Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 got it mel At 03:40 PM 5/3/01 -0700, you wrote: >I'm not getting messages...can you guys tell me if you get this? > >Thanks, > > > >~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > >Memorial Page >http://www.dreamwater.net/lovingmemory/ > >Message Archives and Digest Attachment Pictures:- >/messages > >Chat:- >Scheduled Daily Chats at # on IRC DALnet. >/files/chat.htm > >Bookmarks:- >Add a website URL you have found useful. >/links > >Personal Complaints or problems:- >Please contact a moderator >email: -owner > >Subscription Details:- >1) Individual email - means that every email sent to the list you receive. >2) Daily Digest - sends you 25 messages in one single email for you to >browse. This is an excellent option if you receive alot of email. >3) Web only/No mail - means that you can pop into eGroups at your >convenience and receive no email. > >To modify your subscription settings please visit:- >/join > >To subscribe or unsubscribe please email:- >-subscribe >-unsubscribe > >~~~~ *** ~~~ *** ~~~ *** ~~~~ > > " Hold on to what is good, even if it's a handful of earth. Hold on to what >you believe, even if it's a tree that stands by itself. Hold on to what >you must do even, if it's a long way from here. Hold on to your life, even >if it's easier to let go. " - Pueblo Prayer > >~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 Dear , I not only got your message, I'm also receiving a lot of other notes from people saying they can't send (or is it receive?) messages through mail. I don't know what is up, but I don't really use for my e-mail and I don't seem to have a problem. However, I did log on to last night and it looks like every single message I've sent and received (well over 5,000 by now for the 2 groups) is still sitting there waiting for me! It's just too hard to read everything in my regular mail box, but to read it again on is going to be impossible! Oh, well, what's a sick guy to do? Gotta find the time. I love you all. Hugs, ie B fbertaud@... Don & wrote: I'm not getting messages...can you guys tell me if you get this?Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2001 Report Share Posted May 12, 2001 Message received. ===== Kristy http://www.geocities.com/sokokl/kristyspersonalpage.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 got your test . hope all is well at your end. Regards, Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Some others I know were having trouble too. Maybe was constipated for a while there! LOL Shaye testing can't log onto the groups.... wondering if mail is going through Our members map http://.homestead.com/locations.html Our Message Board http://www.voy.com/21568/ Check out these great Molds!! http://soapwerks.com/martinworld.htm Member Kae's Site... Awesome oil Prices! http://www.olivetreesoaps.com/ All posts to this list are copyrighted by post author. They may NOT be forwarded, copied, or used in anyway without the permission of the post author with the exception of answering posts to this list. Posts are personal opinions only. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 yes Terri it came through ! IN BB Terri Wagner <twagner@...> wrote: can't log onto the groups.... wondering if mail is going throughOur members maphttp://.homestead.com/locations.htmlOur Message Boardhttp://www.voy.com/21568/Check out these great Molds!!http://soapwerks.com/martinworld.htmMember Kae's Site... Awesome oil Prices!http://www.olivetreesoaps.com/All posts to this list are copyrighted by post author. They may NOT be forwarded, copied, or used in anyway without the permission of the post author with the exception of answering posts to this list. Posts are personal opinions only. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2002 Report Share Posted March 5, 2002 I got your message, Terri. Dee showed an unfound page earlier... we working? Terri Big Smiles...Creations Graphics by AngelKeeper____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 That image is awesome Dee!!! Colleen Country Meadow Creations __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Donna, I can see you fine...welcome Serra grace4_u wrote: > Just joined and am testing to see if I am active or not. Donna > -- Watch this space for the pre-opening of my webstore!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 In a message dated 8/21/02 7:18:19 AM Pacific Daylight Time, rdill@... writes: > > We approached Janet's education with a different attitude toward > testing. We allowed it to be done. The testing (varied which tests > were used from year to year) gave a reasonably consistent answer and > confirmation that Janet was not falling back. This was particularly > good when in mid-teens they said to expect the test results to drop > because people with down syndrome plateau, rather than continuing > learning. Jan is still learning at 29, but things like math skills take > constant use to maintain or improvement. > The only testing I've had problems with over the years is the IQ testing. Most IQ tests are structured on giving increasingly difficult material, in a predescribed order, until the child fails. These are the problems I have with that approach 1) It sets the child up for failure and frustration 2) will quickly shut down if she thinks she is being tested rather than taught 3) her learning is often non-linear. SHe'll pick up more advanced concepts and miss " easier " concepts. I see many of her issues as more of an LD than a MR problem.... but I can't ever convince the school psychologists of that! 4) Most school psychologists I've met are on a power trip! They tend to insist on test formats that are based on 's weaknesses (like language processing). I've had several nasty fights over the test format. 5) When the test results are inaccurate, then the school expectations are diminished. At this point the school has decided she can't learn to read based on the IQ tests putting her still at a Kindergarten level. (She's is going into 5th grade). Which is nuts. - Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 We approached Janet's education with a different attitude toward testing. We allowed it to be done. The testing (varied which tests were used from year to year) gave a reasonably consistent answer and confirmation that Janet was not falling back. This was particularly good when in mid-teens they said to expect the test results to drop because people with down syndrome plateau, rather than continuing learning. Jan is still learning at 29, but things like math skills take constant use to maintain or improvement. Our educational aims for Janet have always been simple. We want her to keep learning from where she is today. We also want her to keep being challenged to both learn and use what she knows, so that she won't lose what skills she has. I guess it is no different at 29 than it was at 9. Jan has things she's working on, some of them toward new achievement and some in maintenance mode. I understand that testing is bad if they use it to prove that they shouldn't educate. We never had that problem since our view was that education and expectations weren't based upon tests, but on improving from her current-state capabilities which are not what the tests measure. Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Seems to be working fine, at least in the North Sea. Regards Colin Jefferson- Medic DNO Alpha. Testing Just testing to see if the list is quiet or my Puters broken... Cheers, Brash \ Gavin Lines Senior Nurse Supervisor International SOS \ Cabinda Gulf Oil Company e-mail: Amed2@... Telephone: CTN. 8 345 2696 Via Aberdeen 01224 334000 Cabinda Ext. 2696 Member Information: List owner: Ian Sharpe Owner@... Editor: Ross Boardman Editor@... Post message: egroups Subscribe: -subscribeegroups Unsubscribe: -unsubscribeegroups Thank you for supporting Remote Medics Online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Hi , Your computer is working Everyone must be on holiday................ OwenD Testing Just testing to see if the list is quiet or my Puters broken... Cheers, Brash \ Gavin Lines Senior Nurse Supervisor International SOS \ Cabinda Gulf Oil Company e-mail: Amed2@... Telephone: CTN. 8 345 2696 Via Aberdeen 01224 334000 Cabinda Ext. 2696 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 yep..... seems like I'm on an ocean cruise to nowhere in the north sea sun...! (but cant find the bar, casino or swimming pool!) what you up for your simulated holiday .... playing on the beach making sandcastles?? (only joking!) enjoy! serious question - which do you feel is better - chemical activated icepacks (something like Koolpak) or waterjel style dressings .... how long does the cooling power of water-jel last when compared to Koolpak...? any ideas?? best wishes from a non holiday maker Re: Testing Hi , Your computer is working Everyone must be on holiday................ OwenD Testing Just testing to see if the list is quiet or my Puters broken... Cheers, Brash \ Gavin Lines Senior Nurse Supervisor International SOS \ Cabinda Gulf Oil Company e-mail: Amed2@... Telephone: CTN. 8 345 2696 Via Aberdeen 01224 334000 Cabinda Ext. 2696 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 Beth, What's wrong too much time on your hands????? LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 Yep! Me... Testing This is a test... Had someone say they had trouble sending to the list.... no posts yesterday so I'm checking to see if things will go through Anyone else have problems sending to the list? Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 I see ya Mar! Do you see me? /shaye testing Testing, testing, 1 2 3 I had problems yesterday so am just getting around to my emails tonight. Trying to send email to group to see what happens. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 You came through ... that's about all I can help with. My hubby uses OutLook and I use IncrediMail so I'm a stranger to OutLook.... I used to use OutLook Express. I know there is a big difference. Congrats on the new computer. We'll be looking for a new system in the Spring... hubby will want to built it himself though so we'll be going parts " shopping. Just up that mechanic's alley! We use Norton so I can't help there either, but if you don't get any answers I'll have my hubby drop you a line... don't be scared if you see an email from someone called squidley that's him (motorcycle riding nickname!) Terri .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Thanks Terri It's just going to take time. Re: testing You came through ... that's about all I can help with. My hubby uses OutLook and I use IncrediMail so I'm a stranger to OutLook.... I used to use OutLook Express. I know there is a big difference. Congrats on the new computer. We'll be looking for a new system in the Spring... hubby will want to built it himself though so we'll be going parts " shopping. Just up that mechanic's alley! We use Norton so I can't help there either, but if you don't get any answers I'll have my hubby drop you a line... don't be scared if you see an email from someone called squidley that's him (motorcycle riding nickname!) Terri .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2003 Report Share Posted March 28, 2003 I've got this really conservative doctor who is a good neuro but is only treating me because a friend has Lyme and he consults with Burrascano, so he is treating me. What you say is interesting, and I'm a serious researcher. Can you give me any leads to track this down? A doctor? So, are you saying there are seven of you, 4 Lyme positive with bad tests from Igenex but some different ones from Focus. Who are they? Are you associated with them in any way? Where did you get your Hokama stats? How do you know that this cigua like toxin attacks the liver, other organs and CNS? Which researchers? Beck Spelce skyqtee wrote: > Beck, > I am glad you tested postive for the coinfections. As you may already know > testing for these bugs > are difficult. I have a friend who has been treating lyme for about 6 > months and was wondering > if it was really lyme since he saw no improvement on IV rocephin. He also > tested negative for the all the > coinfections with Igenex and MDL. Then we got info on a laboratory called > Focus in California and > and they found 2 coinfections which changed his antibiotics protocol. I > don't know how he is doing > on this new protocol yet. Lyme especially, is like a Trojan Horse > everything hops on board. > > Anyhow, I have several friends 3 pos with myco and 3 with Lyme who are > still sick. To make a long story short they have all tested positive for > cigua. So I really don't know the connection > yet but I think this is significant. From what I understand there have been > over 200 samples sent to Hokama > from doctors who are dealing with the sickest people and 95 % have come up > positive. > This cigua like lipid toxin attacks the liver, other organs and central > nervous system. Now the reseachers > are trying to figure out the chemistry of this toxin and also determine what > is causing it. They think it is some sort of infectious agent. I think it > may be worse than lyme or myco. I would like to see as many people with > chronic illness get tested. > > Please consider next time you have to draw blood. Thank You > > Re: hep c and lyme > > > Jan, > > > > I've tested for coinfections and gratefully have none. > > > > Could you please explain the importance of Dr. Homama's test and it's > > relationship to burgdorferi and liver enzymes? > > > > Yes, I had a tick bite (only saw a palm sized rash). The Universe put a > > spanner in the works by having me bitten 3 times within 3 weeks by Brown > > Recluse Spiders, so for a long time, I blamed the problems on the BR > > Bites and my month later " flu " from hell. The rash persisted off and on > > for maybe 4 years. The doctor would just give me hydrocortisone cream > > for it. > > > > I lived adjacent to a suburban golf course and ran 2 miles every other > > day. There were loads of deer, couldn;t grow anything outside without > > wire cages. I ran across the golf course, where the little dears loved > > to come out in the early morning mist and " talk " to one another. I > > thought them charming. > > > > I had a neg. Western Blot in 1996, then a Biaxin prequel PCR with > > Igenex. was positive for DNA. > > > > Beck > > > > pnutmm92647 wrote: > > > > > Dear Beck, > > > Please take one step in testing the next time you have a blood > > > draw. Have you also tested for coinfections yet? I would strongly > > > suggest the > > > following: > > > > > > 1. Test for coinfections > > > 2. Test for cigua like lipid toxin (This is way up on the list > > > since you have liver involvement) > > > > > > p.s. were you ever bitten by a tick? I know that many who have the > > > disease don't recall a tick bite or bullseye rash but did you ever > > > notice any kind of rash and then get sick immediately? > > > > > > To better health > > > > > > -Jan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2003 Report Share Posted March 31, 2003 Our second child (of 5) had DS and died just before his 4th birthday. We decided to have another child after his death, but had three miscarriages in a row, so we had ourselves tested. Our karyotypes were normal. The miscarriages were probably due to a hormonal problem, which was easily corrected, and we went on to have healthy child no. 4. On the other hand, child no. 5 (aka Mr. Surprise) also has DS, although it is probably related to " advanced parental age. " Bev testing Hey! I just wanted to know if any of you had ever had testing done on yourselves. I've just experienced my second miscarriage in 3 mths. We're having a karyotype etc done tomorrow. I pray there isnt a link. Sydnie is almost 3 and want so much for her to have a brother/sister. My dr said he felt in his gut there wasnt anything wrong with either one of us but wants to make sure. Any suggestions? ~Angie May God Bless You As He Has Us www.babiesonline.com/babies/s/sydniebrooke www.marykay.com/atate526 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2003 Report Share Posted March 31, 2003 What else besides a karyotype? My in-expert opinion is that unless Sydnie has translocation DS you aren't going to find anything wrong with either you or your DH chromsomally. Anyway, I've had a total of 7 miscarriages and after m/c #4 we had a full work, so email me with any questions. I do wonder if I (we) have sticky chromsomes or some such thing given our history. Anne On Monday, March 31, 2003, at 07:25 PM, Angie Tate wrote: > Hey! I just wanted to know if any of you had ever had testing done on > yourselves. I've just experienced my second miscarriage in 3 mths. > We're having a karyotype etc done tomorrow. I pray there isnt a link. > Sydnie is almost 3 and want so much for her to have a brother/sister. > My dr said he felt in his gut there wasnt anything wrong with either > one of us but wants to make sure. Any suggestions? > ~Angie > May God Bless You As He Has Us > www.babiesonline.com/babies/s/sydniebrooke > www.marykay.com/atate526 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Yes, I have been tested. We do have the translocation type and I am a carrier. I had 3 miscarriages in 2 years before but no testing was done then. About 5% of DS in translocation and only 1% is hereditary. I also have an older daughter and she is not even a carrier. However there are and have been quite a few children with DS in my family. I have taught this to medical students (and a few doctors) so if I can help just ask. Jessie, mom of , 38, and the light of my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Donna, Hi. Are your posts coming through yet? I heard that there are some problems with comcast and aol. I hope they come through otherwise go to the web site to read the posts. still cant figure out whats wrong. <A HREF= " " >! Groups : </A> You might want to contact comcast if you can. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 I am not familiar with this test. You need to find out if the test can be administered as frequently as you wish to monitor, whether it be yearly or more often. Many standardized tests can not be done more than once every 12 months or the results are considered invalid. In Texas I have found that most schools use the Brigance to measure progress, and frequent testing doesn't affect reliability or validity on testing results. The only problem I have run into is when they release a new version -- you can't compare the results of one version to another. You can resolve this by having the school continue to use the same version, but somewhere down the line you will have to switch over to the latest test. The Brigance covers a broad span of grade/age levels. And you should be able to use the results (weaknesses) to write your child's IEPs. Barb Quote Link to comment Share on other sites More sharing options...
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