New member

[Guest guest]

In a message dated 1/22/04 12:10:29 AM Eastern Standard Time,

ohaq2000@... writes:

> I want to know if there is anything else I can do besides

> amputating her leg. Her tumor is localized and has not spread.

>

I don't know how helpful this will be for you but my dog once had a tumor in

her leg and the vet injected the tumor with ozone. After two treatments the

tumor became soft then liquid and drained out. It is imperative that the body

be detoxed and rebuilt while this process takes place.

Have you tried the cancema that everyone raves about?

[Guest guest]

Hi ,

Welcome to the group. Hopefully you won't need to much of your jungle,

mountain or desert experience whilst you are in the North Sea (or if you do

something has gone seriously wrong!) the artic part could come in handy

though - as I am sure you are finding it can get a bit cold out there.

Good to have you on board, that goes for all the other new members as well,

sorry if I missed responding to your posts.

Gareth

>From: Sangster <justin_sangster@...>

>Reply-

>

>Subject: New Member

>Date: Thu, 22 Jan 2004 21:37:49 +0000 (GMT)

>

>Hi There,

>

>My name is Sangster and i have just become a member. I have worked

>offshore around Scotland since July 2003 with AON as a locum medic. My back

>ground is ex Armed Forces. I was a Royal Marine for 10 years and a Royal

>Navy Commando medic for 3 years with the Marines. I qualified as a forces

>medic whilst in the Marines before transfering to the Navy. In total i

>spent just over four and a half years as a medic in the Commando forces. I

>have experience of remote medicine(jungle,artic,mountains and desert)

>during my time in the forces which is why i became an offshore medic. Well

>going to go now, hope to hear from you all soon. If any one knows of a

>permanant job any where give me a shout please.

>

>

>

>

>---------------------------------

> Messenger - Communicate instantly... " Ping " your friends today!

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>

>

[Guest guest]

,

Welcome aboard! You will find that this group of ladies are wonderful and helpful in everyway!

~dd

Dawn in WA

-----Original Message-----From: Walcott [mailto:BAJEKAT@...]Sent: Friday, January 23, 2004 7:02 AM100-plus Subject: New memberHi everyoneI would like to introduce myself. My name is , I am 44 years old and weigh 280 lbs. I have always been fat and must say I enjoyed eating every pound that I weigh. I have never dieted, or so rarely that I can't remeber doing it. Though I attended WW meetings for a week or two about 20 years ago. I weighed about 250lbs back then.I just about never exercise. I really hate, hate, hate to sweat or to work.Here is the problem. My Doctor has told me that I must lose weight. I have a hernia operation next month and the surgeon wants to do a lipectomy at the same time. I know this is not a board for discussing surgery so I just mention that in passing.One of my co-workers lost 180 pounds (he weighed close to 400 lbs now he is under 200) over a four year span and he recommended the programme to me.I started last Wednesday. It is 1000 cals a day. Lots of green and white veg. About a cup of orange or red veg. Half cup of rice or 2 oz. potato. Make up the calories in chicken or fish or ham or cheese etc. One slice of bread and two crackers. Plus 13 glasses of water. No fruit except water melon, star-apple, or pawpaw. 100g of carb. 33g of fat. 45 minutes of exercise at least three times a week.When she told me the regime I wondered how I would stick to it. However I found it hard to fill the number of calories. Most days I ate between 700 to 800 calories. Only one day last week did I eat 1092 calories. I lost nearly 3 lbs even though I did no exercise. I drank over 13 glasses of water usually around 16 because I found I was very thirsty. I was not hungry except the first day.By weigh-in this week I had lost 2.5 lbs. According to her schedule I should lose 2.9 lbs a week on average. This week I have started to add exercise. Yesterday I walked half mile to the beach. Swam and walked for about an hour then walked back to my office. In all I was out for just over an hour.I plan to go back down to the beach around four this afternoon when it cools off a bit. I hate walking in the hot sun. I hope I will be able to keep this up when it gets hotter. At least it is cool to walk in the evenings now. With swimming I don't have to worry about getting sweaty. Only problem is when I come back to work I am covered in salty water and feel kinda sticky. Tonight I have to work through until about midnight or 1 am. Three evenings a week I can get home by 9 pm. Since I get to work by 8 am the only way I can get in exercise is to take off some time in the afternoon to go swimming or walk, then I can't shower until late at night. (The only shower at work is in the men's room)On the weekends I will walk 1km or 1.5K in my swimming pool. I love walking in water it has resistance but is also easy on the knees and ankles. Since some of my weight is supported I can jog or run if I want to. When I get too hot I just dip under, cool off then walk some more.After reading your posts now I am wondering about this diet. According to what you mention it is too low in cals. for someone nearly 300 lbs. How long can I safely follow this diet? The initial regime is for nine weeks. Then an evaluation, then a new regime.Bobby, my co-worker had no health problems with it. He lost weight slowly and steadily. He runs a couple of miles around 4 am every day. Of course his diet was more than 1000 cals but not that much more. He is also 15 years younger than I am.On a lighter note I live and share a kitchen with my sister. On Sunday she made a three citrus cheese cake. I told her I thought that was inconsiderate since I was only a few days into a diet and she replied that I needed to learn self control not deprive her of food because I was on a diet. All 7000 calories of her cheesecake were eaten by my sister and her husband. I didn't have a single slice. Yeah for self control. I did it. It is a little victory but if I can do that then I can get through one more hour, one more day. I don't have to be afraid of what is in the fridge. I acn look at it and not eat it. Never did that before.Thanks for listening_________________________________________________________________Help STOP SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmailTo unsubscribe DO NOT send a message to the list.Please click on this link and unsubscribe:100-plus/join

[Guest guest]

Welcome . You are so right a positive attitude is key. Also remembering your 3 main things to me at least. Water, portions, and exercise. No matter what program you follow these will always come up. I have set my first short term goal. What is yours?

NH

Mommy to Abby Liz 10-25-94

Mommy to Anne 7-1-99

[Guest guest]

--Hi !

My first short term goal is to loose 20 lbs within the next 2 months.

I don't think that will be to hard leaving all the Mountain Dew

behind. And to exercise and drink the water I need daily. I never

have been much for drinking water so this will be a accomplishment.

Yea!!! I have drank 32 oz for the last 2 days so I am proud of myself.

Tomorrow is the starting of the exercise program, dancing to the

oldies with . This will start my morning off! Short term

goals but also ones I can obtain!

In 100-plus , Jase4567@a... wrote:

> Welcome . You are so right a positive attitude is key. Also

> remembering your 3 main things to me at least. Water, portions, and

exercise. No

> matter what program you follow these will always come up. I have

set my first

> short term goal. What is yours?

>

> NH

> Mommy to Abby Liz 10-25-94

> Mommy to Anne 7-1-99

[Guest guest]

Welcome, !

> My first short term goal is to loose 20 lbs within the next 2 months.

Well, it's do-able, if you plan on exercising excessively and really cutting

your calories back, but expect any weight you lost fast to come back on just

as fast when you go off your " diet " . It's safer for long term weight loss to

plan on 1-2 pounds a week. This gives your body a chance to adapt to the

lower weight without thinking it's about to enter a famine period and start

conserving calories, and it gives you a chance to adapt to your new way of

eating, one you'll be sticking with for the rest of your life, or as long as

you want the weight to stay off. ;-) Many people do lose big the first week

or 2, but this is mostly water weight, not fat.

And don't forget that as a female you'll have weeks where you might actually

gain weight, not from fat but water retention.

> Yea!!! I have drank 32 oz for the last 2 days so I am proud of myself.

Good start. Now work up to drinking a half ounce of water for every pound of

your current body weight. I weigh 260 so I would have to drink 130 ounces a

day for optimal health. I rarely hit that goal, but once in a while I do,

and I *do* feel better, less sluggish, those days.

> Tomorrow is the starting of the exercise program, dancing to the

> oldies with . This will start my morning off!

Don't feel bad if you can't finish the entire 60 minute tape the first few

weeks. That's one of his longer ones, and it gets really hard in the middle

(Wipe-Out is deadly!). Do you have any shorter videos? 's BlastOff is

only 20 minutes and you can really work up a sweat to it, or one of

Sansone's walking tapes at the one mile distance are also great for

beginners in the world of exercise, especially at our size. Our Links page

can give you some other exercise suggestions, with links to videos made

especially for people our size. If you don't want to get any new tapes, you

can also just adapt the Sweatin' tape to fit your exercise level, like doing

a few songs in the beginning, fast-forwarding to the last song or 2 to

finish up.

Welcome, and good luck in your quest for health and weight loss.

Sue in NJ

[Guest guest]

Welcome to the group. You will find a great group of people here - who seem to be on vacation this week......but they are here somewhere. Turk!! You are supposed to be here to welcome the new people...where are you? No, all kidding aside, this is a great group and we welcome you with open arms.

Gail

New Member

Hi, My name is Dave and I am 41 years old and live in New England.I had my 1st defibrillator implanted in January of 1994 at the age of 31 after collapsing playing basketball.I was diagnosed with "Right Ventricular Dysplasia."I'm currently on my 3rd device implanted in my abdomen. After writing this intro I will go through the past posts to get an idea as to what has already been discussed in this group.Anyone who wants to discuss any issue involving having an implanted defibrillator, I will be glad to give my opinion/experiences.I have been shocked 10 or 11 times in ten plus years. One time I was driving in a snowstorm on the highway when I got "Zapped." That was a rather scary experience. OK, before I write any more, I will read through past posts so I have a better understanding of the group.Hello to all and also good health to all,DavePlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

-Hi Dave, I am also a newcomer here and I too have right ventricular

dysplasia as well as dilated cardiomyopathy. I'm glad u were not hurt

when u got zapped driving. I was the passenger on the back of a

motorcycle when mine fired one time. By the grace of God we were at a

stop sign, so now my boyfriend says he will bungie cord me to the

bike if I ever go on one again :-) God Bless and welcome, Pam the

Patriots fan-- In , " red6903904 "

<bobcat256@c...> wrote:

> Hi, My name is Dave and I am 41 years old and live in New England.

> I had my 1st defibrillator implanted in January of 1994 at the age

of

> 31 after collapsing playing basketball.

> I was diagnosed with " Right Ventricular Dysplasia. "

> I'm currently on my 3rd device implanted in my abdomen.

> After writing this intro I will go through the past posts to get an

> idea as to what has already been discussed in this group.

> Anyone who wants to discuss any issue involving having an implanted

> defibrillator, I will be glad to give my opinion/experiences.

> I have been shocked 10 or 11 times in ten plus years. One time I

was

> driving in a snowstorm on the highway when I got " Zapped. " That was

a

> rather scary experience. OK, before I write any more, I will read

> through past posts so I have a better understanding of the group.

> Hello to all and also good health to all,

>

> Dave

[Guest guest]

Hi Dave,

I'm Jen and also live in New England - grew up in MA and now live in RI. I was vacationing in NH this past weekend, beautiful country up in the N. Conway area. Which state do you live in?

"Got Siamese" www.siameserescue.org

New Member

Hi, My name is Dave and I am 41 years old and live in New England.I had my 1st defibrillator implanted in January of 1994 at the age of 31 after collapsing playing basketball.I was diagnosed with "Right Ventricular Dysplasia."I'm currently on my 3rd device implanted in my abdomen. After writing this intro I will go through the past posts to get an idea as to what has already been discussed in this group.Anyone who wants to discuss any issue involving having an implanted defibrillator, I will be glad to give my opinion/experiences.I have been shocked 10 or 11 times in ten plus years. One time I was driving in a snowstorm on the highway when I got "Zapped." That was a rather scary experience. OK, before I write any more, I will read through past posts so I have a better understanding of the group.Hello to all and also good health to all,DavePlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hello Pam,

WOW, you were lucky that you were at a red light when you got shocked!

I was really touched by your family background story.

I will pray for your 12 year old niece.

When I see children that young at the EP clinic, it makes me feel so

sorry for these little kids and reminds me how fortunate I am that I

had 31 years with no major health issues.

I am from Mass originally, (North shore) then moved to NH in the late

80s and for the past 8 years I have lived in southern Maine. I still

have all my " Heart stuff " done in Boston at NEMC. I also have a

history of blood clots so I am on coumiden for the rest of my life.

I will be married for two years this April and am thankful for my

blessings. (Most of the time)

Thank you so much for your warm welcome and I am wearing my " Super

Bowl XXXVIII Champion Patriot's " hat as I type this :-) (Really)

God Bless and I look forward to talking with you (And everyone else

too) again soon,

Dave

> > Hi, My name is Dave and I am 41 years old and live in New England.

> > I had my 1st defibrillator implanted in January of 1994 at the

age

> of

> > 31 after collapsing playing basketball.

> > I was diagnosed with " Right Ventricular Dysplasia. "

> > I'm currently on my 3rd device implanted in my abdomen.

> > After writing this intro I will go through the past posts to get

an

> > idea as to what has already been discussed in this group.

> > Anyone who wants to discuss any issue involving having an

implanted

> > defibrillator, I will be glad to give my opinion/experiences.

> > I have been shocked 10 or 11 times in ten plus years. One time I

> was

> > driving in a snowstorm on the highway when I got " Zapped. " That

was

> a

> > rather scary experience. OK, before I write any more, I will read

> > through past posts so I have a better understanding of the group.

> > Hello to all and also good health to all,

> >

> > Dave

[Guest guest]

Thank You for your friendly welcome to the group Gail.

I have been going through some of the past postings and it is amazing

to me that there is six years worth of messages to look through!

The group seems much like a family, I am glad I found it.

Regards,

Dave

> Welcome to the group. You will find a great group of people here -

who seem to be on vacation this week......but they are here

somewhere. Turk!! You are supposed to be here to welcome the new

people...where are you? No, all kidding aside, this is a great group

and we welcome you with open arms.

>

> Gail

> New Member

>

>

> Hi, My name is Dave and I am 41 years old and live in New England.

> I had my 1st defibrillator implanted in January of 1994 at the

age of

> 31 after collapsing playing basketball.

> I was diagnosed with " Right Ventricular Dysplasia. "

> I'm currently on my 3rd device implanted in my abdomen.

> After writing this intro I will go through the past posts to get

an

> idea as to what has already been discussed in this group.

> Anyone who wants to discuss any issue involving having an

implanted

> defibrillator, I will be glad to give my opinion/experiences.

> I have been shocked 10 or 11 times in ten plus years. One time I

was

> driving in a snowstorm on the highway when I got " Zapped. " That

was a

> rather scary experience. OK, before I write any more, I will read

> through past posts so I have a better understanding of the group.

> Hello to all and also good health to all,

>

> Dave

>

>

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

red6903904 <bobcat256@...> wrote:

Hi Dave

Wellcome aboard. I'm 57 and had icd since jan of last yr. zapped 3 times . I think you will like this group and with your experience you can be a big help to some of the newbies here, including me i'm a fairly newbie here to. By the way, I'm from New England also, but in Arkansa for the past 6 yrs but I still own house in Conn. Good to hear from someone from home

Bills and Zeus

Hi, My name is Dave and I am 41 years old and live in New England.I had my 1st defibrillator implanted in January of 1994 at the age of 31 after collapsing playing basketball.I was diagnosed with "Right Ventricular Dysplasia."I'm currently on my 3rd device implanted in my abdomen. After writing this intro I will go through the past posts to get an idea as to what has already been discussed in this group.Anyone who wants to discuss any issue involving having an implanted defibrillator, I will be glad to give my opinion/experiences.I have been shocked 10 or 11 times in ten plus years. One time I was driving in a snowstorm on the highway when I got "Zapped." That was a rather scary experience. OK, before I write any more, I will read through past posts so I have a better understanding of the group.Hello to all and also good health

to all,DavePlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hi Jen,

I live in Southern Maine and am from Lynn, MA originally.

Don't hold that against me..LOL...

I have Family in North Conway area and go there often. It is

beautiful up there for sure.

It is nice to meet you Jen,

Dave

> Hi Dave,

>

> I'm Jen and also live in New England - grew up in MA and now live

in RI. I was vacationing in NH this past weekend, beautiful country

up in the N. Conway area. Which state do you live in?

>

>

>

>

> " Got Siamese " www.siameserescue.org

> New Member

>

>

> Hi, My name is Dave and I am 41 years old and live in New England.

> I had my 1st defibrillator implanted in January of 1994 at the

age of

> 31 after collapsing playing basketball.

> I was diagnosed with " Right Ventricular Dysplasia. "

> I'm currently on my 3rd device implanted in my abdomen.

> After writing this intro I will go through the past posts to get

an

> idea as to what has already been discussed in this group.

> Anyone who wants to discuss any issue involving having an

implanted

> defibrillator, I will be glad to give my opinion/experiences.

> I have been shocked 10 or 11 times in ten plus years. One time I

was

> driving in a snowstorm on the highway when I got " Zapped. " That

was a

> rather scary experience. OK, before I write any more, I will read

> through past posts so I have a better understanding of the group.

> Hello to all and also good health to all,

>

> Dave

>

>

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

Hello Dave and Welcome,

I'm also a patient at Tufts New England Medical Center. I too have ARVD

(right ventricular dysplasia). Are you in The Multidisciplinary Study of

ARVD?

I was only diagnosed less than two years ago and after going around and

around with relatively few symptoms had enough going on to cause my first EP

in Springfield to recommend that I talk to Dr. Estes in Boston, as he is a

guru in New England on ARVD. After an MRI, an angiogram and a biopsy, at 48,

I'm implanted and in the study. Boom...

Still haven't had any zaps. Getting on pretty well. Fairly active, though I

have cut back on playing sports or heavy exercise. Was causing PVC's

probably doing my heart muscle no good either. Now it's all light duty

stuff--paddling and cycling etc...-- taking it easy. Went snow tubing today

with my family.

I Would love to know if you have any special regimen in your life or other

tools you use to keep a handle on things. I'm so new at this, I really am

just trying to go on as normally as possible and prepare for the known and

unknown.

God bless you and thanks for joining in.

Ken

>From: " red6903904 " <bobcat256@...>

>Reply-

>

>Subject: New Member

>Date: Tue, 17 Feb 2004 23:08:20 -0000

>

>Hi, My name is Dave and I am 41 years old and live in New England.

>I had my 1st defibrillator implanted in January of 1994 at the age of

>31 after collapsing playing basketball.

>I was diagnosed with " Right Ventricular Dysplasia. "

>I'm currently on my 3rd device implanted in my abdomen.

>After writing this intro I will go through the past posts to get an

>idea as to what has already been discussed in this group.

>Anyone who wants to discuss any issue involving having an implanted

>defibrillator, I will be glad to give my opinion/experiences.

>I have been shocked 10 or 11 times in ten plus years. One time I was

>driving in a snowstorm on the highway when I got " Zapped. " That was a

>rather scary experience. OK, before I write any more, I will read

>through past posts so I have a better understanding of the group.

>Hello to all and also good health to all,

>

>Dave

>

>

_________________________________________________________________

Get a FREE online computer virus scan from McAfee when you click here.

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[Guest guest]

Bill, where about's in CT? Dave and I settled in down in the south east corner (Stonington) after moving down from a small town in Ma (Berlin - 2000 people 5000 cattle - at least when we lived there). Small world :-)

Gail

Re: New Member

red6903904 <bobcat256@...> wrote:

Hi Dave

Wellcome aboard. I'm 57 and had icd since jan of last yr. zapped 3 times . I think you will like this group and with your experience you can be a big help to some of the newbies here, including me i'm a fairly newbie here to. By the way, I'm from New England also, but in Arkansa for the past 6 yrs but I still own house in Conn. Good to hear from someone from home

Bills and Zeus

Hi, My name is Dave and I am 41 years old and live in New England.I had my 1st defibrillator implanted in January of 1994 at the age of 31 after collapsing playing basketball.I was diagnosed with "Right Ventricular Dysplasia."I'm currently on my 3rd device implanted in my abdomen. After writing this intro I will go through the past posts to get an idea as to what has already been discussed in this group.Anyone who wants to discuss any issue involving having an implanted defibrillator, I will be glad to give my opinion/experiences.I have been shocked 10 or 11 times in ten plus years. One time I was driving in a snowstorm on the highway when I got "Zapped." That was a rather scary experience. OK, before I write any more, I will read through past posts so I have a better understanding of the group.Hello to all and also good health to all,DavePlease visit the Zapper homepage athttp://www.ZapLife.org Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hi Dave,

I also have ARVD, and had an ICD implanted June of 2003, although

I've been dealing with the problem since 1992. Been zapped 30 times -

4 while driving myself. I can sympathize with the anxiety when that

happens! I'm 33, and live in central New York. I'm currently looking

for a new cardiologist, since I don't think I'm getting the care I

need from the one I have right now. Just wanted to say hello, and

welcome to the group

> Hi, My name is Dave and I am 41 years old and live in New England.

> I had my 1st defibrillator implanted in January of 1994 at the age

of

> 31 after collapsing playing basketball.

> I was diagnosed with " Right Ventricular Dysplasia. "

> I'm currently on my 3rd device implanted in my abdomen.

> After writing this intro I will go through the past posts to get an

> idea as to what has already been discussed in this group.

> Anyone who wants to discuss any issue involving having an implanted

> defibrillator, I will be glad to give my opinion/experiences.

> I have been shocked 10 or 11 times in ten plus years. One time I

was

> driving in a snowstorm on the highway when I got " Zapped. " That was

a

> rather scary experience. OK, before I write any more, I will read

> through past posts so I have a better understanding of the group.

> Hello to all and also good health to all,

>

> Dave

[Guest guest]

Hey Dave:

A BIIIIG Welcome to you. This is the best support family you will find on internet. We have just about covered everything but we want to hear your experiences and questions. Just keep posting. Remember dont be shy because we can only learn from you. Take care. TURK

New Member

Hi, My name is Dave and I am 41 years old and live in New England.I had my 1st defibrillator implanted in January of 1994 at the age of 31 after collapsing playing basketball.I was diagnosed with "Right Ventricular Dysplasia."I'm currently on my 3rd device implanted in my abdomen. After writing this intro I will go through the past posts to get an idea as to what has already been discussed in this group.Anyone who wants to discuss any issue involving having an implanted defibrillator, I will be glad to give my opinion/experiences.I have been shocked 10 or 11 times in ten plus years. One time I was driving in a snowstorm on the highway when I got "Zapped." That was a rather scary experience. OK, before I write any more, I will read through past posts so I have a better understanding of the group.Hello to all and also good health to all,DavePlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hello again Pam:

I forgot to say one thing. You can have your neese post here as well. Your 12 year old nees has my thoughts and preayers. We have lots of young people here, I am sure they will be please to welcome her. TURK

New Member> > > Hi, My name is Dave and I am 41 years old and live in New England.> I had my 1st defibrillator implanted in January of 1994 at the age of > 31 after collapsing playing basketball.> I was diagnosed with "Right Ventricular Dysplasia."> I'm currently on my 3rd device implanted in my abdomen. > After writing this intro I will go through the past posts to get an > idea as to what has already been discussed in this group.> Anyone who wants to discuss any issue involving having an implanted > defibrillator, I will be glad to give my opinion/experiences.> I have been shocked 10 or 11 times in ten plus years. One time I was > driving in a snowstorm on the highway when I got "Zapped." That was a > rather scary experience. OK, before I write any more, I will read > through past posts so I have a better understanding of the group.> Hello to all and also good health to all,> > Dave> > > > > Please visit the Zapper homepage at> http://www.ZapLife.org > > > > ------------------------------------------------------------------------------>

[Guest guest]

Hi Gail

I grew up in Glastonbury and family moved to east hartford when I was 16. I now own house in Hebron which my son is renting and have house down here in Arkansas. I been to Stonington a number of times. Hows the weather up there. maybe we will run into each other on one of my many trips back up there.

Keep in touch

Bill and Zeu

Gail & <charade799@...> wrote:

Bill, where about's in CT? Dave and I settled in down in the south east corner (Stonington) after moving down from a small town in Ma (Berlin - 2000 people 5000 cattle - at least when we lived there). Small world :-)

Gail

Re: New Member

red6903904 <bobcat256@...> wrote:

Hi Dave

Wellcome aboard. I'm 57 and had icd since jan of last yr. zapped 3 times . I think you will like this group and with your experience you can be a big help to some of the newbies here, including me i'm a fairly newbie here to. By the way, I'm from New England also, but in Arkansa for the past 6 yrs but I still own house in Conn. Good to hear from someone from home

Bills and Zeus

Hi, My name is Dave and I am 41 years old and live in New England.I had my 1st defibrillator implanted in January of 1994 at the age of 31 after collapsing playing basketball.I was diagnosed with "Right Ventricular Dysplasia."I'm currently on my 3rd device implanted in my abdomen. After writing this intro I will go through the past posts to get an idea as to what has already been discussed in this group.Anyone who wants to discuss any issue involving having an implanted defibrillator, I will be glad to give my opinion/experiences.I have been shocked 10 or 11 times in ten plus years. One time I was driving in a snowstorm on the highway when I got "Zapped." That was a rather scary experience. OK, before I write any more, I will read through past posts so I have a better understanding of the group.Hello to all and also good health

to all,DavePlease visit the Zapper homepage athttp://www.ZapLife.org Please visit the Zapper homepage athttp://www.ZapLife.org Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hi ne, Oh my goodness, you have been zapped 30 times in 8 months !

That is an unacceptable amount of shocks in my opinion, you poor thing.

I assume you have been on meds since 1992. I would hope that a new doctor could perhaps find some meds that can reduce the number of shocks you are getting. That is a truly terrifying situation your in. (Tell you something you don't know)

I almost feel embarrassed telling you my story compared with yours.

Once I went as long as 3 years without a shock. It has been 18 months since I was last shocked. (Twice in one week)

A lot of people I talk with who have ICD's tell me they have no warning before they get shocked and some lose consciousness

I guess I am lucky in that respect as I get a bunch of PVC's and a dizzy sort feeling when I go into V-Tach and have 5 seconds or so to prepare for the shock. It is a long 5 seconds though. I have only lost complete consciousness once and that was before I had the device implanted. I was playing basketball, collapsed and lost consciousness for 10 or 20 seconds. I had a complete heart work up and they found nothing wrong with my heart. I even lasted 19 minutes on the treadmill with no problems. Then 4 months later I went into V-Tach playing hoop and walked of the court and sat on the bench till the end of the game almost losing consciousness many times, but I remained awake. I should have said to someone, call me an ambulance, but stupidly waited till after the game and told my best friend that something was seriously wrong with me and I needed to go to the hospital fast. (Of course it was a 15-minute ride to get there)

I walked into the Emergency room and was still close to losing consciousness, but standing and walking. The ER was busy and I was put at the bottom of the waiting list. I worked out daily back then and looked in great shape, so I guess they figured I could wait, of course they had no idea my heart was in sustained V-Tach at 330 beats a minute. I did not even know it was my heart causing the problem. I was in sustained V-Tach for 1 solid hour before I reached the hospital and after another 15 or so minutes waiting at the end of the line at the ER, I began to realize that it was OK to just give up and move on.

It was a very peaceful feeling sweeping over me and I was very much so tempted to just pass on to this very peaceful state. It was like a voice in my head was telling me everything will be OK, just let go. Then I had a sudden desire to stay a bit longer in this world and faked losing complete consciousness and falling of the chair onto the floor knowing that would get me some immediate medical attention, and that it did. (Always good to remember that the "Squeaky wheel will get the grease" it can save your life, it saved mine) The nurse was visibly shocked as she hooked the heart monitor up and saw I was in VT. In come the paddles and here I am still around to tell this story. My EP doctor, (DR Estes from Tufts New England Medical Center) told me that I was very fortunate that mechanically my heart handled being in sustained VT at that rate for 90 minutes and was amazed that I walked into the ER.

OK, So I spilled my guts and told you the long version of my story, I hope your still awake..LOL..

I agree ne that you need to see a doctor who can get you on some meds that can better control your arrhythmia’s.

You are in my prayers and I am sure that you will have improvement and get less shocks once a good EP doctor finds a method of controlling your arrhythmia’s better.

Thanks for your welcome to the group and please let me know if there is anything I can do to help you with you current situation.

God Bless,

Dave Re: New Member

Hi Dave, I also have ARVD, and had an ICD implanted June of 2003, although I've been dealing with the problem since 1992. Been zapped 30 times -4 while driving myself. I can sympathize with the anxiety when that happens! I'm 33, and live in central New York. I'm currently looking for a new cardiologist, since I don't think I'm getting the care I need from the one I have right now. Just wanted to say hello, and welcome to the group > Hi, My name is Dave and I am 41 years old and live in New England.> I had my 1st defibrillator implanted in January of 1994 at the age of > 31 after collapsing playing basketball.> I was diagnosed with "Right Ventricular Dysplasia."> I'm currently on my 3rd device implanted in my abdomen. > After writing this intro I will go through the past posts to get an > idea as to what has already been discussed in this group.> Anyone who wants to discuss any issue involving having an implanted > defibrillator, I will be glad to give my opinion/experiences.> I have been shocked 10 or 11 times in ten plus years. One time I was > driving in a snowstorm on the highway when I got "Zapped." That was a > rather scary experience. OK, before I write any more, I will read > through past posts so I have a better understanding of the group.> Hello to all and also good health to all,> > DavePlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Daveed to you I feel like a faker. Ihad my V tach in a shopoping mall

not too far from the hospital, and after a few minutes Iknew I had

problems, so I told my wife to get to the ER asap. She got lost

trying to find a short cut. I had the tachycardia for only about 30

minutes at a much lower rate, before they got it stopped. I never

passed out, but I was really disoriented.

Ralph

[Guest guest]

Hello Ken,

I was wondering if there were any other persons in this group who had Dr Estes as a EP doctor.

I read an article a few years back that described Dr Estes as a "Foremost authority" on Heart rhythm problems in the world.

He has been on national TV a few times discussing electrical heart problems in the past.

He is a wonderful man in my opinion. You must have some connections to even see him as he does not just take patients off of the street. I was told that there was no way I could get into NEMC from my local hospital, even back in January of 94, but my family does have some connections there and to my local hospitals surprise they took me. Dr Estes will never abandon a patient for lack of insurance, we are so lucky to have him as our doctor. I have been reading some of the past posts in this group and to read of some of the horrible treatment some people have had, makes me count my blessings that I have a good Doctor.

I am not in the study because my first device was implanted in 1994 and because of that I do not meat the criteria for it.

I will gladly share with you my extensive experience with exercising and ICD's.

But please realize Ken that everyone is different and just because I may have a opinion or experienced certain things, it does not mean it will be the same for you. I was determined after my device was implanted that I was not going to let this stop me from maintaining my excellent physical condition. While I did immediately stop playing in Basketball leagues, I still continued to play a little pick up and "1 on 1" for a few years after the implant. I also continued to lift weights 4 or 5 days a week, jogged, biked, Stairmaster, treadmill, skiing snowboarding etc.

I got my first shock playing "1 on 1" basketball about 18 months after my implant. It scared me enough to only shoot around hoops after that. It is painful to get shocked, although the pain lasts only a brief moment. It knocks me off of my feet if I am standing when it happens. I continued to work out in every other way for 4 years. Sometimes I would have irregular heart rhythms that were under the device threshold and I would have to lay down flat on my back for 30 minutes to 90 minutes before I was well enough to stand up and go home. To me, that is worse than getting a shock that knocks my heart into a normal rhythm in short order. Once I was shocked while working out on the Stairmaster. After that I went out and purchased a heart monitor to more accurately monitor my heart rate. At the 4-year mark, I got a call from NEMC informing me that my device was being recalled because it was found that some of my model ICD were defective and I needed to have a new one implanted. Two weeks after my new implant I was on the Stairmaster again and I had a problem with my heart that required an ambulance to take me out of the health club. The next day I went back to the club to get right back on that Stairmaster and not let it get the best of me. Well, I was so scared while on it, I got shocked twice and someone called an ambulance and of to the ER again. Well that was the third time in 4 years this occurred and I found it too embarrassing to keep getting hauled out of the club on a stretcher. So I quite the club and began working out (In a less stressful manner) at home and around my neighborhood. Now that it has been a 10 years and one month since my first implant I can tell you that for me, walking and biking for 45 minutes to an hour 4 times a week and keeping my heart rate low 120 max, works best for me. I finally realized about 3 years ago that I do not have to risk having a episode to stay in fairly good shape. Walking is the best exorcise for anyone's heart. It is low impact and very beneficial to your heart. I do not ski or snowboard anymore because I am on a high dose of blood thinner for blood clots and crashing on the mountain could be dangerous for me because a little bump for someone else could seriously injure me.

Honestly Ken, It does get better as time moves on and the fact that you have never been shocked is great, yet you have the anxiety of not knowing what to expect. It is still a very traumatic experience for me to get shocked although I now realize it saves my life so I also have a feeling of relief to still be alive and I am doing pretty well physically. Some days I do feel sorry for myself, but one does not have to look far to see persons with much worse conditions than ourselves and that seems to shake me out of those kind of thoughts in fairly short order.

If I notice I am getting a bunch of PVC's, I immediately stop what I am doing and sit down until they subside. I have found that for me that that is my warning sign to chill out and think calm and happy thoughts. Also taking in a deep breath and coughing a number of times seems to help get a normal heart rhythm going again for me.

I know I wrote you a long letter here and I am sure I have not addressed all of your questions you may have.

Fell free to ask me anything, and if you want to talk on the phone, just e-mail me offline and I will give you my phone number and we can talk. You are doing fine and will continue to do well. There is certain to be a few "Bumps" on the way but you will survive, "This too shall pass" my friend.

All my best to you and God Bless,

Dave New Member>Date: Tue, 17 Feb 2004 23:08:20 -0000>>Hi, My name is Dave and I am 41 years old and live in New England.>I had my 1st defibrillator implanted in January of 1994 at the age of>31 after collapsing playing basketball.>I was diagnosed with "Right Ventricular Dysplasia.">I'm currently on my 3rd device implanted in my abdomen.>After writing this intro I will go through the past posts to get an>idea as to what has already been discussed in this group.>Anyone who wants to discuss any issue involving having an implanted>defibrillator, I will be glad to give my opinion/experiences.>I have been shocked 10 or 11 times in ten plus years. One time I was>driving in a snowstorm on the highway when I got "Zapped." That was a>rather scary experience. OK, before I write any more, I will read>through past posts so I have a better understanding of the group.>Hello to all and also good health to all,>>Dave>>_________________________________________________________________Get a FREE online computer virus scan from McAfee when you click here. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hi Bills and Zeus,

Thanks for the warm welcome !

Anything I can do to help anyone would be my pleasure.

Best Regards,

Dave

Re: New Member

red6903904 <bobcat256@...> wrote:

Hi Dave

Wellcome aboard. I'm 57 and had icd since jan of last yr. zapped 3 times . I think you will like this group and with your experience you can be a big help to some of the newbies here, including me i'm a fairly newbie here to. By the way, I'm from New England also, but in Arkansa for the past 6 yrs but I still own house in Conn. Good to hear from someone from home

Bills and Zeus

Hi, My name is Dave and I am 41 years old and live in New England.I had my 1st defibrillator implanted in January of 1994 at the age of 31 after collapsing playing basketball.I was diagnosed with "Right Ventricular Dysplasia."I'm currently on my 3rd device implanted in my abdomen. After writing this intro I will go through the past posts to get an idea as to what has already been discussed in this group.Anyone who wants to discuss any issue involving having an implanted defibrillator, I will be glad to give my opinion/experiences.I have been shocked 10 or 11 times in ten plus years. One time I was driving in a snowstorm on the highway when I got "Zapped." That was a rather scary experience. OK, before I write any more, I will read through past posts so I have a better understanding of the group.Hello to all and also good health to all,DavePlease visit the Zapper homepage athttp://www.ZapLife.org Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Thanks Turk,

I have been reading some of the past posts and feel that I know you a little already.

I also lost my job 4 months ago and am having some difficulty finding work in my field as well.

You are in my prayers that your legal issues will be resolved with out you being thrown in the poky !

Sometimes I feel if it was not for bad luck we would have none at all Brother.

Hang in there,

Dave

New Member

Hi, My name is Dave and I am 41 years old and live in New England.I had my 1st defibrillator implanted in January of 1994 at the age of 31 after collapsing playing basketball.I was diagnosed with "Right Ventricular Dysplasia."I'm currently on my 3rd device implanted in my abdomen. After writing this intro I will go through the past posts to get an idea as to what has already been discussed in this group.Anyone who wants to discuss any issue involving having an implanted defibrillator, I will be glad to give my opinion/experiences.I have been shocked 10 or 11 times in ten plus years. One time I was driving in a snowstorm on the highway when I got "Zapped." That was a rather scary experience. OK, before I write any more, I will read through past posts so I have a better understanding of the group.Hello to all and also good health to all,DavePlease visit the Zapper homepage athttp://www.ZapLife.org Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hey Ralph,

Yes, I agree that it is quite disorienting while in a sustained tachycardia.

Fun it is not !

Dave

Re: New Member

Daveed to you I feel like a faker. Ihad my V tach in a shopoping mallnot too far from the hospital, and after a few minutes Iknew I hadproblems, so I told my wife to get to the ER asap. She got losttrying to find a short cut. I had the tachycardia for only about 30minutes at a much lower rate, before they got it stopped. I neverpassed out, but I was really disoriented.RalphPlease visit the Zapper homepage athttp://www.ZapLife.org