Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 If in doubt call them. That is what I do for anything I need or want. If I do not get a response quick enough I call. I have been lucky with PACT and Ray Graham. They get back to me pretty quickly anytime I need them. Shirley From: G Mrozak <mrsovaltine@...> Subject: PUNS IPADDUnite Date: Monday, October 27, 2008, 1:29 PM I did a PUNS intake for my son in 2007. During the summer of 2008, I received a phone message from PACT (the local agency handling this). At the time, my impression was that they were going to contact me in August for an update, and that I should have my son's information handy. Well, it's now late October, and no one has called me. I'm beginning to think I misheard their message, and that it was my job to call them. Anyone know how this goes? -Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Excellent question, Gail. I believe they are supposed to contact you annually for the update, but, in the past, I have usually done the reminding...it doesn't hurt, for those who are organized, to put a reminder in your calendar and make a call... Obviously, the main thing is to get it done and make sure your child stays in the system and that you get the opportunity to change the information as your child's situation and the family situation changes. Ellen Ellen Garber Bronfeld egskb@... PUNS I did a PUNS intake for my son in 2007. During the summer of 2008, I received a phone message from PACT (the local agency handling this). At the time, my impression was that they were going to contact me in August for an update, and that I should have my son's information handy. Well, it's now late October, and no one has called me. I'm beginning to think I misheard their message, and that it was my job to call them. Anyone know how this goes? -Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Gail, IME with PACT, they usually call me. It's not uncommon, though, for any service coordinator to 'miss' an update. I would give them a call. It's possible you have a new coordinator who isn't yet up to speed. My daughter has a new coordinator. Finato www.AngelSpeaks.com www.wegrowdreams.org From: G Mrozak <mrsovaltine@...> Subject: PUNS IPADDUnite Date: Monday, October 27, 2008, 6:29 AM I did a PUNS intake for my son in 2007. During the summer of 2008, I received a phone message from PACT (the local agency handling this). At the time, my impression was that they were going to contact me in August for an update, and that I should have my son's information handy. Well, it's now late October, and no one has called me. I'm beginning to think I misheard their message, and that it was my job to call them. Anyone know how this goes? -Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Assume all good people, well meaning folks work for PAS, DHS, schools, adult providersetc. Recognize during the good timesthey are overburdened ...large case loads. So now the whole country is in a financial pickle and also assume our people are going to get rock bottom. Thanks to OPADD, DFDN (dupage family disability network)TPC, Centers for Independent Living etc, there is a large amount of info parents can access. To the annoyance of anyone who has dealt with my son, I have tried to be a day or a week before their promised calls. I learned early on if I dont manage the calender someone who does not passionately love my son is not going to put him first on their THINGS To Do list. I have what I think are good people, PACT,and my service facilitator. The last time we met the PACT rep said, " Oh now that you have HBSS we will close your PUNS " I said NO, the service facilitator said no, some consideration actually went into the decision to not close our case. My son has Down Syndrome,he will always need continued ongoing support and likely will continue to have unmet needs in Illinois. The point is had I not been somewhat informed I may have capitulated and allowed closing the case..because the PAS rep sounded so assured and firm that this is what is done. As parents networking and getting straight info even if we have to go to Lilia to get it is what we have to do. The reality is none of this should be so difficult. At a recent meeting Lilia said this should not be so diificult we need a users manual. And we should not be put in situations where we feel someone may be holding back information that would help our loved ones. The bottom line is we need to keep getting educated and decide that what is right for our other kids is right for our kids with dis. Sorry this is wordy, but it is distressing that our kids become adults and after 18 years of public education we really are in the dark about a great many things. As always good luck to all...Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Gail, PACT is my agency as well (Dupage county right?) and they have always contacted me by letter a few months before the date for PUNS renewal and by phone to make either in person or telephone appointment. Now that Quentin has the adult waiver we do the puns update during one of their quarterly home visits. It seems strange that you haven't heard from them, do you know the name of the person assigned to your case? If not, try Sweeney. Thais -- WOW! Homepage (http://www.wowway.com) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Gail, PACT is my agency as well (Dupage county right?) and they have always contacted me by letter a few months before the date for PUNS renewal and by phone to make either in person or telephone appointment. Now that Quentin has the adult waiver we do the puns update during one of their quarterly home visits. It seems strange that you haven't heard from them, do you know the name of the person assigned to your case? If not, try Sweeney. Thais -- WOW! Homepage (http://www.wowway.com) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Thanks Cindi, I agree, it is never too late to ask questions and keep informed because the answers do change fortunately because of the hard work of parents and advocates unfortunately because sometimes we are misinformed in the first place With very few exceptions, everything I have learned that has helped Quentin, including rectifying misinformation, has been through parents. Thais -- WOW! Homepage (http://www.wowway.com) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Hi Cindi and all... I find it appalling that someone wanted to close your son's case after he received some funding!!! How sad, as you point out that, those who don't know better, would have readily agreed! That is why I think that the Arc, the Family Support Network and IPADDU are critical...but we need to be reaching everyone. How can we spread the word that these three resources exist for the express purpose of keeping families informed, functional, and supported? Ellen Ellen Garber Bronfeld egskb@... Re: PUNS Assume all good people, well meaning folks work for PAS, DHS, schools, adult providersetc. Recognize during the good timesthey are overburdened ..large case loads. So now the whole country is in a financial pickle and also assume our people are going to get rock bottom. Thanks to OPADD, DFDN (dupage family disability network)TPC, Centers for Independent Living etc, there is a large amount of info parents can access. To the annoyance of anyone who has dealt with my son, I have tried to be a day or a week before their promised calls. I learned early on if I dont manage the calender someone who does not passionately love my son is not going to put him first on their THINGS To Do list. I have what I think are good people, PACT,and my service facilitator. The last time we met the PACT rep said, " Oh now that you have HBSS we will close your PUNS " I said NO, the service facilitator said no, some consideration actually went into the decision to not close our case. My son has Down Syndrome,he will always need continued ongoing support and likely will continue to have unmet needs in Illinois. The point is had I not been somewhat informed I may have capitulated and allowed closing the case..because the PAS rep sounded so assured and firm that this is what is done. As parents networking and getting straight info even if we have to go to Lilia to get it is what we have to do. The reality is none of this should be so difficult. At a recent meeting Lilia said this should not be so diificult we need a users manual. And we should not be put in situations where we feel someone may be holding back information that would help our loved ones. The bottom line is we need to keep getting educated and decide that what is right for our other kids is right for our kids with dis. Sorry this is wordy, but it is distressing that our kids become adults and after 18 years of public education we really are in the dark about a great many things. As always good luck to all...Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 I so agree with you Cindi!!!! But so many times we are flying blind and we dont know many of the things to do, proceedures, who to contact etc, etc. This is where we all help eachother, by sharing information!!! Thank you!! Kathy > > Assume all good people, well meaning folks work for PAS, DHS, schools, > adult providersetc. Recognize during the good timesthey are overburdened > ..large case loads. So now the whole country is in a financial pickle and > also assume our people are going to get rock bottom. Thanks to OPADD, DFDN > (dupage family disability network)TPC, Centers for Independent Living etc, > there is a large amount of info parents can access. To the annoyance of > anyone who has dealt with my son, I have tried to be a day or a week before > their promised calls. I learned early on if I dont manage the calender > someone who does not passionately love my son is not going to put him first > on their THINGS To Do list. I have what I think are good people, PACT,and > my service facilitator. The last time we met the PACT rep said, " Oh now > that you have HBSS we will close your PUNS " > I said NO, the service facilitator said no, some consideration actually went > into the decision to not close our case. My son has Down Syndrome,he will > always need continued ongoing support and likely will continue to have unmet > needs in Illinois. The point is had I not been somewhat informed I may have > capitulated and allowed closing the case..because the PAS rep sounded so > assured and firm that this is what is done. > As parents networking and getting straight info even if we have to go to > Lilia to get it is what we have to do. > The reality is none of this should be so difficult. At a recent meeting > Lilia said this should not be so diificult we need a users manual. And we > should not be put in situations where we feel someone may be holding back > information that would help our loved ones. The bottom line is we need to > keep getting educated and decide that what is right for our other kids is > right for our kids with dis. > Sorry this is wordy, but it is distressing that our kids become adults and > after 18 years of public education we really are in the dark about a great > many things. > > As always good luck to all...Cindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 What is PUNS? Re: PUNS I so agree with you Cindi!!!! But so many times we are flying blind and we dont know many of the things to do, proceedures, who to contact etc, etc. This is where we all help eachother, by sharing information!!! Thank you!! Kathy > > Assume all good people, well meaning folks work for PAS, DHS, schools, > adult providersetc. Recognize during the good timesthey are overburdened > ..large case loads. So now the whole country is in a financial pickle and > also assume our people are going to get rock bottom. Thanks to OPADD, DFDN > (dupage family disability network)TPC, Centers for Independent Living etc, > there is a large amount of info parents can access. To the annoyance of > anyone who has dealt with my son, I have tried to be a day or a week before > their promised calls. I learned early on if I dont manage the calender > someone who does not passionately love my son is not going to put him first > on their THINGS To Do list. I have what I think are good people, PACT,and > my service facilitator. The last time we met the PACT rep said, " Oh now > that you have HBSS we will close your PUNS " > I said NO, the service facilitator said no, some consideration actually went > into the decision to not close our case. My son has Down Syndrome,he will > always need continued ongoing support and likely will continue to have unmet > needs in Illinois. The point is had I not been somewhat informed I may have > capitulated and allowed closing the case..because the PAS rep sounded so > assured and firm that this is what is done. > As parents networking and getting straight info even if we have to go to > Lilia to get it is what we have to do. > The reality is none of this should be so difficult. At a recent meeting > Lilia said this should not be so diificult we need a users manual. And we > should not be put in situations where we feel someone may be holding back > information that would help our loved ones. The bottom line is we need to > keep getting educated and decide that what is right for our other kids is > right for our kids with dis. > Sorry this is wordy, but it is distressing that our kids become adults and > after 18 years of public education we really are in the dark about a great > many things. > > As always good luck to all...Cindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 http://www.dd.illinois.gov/SignUp.cfm M. Kennedy cmk@... Kennedy Pierson & Strachan LLP in Chicago: 300 S. Wacker Drive Suite 3400 Chicago, Illinois 60606-6708 312-829-7000 Phone in Lake Forest: 668 N. Western Avenue Lake Forest, Illinois 60045-5317 847-295-0300 Phone 847-295-0344 Fax www.kennedypierson.com NOTICE: This email message and all attachments are intended solely for the use of the addressee and may contain legally privileged and confidential information. This message and its attachments may not be distributed to further persons without explicit written permission from the above author of the email message and its attachment(s). If the reader of this message is not the intended recipient, you are hereby notified that any dissemination, distribution, copying or other use of this message or its attachment(s) is strictly prohibited. If you have received this message in error, please notify the sender immediately by replying to this message and/or telephoning its author, and by deleting this message from your computer. From: IPADDUnite [mailto:IPADDUnite ] On Behalf Of lisadruc@... Sent: Tuesday, October 28, 2008 1:24 PM IPADDUnite Subject: Re: Re: PUNS What is PUNS? Re: PUNS I so agree with you Cindi!!!! But so many times we are flying blind and we dont know many of the things to do, proceedures, who to contact etc, etc. This is where we all help eachother, by sharing information!!! Thank you!! Kathy > > Assume all good people, well meaning folks work for PAS, DHS, schools, > adult providersetc. Recognize during the good timesthey are overburdened > ..large case loads. So now the whole country is in a financial pickle and > also assume our people are going to get rock bottom. Thanks to OPADD, DFDN > (dupage family disability network)TPC, Centers for Independent Living etc, > there is a large amount of info parents can access. To the annoyance of > anyone who has dealt with my son, I have tried to be a day or a week before > their promised calls. I learned early on if I dont manage the calender > someone who does not passionately love my son is not going to put him first > on their THINGS To Do list. I have what I think are good people, PACT,and > my service facilitator. The last time we met the PACT rep said, " Oh now > that you have HBSS we will close your PUNS " > I said NO, the service facilitator said no, some consideration actually went > into the decision to not close our case. My son has Down Syndrome,he will > always need continued ongoing support and likely will continue to have unmet > needs in Illinois. The point is had I not been somewhat informed I may have > capitulated and allowed closing the case..because the PAS rep sounded so > assured and firm that this is what is done. > As parents networking and getting straight info even if we have to go to > Lilia to get it is what we have to do. > The reality is none of this should be so difficult. At a recent meeting > Lilia said this should not be so diificult we need a users manual. And we > should not be put in situations where we feel someone may be holding back > information that would help our loved ones. The bottom line is we need to > keep getting educated and decide that what is right for our other kids is > right for our kids with dis. > Sorry this is wordy, but it is distressing that our kids become adults and > after 18 years of public education we really are in the dark about a great > many things. > > As always good luck to all...Cindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Thanks, Chris. Even better! Ellen Ellen Garber Bronfeld egskb@... Re: PUNS I so agree with you Cindi!!!! But so many times we are flying blind and we dont know many of the things to do, proceedures, who to contact etc, etc. This is where we all help eachother, by sharing information!!! Thank you!! Kathy > > Assume all good people, well meaning folks work for PAS, DHS, schools, > adult providersetc. Recognize during the good timesthey are overburdened > ..large case loads. So now the whole country is in a financial pickle and > also assume our people are going to get rock bottom. Thanks to OPADD, DFDN > (dupage family disability network)TPC, Centers for Independent Living etc, > there is a large amount of info parents can access. To the annoyance of > anyone who has dealt with my son, I have tried to be a day or a week before > their promised calls. I learned early on if I dont manage the calender > someone who does not passionately love my son is not going to put him first > on their THINGS To Do list. I have what I think are good people, PACT,and > my service facilitator. The last time we met the PACT rep said, " Oh now > that you have HBSS we will close your PUNS " > I said NO, the service facilitator said no, some consideration actually went > into the decision to not close our case. My son has Down Syndrome,he will > always need continued ongoing support and likely will continue to have unmet > needs in Illinois. The point is had I not been somewhat informed I may have > capitulated and allowed closing the case..because the PAS rep sounded so > assured and firm that this is what is done. > As parents networking and getting straight info even if we have to go to > Lilia to get it is what we have to do. > The reality is none of this should be so difficult. At a recent meeting > Lilia said this should not be so diificult we need a users manual. And we > should not be put in situations where we feel someone may be holding back > information that would help our loved ones. The bottom line is we need to > keep getting educated and decide that what is right for our other kids is > right for our kids with dis. > Sorry this is wordy, but it is distressing that our kids become adults and > after 18 years of public education we really are in the dark about a great > many things. > > As always good luck to all...Cindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 I have been watching this board for several weeks and now sure appreciate all of the sharing of information. Now there is something I feel I should throw my 2 cents in about. I am the Mom to a son (Mike) who is 38 years old. He was diagnosed with Asperger's at the age of 35 after a lifetime of misdiagnosis and struggling. He also has epilepsy and some significant memory issues. We recently got a second opinion from a new Psychiatrist who agrees with his diagnosis and added Social Anxiety Disorder. Mike is really a great guy...he does pretty well on his own under the watchful eye of his family. He works 2 part time jobs...both of them low paying. He struggles to support himself. Medical insurance has been an issue (He has had HBWD) but for now has qualified for BC/BS through his employer. Not sure how long that will last. He could lose it at any time if his hours are cut. We were directed to PACT for assistance and spent approximately 2 years with them. The caseworker insisted very passionately that Mike would certainly qualify for home based services. We followed her remonnemdations which eventually ended in an appeal hearing. The absolute worst experience of our struggles for Mike. In spite of his daily struggles to survive; he was denied on the basis of his IQ which is in the average range. We have not heard from PACT since leaving the appeal hearing last December even tho we were told by his caseworker that we would decide what to do next after the holidays were over and we all recovered from the wounds that experience left. I just felt the need to offer my 2 cents that our experience with PACT did not turn out positive. After all, we do need to share experiences and information. Mike still struggles and we have all but given up all hope of any assistance for him. I'm sure Pact can offer help but for Mike; that is not what happened. Carole Hayden ________________________________ From: " lisadruc@... " <lisadruc@...> IPADDUnite Sent: Tuesday, October 28, 2008 1:24:03 PM Subject: Re: Re: PUNS What is PUNS? Re: PUNS I so agree with you Cindi!!!! But so many times we are flying blind and we dont know many of the things to do, proceedures, who to contact etc, etc. This is where we all help eachother, by sharing information! !! Thank you!! Kathy > > Assume all good people, well meaning folks work for PAS, DHS, schools, > adult providersetc. Recognize during the good timesthey are overburdened > ...large case loads. So now the whole country is in a financial pickle and > also assume our people are going to get rock bottom. Thanks to OPADD, DFDN > (dupage family disability network)TPC, Centers for Independent Living etc, > there is a large amount of info parents can access. To the annoyance of > anyone who has dealt with my son, I have tried to be a day or a week before > their promised calls. I learned early on if I dont manage the calender > someone who does not passionately love my son is not going to put him first > on their THINGS To Do list.. I have what I think are good people, PACT,and > my service facilitator. The last time we met the PACT rep said, " Oh now > that you have HBSS we will close your PUNS " > I said NO, the service facilitator said no, some consideration actually went > into the decision to not close our case. My son has Down Syndrome,he will > always need continued ongoing support and likely will continue to have unmet > needs in Illinois. The point is had I not been somewhat informed I may have > capitulated and allowed closing the case..because the PAS rep sounded so > assured and firm that this is what is done. > As parents networking and getting straight info even if we have to go to > Lilia to get it is what we have to do. > The reality is none of this should be so difficult. At a recent meeting > Lilia said this should not be so diificult we need a users manual. And we > should not be put in situations where we feel someone may be holding back > information that would help our loved ones. The bottom line is we need to > keep getting educated and decide that what is right for our other kids is > right for our kids with dis. > Sorry this is wordy, but it is distressing that our kids become adults and > after 18 years of public education we really are in the dark about a great > many things. > > As always good luck to all...Cindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 Thank you for sharing your story, Carole. No agency is perfect, and some agencies do better assisting certain disability groups more than others. I am so sorry for your unfortunate experience. I don't have any major words of wisdom, but perhaps others in the group might have some advice for you. Ellen Ellen Garber Bronfeld egskb@... Re: PUNS I so agree with you Cindi!!!! But so many times we are flying blind and we dont know many of the things to do, proceedures, who to contact etc, etc. This is where we all help eachother, by sharing information! !! Thank you!! Kathy > > Assume all good people, well meaning folks work for PAS, DHS, schools, > adult providersetc. Recognize during the good timesthey are overburdened > ...large case loads. So now the whole country is in a financial pickle and > also assume our people are going to get rock bottom. Thanks to OPADD, DFDN > (dupage family disability network)TPC, Centers for Independent Living etc, > there is a large amount of info parents can access. To the annoyance of > anyone who has dealt with my son, I have tried to be a day or a week before > their promised calls. I learned early on if I dont manage the calender > someone who does not passionately love my son is not going to put him first > on their THINGS To Do list.. I have what I think are good people, PACT,and > my service facilitator. The last time we met the PACT rep said, " Oh now > that you have HBSS we will close your PUNS " > I said NO, the service facilitator said no, some consideration actually went > into the decision to not close our case. My son has Down Syndrome,he will > always need continued ongoing support and likely will continue to have unmet > needs in Illinois. The point is had I not been somewhat informed I may have > capitulated and allowed closing the case..because the PAS rep sounded so > assured and firm that this is what is done. > As parents networking and getting straight info even if we have to go to > Lilia to get it is what we have to do. > The reality is none of this should be so difficult. At a recent meeting > Lilia said this should not be so diificult we need a users manual. And we > should not be put in situations where we feel someone may be holding back > information that would help our loved ones. The bottom line is we need to > keep getting educated and decide that what is right for our other kids is > right for our kids with dis. > Sorry this is wordy, but it is distressing that our kids become adults and > after 18 years of public education we really are in the dark about a great > many things. > > As always good luck to all...Cindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 I am sorry to hear of your outcome. They are definitely stuck on the IQ of 70. My daughter also has an IQ slightly over 70 and we had to go to great lengths to prove that she has major deficits in 4 of 6 life functions (independent living, daily self care, communication were the only ones I can think of off the top of my head). We did this by using a communications specialist (neurophysiologist), social worker, psychiatrist reports and statements. It took 3 years (and the fact that I am a single parent with major health issues, I believe), but we now have the adult Home Based waiver. I would not give up. Does your son live with you, is he dependent on you to " supervise " his daily living, does he need you for transportation, is he capable of maintaining a social life for himself? Mine can do a lot functionally, but she initiates nothing. On her own she will get up and watch TV. She will not wash, brush her teeth, get dressed, or think about what she should be doing. My walls are scarred from all the charts, etc. I still need to say " What's next on your chart? " If you believe that he needs help, then you should go back and try again to state your case. One of the things that is hard for us to do is to admit how much we have to do for our kids. We are accustomed to being positive and proud of their accomplishments, not listing their deficiencies. When applying for help and answering the questions for the test at the PAS agent (CAP, I think) you have to really be honest about what they really can do on their own. For instance, can my daughter fix her own breakfast? I would say yes. Except that I have set everything out the night before so that she can't fail. Does she dress appropriately for the weather? I would say yes. Except the fact is that I set out her clothes. You have to really identify what he would do on his own to ascertain what help he truly needs. Hope this helps, Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 My heart goes out to you Carole!!!! It is extremely sad that anyone has to go through such struggles! I am glad you decided to share your esperience too, many times people with unpleasant esperiences with the system just give up, and are never heard from which gives the powers that be an unbalanced view of success with the system. Feel safe that you are among friends, and lots of us have similar problem, battles and you are always welcome to put in your 2 cents by me!!!!! Kathy Bissell in Southern IL > > > > Assume all good people, well meaning folks work for PAS, DHS, > schools, > > adult providersetc. Recognize during the good timesthey are > overburdened > > ...large case loads. So now the whole country is in a financial > pickle and > > also assume our people are going to get rock bottom. Thanks to > OPADD, DFDN > > (dupage family disability network)TPC, Centers for Independent > Living etc, > > there is a large amount of info parents can access. To the > annoyance of > > anyone who has dealt with my son, I have tried to be a day or a > week before > > their promised calls. I learned early on if I dont manage the > calender > > someone who does not passionately love my son is not going to put > him first > > on their THINGS To Do list.. I have what I think are good people, > PACT,and > > my service facilitator. The last time we met the PACT rep > said, " Oh now > > that you have HBSS we will close your PUNS " > > I said NO, the service facilitator said no, some consideration > actually went > > into the decision to not close our case. My son has Down > Syndrome,he will > > always need continued ongoing support and likely will continue to > have unmet > > needs in Illinois. The point is had I not been somewhat informed I > may have > > capitulated and allowed closing the case..because the PAS rep > sounded so > > assured and firm that this is what is done. > > As parents networking and getting straight info even if we have to > go to > > Lilia to get it is what we have to do. > > The reality is none of this should be so difficult. At a recent > meeting > > Lilia said this should not be so diificult we need a users manual. > And we > > should not be put in situations where we feel someone may be > holding back > > information that would help our loved ones. The bottom line is we > need to > > keep getting educated and decide that what is right for our other > kids is > > right for our kids with dis. > > Sorry this is wordy, but it is distressing that our kids become > adults and > > after 18 years of public education we really are in the dark about > a great > > many things. > > > > As always good luck to all...Cindi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Carole, Something I learned from ARC of Illinois is that it is sometimes useful to go to the next level of hierarchy. At PACT that would be Sweeney, I believe. Without putting the blame on anyone in particular, she could be very informative and efficient about the next step. Its difficult to be calm when we have been through frustrating experiences but being calm and persitant have given us better results for our sons needs. Thais -- WOW! Homepage (http://www.wowway.com) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2009 Report Share Posted June 29, 2009 I haven't heard this. Ellen Ellen Garber Bronfeld egskb@... PUNS Hi all, I saw some disturbing info and wasn't sure if it was true or complete. Has anyone heard about action being taken to repeal the PUNS legislation? Thanks, Sweeney Quote Link to comment Share on other sites More sharing options...
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