Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Too bad and Noah don't live closer...they would probably be great work buddies...Noah likes many of the same things...especially walking the neighborhood!!! He would be great on a delivery route! Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors Ellen, You have asked the million dollar question, that although I do not have the answer, my , does the same noises, literally all day also. Not high pitched but grunting and " ha " and " ohhh " in a deep voice. My husband is also extremely bothered by it, and now my daughter who is very tolerant, is going nuts too. I'm okay with it, school is very okay with it. is cooperative, sweet and productive as well, but the noises are a problem, because I fear it will hurt his abilities to work in the outside world. It just plain is not appropriate in a work setting. It has been going on now for about 1 year, he is almost 16 now. He is on clonazepam and Abilify, neither of which help it much. So anyone out there, help our families! To me it's not really that bad, but the world at large unfortunately will not tolerate it. Diane S > > Hi all: > Just wondering what others do when an individual with autism gets > real noisy and " hyper " ? > Noah is not among the great sleepers, but over the past half dozen > years or so, his behavior has been pretty calm and relatively > controlled, in spite of sleep issues...The past several weeks there > has been a pretty dramatic change; very noisy, flapping, > jumping...basically a resurgence of " old " behaviors...He is still > sweet, often smiley and cooperative. He does tend to " cycle up " more > in the fall and spring. He says he feels ok but cannot control the > noise. My husband is going CRAZY!!! He is really affected by the > constant (and I mean CONSTANT) noise. I am pretty tolerant but after > a few hours of hearing his high pitched humming and other variety of > sounds, I am ready to start using ear plugs. As a migraine sufferer, > this is particularly difficult for me when I have a migraine, as you > can imagine. > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of Buspar > twice a day and 1 mg of Klonipin in the evening before bed. I am > considering weaning him off the Lexapro...not that I think it is > causing a problem but, I don't think it is helping... > I have an appointment with the internist to check him out...there is > no evidence of an illness, but I want to make sure his throat and > ears are ok...maybe run some blood work...I am a nurse and in my > opinion, he is not ill...He says he feels ok and that nothing hurts. > He is eating and drinking...all other bodily functions seem ok... > I have a call in to the psychiatrist... > Any thoughts out there??? > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 I have worked with on this since he started to talk at age 4, I remember thinking " and I asked for this :-) " but it does make them stand out.? does it more to get attention if my boyfriend is over or quite honestly he will do it when he knows it's totally annoying me.? I have told him it looks weird, people will make fun of him, etc and when it gets on my last nerve at home I tell him that he needs to go into his room and shut the door if he can't control himself.? I will say that the Zoloft he takes does help but if he gets a bit hyper.....aaaaaaaccccccccccckkkkkkkkk and his thing is to recite dialog over and over and replay DVD's or video games over and over, the crash noises, etc.? I do feel he has become more aware of it and they have really worked with him at school on this too, we called in a behaviorist freshman year to help. God help us all and pass the wine! H. Re: Re: Question about increase in " autistic " behaviors IPADDUnite Date: Tuesday, October 28, 2008, 8:15 AM Hi Diane, We, too, have a 'loud' girl whose vocalizations have often been uncontrollable and very inappropriate to many business settings. It's a constant struggle, because like many young adults, she is capable of doing many productive things...the trick is to find places where either her noises won't be so disruptive as to get her 'fired', or to find work (mostly all volunteer so far) where she can keep moving around (which reduces the noises for her) or where she picks up the work, completes it off-site, then returns the finished product to the worksite. Right now we're fortunate that our school district/transition has a few options within some administrative buildings where can go to complete work. What happens beyond transition, I'm not really sure. I suspect that our kids' vocalizations will not only limit their abilities to work in the 'community' at large, but will also limit/impair their ability to live with others in a group home or apartment, or even to attend some of the day programs! It stinks!! I, too, wish there was some ready solution but we're still plugging along, trying to find work where we can so that she will have a meaningful day beyond transition. For her, the noise level goes noticeably UP when she is in less structured, more down-time, situations. Which does not bode well for the average day program or a 'stay-happily- at-home-with- mom' option. Yikes! Which is why I stress to anyone who has younger children to focus on the behaviors and communication aspects of their child -- because these are the skills, or lack thereof, that seem to most limit 's options as she goes forward. Her teachers tell me she can 'work circles around' most of the other transition students; but it's her vocalizations/ behaviors that prevent her from getting or keeping many assignments in the community. Let's keep this dialogue going. I'm investigating right now whether there would be a market for a 'door-to-door shredding business' for businesses in strip malls. could purchase a shredder and pull it around door-to-door on a wheeled luggage carrier...'do you have any shredding today?' and then shred in their backrooms. Gives her a purpose, helps some small businesses (maybe), and she likes to pull heavy objects and watch the paper going thru the shredder (great visual display). We'll see. Her residential real estate 'stuffing and delivery' service is something she also enjoys a lot (she's the one who stuffs marketing materials into cello bags and then walks them door-to-door) was great but right now the real estate business is NOT the place to be. With any of these ideas, I'm trying to find jobs that would pay her some money to offset the costs of paying for her support person (who drives her, supervises for safety etc). Thinking that someday soon we'll find a friend who has similar support needs/strengths who would be interested in doing it with her; then we'd share cost of the support person. Sorry if this is long, it's a subject that is near and dear to my heart. Laurie Re: Question about increase in " autistic " behaviors Ellen, You have asked the million dollar question, that although I do not have the answer, my , does the same noises, literally all day also. Not high pitched but grunting and " ha " and " ohhh " in a deep voice. My husband is also extremely bothered by it, and now my daughter who is very tolerant, is going nuts too. I'm okay with it, school is very okay with it. is cooperative, sweet and productive as well, but the noises are a problem, because I fear it will hurt his abilities to work in the outside world. It just plain is not appropriate in a work setting. It has been going on now for about 1 year, he is almost 16 now. He is on clonazepam and Abilify, neither of which help it much. So anyone out there, help our families! To me it's not really that bad, but the world at large unfortunately will not tolerate it. Diane S > > Hi all: > Just wondering what others do when an individual with autism gets > real noisy and " hyper " ? > Noah is not among the great sleepers, but over the past half dozen > years or so, his behavior has been pretty calm and relatively > controlled, in spite of sleep issues...The past several weeks there > has been a pretty dramatic change; very noisy, flapping, > jumping...basically a resurgence of " old " behaviors... He is still > sweet, often smiley and cooperative. He does tend to " cycle up " more > in the fall and spring. He says he feels ok but cannot control the > noise. My husband is going CRAZY!!! He is really affected by the > constant (and I mean CONSTANT) noise. I am pretty tolerant but after > a few hours of hearing his high pitched humming and other variety of > sounds, I am ready to start using ear plugs. As a migraine sufferer, > this is particularly difficult for me when I have a migraine, as you > can imagine. > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of Buspar > twice a day and 1 mg of Klonipin in the evening before bed. I am > considering weaning him off the Lexapro...not that I think it is > causing a problem but, I don't think it is helping... > I have an appointment with the internist to check him out...there is > no evidence of an illness, but I want to make sure his throat and > ears are ok...maybe run some blood work...I am a nurse and in my > opinion, he is not ill...He says he feels ok and that nothing hurts. > He is eating and drinking...all other bodily functions seem ok... > I have a call in to the psychiatrist. .. > Any thoughts out there??? > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Glenkirk called me about Noah's recent loudness, but they were not complaining...just wanted me to know...Noah is much quieter, typically when he is working, fortunately, though his cleaning job at the synagogue isn't a major problem, as there aren't many people around when he is there in the mornings. His new job, at a very busy health club would be more problematic...other than the business owners of the food concession are dear friends and Noah is a member at the club and has been using the facilities for a number of years... Still...I will worry a little more about that job. Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors Ellen, You have asked the million dollar question, that although I do not have the answer, my , does the same noises, literally all day also. Not high pitched but grunting and " ha " and " ohhh " in a deep voice. My husband is also extremely bothered by it, and now my daughter who is very tolerant, is going nuts too. I'm okay with it, school is very okay with it. is cooperative, sweet and productive as well, but the noises are a problem, because I fear it will hurt his abilities to work in the outside world. It just plain is not appropriate in a work setting. It has been going on now for about 1 year, he is almost 16 now. He is on clonazepam and Abilify, neither of which help it much. So anyone out there, help our families! To me it's not really that bad, but the world at large unfortunately will not tolerate it. Diane S > > Hi all: > Just wondering what others do when an individual with autism gets > real noisy and " hyper " ? > Noah is not among the great sleepers, but over the past half dozen > years or so, his behavior has been pretty calm and relatively > controlled, in spite of sleep issues...The past several weeks there > has been a pretty dramatic change; very noisy, flapping, > jumping...basically a resurgence of " old " behaviors... He is still > sweet, often smiley and cooperative. He does tend to " cycle up " more > in the fall and spring. He says he feels ok but cannot control the > noise. My husband is going CRAZY!!! He is really affected by the > constant (and I mean CONSTANT) noise. I am pretty tolerant but after > a few hours of hearing his high pitched humming and other variety of > sounds, I am ready to start using ear plugs. As a migraine sufferer, > this is particularly difficult for me when I have a migraine, as you > can imagine. > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of Buspar > twice a day and 1 mg of Klonipin in the evening before bed. I am > considering weaning him off the Lexapro...not that I think it is > causing a problem but, I don't think it is helping... > I have an appointment with the internist to check him out...there is > no evidence of an illness, but I want to make sure his throat and > ears are ok...maybe run some blood work...I am a nurse and in my > opinion, he is not ill...He says he feels ok and that nothing hurts. > He is eating and drinking...all other bodily functions seem ok... > I have a call in to the psychiatrist. .. > Any thoughts out there??? > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Funny, Marie! Guess this is just LOUD season for lots of individuals with ASD!!! Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors This has been a " loud " few days for as well (and with my concert next week, I hope he quiets down soon LOL!). Russ doesn't do well with the change of seasons and does have allergic rhinitis which doen't help. We are now at the end of that season and he should be better with a good, hard frost. Until that time, we do what we can. He has his own business--envelope stuffing--and can make all the noise he wants. We had a major pipe burst in our basement a month ago and with the professional cleaners ( the pipe carried all the junk from the disposal--it STUNK) and plumbers and workmen to put back the drywall and tile (mess, mess, mess), he has not been happy. Our basement is partially finished and it was in the unfinished part (thank goodness) but Russ still cannot go and watch his movies in the basement with all the junk from the storage area sitting on the recliner and daybed and the area around the TV. This does not please him. And having workman around (and him being loud)is not easy for him. Or me. We have the last part to do next week. I am hoping it makes a difference whan he can go back to the rec room. Anyway, we all do what we can and some days (and weeks and months) are louder than others. BTW Chuck is the one that can take the noise, I am the one ready to scream (and I am a soprano--hear me roar, but HIGH!)most days! Marie > > > > Hi all: > > Just wondering what others do when an individual with autism gets > > real noisy and " hyper " ? > > Noah is not among the great sleepers, but over the past half dozen > > years or so, his behavior has been pretty calm and relatively > > controlled, in spite of sleep issues...The past several weeks there > > has been a pretty dramatic change; very noisy, flapping, > > jumping...basically a resurgence of " old " behaviors...He is still > > sweet, often smiley and cooperative. He does tend to " cycle up " > more > > in the fall and spring. He says he feels ok but cannot control the > > noise. My husband is going CRAZY!!! He is really affected by the > > constant (and I mean CONSTANT) noise. I am pretty tolerant but > after > > a few hours of hearing his high pitched humming and other variety > of > > sounds, I am ready to start using ear plugs. As a migraine > sufferer, > > this is particularly difficult for me when I have a migraine, as > you > > can imagine. > > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of > Buspar > > twice a day and 1 mg of Klonipin in the evening before bed. I am > > considering weaning him off the Lexapro...not that I think it is > > causing a problem but, I don't think it is helping... > > I have an appointment with the internist to check him out...there > is > > no evidence of an illness, but I want to make sure his throat and > > ears are ok...maybe run some blood work...I am a nurse and in my > > opinion, he is not ill...He says he feels ok and that nothing > hurts. > > He is eating and drinking...all other bodily functions seem ok... > > I have a call in to the psychiatrist... > > Any thoughts out there??? > > Ellen > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 I will let you know if we find something that works, Diane. It is comforting to know that we are not alone. Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors Ellen, You have asked the million dollar question, that although I do not have the answer, my , does the same noises, literally all day also. Not high pitched but grunting and " ha " and " ohhh " in a deep voice. My husband is also extremely bothered by it, and now my daughter who is very tolerant, is going nuts too. I'm okay with it, school is very okay with it. is cooperative, sweet and productive as well, but the noises are a problem, because I fear it will hurt his abilities to work in the outside world. It just plain is not appropriate in a work setting. It has been going on now for about 1 year, he is almost 16 now. He is on clonazepam and Abilify, neither of which help it much. So anyone out there, help our families! To me it's not really that bad, but the world at large unfortunately will not tolerate it. Diane S > > Hi all: > Just wondering what others do when an individual with autism gets > real noisy and " hyper " ? > Noah is not among the great sleepers, but over the past half dozen > years or so, his behavior has been pretty calm and relatively > controlled, in spite of sleep issues...The past several weeks there > has been a pretty dramatic change; very noisy, flapping, > jumping...basically a resurgence of " old " behaviors...He is still > sweet, often smiley and cooperative. He does tend to " cycle up " more > in the fall and spring. He says he feels ok but cannot control the > noise. My husband is going CRAZY!!! He is really affected by the > constant (and I mean CONSTANT) noise. I am pretty tolerant but after > a few hours of hearing his high pitched humming and other variety of > sounds, I am ready to start using ear plugs. As a migraine sufferer, > this is particularly difficult for me when I have a migraine, as you > can imagine. > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of Buspar > twice a day and 1 mg of Klonipin in the evening before bed. I am > considering weaning him off the Lexapro...not that I think it is > causing a problem but, I don't think it is helping... > I have an appointment with the internist to check him out...there is > no evidence of an illness, but I want to make sure his throat and > ears are ok...maybe run some blood work...I am a nurse and in my > opinion, he is not ill...He says he feels ok and that nothing hurts. > He is eating and drinking...all other bodily functions seem ok... > I have a call in to the psychiatrist... > Any thoughts out there??? > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Make mine a shot of tequila I have had many conversations with Noah about how noises and OCD type behavior may be a barrier to full community inclusion and employment. It does help but he says he cannot usually control it. I wonder if some of you have also experienced " the look " when our sweet young men and women decide they are going to be obnoxious and " devilish " ...oh boy...when I see " the look " I know I had better not let him out of my sight...he will tear things up (bags, boxes, containers) he will rip stems off fruit, labels off anything...does this also sound familiar to anyone, as long as we are " chatting " about challenging behaviors Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors Ellen, You have asked the million dollar question, that although I do not have the answer, my , does the same noises, literally all day also. Not high pitched but grunting and " ha " and " ohhh " in a deep voice. My husband is also extremely bothered by it, and now my daughter who is very tolerant, is going nuts too. I'm okay with it, school is very okay with it. is cooperative, sweet and productive as well, but the noises are a problem, because I fear it will hurt his abilities to work in the outside world. It just plain is not appropriate in a work setting. It has been going on now for about 1 year, he is almost 16 now. He is on clonazepam and Abilify, neither of which help it much. So anyone out there, help our families! To me it's not really that bad, but the world at large unfortunately will not tolerate it. Diane S > > Hi all: > Just wondering what others do when an individual with autism gets > real noisy and " hyper " ? > Noah is not among the great sleepers, but over the past half dozen > years or so, his behavior has been pretty calm and relatively > controlled, in spite of sleep issues...The past several weeks there > has been a pretty dramatic change; very noisy, flapping, > jumping...basically a resurgence of " old " behaviors... He is still > sweet, often smiley and cooperative. He does tend to " cycle up " more > in the fall and spring. He says he feels ok but cannot control the > noise. My husband is going CRAZY!!! He is really affected by the > constant (and I mean CONSTANT) noise. I am pretty tolerant but after > a few hours of hearing his high pitched humming and other variety of > sounds, I am ready to start using ear plugs. As a migraine sufferer, > this is particularly difficult for me when I have a migraine, as you > can imagine. > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of Buspar > twice a day and 1 mg of Klonipin in the evening before bed. I am > considering weaning him off the Lexapro...not that I think it is > causing a problem but, I don't think it is helping... > I have an appointment with the internist to check him out...there is > no evidence of an illness, but I want to make sure his throat and > ears are ok...maybe run some blood work...I am a nurse and in my > opinion, he is not ill...He says he feels ok and that nothing hurts. > He is eating and drinking...all other bodily functions seem ok... > I have a call in to the psychiatrist. .. > Any thoughts out there??? > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 I'm also a nurse. Think he has become refractory to his meds? IPADDUnite@...: egskb@...: Mon, 27 Oct 2008 21:14:29 +0000Subject: Question about increase in " autistic " behaviors Hi all:Just wondering what others do when an individual with autism gets real noisy and " hyper " ?Noah is not among the great sleepers, but over the past half dozen years or so, his behavior has been pretty calm and relatively controlled, in spite of sleep issues...The past several weeks there has been a pretty dramatic change; very noisy, flapping, jumping...basically a resurgence of " old " behaviors...He is still sweet, often smiley and cooperative. He does tend to " cycle up " more in the fall and spring. He says he feels ok but cannot control the noise. My husband is going CRAZY!!! He is really affected by the constant (and I mean CONSTANT) noise. I am pretty tolerant but after a few hours of hearing his high pitched humming and other variety of sounds, I am ready to start using ear plugs. As a migraine sufferer, this is particularly difficult for me when I have a migraine, as you can imagine.Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of Buspar twice a day and 1 mg of Klonipin in the evening before bed. I am considering weaning him off the Lexapro...not that I think it is causing a problem but, I don't think it is helping...I have an appointment with the internist to check him out...there is no evidence of an illness, but I want to make sure his throat and ears are ok...maybe run some blood work...I am a nurse and in my opinion, he is not ill...He says he feels ok and that nothing hurts. He is eating and drinking...all other bodily functions seem ok...I have a call in to the psychiatrist...Any thoughts out there???Ellen _________________________________________________________________ Want to read Hotmail messages in Outlook? The Wordsmiths show you how. http://windowslive.com/connect/post/wedowindowslive.spaces.live.com-Blog-cns!20E\ E04FBC541789!167.entry?ocid=TXT_TAGLM_WL_hotmail_092008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Thanks,....you know these changes are really hard. You feel for the child. But as the parent, it is especially depressing when you have seen the progress that your child has made. It is hard to see the child who you could take anywhere become someone else. I live in a condo building and my neighbours are really concerned about him. They have never seen him acting like this. He closes his eyes and will not open them. He keeps thinking about thoughts and can not control them. I really hope he comes out of this soon! Thanks so much.....I really want to make an impact in my future students. You can make miracles happen. Re: Question about increase in " autistic " behaviors Thanks for sharing! Great to know we have another fabulous teacher out there!!! Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors Ellen I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month ago we had nothing to report and today I'm saying he is back to not sleeping, flapping more and seeking out more ways to do it, his OCD seems to have kicked in and his ability to cope as well. Someone said fall can be a bad time, why do you think that is? Our Dr uses Seroquel to help him sleep and control some other symptoms, we upped it today. **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 The dads seem to have the hardest time when these changes occur. Re: Question about increase in " autistic " behaviors Nonsense,Ellen, the dads can all tune it out. They just need pharmacological assistance... Jean On Mon, Oct 27, 2008 at 10:25 PM, ELLEN BRONFELD <egskb@...>wrote: > Thanks for sharing! Great to know we have another fabulous teacher out there!!! Ellen Ellen Garber Bronfeld egskb@... <egskb%40sbcglobal.net> Re: Question about increase in " autistic " behaviors Ellen I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month ago we had nothing to report and today I'm saying he is back to not sleeping, flapping more and seeking out more ways to do it, his OCD seems to have kicked in and his ability to cope as well. Someone said fall can be a bad time, why do you think that is? Our Dr uses Seroquel to help him sleep and control some other symptoms, we upped it today. **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Imagine being a single mom!! I am, it's a lesson in patience that's for sure. just finished taking his shower singing at the top of his lungs in the dark......and I'm not kidding! H. Re: Question about increase in " autistic " behaviors The dads seem to have the hardest time when these changes occur. ----Original Message----- rom: Kulczyk <advocate4kids@...> o: IPADDUnite ent: Mon, 27 Oct 2008 10:29 pm ubject: Re: Question about increase in " autistic " behaviors Nonsense,Ellen, the dads can all tune it out. hey just need pharmacological assistance... ean n Mon, Oct 27, 2008 at 10:25 PM, ELLEN BRONFELD <egskb@...>wrote: Thanks for sharing! Great to know we have another fabulous teacher out there!!! Ellen Ellen Garber Bronfeld egskb@... <egskb%40sbcglobal.net> Re: Question about increase in " autistic " behaviors Ellen I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month ago we had nothing to report and today I'm saying he is back to not sleeping, flapping more and seeking out more ways to do it, his OCD seems to have kicked in and his ability to cope as well. Someone said fall can be a bad time, why do you think that is? Our Dr uses Seroquel to help him sleep and control some other symptoms, we upped it today. **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 U r a saint!!! I could only imagine!! Re: Question about increase in " autistic " behaviors The dads seem to have the hardest time when these changes occur. ----Original Message----- rom: Kulczyk <advocate4kids@...> o: IPADDUnite ent: Mon, 27 Oct 2008 10:29 pm ubject: Re: Question about increase in " autistic " behaviors Nonsense,Ellen, the dads can all tune it out. hey just need pharmacological assistance... ean n Mon, Oct 27, 2008 at 10:25 PM, ELLEN BRONFELD <egskb@...>wrote: Thanks for sharing! Great to know we have another fabulous teacher out there!!! Ellen Ellen Garber Bronfeld egskb@... <egskb%40sbcglobal.net> Re: Question about increase in " autistic " behaviors Ellen I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month ago we had nothing to report and today I'm saying he is back to not sleeping, flapping more and seeking out more ways to do it, his OCD seems to have kicked in and his ability to cope as well. Someone said fall can be a bad time, why do you think that is? Our Dr uses Seroquel to help him sleep and control some other symptoms, we upped it today. **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 2 of my 3 kids and I have allergies. As in ER visits, allergy shots, and big fat files at the allergist's office. When the leaves come down and decompose, they become moldy, and if there's rain, that adds to it. Mold season is in full swing until the first hard frost. Maybe Marie can get her husband to comment on the possibility of vocalizing actually being a method of throat-clearing for those with mild sinus/ear discomfort. As I said, a possibility. -Gail From: ELLEN BRONFELD <egskb@...> Subject: Re: Question about increase in " autistic " behaviors IPADDUnite Date: Tuesday, October 28, 2008, 2:06 PM That is one thing I have considered, , since I have allergies. I tried about a week's worth of an OTC 10mg decongestant. ..no change occurred. I will be discussing with the internist the possibility of putting him on Claritin short term to see if that makes a difference.. . Ellen Ellen Garber Bronfeld egskbsbcglobal (DOT) net Re: Question about increase in " autistic " behaviors Ellen too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month go we had nothing to report and today I'm saying he is back to not leeping, flapping more and seeking out more ways to do it, his OCD seems to ave icked in and his ability to cope as well. Someone said fall can be a bad ime, hy do you think that is? Our Dr uses Seroquel to help him sleep and ontrol some other symptoms, we upped it today. hristine  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 I think that is a possibility. ly, I would like to see him off the Lexapro...as for the Buspar...I am undecided... I would like a sleeper...just to see if increasing sleep will take care of some of the noisy behavior... Ellen Ellen Garber Bronfeld egskb@... Question about increase in " autistic " behaviors Hi all:Just wondering what others do when an individual with autism gets real noisy and " hyper " ?Noah is not among the great sleepers, but over the past half dozen years or so, his behavior has been pretty calm and relatively controlled, in spite of sleep issues...The past several weeks there has been a pretty dramatic change; very noisy, flapping, jumping...basically a resurgence of " old " behaviors...He is still sweet, often smiley and cooperative. He does tend to " cycle up " more in the fall and spring. He says he feels ok but cannot control the noise. My husband is going CRAZY!!! He is really affected by the constant (and I mean CONSTANT) noise. I am pretty tolerant but after a few hours of hearing his high pitched humming and other variety of sounds, I am ready to start using ear plugs. As a migraine sufferer, this is particularly difficult for me when I have a migraine, as you can imagine.Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of Buspar twice a day and 1 mg of Klonipin in the evening before bed. I am considering weaning him off the Lexapro...not that I think it is causing a problem but, I don't think it is helping...I have an appointment with the internist to check him out...there is no evidence of an illness, but I want to make sure his throat and ears are ok...maybe run some blood work...I am a nurse and in my opinion, he is not ill...He says he feels ok and that nothing hurts. He is eating and drinking...all other bodily functions seem ok...I have a call in to the psychiatrist...Any thoughts out there???Ellen __________________________________________________________ Want to read Hotmail messages in Outlook? The Wordsmiths show you how. http://windowslive.com/connect/post/wedowindowslive.spaces.live.com-Blog-cns!20E\ E04FBC541789!167.entry?ocid=TXT_TAGLM_WL_hotmail_092008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Sounds like fun...for him!!! Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors Ellen I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month ago we had nothing to report and today I'm saying he is back to not sleeping, flapping more and seeking out more ways to do it, his OCD seems to have kicked in and his ability to cope as well. Someone said fall can be a bad time, why do you think that is? Our Dr uses Seroquel to help him sleep and control some other symptoms, we upped it today. **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Thanks, Gail. It would not surprise me...both spring and fall can cause an increase in allergy symptoms... Noah had nothing notable on exam by the physician but he did have a little nasal congestion...I may try a two week trial of Claritin, which does not interact with any meds...I will of course avoid Claritin-D... I take Allegra all year long and my left ear is miserably clogged...can't see it on exam because it is eustacian tube fluid (probably). Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors Ellen too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month go we had nothing to report and today I'm saying he is back to not leeping, flapping more and seeking out more ways to do it, his OCD seems to ave icked in and his ability to cope as well. Someone said fall can be a bad ime, hy do you think that is? Our Dr uses Seroquel to help him sleep and ontrol some other symptoms, we upped it today. hristine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 I think we are all saints By the way, someone (?) earlier asked about PUNS... You can google Illinois Department of Human Services PUNS and that will give you a good description of the PUNS. If you have any questions after reading that...feel free to ask... There is also a description on Family Support Network website. Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors Ellen I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month ago we had nothing to report and today I'm saying he is back to not sleeping, flapping more and seeking out more ways to do it, his OCD seems to have kicked in and his ability to cope as well. Someone said fall can be a bad time, why do you think that is? Our Dr uses Seroquel to help him sleep and control some other symptoms, we upped it today. **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 As my son went through the stage of distracting noise we experimented with a personal music player. At the time it was a CD player. This seemed to provide the aural stimulation he needed. As I am sure many of you all ready know the ADD/ADHD aspect is not that they do not pay attention, it is that they hear everything, so the noise they make in many ways is their own way to tune out the world around them. Our world is far to loud for them. I saw this with my son, and now with another young man I deal with at church. They youth room is loud and the music is louder yet, so I brought him some ear protection headphones and he does much better. Give it a try, if it does not work, you have one less thing to try. -Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 I agree, Ellen!! Quite honestly.......being a single mom has been easier, I don't have to deal with another male, LOL H. Re: Question about increase in " autistic " behaviors I think we are all saints y the way, someone (?) earlier asked about PUNS... ou can google Illinois Department of Human Services PUNS and that will give you good description of the PUNS. f you have any questions after reading that...feel free to ask... here is also a description on Family Support Network website. llen llen Garber Bronfeld gskb@... Re: Question about increase in " autistic " behaviors Ellen I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month ago we had nothing to report and today I'm saying he is back to not sleeping, flapping more and seeking out more ways to do it, his OCD seems to have kicked in and his ability to cope as well. Someone said fall can be a bad time, why do you think that is? Our Dr uses Seroquel to help him sleep and control some other symptoms, we upped it today. **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 This reminds me of something I keep forgetting to tell the group. A while back, a friend gave me one of those over-the-door marketing/business bags he'd received at his house in St. ; it had a direct marketing company name listed in Huntley, IL along with a website so I followed up on it directly with their owner. I wanted to better understand how a big direct marketing company hires employees to do the stuff has done on a small scale for several local realtors. Here's what I found out, some good and some pretty appalling: 1) They rely on almost exclusively 'home based businesses' to do the assembly and delivery throughout the Chicago region -- starting in north suburbs, expanded to west and now southwest burbs are a planned expansion area. This particular company was started and still run by two 'moms' who wanted to stay at home but make money too. 2) The home-based businesses are required to provide own transportation, pick up materials at a distribution warehouse in Huntley, and then walk around the assigned neighborhoods either hanging bags on doorknobs or on mailboxes. So far, so good, right? Ok, here was the most surprising part to me.... 3) They pay people 1/2 cent PER PIECE DELIVERED. I'm not making this up. So if an average 'job' is 5,000 pieces (which is what she said is their average), the person doing the deliveries, door-to-door, gets $25.00. I'll tell you what. I can't believe the hard-working folks we've all seen running around our neighborhoods doing this work are doing it for that amount of money unless they are truly desperate (and probably not in this country legally or else they'd complain about it). When you think about it, it's pretty sickening really. I'm sharing this because at one time I thought this door-to-door business idea could be a good one for and many others with DDs. My inital thought was that eventually she could get a job with one of these larger companies that do direct marketing, and would earn enough to help offset the cost of her job coach. Not so much after talking with that business owner. The local realtor, by the way, who has employed on several jobs paid a more than generous rate based on our equation of what it would cost her to mail out a postcard greeting herself (about .45 per piece including cost of postcard, stamp and time to affix labels and stamps = $45 per 100 deliveries) So with , we charged her for 3 to 3 1/2 hours total time, start to finish, and charged the realtor $10/hour or $30 to $35 for a job of assembling and then delivering to 100 homes. So she saved both time and money on the deal, plus did something really nice for another human being. It takes all kinds, I guess. Makes me realize how naive I can be sometimes, to think that a fellow 'mom' running a company would be employing people at that low rate just makes me sick to think about it. L. Re: Question about increase in " autistic " behaviors Ellen, You have asked the million dollar question, that although I do not have the answer, my , does the same noises, literally all day also. Not high pitched but grunting and " ha " and " ohhh " in a deep voice. My husband is also extremely bothered by it, and now my daughter who is very tolerant, is going nuts too. I'm okay with it, school is very okay with it. is cooperative, sweet and productive as well, but the noises are a problem, because I fear it will hurt his abilities to work in the outside world. It just plain is not appropriate in a work setting. It has been going on now for about 1 year, he is almost 16 now. He is on clonazepam and Abilify, neither of which help it much. So anyone out there, help our families! To me it's not really that bad, but the world at large unfortunately will not tolerate it. Diane S > > Hi all: > Just wondering what others do when an individual with autism gets > real noisy and " hyper " ? > Noah is not among the great sleepers, but over the past half dozen > years or so, his behavior has been pretty calm and relatively > controlled, in spite of sleep issues...The past several weeks there > has been a pretty dramatic change; very noisy, flapping, > jumping...basically a resurgence of " old " behaviors...He is still > sweet, often smiley and cooperative. He does tend to " cycle up " more > in the fall and spring. He says he feels ok but cannot control the > noise. My husband is going CRAZY!!! He is really affected by the > constant (and I mean CONSTANT) noise. I am pretty tolerant but after > a few hours of hearing his high pitched humming and other variety of > sounds, I am ready to start using ear plugs. As a migraine sufferer, > this is particularly difficult for me when I have a migraine, as you > can imagine. > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of Buspar > twice a day and 1 mg of Klonipin in the evening before bed. I am > considering weaning him off the Lexapro...not that I think it is > causing a problem but, I don't think it is helping... > I have an appointment with the internist to check him out...there is > no evidence of an illness, but I want to make sure his throat and > ears are ok...maybe run some blood work...I am a nurse and in my > opinion, he is not ill...He says he feels ok and that nothing hurts. > He is eating and drinking...all other bodily functions seem ok... > I have a call in to the psychiatrist... > Any thoughts out there??? > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 That is pretty appalling, Laurie and very disappointing. I thought you had a great idea...still might be with your local businesses. Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors Ellen, You have asked the million dollar question, that although I do not have the answer, my , does the same noises, literally all day also. Not high pitched but grunting and " ha " and " ohhh " in a deep voice. My husband is also extremely bothered by it, and now my daughter who is very tolerant, is going nuts too. I'm okay with it, school is very okay with it. is cooperative, sweet and productive as well, but the noises are a problem, because I fear it will hurt his abilities to work in the outside world. It just plain is not appropriate in a work setting. It has been going on now for about 1 year, he is almost 16 now. He is on clonazepam and Abilify, neither of which help it much. So anyone out there, help our families! To me it's not really that bad, but the world at large unfortunately will not tolerate it. Diane S > > Hi all: > Just wondering what others do when an individual with autism gets > real noisy and " hyper " ? > Noah is not among the great sleepers, but over the past half dozen > years or so, his behavior has been pretty calm and relatively > controlled, in spite of sleep issues...The past several weeks there > has been a pretty dramatic change; very noisy, flapping, > jumping...basically a resurgence of " old " behaviors...He is still > sweet, often smiley and cooperative. He does tend to " cycle up " more > in the fall and spring. He says he feels ok but cannot control the > noise. My husband is going CRAZY!!! He is really affected by the > constant (and I mean CONSTANT) noise. I am pretty tolerant but after > a few hours of hearing his high pitched humming and other variety of > sounds, I am ready to start using ear plugs. As a migraine sufferer, > this is particularly difficult for me when I have a migraine, as you > can imagine. > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of Buspar > twice a day and 1 mg of Klonipin in the evening before bed. I am > considering weaning him off the Lexapro...not that I think it is > causing a problem but, I don't think it is helping... > I have an appointment with the internist to check him out...there is > no evidence of an illness, but I want to make sure his throat and > ears are ok...maybe run some blood work...I am a nurse and in my > opinion, he is not ill...He says he feels ok and that nothing hurts. > He is eating and drinking...all other bodily functions seem ok... > I have a call in to the psychiatrist... > Any thoughts out there??? > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 I hear you, !!! You can borrow my spouse anytime you begin to miss an additional whiner Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors Ellen I too just used the word 'cycle' at Shane's psyciatrist appt today. 1 month ago we had nothing to report and today I'm saying he is back to not sleeping, flapping more and seeking out more ways to do it, his OCD seems to have kicked in and his ability to cope as well. Someone said fall can be a bad time, why do you think that is? Our Dr uses Seroquel to help him sleep and control some other symptoms, we upped it today. **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Thanks, Lee...I will try it! Ellen Ellen Garber Bronfeld egskb@... Re: Question about increase in " autistic " behaviors As my son went through the stage of distracting noise we experimented with a personal music player. At the time it was a CD player. This seemed to provide the aural stimulation he needed. As I am sure many of you all ready know the ADD/ADHD aspect is not that they do not pay attention, it is that they hear everything, so the noise they make in many ways is their own way to tune out the world around them. Our world is far to loud for them. I saw this with my son, and now with another young man I deal with at church. They youth room is loud and the music is louder yet, so I brought him some ear protection headphones and he does much better. Give it a try, if it does not work, you have one less thing to try. -Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Ellen wrote: <<I wonder if some of you have also experienced " the look " when our sweet young men and women decide they are going to be obnoxious and " devilish " ...oh boy...when I see " the look " I know I had better not let him out of my sight...he will tear things up (bags, boxes, containers) he will rip stems off fruit, labels off anything...does this also sound familiar to anyone, as long as we are " chatting " about challenging behaviors >> Jack's impulsivity is wa-a-a-a-ay up right now. He has the look with the " laugh " to go with it! It has been very difficult to keep him occupied and out of trouble at home. Jack tends to take things apart: takes the batteries out of things and then loses them (I swear we should take stock in Duracell! lol); rips paper; colors so hard it rips through paper; gets into things he shouldn't in the garage and just spreads it all around; " cooks " which is just getting out miscellaneous ingredients and putting them in a bowl and stirring them together...we have to watch him like a hawk! The only " safe " place for him is in the backyard where he walks around and does his " monologues " to blow off steam. Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 Shameless plug here....the Autism Society of Illinois has such cards available...you can order them through the website autismillinois.org In a message dated 10/30/2008 3:43:24 P.M. Central Daylight Time, egskb@... writes: I love your card idea, Gloria. Wish I had thought of that years ago, when Noah used to tantrum. Even now, though, I can see an advantage in having cards available for the noisier days. It is wonderful when we can get to a point of appreciating the really fine qualities our children possess. Ellen Ellen Garber Bronfeld _egskb@..._ (mailto:egskb@...) ----- Original Message ----- From: Gloria Kern _IPADDUnite@groIPADDUn_ (mailto:IPADDUnite ) Sent: Thursday, October 30, 2008 2:32 PM Subject: Re: Question about increase in " autistic " behaviors I too am a single mom and cannot believe the amount of patience I have somehow found. Mine also " sings " on top of her lungs in the dark in the shower, and singing is not the word for it!!!!!! Getting over the embarrassment in public was one of the hardest things. We often left stores, restaurants, movies, etc. when the noises (or screaming) got too much and I knew we were offending others (who weren't subtle in the least). Sometimes, however, I just had to finish the shopping, etc. because I also worked full time, and just had to endure. I finally got some business sized cards that stated this is an individual with autism and is being trained. Please be patient with us. That seemed to help. She's 21 now and things have improved greatly unless we are around young children. Then she reverts to acting as a young child. How I long to go out to lunch with my young adult daughter and have a conversation!I too am a single mom and cannot believe the amount of patience I have somehow found. Mine also " sings " on top of her lungs in the dark in the shower, and singin [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! (http://pr.atwola.com/promoclk/100000075x1212416248x1200771803/aol?redir=http://\ travel.aol.com/discount-travel?ncid=emlcntustrav00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 I too am a single mom and cannot believe the amount of patience I have somehow found. Mine also " sings " on top of her lungs in the dark in the shower, and singing is not the word for it!!!!!! Getting over the embarrassment in public was one of the hardest things. We often left stores, restaurants, movies, etc. when the noises (or screaming) got too much and I knew we were offending others (who weren't subtle in the least). Sometimes, however, I just had to finish the shopping, etc. because I also worked full time, and just had to endure. I finally got some business sized cards that stated this is an individual with autism and is being trained. Please be patient with us. That seemed to help. She's 21 now and things have improved greatly unless we are around young children. Then she reverts to acting as a young child. How I long to go out to lunch with my young adult daughter and have a conversation!!! But I also am blessed with a happy spirit on a day to day basis, and I don't have to wonder where she is - cause she's right here sharing the love! Gloria Quote Link to comment Share on other sites More sharing options...
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