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In a message dated 9/25/00 4:22:19 PM Central Daylight Time,

egroups writes:

<<

On Medicaid now, they set you up with a medical provider that will call me

every month to see what I need! Diapers, wipes, powder, ointment, etc.

But states differ as to this Medicaid waiver.....in your case, you won't

have

to worry long.....you'll be Texas bound!

>>

Just a word of caution for anyone that is moving. Check with the county you

will be moving into to find out how long waiting lists are for specific

services that you will be needing. I know that here in Wisconsin it is easy

to get one type of waiver but some others have long waiting lists.

Karyn

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  • 1 year later...

Thanks , I need to look in on this. I'm no multimillionaire but

since this regression happened with my daughter at 19 months I have

had to cut down to 20 hours a week of work from home. I sounds like

a sweet job (and it is) but I can't work when I am in therapy and end

up staying up late and getting up real early just to make sure all

the bills get paid. I sure wish that my daughter had a predictable

naptime. I NEED ONE! You all have been great and helpful.

> > Hi Judy,the medicaid waiver is based on the childs needs and

income

> like if

> > she gets s.s.i or something they don;t base it on the parents at

> all or we

> > would never get anything.Take my advice on the 20 hours of

therapy

> they said

> > your daughter needs get as much as you can we don't do a.b.a or

> anything,but

> > private speech an o.t. twice a week along with pre-school four

days

> a week 2

> > hours a day is making such a difference for her i will get more

> private

> > therapy as soon as the medicaid waiver comes through.What types

of

> behaviors

> > an things is your daughter doing or what are the traits that make

> her midly

> > autisic if you don;t mind me asking sometimes people can give you

> better

> > advice based on that information.

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Thanks , I need to look in on this. I'm no multimillionaire but

since this regression happened with my daughter at 19 months I have

had to cut down to 20 hours a week of work from home. I sounds like

a sweet job (and it is) but I can't work when I am in therapy and end

up staying up late and getting up real early just to make sure all

the bills get paid. I sure wish that my daughter had a predictable

naptime. I NEED ONE! You all have been great and helpful.

> > Hi Judy,the medicaid waiver is based on the childs needs and

income

> like if

> > she gets s.s.i or something they don;t base it on the parents at

> all or we

> > would never get anything.Take my advice on the 20 hours of

therapy

> they said

> > your daughter needs get as much as you can we don't do a.b.a or

> anything,but

> > private speech an o.t. twice a week along with pre-school four

days

> a week 2

> > hours a day is making such a difference for her i will get more

> private

> > therapy as soon as the medicaid waiver comes through.What types

of

> behaviors

> > an things is your daughter doing or what are the traits that make

> her midly

> > autisic if you don;t mind me asking sometimes people can give you

> better

> > advice based on that information.

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  • 5 years later...
Guest guest

I am new to the waiver crap myself... We been on the list for 4 yrs and been fighting for the last 3 months to get it NOW... I want a nurse to help out with all the medical stuff. Found out they only really do medical supplies(diapers,wipes,creams,equiment,computers,alarms,fence)Also will do modifaction*sp* to a home to set up for how you need it. Also respite and job coaching.

I am so lost and need help with all this. We live in the WORST STATE #49 to receive services for our children! Thank you GOVENERS of GA!!!

Stepping off my soapbox...

Medicaid waiver

I was wondering if everyone would give each other an idea on what services you have received for your children from the Medicaid waiver? This will help the new families just approved know what they are able to request for their children.I am new to this and it would be a great help to me.I know you can get diapers, equipment (wheelchair,etc),and respite.What are some other things that you personally have got approved for your child.I was wondering if Alarms on our house would get approved? My son is 12 and wanders off.We live 1 block from the lake.Any feedback would be greatly appreciated.Thank you , De from Augusta .....deannalynnga

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Guest guest

I am new to the waiver crap myself... We been on the list for 4 yrs and been fighting for the last 3 months to get it NOW... I want a nurse to help out with all the medical stuff. Found out they only really do medical supplies(diapers,wipes,creams,equiment,computers,alarms,fence)Also will do modifaction*sp* to a home to set up for how you need it. Also respite and job coaching.

I am so lost and need help with all this. We live in the WORST STATE #49 to receive services for our children! Thank you GOVENERS of GA!!!

Stepping off my soapbox...

Medicaid waiver

I was wondering if everyone would give each other an idea on what services you have received for your children from the Medicaid waiver? This will help the new families just approved know what they are able to request for their children.I am new to this and it would be a great help to me.I know you can get diapers, equipment (wheelchair,etc),and respite.What are some other things that you personally have got approved for your child.I was wondering if Alarms on our house would get approved? My son is 12 and wanders off.We live 1 block from the lake.Any feedback would be greatly appreciated.Thank you , De from Augusta .....deannalynnga

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Guest guest

>I asked about a fence and was told NO!

> I am new to the waiver crap myself... We been on the list for 4

yrs and been fighting for the last 3 months to get it NOW...

> I want a nurse to help out with all the medical stuff. Found out

they only really do medical supplies

(diapers,wipes,creams,equiment,computers,alarms,fence)Also will do

modifaction*sp* to a home to set up for how you need it. Also

respite and job coaching.

>

> I am so lost and need help with all this. We live in the WORST

STATE #49 to receive services for our children! Thank you GOVENERS

of GA!!!

>

> Stepping off my soapbox...

>

>

> Medicaid waiver

>

>

> I was wondering if everyone would give each other an idea on

what

> services you have received for your children from the Medicaid

waiver?

> This will help the new families just approved know what they are

able

> to request for their children.I am new to this and it would be a

great

> help to me.I know you can get diapers, equipment

(wheelchair,etc),and

> respite.What are some other things that you personally have got

> approved for your child.I was wondering if Alarms on our house

would

> get approved? My son is 12 and wanders off.We live 1 block from

the

> lake.Any feedback would be greatly appreciated.Thank you ,

De from

> Augusta .....deannalynnga@...

>

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Guest guest

>I asked about a fence and was told NO!

> I am new to the waiver crap myself... We been on the list for 4

yrs and been fighting for the last 3 months to get it NOW...

> I want a nurse to help out with all the medical stuff. Found out

they only really do medical supplies

(diapers,wipes,creams,equiment,computers,alarms,fence)Also will do

modifaction*sp* to a home to set up for how you need it. Also

respite and job coaching.

>

> I am so lost and need help with all this. We live in the WORST

STATE #49 to receive services for our children! Thank you GOVENERS

of GA!!!

>

> Stepping off my soapbox...

>

>

> Medicaid waiver

>

>

> I was wondering if everyone would give each other an idea on

what

> services you have received for your children from the Medicaid

waiver?

> This will help the new families just approved know what they are

able

> to request for their children.I am new to this and it would be a

great

> help to me.I know you can get diapers, equipment

(wheelchair,etc),and

> respite.What are some other things that you personally have got

> approved for your child.I was wondering if Alarms on our house

would

> get approved? My son is 12 and wanders off.We live 1 block from

the

> lake.Any feedback would be greatly appreciated.Thank you ,

De from

> Augusta .....deannalynnga@...

>

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Guest guest

The fence falls under safety issues as the alarms do too

Medicaid waiver> > > I was wondering if everyone would give each other an idea on what > services you have received for your children from the Medicaid waiver? > This will help the new families just approved know what they are able > to request for their children.I am new to this and it would be a great > help to me.I know you can get diapers, equipment (wheelchair,etc),and > respite.What are some other things that you personally have got > approved for your child.I was wondering if Alarms on our house would > get approved? My son is 12 and wanders off.We live 1 block from the > lake.Any feedback would be greatly appreciated.Thank you , De from > Augusta ......deannalynnga@...>

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  • 7 months later...

PLEASE EMAIL ME BACK CONCERNING YOUR SONS WAIVER THE SAME THING HAPPENED TO ME...AND I JUST GOT APPROVED FOR MY ELDEST DAUGHTER TO WATCH MY sons. . jdriver2006@...De Lynn <deannalynnga@...> wrote: Hi, I am in Augusta GA and need to talk to someone about the Medicaidwaiver my son started receiving this time last year. I know somethings have changed and would like to ask a few questions. When my sonstarted getting the money I wanted

to use some of it for respite andwanted my mom to be able to keep him since he does not do well withstrangers. I was told ok, then I was told family is not allowed tokeep him. I think this is unfair. Does anyone know someone whos familydoes keep a child and gets paid for it under the waiver for respitemoney. Please email me privately @ deannalynnga@.... Thank you ,De

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PLEASE EMAIL ME BACK CONCERNING YOUR SONS WAIVER THE SAME THING HAPPENED TO ME...AND I JUST GOT APPROVED FOR MY ELDEST DAUGHTER TO WATCH MY sons. . jdriver2006@...De Lynn <deannalynnga@...> wrote: Hi, I am in Augusta GA and need to talk to someone about the Medicaidwaiver my son started receiving this time last year. I know somethings have changed and would like to ask a few questions. When my sonstarted getting the money I wanted

to use some of it for respite andwanted my mom to be able to keep him since he does not do well withstrangers. I was told ok, then I was told family is not allowed tokeep him. I think this is unfair. Does anyone know someone whos familydoes keep a child and gets paid for it under the waiver for respitemoney. Please email me privately @ deannalynnga@.... Thank you ,De

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PLEASE EMAIL ME BACK CONCERNING YOUR SONS WAIVER THE SAME THING HAPPENED TO ME...AND I JUST GOT APPROVED FOR MY ELDEST DAUGHTER TO WATCH MY sons. . jdriver2006@...De Lynn <deannalynnga@...> wrote: Hi, I am in Augusta GA and need to talk to someone about the Medicaidwaiver my son started receiving this time last year. I know somethings have changed and would like to ask a few questions. When my sonstarted getting the money I wanted

to use some of it for respite andwanted my mom to be able to keep him since he does not do well withstrangers. I was told ok, then I was told family is not allowed tokeep him. I think this is unfair. Does anyone know someone whos familydoes keep a child and gets paid for it under the waiver for respitemoney. Please email me privately @ deannalynnga@.... Thank you ,De

Looking for last minute shopping deals? Find them fast with Search.

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The Division of Medical Assistance considers on a case-by-case basis if extenuating circumstances justify approval of family members (other than spouses and parents of minor children) as paid caregivers. Did you put your request and the justifications in writing? I would also get letters from others in your child's community (freiends, relatives, church members, neighbors, school) to write letters supporting your request.

Re: Medicaid waiver

PLEASE EMAIL ME BACK CONCERNING YOUR SONS WAIVER THE SAME THING HAPPENED TO ME...AND I JUST GOT APPROVED FOR MY ELDEST DAUGHTER TO WATCH MY sons. . jdriver2006

De Lynn <deannalynnga > wrote:

Hi, I am in Augusta GA and need to talk to someone about the Medicaid

waiver my son started receiving this time last year. I know some

things have changed and would like to ask a few questions. When my son

started getting the money I wanted to use some of it for respite and

wanted my mom to be able to keep him since he does not do well with

strangers. I was told ok, then I was told family is not allowed to

keep him. I think this is unfair. Does anyone know someone whos family

does keep a child and gets paid for it under the waiver for respite

money. Please email me privately @ deannalynnga@.... Thank you ,

De

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

More new features than ever. Check out the new AOL Mail!

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The Division of Medical Assistance considers on a case-by-case basis if extenuating circumstances justify approval of family members (other than spouses and parents of minor children) as paid caregivers. Did you put your request and the justifications in writing? I would also get letters from others in your child's community (freiends, relatives, church members, neighbors, school) to write letters supporting your request.

Re: Medicaid waiver

PLEASE EMAIL ME BACK CONCERNING YOUR SONS WAIVER THE SAME THING HAPPENED TO ME...AND I JUST GOT APPROVED FOR MY ELDEST DAUGHTER TO WATCH MY sons. . jdriver2006

De Lynn <deannalynnga > wrote:

Hi, I am in Augusta GA and need to talk to someone about the Medicaid

waiver my son started receiving this time last year. I know some

things have changed and would like to ask a few questions. When my son

started getting the money I wanted to use some of it for respite and

wanted my mom to be able to keep him since he does not do well with

strangers. I was told ok, then I was told family is not allowed to

keep him. I think this is unfair. Does anyone know someone whos family

does keep a child and gets paid for it under the waiver for respite

money. Please email me privately @ deannalynnga@.... Thank you ,

De

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

More new features than ever. Check out the new AOL Mail!

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I just got KB a few months ago and did not realize you could get

money to help pay for care. It would be very helpful to be able to

pay a trusted neighbor to watch my son so I could go to dr's

appointments and things like that. How do you apply for this service?

Thanks,

Hi, I am in Augusta

GA and need to talk to someone about the Medicaid

> waiver my son started receiving this time last year. I know some

> things have changed and would like to ask a few questions. When my

son

> started getting the money I wanted to use some of it for respite and

> wanted my mom to be able to keep him since he does not do well with

> strangers. I was told ok, then I was told family is not allowed to

> keep him. I think this is unfair. Does anyone know someone whos

family

> does keep a child and gets paid for it under the waiver for respite

> money. Please email me privately @ deannalynnga@ Thank you ,

> De

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

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The Beckett Waiver has made your child eligible for Medicaid. Medicaid does NOT pay for respite care. In order to get additional services (i.e., respite, personal support, supplies, equipment, etc.) your child will need a "service" waiver such as the MRWP waiver.

In a message dated 2/14/08 9:24:40 PM, hancoxk@... writes:

I just got KB a few months ago and did not realize you could get

money to help pay for care. It would be very helpful to be able to

pay a trusted neighbor to watch my son so I could go to dr's

appointments and things like that. How do you apply for this service?

**************The year's hottest artists on the red carpet at the Grammy Awards. Go to AOL Music. (http://music.aol.com/grammys?NCID=aolcmp00300000002565)

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  • 5 months later...
Guest guest

I have been admiring from afar, all you are doing to help your

children. Thank you for all the wisdom you have shared.

We were halted from our respite once the state had notified the

respite agency of our medicaid waiver funding. The respite agency

refused to pay our workers from June 1st, even though they did not

notify us of ceasing our funding until the second week of July....to

the tune of $615. We are stuck in a paperwork holding pen while we

get going with Access.

I am trying not to be discouraged, and we are trying to privately pay

to hang on to our workers, so we do not have to start from scratch in

looking for new people.

I wanted to share this story as in a previous post, someone had

stated the intentions of the services, going one from the other, were

to be seamless, but the paperwork to " terminate one before the other "

creates an abyss.

We will keep on keeping on!

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Guest guest

Nice reminder that parents don't relinquish parenthood or guardianship just

because our children live outside of our homes.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Medicaid waiver

Date: Thu, 7 Aug 2008 10:01:03 +0000

>

> I found this to be true also, with my son moving into a group home. I

> mistakenly thought we'd have a smooth transition. I've had to do their

> job on getting his State ID changed, rep. payee., getting info on dr's

> visits, (they wanted to change his docs to whom they use.) Am hoping

> the stress level goes down soon.

>

> Liz

>

>

>

>

>

>

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