Re: Question about increase in autistic behaviors

October 30, 2008

I love your card idea, Gloria.

Wish I had thought of that years ago, when Noah used to tantrum. Even now,

though, I can see an advantage in having cards available for the noisier days.

It is wonderful when we can get to a point of appreciating the really fine

qualities our children possess.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

I too am a single mom and cannot believe the amount of patience I have somehow

found. Mine also " sings " on top of her lungs in the dark in the shower, and

singing is not the word for it!!!!!! Getting over the embarrassment in public

was one of the hardest things. We often left stores, restaurants, movies, etc.

when the noises (or screaming) got too much and I knew we were offending others

(who weren't subtle in the least). Sometimes, however, I just had to finish the

shopping, etc. because I also worked full time, and just had to endure. I

finally got some business sized cards that stated this is an individual with

autism and is being trained. Please be patient with us. That seemed to help.

She's 21 now and things have improved greatly unless we are around young

children. Then she reverts to acting as a young child. How I long to go out to

lunch with my young adult daughter and have a conversation!!! But I also am

blessed with a happy spirit on a day to day basis, and I don't have to wonder

where she is - cause she's right here sharing the love! Gloria

October 30, 2008

Being a single DAD with custody, and having another son that is LD,

in many ways is easier that dealing with someone that does not have

the patients to love and understand her son.

I do not think either gender is better equiped, but the social stereo

types would favor the mother.

> Thanks for sharing! Great to know we have another fabulous teacher

out

> there!!!

> Ellen

> Ellen Garber Bronfeld

> egskb@... <egskb%40sbcglobal.net>

> Re: Question about increase in " autistic "

behaviors

> Ellen

> I too just used the word 'cycle' at Shane's psyciatrist appt

today. 1 month

> ago we had nothing to report and today I'm saying he is back to not

> sleeping, flapping more and seeking out more ways to do it, his

OCD seems

> to have

> kicked in and his ability to cope as well. Someone said fall can

be a bad

> time,

> why do you think that is? Our Dr uses Seroquel to help him sleep

and

> control some other symptoms, we upped it today.

>

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October 30, 2008

Thanks, .

Shameless plugs like this are perfectly acceptable (at least in my opinion!)

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

I too am a single mom and cannot believe the amount of patience I have

somehow found. Mine also " sings " on top of her lungs in the dark in the

shower,

and singing is not the word for it!!!!!! Getting over the embarrassment in

public was one of the hardest things. We often left stores, restaurants,

movies,

etc. when the noises (or screaming) got too much and I knew we were offending

others (who weren't subtle in the least). Sometimes, however, I just had to

finish the shopping, etc. because I also worked full time, and just had to

endure. I finally got some business sized cards that stated this is an

individual with autism and is being trained. Please be patient with us. That

seemed

to help. She's 21 now and things have improved greatly unless we are around

young children. Then she reverts to acting as a young child. How I long to go

out to lunch with my young adult daughter and have a conversation!I too am a

single mom and cannot believe the amount of patience I have somehow found.

Mine also " sings " on top of her lungs in the dark in the shower, and singin

October 30, 2008

I have a friend who is a single Dad who is just amazing...I hope you know we

women are joking!

Being a parent of a child with a disability, whether you are single or married

can be difficult...with relationship problems in the marriage, I cannot even

imagine how difficult it would be.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic "

behaviors

> Ellen

> I too just used the word 'cycle' at Shane's psyciatrist appt

today. 1 month

> ago we had nothing to report and today I'm saying he is back to not

> sleeping, flapping more and seeking out more ways to do it, his

OCD seems

> to have

> kicked in and his ability to cope as well. Someone said fall can

be a bad

> time,

> why do you think that is? Our Dr uses Seroquel to help him sleep

and

> control some other symptoms, we upped it today.

>

> **************Play online games for FREE at Games.com! All of your

> favorites,

> no registration required and great graphics â? " check it out!

> (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?

redir=

> http://www.games.com?ncid=emlcntusgame00000001)

>

October 31, 2008

I know some parents that use these cards. Some of them basically are diplomatic

efforts to educate others on autism. Some of them tells the person to butt out.

Finato

www.AngelSpeaks.com

www.wegrowdreams.org

From: ELLEN BRONFELD <egskb@...>

Subject: Re: Re: Question about increase in " autistic " behaviors

IPADDUnite

Date: Thursday, October 30, 2008, 8:07 PM

Thanks, .

Shameless plugs like this are perfectly acceptable (at least in my opinion!)

Ellen

Ellen Garber Bronfeld

egskbsbcglobal (DOT) net

Re: Question about increase in " autistic " behaviors

I too am a single mom and cannot believe the amount of patience I have

somehow found. Mine also " sings " on top of her lungs in the dark in the

shower,

and singing is not the word for it!!!!!! Getting over the embarrassment in

public was one of the hardest things. We often left stores, restaurants,

movies,

etc. when the noises (or screaming) got too much and I knew we were offending

others (who weren't subtle in the least). Sometimes, however, I just had to

finish the shopping, etc. because I also worked full time, and just had to

endure. I finally got some business sized cards that stated this is an

individual with autism and is being trained. Please be patient with us. That

seemed

to help. She's 21 now and things have improved greatly unless we are around

young children. Then she reverts to acting as a young child. How I long to go

out to lunch with my young adult daughter and have a conversation! I too am a

single mom and cannot believe the amount of patience I have somehow found.

Mine also " sings " on top of her lungs in the dark in the shower, and singin

October 31, 2008

I would be the " diplomatic/educational " type

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

I too am a single mom and cannot believe the amount of patience I have

somehow found. Mine also " sings " on top of her lungs in the dark in the

shower,

and singing is not the word for it!!!!!! Getting over the embarrassment in

public was one of the hardest things. We often left stores, restaurants,

movies,

etc. when the noises (or screaming) got too much and I knew we were offending

others (who weren't subtle in the least). Sometimes, however, I just had to

finish the shopping, etc. because I also worked full time, and just had to

endure. I finally got some business sized cards that stated this is an

individual with autism and is being trained. Please be patient with us. That

seemed

to help. She's 21 now and things have improved greatly unless we are around

young children. Then she reverts to acting as a young child. How I long to go

out to lunch with my young adult daughter and have a conversation! I too am a

single mom and cannot believe the amount of patience I have somehow found.

Mine also " sings " on top of her lungs in the dark in the shower, and singin

October 31, 2008

Laurie,

Sounds like a lot of us have this concern with our children who

are so smart and able to work hard. I agree, let's continue to

dialogue this topic whenever issues arise. I for one am interested

to hear everyone else's journey/ experiences with this issue.

Also, in regards to the shredding business. Have you considered

getting a business van? You know like the utility type van. Maybe

could even be purchased used, and tax/ business write off?

Also, how about an office cleaning business (evenings) after business

hours? Noises would not bother others. I know that that market is

tough, but maybe encouraging agencies that serve those with

disabilities to hire persons with disabilities. IE: WDSRA, Little

Friends, Ray Graham, places like that.

Diane S

> >

> > Hi all:

> > Just wondering what others do when an individual with autism

gets

> > real noisy and " hyper " ?

> > Noah is not among the great sleepers, but over the past half

dozen

> > years or so, his behavior has been pretty calm and relatively

> > controlled, in spite of sleep issues...The past several weeks

there

> > has been a pretty dramatic change; very noisy, flapping,

> > jumping...basically a resurgence of " old " behaviors...He is

still

> > sweet, often smiley and cooperative. He does tend to " cycle up "

> more

> > in the fall and spring. He says he feels ok but cannot control

the

> > noise. My husband is going CRAZY!!! He is really affected by

the

> > constant (and I mean CONSTANT) noise. I am pretty tolerant but

> after

> > a few hours of hearing his high pitched humming and other

variety

> of

> > sounds, I am ready to start using ear plugs. As a migraine

> sufferer,

> > this is particularly difficult for me when I have a migraine,

as

> you

> > can imagine.

> > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of

> Buspar

> > twice a day and 1 mg of Klonipin in the evening before bed. I

am

> > considering weaning him off the Lexapro...not that I think it

is

> > causing a problem but, I don't think it is helping...

> > I have an appointment with the internist to check him

out...there

> is

> > no evidence of an illness, but I want to make sure his throat

and

> > ears are ok...maybe run some blood work...I am a nurse and in

my

> > opinion, he is not ill...He says he feels ok and that nothing

> hurts.

> > He is eating and drinking...all other bodily functions seem

ok...

> > I have a call in to the psychiatrist...

> > Any thoughts out there???

> > Ellen

> >

>

October 31, 2008

Simply put.... ain't it the truth. Why are they so vocal? There

has to be some connection between less physical stimming > more vocal

stimming??

Diane S

> > >

> > > Hi all:

> > > Just wondering what others do when an individual with autism

> gets

> > > real noisy and " hyper " ?

> > > Noah is not among the great sleepers, but over the past half

> dozen

> > > years or so, his behavior has been pretty calm and relatively

> > > controlled, in spite of sleep issues...The past several weeks

> there

> > > has been a pretty dramatic change; very noisy, flapping,

> > > jumping...basically a resurgence of " old " behaviors...He is

> still

> > > sweet, often smiley and cooperative. He does tend to " cycle

> up "

> > more

> > > in the fall and spring. He says he feels ok but cannot

control

> the

> > > noise. My husband is going CRAZY!!! He is really affected by

> the

> > > constant (and I mean CONSTANT) noise. I am pretty tolerant

but

> > after

> > > a few hours of hearing his high pitched humming and other

> variety

> > of

> > > sounds, I am ready to start using ear plugs. As a migraine

> > sufferer,

> > > this is particularly difficult for me when I have a migraine,

> as

> > you

> > > can imagine.

> > > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg

of

> > Buspar

> > > twice a day and 1 mg of Klonipin in the evening before bed. I

> am

> > > considering weaning him off the Lexapro...not that I think it

> is

> > > causing a problem but, I don't think it is helping...

> > > I have an appointment with the internist to check him

> out...there

> > is

> > > no evidence of an illness, but I want to make sure his throat

> and

> > > ears are ok...maybe run some blood work...I am a nurse and in

> my

> > > opinion, he is not ill...He says he feels ok and that nothing

> > hurts.

> > > He is eating and drinking...all other bodily functions seem

> ok...

> > > I have a call in to the psychiatrist...

> > > Any thoughts out there???

> > > Ellen

> > >

> >

October 31, 2008

Personally I think when it comes to our kids with these issues, it is

easy for others to tell they have some disability. Quite frankly, if

they are rude and ignorant enough to display to you, that they ate

obviously annoyed, then they could care less about a business card

explaining why, and it is probably wise not to waste any effort on

them.

Diane S

> From: ELLEN BRONFELD <egskb@...>

> Subject: Re: Re: Question about increase in " autistic "

behaviors

> IPADDUnite

> Date: Thursday, October 30, 2008, 8:07 PM

>

> Thanks, .

>

> Shameless plugs like this are perfectly acceptable (at least in my

opinion!)

>

> Ellen

>

> Ellen Garber Bronfeld

>

> egskbsbcglobal (DOT) net

>

> Re: Question about increase in " autistic "

behaviors

>

> I too am a single mom and cannot believe the amount of patience I

have

>

> somehow found. Mine also " sings " on top of her lungs in the dark

in the shower,

>

> and singing is not the word for it!!!!!! Getting over the

embarrassment in

>

> public was one of the hardest things. We often left stores,

restaurants, movies,

>

> etc. when the noises (or screaming) got too much and I knew we

were offending

>

> others (who weren't subtle in the least). Sometimes, however, I

just had to

>

> finish the shopping, etc. because I also worked full time, and

just had to

>

> endure. I finally got some business sized cards that stated this

is an

>

> individual with autism and is being trained. Please be patient

with us. That seemed

>

> to help. She's 21 now and things have improved greatly unless we

are around

>

> young children. Then she reverts to acting as a young child. How

I long to go

>

> out to lunch with my young adult daughter and have a

conversation! I too am a

>

> single mom and cannot believe the amount of patience I have

somehow found.

>

> Mine also " sings " on top of her lungs in the dark in the shower,

and singin

>

November 1, 2008

Noah gets SO much darn physical exercise and still gets loud...He can also flap

with the best of them along with the vocalizations

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Simply put.... ain't it the truth. Why are they so vocal? There

has to be some connection between less physical stimming > more vocal

stimming??

Diane S

> > >

> > > Hi all:

> > > Just wondering what others do when an individual with autism

> gets

> > > real noisy and " hyper " ?

> > > Noah is not among the great sleepers, but over the past half

> dozen

> > > years or so, his behavior has been pretty calm and relatively

> > > controlled, in spite of sleep issues...The past several weeks

> there

> > > has been a pretty dramatic change; very noisy, flapping,

> > > jumping...basically a resurgence of " old " behaviors...He is

> still

> > > sweet, often smiley and cooperative. He does tend to " cycle

> up "

> > more

> > > in the fall and spring. He says he feels ok but cannot

control

> the

> > > noise. My husband is going CRAZY!!! He is really affected by

> the

> > > constant (and I mean CONSTANT) noise. I am pretty tolerant

but

> > after

> > > a few hours of hearing his high pitched humming and other

> variety

> > of

> > > sounds, I am ready to start using ear plugs. As a migraine

> > sufferer,

> > > this is particularly difficult for me when I have a migraine,

> as

> > you

> > > can imagine.

> > > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg

of

> > Buspar

> > > twice a day and 1 mg of Klonipin in the evening before bed. I

> am

> > > considering weaning him off the Lexapro...not that I think it

> is

> > > causing a problem but, I don't think it is helping...

> > > I have an appointment with the internist to check him

> out...there

> > is

> > > no evidence of an illness, but I want to make sure his throat

> and

> > > ears are ok...maybe run some blood work...I am a nurse and in

> my

> > > opinion, he is not ill...He says he feels ok and that nothing

> > hurts.

> > > He is eating and drinking...all other bodily functions seem

> ok...

> > > I have a call in to the psychiatrist...

> > > Any thoughts out there???

> > > Ellen

> > >

> >

November 2, 2008

In a message dated 11/2/2008 7:53:10 P.M. Central Standard Time,

lisadruc@... writes:

Have you ever seen a high functioning ASD child who is doing very well have

a severe regression? Can not control negative thoughts? Body starts having?

strong body tics. When child is thinking about negative thoughts their face

turns bright red. The child is expressing wetting his pants and missing when

making urine. This is a kid who loved Cubs games and going to concerts during

the summer. It has been a hellish experience!

Yet their are periods of time, that the child is calm.

Thanks!

This is so much like we went through with our son last November. He had

terrible negative thoughts and tremendous anxiety. The tics really came out

for

the first time as well. Both of these things continue today though not as

pronounce. He can feel them coming and is able to manage them at times. He

picked up new diagnosis such as OCD and Tourettes, but what really seemed to

help was a change in meds.

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November 2, 2008

Ellen,

Oh gosh I know what you mean. gets going with the

vocalizations and the flapping and wow! He is a runner as well, and

since he is ALWAYS moving; purposefully and unpurposefully he has

quite the six pack. No fat anywhere, all 6'2 is lean muscle. And

can he eat!

Diane S

> > > >

> > > > Hi all:

> > > > Just wondering what others do when an individual with

autism

> > gets

> > > > real noisy and " hyper " ?

> > > > Noah is not among the great sleepers, but over the past

half

> > dozen

> > > > years or so, his behavior has been pretty calm and

relatively

> > > > controlled, in spite of sleep issues...The past several

weeks

> > there

> > > > has been a pretty dramatic change; very noisy, flapping,

> > > > jumping...basically a resurgence of " old " behaviors...He is

> > still

> > > > sweet, often smiley and cooperative. He does tend to " cycle

> > up "

> > > more

> > > > in the fall and spring. He says he feels ok but cannot

> control

> > the

> > > > noise. My husband is going CRAZY!!! He is really affected

by

> > the

> > > > constant (and I mean CONSTANT) noise. I am pretty tolerant

> but

> > > after

> > > > a few hours of hearing his high pitched humming and other

> > variety

> > > of

> > > > sounds, I am ready to start using ear plugs. As a migraine

> > > sufferer,

> > > > this is particularly difficult for me when I have a

migraine,

> > as

> > > you

> > > > can imagine.

> > > > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg

> of

> > > Buspar

> > > > twice a day and 1 mg of Klonipin in the evening before bed.

I

> > am

> > > > considering weaning him off the Lexapro...not that I think

it

> > is

> > > > causing a problem but, I don't think it is helping...

> > > > I have an appointment with the internist to check him

> > out...there

> > > is

> > > > no evidence of an illness, but I want to make sure his

throat

> > and

> > > > ears are ok...maybe run some blood work...I am a nurse and

in

> > my

> > > > opinion, he is not ill...He says he feels ok and that

nothing

> > > hurts.

> > > > He is eating and drinking...all other bodily functions seem

> > ok...

> > > > I have a call in to the psychiatrist...

> > > > Any thoughts out there???

> > > > Ellen

> > > >

> > >

November 2, 2008

Have you ever seen a high functioning ASD child who is doing very well have a

severe regression? Can not control negative thoughts? Body starts having? strong

body tics. When child is thinking about negative thoughts their face turns

bright red. The child is expressing wetting his pants and missing when making

urine. This is a kid who loved Cubs games and going to concerts during the

summer. It has been a hellish experience!

Yet their are periods of time, that the child is calm.

Thanks!

Re: Question about increase in " autistic " behaviors

Ellen,

Oh gosh I know what you mean. gets going with the

vocalizations and the flapping and wow! He is a runner as well, and

since he is ALWAYS moving; purposefully and unpurposefully he has

quite the six pack. No fat anywhere, all 6'2 is lean muscle. And

can he eat!

Diane S

> > > >

> > > > Hi all:

> > > > Just wondering what others do when an individual with

autism

> > gets

> > > > real noisy and " hyper " ?

> > > > Noah is not among the great sleepers, but over the past

half

> > dozen

> > > > years or so, his behavior has been pretty calm and

relatively

> > > > controlled, in spite of sleep issues...The past several

weeks

> > there

> > > > has been a pretty dramatic change; very noisy, flapping,

> > > > jumping...basically a resurgence of " old " behaviors...He is

> > still

> > > > sweet, often smiley and cooperative. He does tend to " cycle

> > up "

> > > more

> > > > in the fall and spring. He says he feels ok but cannot

> control

> > the

> > > > noise. My husband is going CRAZY!!! He is really affected

by

> > the

> > > > constant (and I mean CONSTANT) noise. I am pretty tolerant

> but

> > > after

> > > > a few hours of hearing his high pitched humming and other

> > variety

> > > of

> > > > sounds, I am ready to start using ear plugs. As a migraine

> > > sufferer,

> > > > this is particularly difficult for me when I have a

migraine,

> > as

> > > you

> > > > can imagine.

> > > > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg

> of

> > > Buspar

> > > > twice a day and 1 mg of Klonipin in the evening before bed.

I

> > am

> > > > considering weaning him off the Lexapro...not that I think

it

> > is

> > > > causing a problem but, I don't think it is helping...

> > > > I have an appointment with the internist to check him

> > out...there

> > > is

> > > > no evidence of an illness, but I want to make sure his

throat

> > and

> > > > ears are ok...maybe run some blood work...I am a nurse and

in

> > my

> > > > opinion, he is not ill...He says he feels ok and that

nothing

> > > hurts.

> > > > He is eating and drinking...all other bodily functions seem

> > ok...

> > > > I have a call in to the psychiatrist...

> > > > Any thoughts out there???

> > > > Ellen

> > > >

> > >

November 2, 2008

Noah does so much good exercise (weight training, swimming and lots of

walking...he looks great...

How do you deal with the noise? I am usually very tolerant but from time to

time it makes me nuts...

My husband really hates it!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen,

Oh gosh I know what you mean. gets going with the

vocalizations and the flapping and wow! He is a runner as well, and

since he is ALWAYS moving; purposefully and unpurposefully he has

quite the six pack. No fat anywhere, all 6'2 is lean muscle. And

can he eat!

Diane S

> > > >

> > > > Hi all:

> > > > Just wondering what others do when an individual with

autism

> > gets

> > > > real noisy and " hyper " ?

> > > > Noah is not among the great sleepers, but over the past

half

> > dozen

> > > > years or so, his behavior has been pretty calm and

relatively

> > > > controlled, in spite of sleep issues...The past several

weeks

> > there

> > > > has been a pretty dramatic change; very noisy, flapping,

> > > > jumping...basically a resurgence of " old " behaviors...He is

> > still

> > > > sweet, often smiley and cooperative. He does tend to " cycle

> > up "

> > > more

> > > > in the fall and spring. He says he feels ok but cannot

> control

> > the

> > > > noise. My husband is going CRAZY!!! He is really affected

by

> > the

> > > > constant (and I mean CONSTANT) noise. I am pretty tolerant

> but

> > > after

> > > > a few hours of hearing his high pitched humming and other

> > variety

> > > of

> > > > sounds, I am ready to start using ear plugs. As a migraine

> > > sufferer,

> > > > this is particularly difficult for me when I have a

migraine,

> > as

> > > you

> > > > can imagine.

> > > > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg

> of

> > > Buspar

> > > > twice a day and 1 mg of Klonipin in the evening before bed.

I

> > am

> > > > considering weaning him off the Lexapro...not that I think

it

> > is

> > > > causing a problem but, I don't think it is helping...

> > > > I have an appointment with the internist to check him

> > out...there

> > > is

> > > > no evidence of an illness, but I want to make sure his

throat

> > and

> > > > ears are ok...maybe run some blood work...I am a nurse and

in

> > my

> > > > opinion, he is not ill...He says he feels ok and that

nothing

> > > hurts.

> > > > He is eating and drinking...all other bodily functions seem

> > ok...

> > > > I have a call in to the psychiatrist...

> > > > Any thoughts out there???

> > > > Ellen

> > > >

> > >

November 2, 2008

Your experience sounds similar to mine and I expect to many other families.

It is extremely disturbing, distressing, disappointing...

My son typically says nothing is bothering him and that he likes making the

noises.

He does not report negative thoughts, but his face often turns red and he sounds

distressed. It certainly makes community outings and even an evening at home a

real challenge.

My husband just finished a major rant...

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

Ellen,

Oh gosh I know what you mean. gets going with the

vocalizations and the flapping and wow! He is a runner as well, and

since he is ALWAYS moving; purposefully and unpurposefully he has

quite the six pack. No fat anywhere, all 6'2 is lean muscle. And

can he eat!

Diane S

> > > >

> > > > Hi all:

> > > > Just wondering what others do when an individual with

autism

> > gets

> > > > real noisy and " hyper " ?

> > > > Noah is not among the great sleepers, but over the past

half

> > dozen

> > > > years or so, his behavior has been pretty calm and

relatively

> > > > controlled, in spite of sleep issues...The past several

weeks

> > there

> > > > has been a pretty dramatic change; very noisy, flapping,

> > > > jumping...basically a resurgence of " old " behaviors...He is

> > still

> > > > sweet, often smiley and cooperative. He does tend to " cycle

> > up "

> > > more

> > > > in the fall and spring. He says he feels ok but cannot

> control

> > the

> > > > noise. My husband is going CRAZY!!! He is really affected

by

> > the

> > > > constant (and I mean CONSTANT) noise. I am pretty tolerant

> but

> > > after

> > > > a few hours of hearing his high pitched humming and other

> > variety

> > > of

> > > > sounds, I am ready to start using ear plugs. As a migraine

> > > sufferer,

> > > > this is particularly difficult for me when I have a

migraine,

> > as

> > > you

> > > > can imagine.

> > > > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg

> of

> > > Buspar

> > > > twice a day and 1 mg of Klonipin in the evening before bed.

I

> > am

> > > > considering weaning him off the Lexapro...not that I think

it

> > is

> > > > causing a problem but, I don't think it is helping...

> > > > I have an appointment with the internist to check him

> > out...there

> > > is

> > > > no evidence of an illness, but I want to make sure his

throat

> > and

> > > > ears are ok...maybe run some blood work...I am a nurse and

in

> > my

> > > > opinion, he is not ill...He says he feels ok and that

nothing

> > > hurts.

> > > > He is eating and drinking...all other bodily functions seem

> > ok...

> > > > I have a call in to the psychiatrist...

> > > > Any thoughts out there???

> > > > Ellen

> > > >

> > >

November 2, 2008

Thanks so much for your reply. Can you please tell me what type of meds he was

placed on.

Thanks so much!

Re: Re: Question about increase in " autistic " behaviors

In a message dated 11/2/2008 7:53:10 P.M. Central Standard Time,

lisadruc@... writes:

Have you ever seen a high functioning ASD child who is doing very well have

a severe regression? Can not control negative thoughts? Body starts having?

strong body tics. When child is thinking about negative thoughts their face

turns bright red. The child is expressing wetting his pants and missing when

making urine. This is a kid who loved Cubs games and going to concerts during

the summer. It has been a hellish experience!

Yet their are periods of time, that the child is calm.

Thanks!

This is so much like we went through with our son last November. He had

terrible negative thoughts and tremendous anxiety. The tics really came out for

the first time as well. Both of these things continue today though not as

pronounce. He can feel them coming and is able to manage them at times. He

picked up new diagnosis such as OCD and Tourettes, but what really seemed to

help was a change in meds.

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November 2, 2008

They really just changed some things up. Switched risperdal for geodon.

Then switched Ritalin LA for Concerta. That made some difference but I really

think it was the adding of Seroquel. He has been able to sleep, the anxiety

has really quieted down (not that we don't have episodes, they are just

shorter in duration, yeah!) and the spiraling thoughts and depression or

thoughts

of 'not wanting to be here, why was I made this way) are gone. He still

takes zoloft nothing was changed with that. Hope that helps

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November 3, 2008

Thanks, Diane. We've thought about a van down the road. For now, we're mostly

still trying to assess what kinds of jobs/activities she enjoys doing and that

she's good at. Also, what markets are out there waiting to be tapped and things

that businesses actually need done and are willing to pay for.

Let's keep the ideas flowing.

Re: Question about increase in " autistic " behaviors

Laurie,

Sounds like a lot of us have this concern with our children who

are so smart and able to work hard. I agree, let's continue to

dialogue this topic whenever issues arise. I for one am interested

to hear everyone else's journey/ experiences with this issue.

Also, in regards to the shredding business. Have you considered

getting a business van? You know like the utility type van. Maybe

could even be purchased used, and tax/ business write off?

Also, how about an office cleaning business (evenings) after business

hours? Noises would not bother others. I know that that market is

tough, but maybe encouraging agencies that serve those with

disabilities to hire persons with disabilities. IE: WDSRA, Little

Friends, Ray Graham, places like that.

Diane S

> >

> > Hi all:

> > Just wondering what others do when an individual with autism

gets

> > real noisy and " hyper " ?

> > Noah is not among the great sleepers, but over the past half

dozen

> > years or so, his behavior has been pretty calm and relatively

> > controlled, in spite of sleep issues...The past several weeks

there

> > has been a pretty dramatic change; very noisy, flapping,

> > jumping...basically a resurgence of " old " behaviors...He is

still

> > sweet, often smiley and cooperative. He does tend to " cycle up "

> more

> > in the fall and spring. He says he feels ok but cannot control

the

> > noise. My husband is going CRAZY!!! He is really affected by

the

> > constant (and I mean CONSTANT) noise. I am pretty tolerant but

> after

> > a few hours of hearing his high pitched humming and other

variety

> of

> > sounds, I am ready to start using ear plugs. As a migraine

> sufferer,

> > this is particularly difficult for me when I have a migraine,

as

> you

> > can imagine.

> > Noah is currently on 10 mg of Lexapro once a day and 7.5 mg of

> Buspar

> > twice a day and 1 mg of Klonipin in the evening before bed. I

am

> > considering weaning him off the Lexapro...not that I think it

is

> > causing a problem but, I don't think it is helping...

> > I have an appointment with the internist to check him

out...there

> is

> > no evidence of an illness, but I want to make sure his throat

and

> > ears are ok...maybe run some blood work...I am a nurse and in

my

> > opinion, he is not ill...He says he feels ok and that nothing

> hurts.

> > He is eating and drinking...all other bodily functions seem

ok...

> > I have a call in to the psychiatrist...

> > Any thoughts out there???

> > Ellen

> >

>

November 4, 2008

When the noise is really bad, I try 3 things.

1) engaging him in this one memory game on the computer- it keeps his

mind and hands occupied at the same time, and he has to concentrate

and listen (if he doesn't stop screaming he can't hear the game)-

then he loses the game which he hates to lose.

2) have him run on the treadmill in the basement.

3) If all else fails tell him directly that he is too loud and

driving us nuts, and that he has to go play upstairs in his room.

My husband usually retreats to the garage in warm weather, or into

the basement wher he as well, has his " own room " , where he has a

desk, some hobbies, and a TV and a couch. He will go there until

quiets down.

Me I hop on the computer and turn my ITunes on louder than

Diane S

> > > > >

> > > > > Hi all:

> > > > > Just wondering what others do when an individual with

> autism

> > > gets

> > > > > real noisy and " hyper " ?

> > > > > Noah is not among the great sleepers, but over the past

> half

> > > dozen

> > > > > years or so, his behavior has been pretty calm and

> relatively

> > > > > controlled, in spite of sleep issues...The past several

> weeks

> > > there

> > > > > has been a pretty dramatic change; very noisy, flapping,

> > > > > jumping...basically a resurgence of " old " behaviors...He

is

> > > still

> > > > > sweet, often smiley and cooperative. He does tend

to " cycle

> > > up "

> > > > more

> > > > > in the fall and spring. He says he feels ok but cannot

> > control

> > > the

> > > > > noise. My husband is going CRAZY!!! He is really affected

> by

> > > the

> > > > > constant (and I mean CONSTANT) noise. I am pretty

tolerant

> > but

> > > > after

> > > > > a few hours of hearing his high pitched humming and other

> > > variety

> > > > of

> > > > > sounds, I am ready to start using ear plugs. As a

migraine

> > > > sufferer,

> > > > > this is particularly difficult for me when I have a

> migraine,

> > > as

> > > > you

> > > > > can imagine.

> > > > > Noah is currently on 10 mg of Lexapro once a day and 7.5

mg

> > of

> > > > Buspar

> > > > > twice a day and 1 mg of Klonipin in the evening before

bed.

> I

> > > am

> > > > > considering weaning him off the Lexapro...not that I

think

> it

> > > is

> > > > > causing a problem but, I don't think it is helping...

> > > > > I have an appointment with the internist to check him

> > > out...there

> > > > is

> > > > > no evidence of an illness, but I want to make sure his

> throat

> > > and

> > > > > ears are ok...maybe run some blood work...I am a nurse

and

> in

> > > my

> > > > > opinion, he is not ill...He says he feels ok and that

> nothing

> > > > hurts.

> > > > > He is eating and drinking...all other bodily functions

seem

> > > ok...

> > > > > I have a call in to the psychiatrist...

> > > > > Any thoughts out there???

> > > > > Ellen

> > > > >

> > > >

November 4, 2008

Thanks, Diane.

The only thing that seems to work with Noah is when we sing songs together...he

is totally engaged in that...I guess on the way to Springfield tomorrow (we are

going to the self-advocate summit) I will start with 5,000 bottles of beer on

the wall and sing it slowly to last the four hour drive

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

When the noise is really bad, I try 3 things.

1) engaging him in this one memory game on the computer- it keeps his

mind and hands occupied at the same time, and he has to concentrate

and listen (if he doesn't stop screaming he can't hear the game)-

then he loses the game which he hates to lose.

2) have him run on the treadmill in the basement.

3) If all else fails tell him directly that he is too loud and

driving us nuts, and that he has to go play upstairs in his room.

My husband usually retreats to the garage in warm weather, or into

the basement wher he as well, has his " own room " , where he has a

desk, some hobbies, and a TV and a couch. He will go there until

quiets down.

Me I hop on the computer and turn my ITunes on louder than

Diane S

> > > > >

> > > > > Hi all:

> > > > > Just wondering what others do when an individual with

> autism

> > > gets

> > > > > real noisy and " hyper " ?

> > > > > Noah is not among the great sleepers, but over the past

> half

> > > dozen

> > > > > years or so, his behavior has been pretty calm and

> relatively

> > > > > controlled, in spite of sleep issues...The past several

> weeks

> > > there

> > > > > has been a pretty dramatic change; very noisy, flapping,

> > > > > jumping...basically a resurgence of " old " behaviors...He

is

> > > still

> > > > > sweet, often smiley and cooperative. He does tend

to " cycle

> > > up "

> > > > more

> > > > > in the fall and spring. He says he feels ok but cannot

> > control

> > > the

> > > > > noise. My husband is going CRAZY!!! He is really affected

> by

> > > the

> > > > > constant (and I mean CONSTANT) noise. I am pretty

tolerant

> > but

> > > > after

> > > > > a few hours of hearing his high pitched humming and other

> > > variety

> > > > of

> > > > > sounds, I am ready to start using ear plugs. As a

migraine

> > > > sufferer,

> > > > > this is particularly difficult for me when I have a

> migraine,

> > > as

> > > > you

> > > > > can imagine.

> > > > > Noah is currently on 10 mg of Lexapro once a day and 7.5

mg

> > of

> > > > Buspar

> > > > > twice a day and 1 mg of Klonipin in the evening before

bed.

> I

> > > am

> > > > > considering weaning him off the Lexapro...not that I

think

> it

> > > is

> > > > > causing a problem but, I don't think it is helping...

> > > > > I have an appointment with the internist to check him

> > > out...there

> > > > is

> > > > > no evidence of an illness, but I want to make sure his

> throat

> > > and

> > > > > ears are ok...maybe run some blood work...I am a nurse

and

> in

> > > my

> > > > > opinion, he is not ill...He says he feels ok and that

> nothing

> > > > hurts.

> > > > > He is eating and drinking...all other bodily functions

seem

> > > ok...

> > > > > I have a call in to the psychiatrist...

> > > > > Any thoughts out there???

> > > > > Ellen

> > > > >

> > > >

November 4, 2008

or let him drink one? :-)

Do any of your kids old enough to drink ever do so?

H.

Re: Re: Question about increase in " autistic " behaviors

Thanks, Diane.

The only thing that seems to work with Noah is when we sing songs together...he

is totally engaged in that...I guess on the way to Springfield tomorrow (we are

going to the self-advocate summit) I will start with 5,000 bottles of beer on

the wall and sing it slowly to last the four hour drive

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Question about increase in " autistic " behaviors

When the noise is really bad, I try 3 things.

1) engaging him in this one memory game on the computer- it keeps his

mind and hands occupied at the same time, and he has to concentrate

and listen (if he doesn't stop screaming he can't hear the game)-

then he loses the game which he hates to lose.

2) have him run on the treadmill in the basement.

3) If all else fails tell him directly that he is too loud and

driving us nuts, and that he has to go play upstairs in his room.

My husband usually retreats to the garage in warm weather, or into

the basement wher he as well, has his " own room " , where he has a

desk, some hobbies, and a TV and a couch. He will go there until

quiets down.

Me I hop on the computer and turn my ITunes on louder than

Diane S

> > > > >

> > > > > Hi all:

> > > > > Just wondering what others do when an individual with

> autism

> > > gets

> > > > > real noisy and " hyper " ?

> > > > > Noah is not among the great sleepers, but over the past

> half

> > > dozen

> > > > > years or so, his behavior has been pretty calm and

> relatively

> > > > > controlled, in spite of sleep issues...The past several

> weeks

> > > there

> > > > > has been a pretty dramatic change; very noisy, flapping,

> > > > > jumping...basically a resurgence of " old " behaviors...He

is

> > > still

> > > > > sweet, often smiley and cooperative. He does tend

to " cycle

> > > up "

> > > > more

> > > > > in the fall and spring. He says he feels ok but cannot

> > control

> > > the

> > > > > noise. My husband is going CRAZY!!! He is really affected

> by

> > > the

> > > > > constant (and I mean CONSTANT) noise. I am pretty

tolerant

> > but

> > > > after

> > > > > a few hours of hearing his high pitched humming and other

> > > variety

> > > > of

> > > > > sounds, I am ready to start using ear plugs. As a

migraine

> > > > sufferer,

> > > > > this is particularly difficult for me when I have a

> migraine,

> > > as

> > > > you

> > > > > can imagine.

> > > > > Noah is currently on 10 mg of Lexapro once a day and 7.5

mg

> > of

> > > > Buspar

> > > > > twice a day and 1 mg of Klonipin in the evening before

bed.

> I

> > > am

> > > > > considering weaning him off the Lexapro...not that I

think

> it

> > > is

> > > > > causing a problem but, I don't think it is helping...

> > > > > I have an appointment with the internist to check him

> > > out...there

> > > > is

> > > > > no evidence of an illness, but I want to make sure his

> throat

> > > and

> > > > > ears are ok...maybe run some blood work...I am a nurse

and

> in

> > > my

> > > > > opinion, he is not ill...He says he feels ok and that

> nothing

> > > > hurts.

> > > > > He is eating and drinking...all other bodily functions

seem

> > > ok...

> > > > > I have a call in to the psychiatrist...

> > > > > Any thoughts out there???

> > > > > Ellen

> > > > >

> > > >

November 4, 2008

The 5000 bottles of beer notwithstanding...argh!?!?@ We are pretty

conservative about our kids drinking..really didnt let them do it under age.

However it became a nice transition when our oldest son was old enough. So

when Adam turned 21 he chose a Mexican place for dionner and we ordered a

mix of different drinks. Now every once in a while adam is very confident

about ordering a Bud lite, or splitting one with his father. hey have

seasontickets for the Blackhawks and Adam has ordered from the vendors at

the stadium. Now about the song// 99 bottles of beer..that may be a way of

getting through tonights ballot counting. Cindi

November 4, 2008

That was my little joke...the 5.000 bottles of beer is my EXTENDED version of 99

bottles of beer....Noah hates all alcoholic drinks...now my 24 year old is a

whole different story...wish he didn't like it so much...

I am thinking some day soon we need to get on the topic of sibs and their

responses to their sib status...

Interesting update on Noah's noisiness...I took him to his class at Trinity and

his behavior was much better in that environment...it tells me that at home and

in some of his day activities, he is less stimulated and less satisfied which

may be resulting in the behaviors...