Re: Our Anniversary

[Guest guest]

Happy Anniversary!  Thank you for starting this!  Great Job!

Finato

www.AngelSpeaks.com

www.wegrowdreams.org

From: Marie Grass Amenta <teteme@...>

Subject: Our Anniversary

IPADDUnite

Date: Thursday, September 11, 2008, 7:21 AM

Happy Anniversary to us! It is two years today we went on line and

became Illinois Parents of Adults with Developmental Disabilities

UNITE! We are, as of this writing, 526 strong, and fighting to

better the lives of our children who happen to have disabilities,

siblings and clients in Illinois.

Laurie came to Ellen and I in the summer of 2006 with the idea. We

each had children who have autism who were approaching adulthood, or

my case, already had. We three come from three different areas of

Chicago land--Laurie from the western suburbs, Ellen from the

northern suburbs and I, from the southern suburbs. At first, we

thought we would put our resources together from our different

areas, we could compare notes and network--but what about the WHOLE

STATE? There were no resources or support for any of us with older

children or adults with disabilities in Illinois. What about an on

line, group to not only offer support but serve as a resource

as well? Through many email discussions, the present form of

IPADDUnite! began to take shape.

We wanted to offer a place not just for parents, but siblings and

professionals as well. The needs and education of children are well

documented but what about after those adorable kiddies age out and

seem to fall into an abyss? What about jobs and vocational

training? What about living options? What about the alphabet

gobbledygook of agencies and programs we need to know about and have

become part of our daily lexicon? What about state agencies,

guardianship issues and SSI and Medicaid? What about dealing with

challenging behaviors or transition options and issues? What about

being able to come to place where there would be no judgment with

our problems no one else can understand? What about a place where

we can speak of quality of living--how can our loved ones live as

full as life as possible and what do others do to enhance their

loved ones lives? We wanted to include those with all sorts of

disabilities, not just autism, realizing the " more the merrier " and

the stronger we would become.

We have evolved--some things we thought would be important, weren't

and things we didn't think were so much of as an issue, are. We've

tried to stay apolitical but we realize with funding and who's in

charge of the purse strings, we have to at least present facts,

trying not to be emotional in our views. Our files are full of

information and we encourage you to take a look, you may be

surprised at what's there. We have tried to include professionals

in many fields of interest and hope you know we are still trying to

top ourselves, with information and a kind ear. We are evolving and

plan a few new options for us around the beginning of 2009.

I imagine all of us, sitting around a kitchen table, sipping coffee--

-maybe something stronger!--with a big bowl of M & Ms (Laurie, Ellen

and I believe in " any chocolate in a storm " ). I think of us talking

about important issues as well as laughing and crying together. I

think of us in support of each other, helping those who feel

helpless to feel more in control and reassuring those who need to be

assured they are doing the right thing. I think of each of us,

reaching across this Land of Lincoln, holding hands in strength,

friendship and understanding. As we hold hands in solidarity across

cyber-space, I know we become stronger advocates for the needs of

our loved ones. Happy Anniversary IPADDUnite!

Marie Grass Amenta, co-moderator

[Guest guest]

I know there is labor to this project and I thank you three ladies for your

good efforts to help us all spread the word of advocacy. THANK YOU! Cindi

[Guest guest]

It is our pleasure, Cindi.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Our Anniversary

I know there is labor to this project and I thank you three ladies for your

good efforts to help us all spread the word of advocacy. THANK YOU! Cindi

[Guest guest]

This is a great group and I appreciate all of the information I receive.? I'm in

this for the long haul since is only 16.5!

Congratulations!!

H.

Re: Our Anniversary

I know there is labor to this project and I thank you three ladies for your

good efforts to help us all spread the word of advocacy. THANK YOU! Cindi

------------------------------------

[Guest guest]

Thanks to all of you who contribute daily!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Our Anniversary

I know there is labor to this project and I thank you three ladies for your

good efforts to help us all spread the word of advocacy. THANK YOU! Cindi

------------------------------------

[Guest guest]

I am one of those members who read, get confused, read some more and hope that I

will learn to do the right thing for my son who is 17, severe/profoundly

developementally disabled. 

I trust this group to give me the real story and I am so very thankful for it. 

Happy anniversary to all of you founders and contributors.  While I may not be

able to contribute much at this time please know what a difference you all make.

 

Lori

[Guest guest]

I am like many others....I follow all your posts but rarely interact.  I

appreciate very much all the information that you provde.  Thanks for your

initiative and ongoing support. 

 Irene, mother of Ross, who has autism, age 19.

From: Marie Grass Amenta <teteme@...>

Subject: Our Anniversary

IPADDUnite

Date: Thursday, September 11, 2008, 9:21 AM

Happy Anniversary to us! It is two years today we went on line and

became Illinois Parents of Adults with Developmental Disabilities

UNITE! We are, as of this writing, 526 strong, and fighting to

better the lives of our children who happen to have disabilities,

siblings and clients in Illinois.

Laurie came to Ellen and I in the summer of 2006 with the idea. We

each had children who have autism who were approaching adulthood, or

my case, already had. We three come from three different areas of

Chicago land--Laurie from the western suburbs, Ellen from the

northern suburbs and I, from the southern suburbs. At first, we

thought we would put our resources together from our different

areas, we could compare notes and network--but what about the WHOLE

STATE? There were no resources or support for any of us with older

children or adults with disabilities in Illinois. What about an on

line, group to not only offer support but serve as a resource

as well? Through many email discussions, the present form of

IPADDUnite! began to take shape.

We wanted to offer a place not just for parents, but siblings and

professionals as well. The needs and education of children are well

documented but what about after those adorable kiddies age out and

seem to fall into an abyss? What about jobs and vocational

training? What about living options? What about the alphabet

gobbledygook of agencies and programs we need to know about and have

become part of our daily lexicon? What about state agencies,

guardianship issues and SSI and Medicaid? What about dealing with

challenging behaviors or transition options and issues? What about

being able to come to place where there would be no judgment with

our problems no one else can understand? What about a place where

we can speak of quality of living--how can our loved ones live as

full as life as possible and what do others do to enhance their

loved ones lives? We wanted to include those with all sorts of

disabilities, not just autism, realizing the " more the merrier " and

the stronger we would become.

We have evolved--some things we thought would be important, weren't

and things we didn't think were so much of as an issue, are. We've

tried to stay apolitical but we realize with funding and who's in

charge of the purse strings, we have to at least present facts,

trying not to be emotional in our views. Our files are full of

information and we encourage you to take a look, you may be

surprised at what's there. We have tried to include professionals

in many fields of interest and hope you know we are still trying to

top ourselves, with information and a kind ear. We are evolving and

plan a few new options for us around the beginning of 2009.

I imagine all of us, sitting around a kitchen table, sipping coffee--

-maybe something stronger!--with a big bowl of M & Ms (Laurie, Ellen

and I believe in " any chocolate in a storm " ). I think of us talking

about important issues as well as laughing and crying together. I

think of us in support of each other, helping those who feel

helpless to feel more in control and reassuring those who need to be

assured they are doing the right thing. I think of each of us,

reaching across this Land of Lincoln, holding hands in strength,

friendship and understanding. As we hold hands in solidarity across

cyber-space, I know we become stronger advocates for the needs of

our loved ones. Happy Anniversary IPADDUnite!

Marie Grass Amenta, co-moderator

[Guest guest]

Sorry to be so late - life just gets faster as we turn 22 and prepare for " the

end of the bus " !!!! My thanks to Ellen, Laurie, and Marie, and all who

participate. This site is the only one I regularly read in totality, because I

gain so much in info and support. Thank you, thank you, thank you, and HAPPY

ANNIVERSARY!!!! Gloria

[Guest guest]

Thanks to all! And thanks for welcoming me as sibling and not a parent. Nora

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

[Guest guest]

Thanks, Gloria.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Our Anniversary

Sorry to be so late - life just gets faster as we turn 22 and prepare for " the

end of the bus " !!!! My thanks to Ellen, Laurie, and Marie, and all who

participate. This site is the only one I regularly read in totality, because I

gain so much in info and support. Thank you, thank you, thank you, and HAPPY

ANNIVERSARY!!!! Gloria

[Guest guest]

Maybe some of us view this anniversity different. After 30 years, we have no

epidemiology study that proves HIV causes AIDS, no proof that HIV is sexually

transmitted, no vaccine, no cure, no evidence that HIV is in anyone's blood, and

this masssive waste of our tax dollars for a disease that doesn't affect 1% of

our population.

But we do have faulty tests that will ruin one's life jsut the same, HIV

positives placed in jail for having sex, people not allowed insurance based on

flawed science, pregnant women forced to take toxic drugs or the fear of losing

their children, small babies force-fed HAART, and those who take the HAART are

risking more serious health problems due to the black-box warnings. The way I

see it, this isn't much cause for celebration but rather the status quo, which

is greed and corruption. However, I do thank Ed Asner, Crowe,

Duesberg and so many others who speak the truth about this.

[Guest guest]

You are absolutely right!

From: livingwithouthivmeds <noreenelaine@...>

Subject: Re: Our Anniversary

cures for AIDS

Date: Tuesday, May 31, 2011, 6:07 AM

 

Maybe some of us view this anniversity different. After 30 years, we have

no epidemiology study that proves HIV causes AIDS, no proof that HIV is sexually

transmitted, no vaccine, no cure, no evidence that HIV is in anyone's blood, and

this masssive waste of our tax dollars for a disease that doesn't affect 1% of

our population.

But we do have faulty tests that will ruin one's life jsut the same, HIV

positives placed in jail for having sex, people not allowed insurance based on

flawed science, pregnant women forced to take toxic drugs or the fear of losing

their children, small babies force-fed HAART, and those who take the HAART are

risking more serious health problems due to the black-box warnings. The way I

see it, this isn't much cause for celebration but rather the status quo, which

is greed and corruption. However, I do thank Ed Asner, Crowe,

Duesberg and so many others who speak the truth about this.