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Jan,

I don't have a Medtronic I have a Ventritex. I live about 50 mi south of you,

Viola, WI. Welcome to the group.

Joe

Jan Jarvinen wrote:

> Phyllis,

> Where in Wisconsin. I have a Medtronic ICD. Live in la Crosse.

> Jan

> New Member

> > Date: Thu, 8 Jun 2000 14:35:42 -0700

> >

> > [Original message contained attachments.]

> >

> >

> >

> > ------------------------------------------------------------------------

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Hi Phyllis,

This is Mike from central PA., and I know what you mean about the site.

Reading the messages others post at Zaplist, and the stories they tell are

like therapy. It seems like the vast majority of us don't have support

groups in our areas. The more you learn about your condition, and the

conditions that others deal with the easier it is to cope with your own. I

lived in Racine Wisconsin from 1992 - 1996, was a Navy Recruiter then. Not

sure how far you are from there? Beautiful State! Well, just wanted to

welcome you to the site. Take care and stay healthy.

Mike

PS

Enjoy your vacation!

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Jan & Joe

I live in Milwaukee with m y Medtronic ICD, ever been to Froedtert.

Phyllis

New Member

> > Date: Thu, 8 Jun 2000 14:35:42 -0700

> >

> > [Original message contained attachments.]

> >

> >

> >

> > ------------------------------------------------------------------------

> > Free @Backup service! Click here for your free trial of @Backup.

> > @Backup is the most convenient way to securely protect and access

> > your files online. Try it now and receive 300 MyPoints.

> > 1/4935/9/_/6079/_/960501431/

> > ------------------------------------------------------------------------

> >

> >

>

> ------------------------------------------------------------------------

> Remember four years of good friends, bad clothes, explosive chemistry

> experiments.

> 1/4051/9/_/6079/_/960510204/

> ------------------------------------------------------------------------

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The more messages I read from the is what I have needed for a long time.

This is the best help I have received and have gained a little more confidence.

Phyllis

New Member

Date: Fri, 9 Jun 2000 08:42:24 -0400 (EDT)

Hi, I am glad (?) to see that there are people in our age group (30-45)

who are dealing with this. I was 36, exercised regularly, no smoke, no

drink, and had this happen to me after doing yard work and falling in the

shower (has anyone else have an attack occur in the shower?). I had mine

implanted in 9/99 and now am on betapace to control PVC and VT. It's

frustrating to not be able to exercise as much as I used to, but am glad

to be alive. I am always worried about the my lifespan since the ICD has

only been around less than 20 years.

On Thu, 8 Jun 2000, L wrote:

> Hey Mike- I was jogging when I started experiencing non-sustained episodes

> of VT and later that night I went into DF and was pretty much dead. I was

> in a coma and on life support for 3 days. It is pretty shocking to have

> something like this happen when you think you are healthy. I no longer

> jog, but I do walk/hike almost everyday and work out on lite weights. Most

> people in the ICD support groups I attend are much older, so it is

> refreshing to see ICD recpients clsoer in age sharing their stories! Take

> care,

> At 05:17 PM 6/8/00 -0400, you wrote:

> >Hi Amy,

> >My name is Mike, and I'm new to the site also. I'm am also new to owning a

> >defibrillator (3 weeks)! In March the day before my 41st birthday I passed

> >out while jogging during my lunch break, and later test in the hospital

> >revealed 3 arteries almost completely blocked. After by-pass surgery they

> >discovered an irregular heartbeat, and to make a long story short they

> >discovered that I had a non-sustained V-tach which lead to the Guidant AICD

> >in my chest 3 weeks ago. There are no local support groups in my area

> >(Central Pennsylvania), so I really enjoy the site. Hope to hear from you

> at

> >one of the chat sessions on Tuesdays, Thursdays or Saturdays. Take care.

> >Mike

> >

> >------------------------------------------------------------------------

> >Old school buds here:

> >1/4057/9/_/6079/_/960499070/

> >------------------------------------------------------------------------

> >

> >

> >

>

>

> ------------------------------------------------------------------------

> Free @Backup service! Click here for your free trial of @Backup.

> @Backup is the most convenient way to securely protect and access

> your files online. Try it now and receive 300 MyPoints.

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>

>

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Guest guest

Hi, contact ...icdjes@... and you will be given the url for a support

group. it is called the icd support group. i belong and nice people.

hope this helps! God Bless

Re: New Member

> Hi Phyllis,

> This is Mike from central PA., and I know what you mean about the site.

> Reading the messages others post at Zaplist, and the stories they tell are

> like therapy. It seems like the vast majority of us don't have support

> groups in our areas. The more you learn about your condition, and the

> conditions that others deal with the easier it is to cope with your own.

I

> lived in Racine Wisconsin from 1992 - 1996, was a Navy Recruiter then.

Not

> sure how far you are from there? Beautiful State! Well, just wanted to

> welcome you to the site. Take care and stay healthy.

> Mike

> PS

> Enjoy your vacation!

>

> ------------------------------------------------------------------------

> Make PayPal your friend.

> Sign up today and get a $5 bonus.

> 1/5024/9/_/6079/_/960593288/

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>

>

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Guest guest

Phyliss, there is a support group that meets sundays and wednesdays about

9pm. it is called the ICD support group. i am a member. very nice crowd.

contact ICDJES@... for the URL. hope this helps. God Bless. Jerry

New Member

> Date: Fri, 9 Jun 2000 08:42:24 -0400 (EDT)

>

>

> Hi, I am glad (?) to see that there are people in our age group (30-45)

> who are dealing with this. I was 36, exercised regularly, no smoke, no

> drink, and had this happen to me after doing yard work and falling in the

> shower (has anyone else have an attack occur in the shower?). I had mine

> implanted in 9/99 and now am on betapace to control PVC and VT. It's

> frustrating to not be able to exercise as much as I used to, but am glad

> to be alive. I am always worried about the my lifespan since the ICD has

> only been around less than 20 years.

>

> On Thu, 8 Jun 2000, L wrote:

>

> > Hey Mike- I was jogging when I started experiencing non-sustained

episodes

> > of VT and later that night I went into DF and was pretty much dead. I

was

> > in a coma and on life support for 3 days. It is pretty shocking to have

> > something like this happen when you think you are healthy. I no longer

> > jog, but I do walk/hike almost everyday and work out on lite weights.

Most

> > people in the ICD support groups I attend are much older, so it is

> > refreshing to see ICD recpients clsoer in age sharing their stories!

Take

> > care,

> > At 05:17 PM 6/8/00 -0400, you wrote:

> > >Hi Amy,

> > >My name is Mike, and I'm new to the site also. I'm am also new to

owning a

> > >defibrillator (3 weeks)! In March the day before my 41st birthday I

passed

> > >out while jogging during my lunch break, and later test in the hospital

> > >revealed 3 arteries almost completely blocked. After by-pass surgery

they

> > >discovered an irregular heartbeat, and to make a long story short they

> > >discovered that I had a non-sustained V-tach which lead to the Guidant

AICD

> > >in my chest 3 weeks ago. There are no local support groups in my area

> > >(Central Pennsylvania), so I really enjoy the site. Hope to hear from

you

> > at

> > >one of the chat sessions on Tuesdays, Thursdays or Saturdays. Take

care.

> > >Mike

> > >

> >

>------------------------------------------------------------------------

> > >Old school buds here:

> > >1/4057/9/_/6079/_/960499070/

> >

>------------------------------------------------------------------------

> > >

> > >

> > >

> >

> >

> > ------------------------------------------------------------------------

> > Free @Backup service! Click here for your free trial of @Backup.

> > @Backup is the most convenient way to securely protect and access

> > your files online. Try it now and receive 300 MyPoints.

> > 1/4935/9/_/6079/_/960511165/

> > ------------------------------------------------------------------------

> >

> >

> >

>

>

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>

>

>

>

>

> ------------------------------------------------------------------------

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Guest guest

Phyllis, hope u dont mind my replies. Medtronic is a very good zapper.

had one for 2 years...worked great. i now have a venrax

unit...dual.....pacemaker and defirillator. also works well. still

kicking. im from new jersey. Jerry

New Member

> > > Date: Thu, 8 Jun 2000 14:35:42 -0700

> > >

> > > [Original message contained attachments.]

> > >

> > >

> > >

> >

> ------------------------------------------------------------------------

> > > Free @Backup service! Click here for your free trial of @Backup.

> > > @Backup is the most convenient way to securely protect and access

> > > your files online. Try it now and receive 300 MyPoints.

> > > 1/4935/9/_/6079/_/960501431/

> >

> ------------------------------------------------------------------------

> > >

> > >

> >

> > ------------------------------------------------------------------------

> > Remember four years of good friends, bad clothes, explosive chemistry

> > experiments.

> > 1/4051/9/_/6079/_/960510204/

> > ------------------------------------------------------------------------

>

>

> ------------------------------------------------------------------------

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> more each month? Join beMANY! Our huge buying group gives you Long

Distance

> rates which fall monthly, plus an extra $60 in FREE calls!

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>

>

>

>

>

> ------------------------------------------------------------------------

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Distance

> rates which fall monthly, plus an extra $60 in FREE calls!

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Mike

Mike

Thanks for your message. This site is great. Will have to pass this on to

the electrophysiologist that I see.

Phyllis

New Member

Date: Fri, 9 Jun 2000 19:28:00 EDT

Hi Phyllis,

This is Mike fr om central PA., and I know what you mean about the site.

Reading the messages others post at Zaplist, and the stories they tell are

like therapy. It seems like the vast majority of us don't have support

groups in our areas. The more you learn about your condition, and the

conditions that others deal with the easier it is to cope with your own. I

lived in Racine Wisconsin from 1992 - 1996, was a Navy Recruiter then. Not

sure how far you are from there? Beautiful State! Well, just wanted to

welcome you to the site. Take care and stay healthy.

Mike

PS

Enjoy your vacation!

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Guest guest

Reuban I did better than that I had SCA immediately after taking a shower at

the gym. Fractured my ribs on the drying bench as fell and was laying on

the tile floor until the medics came. When I came too someone was yelling

for gods sake cover him. Things got worse that day, but I made and have had

my ICD since Aug 1997. Seems like yesterday.

Mel

Re: New Member

>

> Hi, I am glad (?) to see that there are people in our age group (30-45)

> who are dealing with this. I was 36, exercised regularly, no smoke, no

> drink, and had this happen to me after doing yard work and falling in the

> shower (has anyone else have an attack occur in the shower?). I had mine

> implanted in 9/99 and now am on betapace to control PVC and VT. It's

> frustrating to not be able to exercise as much as I used to, but am glad

> to be alive. I am always worried about the my lifespan since the ICD has

> only been around less than 20 years.

>

> On Thu, 8 Jun 2000, L wrote:

>

> > Hey Mike- I was jogging when I started experiencing non-sustained

episodes

> > of VT and later that night I went into DF and was pretty much dead. I

was

> > in a coma and on life support for 3 days. It is pretty shocking to have

> > something like this happen when you think you are healthy. I no longer

> > jog, but I do walk/hike almost everyday and work out on lite weights.

Most

> > people in the ICD support groups I attend are much older, so it is

> > refreshing to see ICD recpients clsoer in age sharing their stories!

Take

> > care,

> > At 05:17 PM 6/8/00 -0400, you wrote:

> > >Hi Amy,

> > >My name is Mike, and I'm new to the site also. I'm am also new to

owning a

> > >defibrillator (3 weeks)! In March the day before my 41st birthday I

passed

> > >out while jogging during my lunch break, and later test in the hospital

> > >revealed 3 arteries almost completely blocked. After by-pass surgery

they

> > >discovered an irregular heartbeat, and to make a long story short they

> > >discovered that I had a non-sustained V-tach which lead to the Guidant

AICD

> > >in my chest 3 weeks ago. There are no local support groups in my area

> > >(Central Pennsylvania), so I really enjoy the site. Hope to hear from

you

> > at

> > >one of the chat sessions on Tuesdays, Thursdays or Saturdays. Take

care.

> > >Mike

> > >

> >

>------------------------------------------------------------------------

> > >Old school buds here:

> > >1/4057/9/_/6079/_/960499070/

> >

>------------------------------------------------------------------------

> > >

> > >

> > >

> >

> >

> > ------------------------------------------------------------------------

> > Free @Backup service! Click here for your free trial of @Backup.

> > @Backup is the most convenient way to securely protect and access

> > your files online. Try it now and receive 300 MyPoints.

> > 1/4935/9/_/6079/_/960511165/

> > ------------------------------------------------------------------------

> >

> >

> >

>

>

> ------------------------------------------------------------------------

> LOW RATE, NO WAIT!

> Get a NextCard Visa, in 30 seconds! Get rates

> as low as 2.9% Intro or 9.9% Fixed APR and no hidden fees.

> 1/5196/9/_/6079/_/960554576/

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>

>

>

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Guest guest

Hi Amy,

I See that you sport a zapper also & have ventricular tachycardia. Same for

me.

There's one thing that gets me which is about the RX I take--called Tambocor.

I found it to be very uncommonly prescribed. Anyone else on this

medication? I realize that everyone is different & their bodies react

differently; but I do know that this drug is very controversial.

Just curious if anyone else has knowledge of this RX.

Take Care,

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To Amy,

I mistakenly directed E-Mail to you instead of Beth. Beth signed off stating

V-Tach at age 39) Anyway, anyone can answer if they know about Tambocor. Hi

Amy & Beth.

I'm new to this .

Thanks,

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Guest guest

Read your message about Tambocor. Have you had an side effects with this drug?

How has your heart rate been while on this?

Phyllis

New Member

Date: Sun, 11 Jun 2000 21:43:15 EDT

To Amy,

I mistakenly directed E-Mail to you instead of Beth. Beth signed off stating

V-Tach at age 39) Anyway, anyone can answer if they know about Tambocor. Hi

Amy & Beth.

I'm new to this .

Thanks,

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  • 2 weeks later...
Guest guest

Welcome Dave,

Nice to see you on the list, funnily enough as you'll notice there are quiet

a few ex mil guys on the list, all doing different things most of them

offshore, but a few doing other bits and bobs in various places.

If you have anything you want to post to the list, please feel free, its

been a bit quiet on here recently !

all the best for now

Ian

listowner

[] New Member

Hi all

My name is Dave

I am a CMT who has been around a bit. Just finished 18 years in the

Corps. I am developing a business in the industry with some colleages

but due to the nature of the work that is best left in the dark. I

have extensive experience in all of the worlds remote areas and I

have a specialist interest in penetrating trauma. I have worked with

other nations medical resources and have trained in the USA with one

or two agencies.

I am interested in developing realistic medical training simulations

for use on courses and as diagnostic evaluation. These simulations

can be taken to any situation out of hospital. And I am not talking

about your G10 cassim kit for those cynics amongst you.

Just like to say hi to Davy Gunn and Simpson.

Hope you guys are well.

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[?v

?@?@?@?u?O???[?v???[??'¦Ì'U'1'n'©?H?v

?T?[?N???E¡È¡±¡Æ?¢ói?E¡È¡±-¢ä?E?r?W?l?X?E¢óAE¡ÆÜŠ¡ë'A'C'?'1/4?I

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  • 2 months later...

Hello Abby,

I have had Achalasia for over 10 years now and have been through all the

surgery's .

My latest was the esophagectomy done at Cleveland Clinic by Dr. Rice who

specializes in achalasia. Even though things are better there is nothing to

end the misery of achalasia. Here are some pics. of my surgery on March 21 of

this year.

<A HREF= " http://albums.photopoint.com/j/AlbumIndex?u=59370 & a=3489947 " >PhotoPoi

nt (Guest Mode) - Free, easy photo sharing and photo gallery</A>

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Hi-

How are you doing? I saw the pics from your surgery. It looked pretty

rough . Eventually,

I'll have to have one too. My general surgeon was all set to do it

around Sept. 18th, but after my consult with the cardio-thoracic

surgeon, I decided to wait. I'm 40 (same age as the C-T surgeon) he

thought I should wait if I could til I was older. I can still

eat,though I can,t eat a whole meal at at time.

How did you feel post-op? Can you eat better than before? Did

you have a gastric pull-up or a colon interposition? I've heard a

great deal about the Cleveland Clinic. I work in an operating room,and

the surgeons I work with wanted me to go there when I was first

diagnosed. I found a great surgeon here not far from where I live. I

still may go there if I can no longer eat,and must have the surgery

sooner than I would have hoped or liked.

Stay in touch.

PS: Do you have reflux now?

Abby

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Hi, Barb!

Welcome to the group, although we all wish there weren't a need for a

community like this! Still, misery loves company, and more than anything

else, this has been a wonderful way for those of us who have suffered with

achalasia in silence to shake the feeling that we're suffering all alone.

I was amazed when I read that you've had achalasia for over 30 years! How

old were you when you first developed the symptoms? (Yes, I know - I'll be

able to figure out how old you are now!). How old were you when you first

were diagnosed?

You say you've had it all - the treatments, the surgeries, the medications.

As an " old hand " at this, it would be great to hear your success stories

(hopefully there are some) as well as those that didn't work the way you had

hoped. Any tips you can share for coping with the disease are always

appreciated - what works for one may help someone else. And if you'd like

to recommend - or issue a warning! - about any hospitals or specific

physicians you've dealt with over the years, that would be nice, too.

Thanks for joining us!

Carol

new member

>

>

> I recently came upon your group with the help of someone who is computer

> wise. I am not. I have had achalasia, dyspghasia, nutcrackers esophagus

> for 30 yrs. more of less. I have had numerous medications, dilations,

> botox shots and surgeries. So I have quite interested in your members

> comments. Glad to see there is a group that has this incureable disease.

> Barb

>

>

>

>

>

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  • 1 month later...

Hi ,

Welcome to our list. I believe that you'll really love it.

I'm glad you love LL. Who would imagine losing weight and inches just by

breathing and stretching. No more jarring of the joints, I used to do

aerobics, step aerobics, squats, lunges, wt lifting etc. Yes all of that

helped me but it messed up my knees and they'll never be the same. LL is

so relaxing, effective and energizing at the same time.

What kind of eating plan are you on? Wow 50 lbs loss! That's

wonderful!!!!!!!

Love, Liz

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Actually, ever since I started doing the LL, it's amazing the things I don't eat

anymore. I will admit that when I started (for the first month) I noticed some

difference on myself, but the scale hardly changed. I used to be a major cola

drinker. One day in April, I decided that I didn't want to drink it anymore and

decided to start drinking water. That was the hard part. Giving up the cola

was easy. It was the taste of water that bothered me. But, I kept at it and am

now a 'water junkie'. Drinking water was like knocking down the weight barrier.

I also take some nutritional supplements that seem to help. Right now, it's

like my body is stalemating.

I ordered Workout videos 1 & 2, plus the Strechband video set. They should be

here by Friday (I hope). Hopefully this will help. Also, I can't wait for the

CD that Rashelle is working on. Doing a workout in the car would be GREAT,

especially when I'm on the road 4 days a week, 2 to 3 hours (not all at once) a

day. 8'>

Does anyone know when the release date for that is?

stevku@... on 10/30/2000 11:39:00 AM

Please respond to LifeLiftegroups

LifeLiftegroups

cc: (bcc: I Simar/SAE/RDC)

Subject: Re: New Member

Hi ,

Welcome to our list. I believe that you'll really love it.

I'm glad you love LL. Who would imagine losing weight and inches just by

breathing and stretching. No more jarring of the joints, I used to do

aerobics, step aerobics, squats, lunges, wt lifting etc. Yes all of that

helped me but it messed up my knees and they'll never be the same. LL is

so relaxing, effective and energizing at the same time.

What kind of eating plan are you on? Wow 50 lbs loss! That's

wonderful!!!!!!!

Love, Liz

________________________________________________________________

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  • 4 weeks later...

In a message dated 11/26/00 8:00:26 AM Pacific Standard Time,

JR1398@... writes:

<< I have a question regarding piracetam. Does anyone else experience

major CNS depression from piracetam? What I had read said it was a

possible CNS stimulant. But it seriously depressed my breathing, body

temp, and caused irregular heart activity which set off my congestive

heart failure symptoms. I try to avoid that problem! I've cut the pills

until I was taking tiny peices and it still did it >>

Something similiar happened to me on this drug. I think its the brand I get,

I am switching to a different brand this week to see if the same thing

happens. Where do you get your piracetam from?

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> In a message dated 11/26/00 8:00:26 AM Pacific Standard Time,

> JR1398@W... writes:

>

> << I have a question regarding piracetam. Does anyone else experience

> major CNS depression from piracetam? What I had read said it was a

> possible CNS stimulant. But it seriously depressed my breathing, body

> temp, and caused irregular heart activity which set off my congestive

> heart failure symptoms. I try to avoid that problem! I've cut the pills

> until I was taking tiny peices and it still did it >>

>

> Something similiar happened to me on this drug. I think its the brand I get,

> I am switching to a different brand this week to see if the same thing

> happens. Where do you get your piracetam from?

I bought the piracetam from International Anti-aging Systems. I checked the

inactive ingredients on the web site. It seemed ok. I do get this type of

reaction from alot of different things. But I was surprised this did it. Please

let me know if another brand works for you. Thanks Judy

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  • 3 weeks later...

Hannah--<br> Hi! Absolutely! The positioning of

your feet can have EVERYTHING to do with knee pain..

If your feet aren't hitting the ground correctly,

your knee will not act correctly.. and it will all

trickle up.<br> A lot of my problem is caused by a tight

hamstring and achilles tendon... Because they're too tight,

my foot " slaps " the ground, and it sounds like I'm

stomping around.. I had surgery to loosen the tendon

(along with 'scope my knee), and it's made a world of

difference. Have it checked out.. That's my

advice.<br><br>E-mail me if you want any more

advice.<br><br>Dreamer1184@...<br><br>~

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  • 1 month later...

Kris

I have no clue on the sib part.. I have twins that are 6 and they went though

so hellish things to get attiton since the new baby..

congrats on your new daughter and welcome to our board

stacee

mommy to

Jaykob-Tyler

5-10-00 ds

more than a step mom to

maygan and makallah 6

and mikey 3

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Kris,

Welcome to the list so glad to have you aboard.

My name is Carolyn I am mom to Darran 18 DS ,Krystal 15 NDS , Tony 31 and four

grandsons who range from 8yrs to 1yr.

does like to help do things for the baby, Maybe she needs for the

baby to need her like she needs you. Maybe you need to ask for her help and I

did say ask gets you further alot of times than the telling does. Of course you

know this you are old hat at kids........LOL

Just had to put in a little humor.

My 15 yr daughter still milks attention from me I think it is a girl thing.

Congradulations to you and your whole family on this new and wonderful

wworld and the birth of this precious gift.

Carolyn

Tennessee

New member

Hello,

I'm Kris, new mom to Meghan Leigh born December 11th, 2000 with DS

and VSD, floppy windpipe and a delight every day and night.

Meghan is our 6th baby together, DH (Tom) and I have been married

since 1978. We also have four sons and another daughter. The boys are

all young men; Fred 23, Terry 21, 18, and 14 and our older

daughter is 8.

is having a hard time dealing with all the attention her little

sister gets. In addition to getting a new sister, she also had to get

her first pair of glasses. We have tried to help her with her jealous

feelings but we are getting annoyed because she milks the situation.

Any suggestions?

Kris

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