drs and I know that raises it some too. I left him when > he > > went on vacation for a month and turned me over to a couple of > other > > guys in the practice who couldn't even keep my meds straight even > > when I told them what I was taking. Also I was trying to get > test > > results faxed from the neurologists office but that didn't work. > > They had me go back to the business office twice and I told them > I > > couldn't stand on my feet for more than a few minutes. My bp has > been > > really good the last couple of days,140/80 this morning. I have > only > > been on this dose of spiro for a week and it usually takes about > 3 > > weeks before I see much of an improvement. I hope to cut the > beta > > blocker down to twice a day instead of 3 times so maybe in a few > > weeks I can. I go back to my doctor on June 5 so we'll see. I > > learned that with Conn's your blood pressure goes up more while > you > > are lying down. Mine was real high during the night and then > started > > to go down after I was up for a while. One evening I went to the > ER > > with bp of 220/100+. They gave me all kinds of drugs and the > bottom > > number came down some but the top one didn't. Finally after my > > cardiologist called them back, they let me go home. The next > morning > > it was down to 160/??. That night it went way up again and I > just > > tried to ignore it and went about fixing dinner. When I checked > it > > later, it was down without taking anything but my regular meds. > Some > > doctors have told me to lie down when my bp goes way up but that > is > > apparently the worst thing you can do. Has your doctor told you > not > > to eat a lot of salt? Mine hasn't said anything about it. There > > were times when I thought salt lowered my bp and I started eating > > more. That was before I was diagnosed. I read somewhere that if > > your salt intake is low, your adrenals will produce more > > aldosterone. I have read that aldosterone regulates your bp but > I > > don't know if that is because of salt or if it is the hormone. I > > haven't had a problem with blurred vision, just the dry eyes. Do > your > > eyes water a lot? I don't get tired because I don't do much > because > > of my feet. Although at times I get real tired and just have to > take > > a nap but I thought that was from the beta blocker. Have you > gained > > a lot of weight. Last week I found out from my GP that my bp > started > > going up in May 98. Since then I have gained 30 lbs. I am sure > that > > some of it is because I am so inactive and also because we have > > dessert every night my friend is here. I started seeing him in > Aug > > 98 and I guess he doesn't even know the real me. I get pretty > bitchy > > when my feet are hurting a lot and I am trying to fix dinner. I > > think at least the 16 lbs I gained in a month is fluid and maybe > > more. My number one question to my nephrologist when I see him > next > > month will be how do I get rid of this fluid. Maybe when I get > to > > the right dose of Spiro, it will be like a dam bursting. With > this > > dose, I have to pee about every hour for a good part of the day. > > You said that it wasn't good for the surgeon to take the tumor > out, > > why is that? I don't have a tumor but have been wishing I did so > > they could take it out and I would be back to normal again. > > > > Fran > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 What does adrenal vein samping involve? Im booked for one on may 23 I had an iodo-cholesterol scan and the have seen something on my right adrenal glan but the pictures were not a clear as they would like so on to the next test. Im hoping this goes well so i can have the right out and get on with life. Im sick of test after test it's almost been 2 years now. Shell > > IM TAKING DIOVAN 80 MG AND TOPEROL 50MG BUT I HAVE LOOKED UP THE > MEDS AND SEE SOME THINGS THERE BUT NOT ALL MY B\P IS HI AT TIME BUT > NOT OFFTEN > > I GESS ITS CALLED SPIKES OR NO I HAVE BEEN TRYING TO FIND OUT WHAT > IS A SPIKE AND JUST A NORMAL INCREASE BUT I NEVER GET A STRAIGHT ANSER > > MAYBE U CAN TELL ME I KNOW IT WILL GO UP DURING THE DAY BUT HOW > MUCH???????? > > DOES ANYONE KNOW OR IS IT ALL DIFF > > Re: New Member > > > > > > Mark, > > > > What other drugs are you taking for your bp? The tingling > sensation > > is called paresthesia and it is listed as a side effect of a lot > of > > drugs. I had it when I started taking Procardia and thought it > was > > coming from that, but I also read somewhere that > hyperaldosteronism > > can cause it bucause it upsets the body's PH balance. I don't > have > > that anymore, but not I have the numbness. I just ordered a book > > called " Aldosterone and aldosteronism " from Amazon.com so I hope > to > > learn a lot from that. My bp is doing good right now although > when I > > went back to my original GP Thursday it went up to 190/100. I am > so > > angry at drs and I know that raises it some too. I left him when > he > > went on vacation for a month and turned me over to a couple of > other > > guys in the practice who couldn't even keep my meds straight even > > when I told them what I was taking. Also I was trying to get > test > > results faxed from the neurologists office but that didn't work. > > They had me go back to the business office twice and I told them > I > > couldn't stand on my feet for more than a few minutes. My bp has > been > > really good the last couple of days,140/80 this morning. I have > only > > been on this dose of spiro for a week and it usually takes about > 3 > > weeks before I see much of an improvement. I hope to cut the > beta > > blocker down to twice a day instead of 3 times so maybe in a few > > weeks I can. I go back to my doctor on June 5 so we'll see. I > > learned that with Conn's your blood pressure goes up more while > you > > are lying down. Mine was real high during the night and then > started > > to go down after I was up for a while. One evening I went to the > ER > > with bp of 220/100+. They gave me all kinds of drugs and the > bottom > > number came down some but the top one didn't. Finally after my > > cardiologist called them back, they let me go home. The next > morning > > it was down to 160/??. That night it went way up again and I > just > > tried to ignore it and went about fixing dinner. When I checked > it > > later, it was down without taking anything but my regular meds. > Some > > doctors have told me to lie down when my bp goes way up but that > is > > apparently the worst thing you can do. Has your doctor told you > not > > to eat a lot of salt? Mine hasn't said anything about it. There > > were times when I thought salt lowered my bp and I started eating > > more. That was before I was diagnosed. I read somewhere that if > > your salt intake is low, your adrenals will produce more > > aldosterone. I have read that aldosterone regulates your bp but > I > > don't know if that is because of salt or if it is the hormone. I > > haven't had a problem with blurred vision, just the dry eyes. Do > your > > eyes water a lot? I don't get tired because I don't do much > because > > of my feet. Although at times I get real tired and just have to > take > > a nap but I thought that was from the beta blocker. Have you > gained > > a lot of weight. Last week I found out from my GP that my bp > started > > going up in May 98. Since then I have gained 30 lbs. I am sure > that > > some of it is because I am so inactive and also because we have > > dessert every night my friend is here. I started seeing him in > Aug > > 98 and I guess he doesn't even know the real me. I get pretty > bitchy > > when my feet are hurting a lot and I am trying to fix dinner. I > > think at least the 16 lbs I gained in a month is fluid and maybe > > more. My number one question to my nephrologist when I see him > next > > month will be how do I get rid of this fluid. Maybe when I get > to > > the right dose of Spiro, it will be like a dam bursting. With > this > > dose, I have to pee about every hour for a good part of the day. > > You said that it wasn't good for the surgeon to take the tumor > out, > > why is that? I don't have a tumor but have been wishing I did so > > they could take it out and I would be back to normal again. > > > > Fran > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 , Thanks, I'll check into it although from my one short experience with dexamethasone, I would much rather take Spiro for the rest of my life than that stuff!! Fran > Fran > GRA is Gluco-corticoremedial Aldostronism, I know I spelled that > wrong. It is a type of hyperaldo that is genetic. I was the first > known case in my family although the doctors feel that someone in our > family may have had it and died a long time ago and it was just > written off to some other cause. The best thing about this type is > that you can test for it in a blood test that is sent to Yale. It is > also Dexamethesone suppressible. Which means that you may be able to > normalize BP and aldostrone by taking a very small dose of dex for > the rest of your life. It is refered to as PA-II or GRA. (primary > aldostronism type II) Most doctors have never heard of it but my > daughters doctor is in on that study with Dr Lifton of Yale Genetics. > There are several articles on a site called PUBMED, you may have to > imput aldostrone first, then look for articles dealing with GRA or > familial hyperaldo. , When you locate one it the related articles > link and then it will pull like 100 artlicles up. Read through them > some are over our heads but others are not. I hope this helps some. > W Quote Link to comment Share on other sites More sharing options...
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