Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 In a message dated 4/2/02 1:48:02 PM Central Standard Time, mfroof@... writes: > Hi, Everyone.....Karyn.....I'd LOVE to utilize respite only we don't have it > > here. I think you're in a minority where respite is concerned. Enjoy > yourself...guilt free for me!!! > Take care, Everyone. > Margaret > > > > > Margaret, MOst families here don't use respite. Most of them don't know it is available or where to find it. Of the families that use it many utilize a babysitter or another family. is too good at pushing people's buttons so I don't want him alone with someone. He can't tell me what has happened. I also think that another family would burn out too soon and I'd be right back at square one. At least with the group home he goes to the same place each time and not all the staff are new. I do send him regularly not just for my piece of mind but so he stays familiar with the place. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 In a message dated 4/2/02 1:48:02 PM Central Standard Time, mfroof@... writes: > Hi, Everyone.....Karyn.....I'd LOVE to utilize respite only we don't have it > > here. I think you're in a minority where respite is concerned. Enjoy > yourself...guilt free for me!!! > Take care, Everyone. > Margaret > > > > > Margaret, MOst families here don't use respite. Most of them don't know it is available or where to find it. Of the families that use it many utilize a babysitter or another family. is too good at pushing people's buttons so I don't want him alone with someone. He can't tell me what has happened. I also think that another family would burn out too soon and I'd be right back at square one. At least with the group home he goes to the same place each time and not all the staff are new. I do send him regularly not just for my piece of mind but so he stays familiar with the place. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 In a message dated 4/2/02 9:49:20 PM Pacific Daylight Time, writes: > . is too good at pushing people's buttons so I don't want > him alone with someone. He can't tell me what has happened. > I also think that another family would burn out too soon and I'd be right > back at square one. At least with the group home he goes to the same place > each time and not all the staff are new. I do send him regularly not just > for > my piece of mind but so he stays familiar with the place. > > Karyn, same here too, although does have a " regular " that watches him, however, he takes OUT to Mc's Chuck E. Cheese, etc., unless it's late at night he's watching him. On weekends and school holidays, goes to " day rehab " at the group home, while this same caretaker goes to and works one on one with . Everybody at the home has four sets of eyes and ears. I feel comfortable leaving him there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 In a message dated 4/3/2002 9:35:32 AM Eastern Standard Time, mfroof@... writes: > On a brighter note, Gareth started > horseback riding lessons last night (through Easter Seals). He had a lot of > gagging in the barn area....he's got to get use to that smell!!! Hi Margaret, I was laughing too. We have a camp an hour away that offers this and I was thinking about having Zeb start riding. My worst fear is that he would want his own horse to bring home. We have been through the horse stuff in our younger days and my shoveling days are over.Years ago my husband's teen cousins spent the summer with us. I asked one of them to clean the stalls. Forgetting that they were city kids, I looked out the window and he had his t-shirt wrapped around his face.LOL Let us know how his riding progresses. Charlyne Mom to Zeb 9 DS/OCD ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 we use respite and scl, i doget worried for nathan too, but its good for him to be out in the community, the lord knows i dont have the time, often i dont even get home unitl supper time, then i have to cook and clean up and laundry and maybe get to watch a show with the family, and then its off readying for bed for the kidddies and then finally, i get tolay down, wheew!! shawna ===== shawna __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 In a message dated 4/3/02 10:35:35 AM Eastern Daylight Time, mfroof@... writes: > He's been hooked up with this HUGE quarterhorse named > Bob!!! It was hilarious watching him trying to get on at first. Just like > the cartoon movies where the person climbs on from one side and falls off > the > other!!! I know, I know.....I should not have been laughing...but....what > can I say!!! LOLOL Margaret!!! Nah, laugh away!!!!! We'd laugh whether they had DS/autism or not!!!!! Sounds like a great experience for Gareth!!!! Bob the horse, eh??? Well, give Gareth credit!!! You should have seen ME the first and ONLY time I went horse-back riding!!! I've no doubt I make Gareth look like a jockey!!! ;-) Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 In a message dated 5/23/02 9:57:17 PM Central Daylight Time, writes: > > > The best thing I've found as got > > older, was to let him go to one of the group homes in our immediate area. > > > You're guaranteed help that way much quicker than if you had to make > > arrangements for them to come to YOU. Of course, I have help at home > too, > > but when you go away for vacation or weekend, it's nice to know your > child > > can stay somewhere. I wouldn't trust someone in my home for that long. > > > > > > See now, I'm the opposite. I'd rather have Maddie home if I'm away. > Course, I have other kids (read SPIES) and the people I've used so far to > babysit while we're away are 1000% trustworthy....oh and it helps to have > your SIL live across the street...;-) > Donna > > has respite at a group home for a couple of reasons. 1. I want to stay home and rest sometimes when he is at respite. 2. If he is in our home and someone is coming in to care for him he has " the upper hand " . He has more behavioral issues. I also don't want my home destroyed because someone else isn't careful. I have people in our home every day working with and I take no precautions to prevent theft. If someone could steal from me they would do other things and I don't want them here. Let them take my cash and then I can keep them away from my child. One of the reasons I chose to do ABA with rather than use home health care respite is that all my staff now are college students. No one can work for the agency unless they have finished one year of college. I also can say yes or no to any staff person. With the home health agencies in our area you have no say over staff unless you have a complaint about someone after they are in your home. You also have no control over turnover or training. Most staff coming into the home have no college education and just basic CNA training. There is also no one to train them to deal with behaivoral issues. I'm not trying to bash CNAs or home health organizations. Each has its rule but it wasn't appropriate for our needs. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 In a message dated 5/24/02 11:38:27 AM Eastern Daylight Time, KVanRyzin@... writes: > I have people in our home every day working with and I take no > precautions to prevent theft. If someone could steal from me they would do > other things and I don't want them here. Let them take my cash and then I > can > keep them away from my child. Yes, I can understand that. I guess the difference is I don't really have respite. WE hire Maddie's ex-teacher and ex-aide and we know them very well. (or family) So it's not strangers coming in. The other thing is I know Maddie would not sleep one second if she were in someone else's house without us. And she'd be absolutely terrified the entire time. We're just not there yet. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 In a message dated 5/24/02 4:25:54 PM Central Daylight Time, writes: > > Yes, I can understand that. I guess the difference is I don't really > have > respite. WE hire Maddie's ex-teacher and ex-aide and we know them very > well. (or family) So it's not strangers coming in. The other thing is I > > know Maddie would not sleep one second if she were in someone else's house > without us. And she'd be absolutely terrified the entire time. We're > just > not there yet. > Donna I used to have staff that had worked with in the group home but they gradually moved on. 's sp. ed. teacher watched him a few times after I had but I hate to ask her when she has him all week. Going to the group home is hard on . He doesn't sleep much there. They are wonderful though and have pretty much quit insisting he go and " sleep " in his bed. Now they just throw a sheet on the couch and he sleeps right there by the over night staff. . didn't go until he was 10 years old. I still cried on my way home. Still do sometimes. I also have his home therapy team go there each day and work with him so he has some consistency (and I have spies). Hey, if he slept good then I probably wouldn't need the respite so bad. Going to the group home does have its benefits for . He comes back using more sentences and speaking more clearly. He also enjoys the energy of the young staff. Of course that is now that he has one on one staff assigned to him. Karyn Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 In a message dated 5/25/02 9:51:41 PM Eastern Daylight Time, KVanRyzin@... writes: > didn't go until he was 10 years old. I still > cried on my way home. Still do sometimes. I also have his home therapy team > go there each day and work with him so he has some consistency (and I have > spies). Hey, if he slept good then I probably wouldn't need the respite so > bad. > That's for sure Karyn. Thanks for sharing this. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 Karyn, it is a blessing to hear what a loving mom you are, Dawn s mom Re: respite In a message dated 5/24/02 4:25:54 PM Central Daylight Time, writes: > > Yes, I can understand that. I guess the difference is I don't really > have > respite. WE hire Maddie's ex-teacher and ex-aide and we know them very > well. (or family) So it's not strangers coming in. The other thing is I > > know Maddie would not sleep one second if she were in someone else's house > without us. And she'd be absolutely terrified the entire time. We're > just > not there yet. > Donna I used to have staff that had worked with in the group home but they gradually moved on. 's sp. ed. teacher watched him a few times after I had but I hate to ask her when she has him all week. Going to the group home is hard on . He doesn't sleep much there. They are wonderful though and have pretty much quit insisting he go and " sleep " in his bed. Now they just throw a sheet on the couch and he sleeps right there by the over night staff. . didn't go until he was 10 years old. I still cried on my way home. Still do sometimes. I also have his home therapy team go there each day and work with him so he has some consistency (and I have spies). Hey, if he slept good then I probably wouldn't need the respite so bad. Going to the group home does have its benefits for . He comes back using more sentences and speaking more clearly. He also enjoys the energy of the young staff. Of course that is now that he has one on one staff assigned to him. Karyn Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 Hi All, I just wanted to say bye for a few weeks. I am off to Aruba for a desperately needed break. I have never left my family other than to go to work. I am feeling somewhat guilty but not that guilty,LOL. I will miss all of you, stay well. Off to pack and pray the bathing suit still fits. Charlyne Mom to Zeb 10 DS/OCD ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 In a message dated 1/25/2003 3:00:46 AM Eastern Standard Time, charlyne1121@... writes: > Hi All, > I just wanted to say bye for a few weeks. I am off to Aruba for a > desperately > needed break. I have never left my family other than to go to work. I am > feeling somewhat guilty but not that guilty,LOL. I will miss all of you, > stay > well. Off to pack and pray the bathing suit still fits. > Charlyne > Oh Charlyne!!!! NEVER feel guilty!!!! Hope you are soaking up some warm sunshine right now, with a tropical drink in hand!!!!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 I use focus they are very nice and I just start to use Georgia Comunity Support & Solutions. (404) 634-4222 www.gacommunity.org Good Luck godsmercysaidno <godsmercysaidno@...> wrote: Hi everyone,I'm in ding County and was wondering if anyone knows about respite in this area. I received an email from FOCUS, and I am waiting on the package so I might be able to use their respite. Is there anything else out there? Thanks, Simon, Mother of Luke 6years old (PDD) Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 I use focus they are very nice and I just start to use Georgia Comunity Support & Solutions. (404) 634-4222 www.gacommunity.org Good Luck godsmercysaidno <godsmercysaidno@...> wrote: Hi everyone,I'm in ding County and was wondering if anyone knows about respite in this area. I received an email from FOCUS, and I am waiting on the package so I might be able to use their respite. Is there anything else out there? Thanks, Simon, Mother of Luke 6years old (PDD) Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 I am not sure how far you are from Lee or Dougherty County, but there is respite care for children here called 's House. If you are interested, please email to me and I can connect you with someone from Easter Seals. dheard73@... RespiteHi everyone, I'm in ding County and was wondering if anyone knows about respite in this area. I received an email from FOCUS, and I am waiting on the package so I might be able to use their respite. Is there anything else out there? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2008 Report Share Posted September 3, 2008 Here is a link I have found useful! _Illinois Respite Programs_ (http://www.chtop.com/istates.htm) In a message dated 9/3/2008 6:58:08 P.M. Central Daylight Time, bladinbern451@... writes: Where can I find out information about respite? My son is currently 18 and has never received any services. Where do I begin? Anyone's help would be appreciated. Thank you **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2008 Report Share Posted September 3, 2008 Where can I find out information about respite? My son is currently 18 and has never received any services. Where do I begin? Anyone's help would be appreciated. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 This link has been changed. This link (part of the same web site) should work: http://chtop.org/Search-For-Respite.html From: nechapasi@... <nechapasi@...> Subject: Re: respite IPADDUnite Date: Wednesday, September 3, 2008, 7:30 PM Here is a link I have found useful! _Illinois Respite Programs_ (http://www.chtop. com/istates. htm) In a message dated 9/3/2008 6:58:08 P.M. Central Daylight Time, bladinbern451@ sbcglobal. net writes: Where can I find out information about respite? My son is currently 18 and has never received any services. Where do I begin? Anyone's help would be appreciated. Thank you ************ **It's only a deal if it's where you want to go. Find your travel deal here. (http://information. travel.aol. com/deals? ncid=aoltrv00050 000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2012 Report Share Posted January 27, 2012 From: Diane Wheeler Sent: Friday, January 27, 2012 7:08 AM diwheeler@... Subject: Respite EMERGENCY RESPITE AVAILABLE FOR CAREGIVERS WHO ARE CARING FOR CHILDREN WITH SPECIAL NEEDS OR ADULTS WITH SPECIAL NEEDS What is respite? Respite Care: means the planned or unplanned provision of intermittent and temporary substitute care or supervision of a child with special needs or adult with special needs on behalf of and in the absence of the primary caregiver for the purpose of providing temporary relief from the stress or responsibilities concomitant with providing constant care, so as to enable the caregiver to continue the provision of care in the home. The goal of the Lifespan Emergency Respite Program is to offer funding and resources to support caregivers of children with special needs or adults with special needs who have an urgent need for respite care in the absence of any other funding source. The program supports the caregiver’s decision to request emergency respite care and determine where the care will be delivered and by whom. WHO IS ELIGIBLE? a.. Caregivers (unpaid family member or other adult or foster parent) who provides in-home monitoring, management, supervision or treatment of a child with special needs or an adult with special needs. (Caregiver may, but need not, reside in the same household as the care recipient.) b.. Caregivers with the greatest emotional, medical or economic need (targeting low income caregivers) are given priority for service. c.. Caregivers of a child with special needs or adult with special needs that cannot be cared for by other individuals or organizations within the community due to the complexity of their special needs. Contact: Fidler, Illinois Respite Coalition at nfidler@... or 630-529-2871 Ext. 3231 or visit us online at www.illinoisrespite.org under the Emergency Respite tab Fidler – Lifespan Respite Project Assistant 164 S. Prairie Ave. 630.529.2871 ext. 3231 DIRECT Bloomingdale, IL 60108 630.529.3266 FAX nfidler@... www.marklund.org Quote Link to comment Share on other sites More sharing options...
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