Jump to content
RemedySpot.com

Re: What do you think???

Rate this topic


Guest guest

Recommended Posts

Ellen, somehow, my experience has not led me to the same conclusions. What do

you think?

What do you think???

Just curious what you think about this...

Ellen

Time heals

For parents with disabled children, age improves well-being, finds

SSA researcher Jung-Hwa Ha.

By Lydialyle Gibson

----------------------------------------------------------

----------

Raising a mentally ill or developmentally disabled child can take a

tremendous physical and emotional toll. Parents find themselves

thrice burdened: by therapy and medical bills that insurance won't

always pay; by the day-to-day effort to care for their children and

control their behavior; and by the grief and stress of dealing with

social stigma, knowing their children may not reach the usual adult

milestones, and worrying about their future care after their parents'

deaths. But it does get easier, says Jung-Hwa Ha, an assistant

professor in the School of Social Service Administration who

coauthored a study this fall on well-being among disabled children's

parents. With age, she found, comes equanimity.

SSA researcher Jung-Hwa Ha Published in the September Journal of

Health and Social Behavior, Ha's research analyzed data from the

Study on Midlife in the United States (MIDUS). In 1994 and 1995

researchers sponsored by the MacArthur Foundation surveyed more than

7,000 Americans ages 25 to 74, looking at age-related differences in

mental and physical health. A decade later, the National Institute on

Aging funded MIDUS II, a follow-up survey using many of the same

respondents. Among the screening questions it asked were some about

rearing a child with problems such as cerebral palsy, Down syndrome,

learning disabilities, attention deficit hyperactivity disorder,

depression, schizophrenia, or bipolar disorder. Ha, who earned a

sociology and social-work PhD from the University of Michigan

studying late-life widowhood, examined the MIDUS II data to see how

stress from the disorders manifested itself in parents' lives. She

compared 1,393 parents who did not have disabled children with 163

parents whose children had developmental disabilities and 133 parents

whose children had mental-health problems.

What Ha and her team found was that among parents whose children had

either category of disability, " negative affect " was higher than for

the parents of normative children: they more often reported feeling

nervous, restless, hopeless, worthless, or " so sad nothing could

cheer you up. " They also registered more headaches, backaches, joint

stiffness, and difficulty sleeping. The psychological well-being of

parents with developmentally disabled children also suffered, but for

parents of children with mental illness, Ha says, psychological

health didn't differ significantly from those who had normative

children. Conversely, the parents of mentally ill children were less

likely to be married, while marriage rates for developmentally

disabled children's parents weren't much different than for normative

children's parents.

Most important, though, was Ha's finding on " the moderating effects

of age. " As MIDUS II respondents grew older, the well-being gap

between normative children's parents and disabled children's parents

narrowed. Among those in their late 60s, there was almost no

difference at all. " Over time, " Ha says, " parents adjust to the

stress of their child's disability as they develop skills to better

respond to their family circumstances. "

By coincidence, MIDUS II parents of developmentally disabled children

tended to be several years younger than normative children's parents,

and they diverged more from the comparison group in negative affect

and psychological well-being, a finding Ha calls consistent with the

idea that advancing age improves well-being.

Ha's study was the first to use a nationally representative sample

and a comparison group to examine the effects on parental welfare of

raising children with developmental or mental problems. The next

step, she says, will be longitudinal studies to examine factors such

as how " socioeconomic status, race, health characteristics, social

support, and community resources influence the extent to which caring

for disabled children affects parents' physical and mental health. "

The parents in Ha's study did not differ by race, education, or

socioeconomic status.

Ha also compared the relative well-being of disabled children's

mothers and fathers and found no significant difference. Although the

responsibility of care falls mostly to mothers, they're also more

likely to have support networks and to find satisfaction and joy in

their parenting role.

Return to top WRITE THE EDITOR

----------------------------------------------------------

----------

EMAIL THIS ARTICLE

----------------------------------------------------------

----------

SHARE THIS ARTICLE

----------------------------------------------------------

----------

EDITOR'S PICKS

Behavioral Economics Guru Thaler

Brr...It's Time to Knit a U of C Scarf

Nate Silver, AB'00, Crunches Numbers on Baseball and Obama

Neil Shubin's Tetrapod Adventures; Fish out of Water

How To Catch a Higgs

© 2008 The University of Chicago® Magazine | 401 North Michigan Ave.

Suite 1000, Chicago, IL 60611

phone: 773/702-2163 | fax: 773/702-8836 | uchicago-

magazine@...

Link to comment
Share on other sites

It seems wrong to me, unless he factored in all the non-custodial divorced

parents.

Jean

On Sun, Nov 23, 2008 at 4:16 PM, Richter <ginar_30@...>wrote:

> Ellen, somehow, my experience has not led me to the same conclusions.

> What do you think?

> What do you think???

>

> Just curious what you think about this...

> Ellen

>

> Time heals

> For parents with disabled children, age improves well-being, finds

> SSA researcher Jung-Hwa Ha.

>

> By Lydialyle Gibson

>

> ----------------------------------------------------------

> ----------

>

> Raising a mentally ill or developmentally disabled child can take a

> tremendous physical and emotional toll. Parents find themselves

> thrice burdened: by therapy and medical bills that insurance won't

> always pay; by the day-to-day effort to care for their children and

> control their behavior; and by the grief and stress of dealing with

> social stigma, knowing their children may not reach the usual adult

> milestones, and worrying about their future care after their parents'

> deaths. But it does get easier, says Jung-Hwa Ha, an assistant

> professor in the School of Social Service Administration who

> coauthored a study this fall on well-being among disabled children's

> parents. With age, she found, comes equanimity.

>

> SSA researcher Jung-Hwa Ha Published in the September Journal of

> Health and Social Behavior, Ha's research analyzed data from the

> Study on Midlife in the United States (MIDUS). In 1994 and 1995

> researchers sponsored by the MacArthur Foundation surveyed more than

> 7,000 Americans ages 25 to 74, looking at age-related differences in

> mental and physical health. A decade later, the National Institute on

> Aging funded MIDUS II, a follow-up survey using many of the same

> respondents. Among the screening questions it asked were some about

> rearing a child with problems such as cerebral palsy, Down syndrome,

> learning disabilities, attention deficit hyperactivity disorder,

> depression, schizophrenia, or bipolar disorder. Ha, who earned a

> sociology and social-work PhD from the University of Michigan

> studying late-life widowhood, examined the MIDUS II data to see how

> stress from the disorders manifested itself in parents' lives. She

> compared 1,393 parents who did not have disabled children with 163

> parents whose children had developmental disabilities and 133 parents

> whose children had mental-health problems.

>

> What Ha and her team found was that among parents whose children had

> either category of disability, " negative affect " was higher than for

> the parents of normative children: they more often reported feeling

> nervous, restless, hopeless, worthless, or " so sad nothing could

> cheer you up. " They also registered more headaches, backaches, joint

> stiffness, and difficulty sleeping. The psychological well-being of

> parents with developmentally disabled children also suffered, but for

> parents of children with mental illness, Ha says, psychological

> health didn't differ significantly from those who had normative

> children. Conversely, the parents of mentally ill children were less

> likely to be married, while marriage rates for developmentally

> disabled children's parents weren't much different than for normative

> children's parents.

>

> Most important, though, was Ha's finding on " the moderating effects

> of age. " As MIDUS II respondents grew older, the well-being gap

> between normative children's parents and disabled children's parents

> narrowed. Among those in their late 60s, there was almost no

> difference at all. " Over time, " Ha says, " parents adjust to the

> stress of their child's disability as they develop skills to better

> respond to their family circumstances. "

>

> By coincidence, MIDUS II parents of developmentally disabled children

> tended to be several years younger than normative children's parents,

> and they diverged more from the comparison group in negative affect

> and psychological well-being, a finding Ha calls consistent with the

> idea that advancing age improves well-being.

>

> Ha's study was the first to use a nationally representative sample

> and a comparison group to examine the effects on parental welfare of

> raising children with developmental or mental problems. The next

> step, she says, will be longitudinal studies to examine factors such

> as how " socioeconomic status, race, health characteristics, social

> support, and community resources influence the extent to which caring

> for disabled children affects parents' physical and mental health. "

> The parents in Ha's study did not differ by race, education, or

> socioeconomic status.

>

> Ha also compared the relative well-being of disabled children's

> mothers and fathers and found no significant difference. Although the

> responsibility of care falls mostly to mothers, they're also more

> likely to have support networks and to find satisfaction and joy in

> their parenting role.

>

> Return to top WRITE THE EDITOR

>

> ----------------------------------------------------------

> ----------

>

> EMAIL THIS ARTICLE

>

> ----------------------------------------------------------

> ----------

>

> SHARE THIS ARTICLE

>

> ----------------------------------------------------------

> ----------

>

> EDITOR'S PICKS

> Behavioral Economics Guru Thaler

> Brr...It's Time to Knit a U of C Scarf

> Nate Silver, AB'00, Crunches Numbers on Baseball and Obama

> Neil Shubin's Tetrapod Adventures; Fish out of Water

> How To Catch a Higgs

>

> © 2008 The University of Chicago® Magazine | 401 North Michigan Ave.

> Suite 1000, Chicago, IL 60611

> phone: 773/702-2163 | fax: 773/702-8836 | uchicago-

> magazine@... <magazine%40uchicago.edu>

>

>

Link to comment
Share on other sites

That is both funny and sad, Jean...

Ellen

Ellen Garber Bronfeld

egskb@...

What do you think???

>

> Just curious what you think about this...

> Ellen

>

> Time heals

> For parents with disabled children, age improves well-being, finds

> SSA researcher Jung-Hwa Ha.

>

> By Lydialyle Gibson

>

> ----------------------------------------------------------

> ----------

>

> Raising a mentally ill or developmentally disabled child can take a

> tremendous physical and emotional toll. Parents find themselves

> thrice burdened: by therapy and medical bills that insurance won't

> always pay; by the day-to-day effort to care for their children and

> control their behavior; and by the grief and stress of dealing with

> social stigma, knowing their children may not reach the usual adult

> milestones, and worrying about their future care after their parents'

> deaths. But it does get easier, says Jung-Hwa Ha, an assistant

> professor in the School of Social Service Administration who

> coauthored a study this fall on well-being among disabled children's

> parents. With age, she found, comes equanimity.

>

> SSA researcher Jung-Hwa Ha Published in the September Journal of

> Health and Social Behavior, Ha's research analyzed data from the

> Study on Midlife in the United States (MIDUS). In 1994 and 1995

> researchers sponsored by the MacArthur Foundation surveyed more than

> 7,000 Americans ages 25 to 74, looking at age-related differences in

> mental and physical health. A decade later, the National Institute on

> Aging funded MIDUS II, a follow-up survey using many of the same

> respondents. Among the screening questions it asked were some about

> rearing a child with problems such as cerebral palsy, Down syndrome,

> learning disabilities, attention deficit hyperactivity disorder,

> depression, schizophrenia, or bipolar disorder. Ha, who earned a

> sociology and social-work PhD from the University of Michigan

> studying late-life widowhood, examined the MIDUS II data to see how

> stress from the disorders manifested itself in parents' lives. She

> compared 1,393 parents who did not have disabled children with 163

> parents whose children had developmental disabilities and 133 parents

> whose children had mental-health problems.

>

> What Ha and her team found was that among parents whose children had

> either category of disability, " negative affect " was higher than for

> the parents of normative children: they more often reported feeling

> nervous, restless, hopeless, worthless, or " so sad nothing could

> cheer you up. " They also registered more headaches, backaches, joint

> stiffness, and difficulty sleeping. The psychological well-being of

> parents with developmentally disabled children also suffered, but for

> parents of children with mental illness, Ha says, psychological

> health didn't differ significantly from those who had normative

> children. Conversely, the parents of mentally ill children were less

> likely to be married, while marriage rates for developmentally

> disabled children's parents weren't much different than for normative

> children's parents.

>

> Most important, though, was Ha's finding on " the moderating effects

> of age. " As MIDUS II respondents grew older, the well-being gap

> between normative children's parents and disabled children's parents

> narrowed. Among those in their late 60s, there was almost no

> difference at all. " Over time, " Ha says, " parents adjust to the

> stress of their child's disability as they develop skills to better

> respond to their family circumstances. "

>

> By coincidence, MIDUS II parents of developmentally disabled children

> tended to be several years younger than normative children's parents,

> and they diverged more from the comparison group in negative affect

> and psychological well-being, a finding Ha calls consistent with the

> idea that advancing age improves well-being.

>

> Ha's study was the first to use a nationally representative sample

> and a comparison group to examine the effects on parental welfare of

> raising children with developmental or mental problems. The next

> step, she says, will be longitudinal studies to examine factors such

> as how " socioeconomic status, race, health characteristics, social

> support, and community resources influence the extent to which caring

> for disabled children affects parents' physical and mental health. "

> The parents in Ha's study did not differ by race, education, or

> socioeconomic status.

>

> Ha also compared the relative well-being of disabled children's

> mothers and fathers and found no significant difference. Although the

> responsibility of care falls mostly to mothers, they're also more

> likely to have support networks and to find satisfaction and joy in

> their parenting role.

>

> Return to top WRITE THE EDITOR

>

> ----------------------------------------------------------

> ----------

>

> EMAIL THIS ARTICLE

>

> ----------------------------------------------------------

> ----------

>

> SHARE THIS ARTICLE

>

> ----------------------------------------------------------

> ----------

>

> EDITOR'S PICKS

> Behavioral Economics Guru Thaler

> Brr...It's Time to Knit a U of C Scarf

> Nate Silver, AB'00, Crunches Numbers on Baseball and Obama

> Neil Shubin's Tetrapod Adventures; Fish out of Water

> How To Catch a Higgs

>

> © 2008 The University of Chicago® Magazine | 401 North Michigan Ave.

> Suite 1000, Chicago, IL 60611

> phone: 773/702-2163 | fax: 773/702-8836 | uchicago-

> magazine@... <magazine%40uchicago.edu>

>

>

Link to comment
Share on other sites

I agree with you .

Even when Noah had some of his most severe behavioral challenges when he was

younger, education was mandated and I knew for sure he would be somewhere else

nine months a year, six hours a day, for 21 years! And the northern suburban

special education is way better than many other school districts...there was

lots of support and he had all kinds of therapies to fill his day.

Now, there are no more mandated services and it is entirely up to us. The pay

for community workers after the age of 21 is horrible so quality of any program,

so dependent on staff, is not always good. We are older, with less energy, the

possibility of illness due to old age is more likely and obviously we are going

to die and not be available to advocate for our beloved children at some point.

If that doesn't add up to MORE stress rather than less, for most people, I would

be surprised.

I cannot imagine where this person got her data...it sure wasn't from me!

Ellen

Ellen Garber Bronfeld

egskb@...

What do you think???

Just curious what you think about this...

Ellen

Time heals

For parents with disabled children, age improves well-being, finds

SSA researcher Jung-Hwa Ha.

By Lydialyle Gibson

----------------------------------------------------------

----------

Raising a mentally ill or developmentally disabled child can take a

tremendous physical and emotional toll. Parents find themselves

thrice burdened: by therapy and medical bills that insurance won't

always pay; by the day-to-day effort to care for their children and

control their behavior; and by the grief and stress of dealing with

social stigma, knowing their children may not reach the usual adult

milestones, and worrying about their future care after their parents'

deaths. But it does get easier, says Jung-Hwa Ha, an assistant

professor in the School of Social Service Administration who

coauthored a study this fall on well-being among disabled children's

parents. With age, she found, comes equanimity.

SSA researcher Jung-Hwa Ha Published in the September Journal of

Health and Social Behavior, Ha's research analyzed data from the

Study on Midlife in the United States (MIDUS). In 1994 and 1995

researchers sponsored by the MacArthur Foundation surveyed more than

7,000 Americans ages 25 to 74, looking at age-related differences in

mental and physical health. A decade later, the National Institute on

Aging funded MIDUS II, a follow-up survey using many of the same

respondents. Among the screening questions it asked were some about

rearing a child with problems such as cerebral palsy, Down syndrome,

learning disabilities, attention deficit hyperactivity disorder,

depression, schizophrenia, or bipolar disorder. Ha, who earned a

sociology and social-work PhD from the University of Michigan

studying late-life widowhood, examined the MIDUS II data to see how

stress from the disorders manifested itself in parents' lives. She

compared 1,393 parents who did not have disabled children with 163

parents whose children had developmental disabilities and 133 parents

whose children had mental-health problems.

What Ha and her team found was that among parents whose children had

either category of disability, " negative affect " was higher than for

the parents of normative children: they more often reported feeling

nervous, restless, hopeless, worthless, or " so sad nothing could

cheer you up. " They also registered more headaches, backaches, joint

stiffness, and difficulty sleeping. The psychological well-being of

parents with developmentally disabled children also suffered, but for

parents of children with mental illness, Ha says, psychological

health didn't differ significantly from those who had normative

children. Conversely, the parents of mentally ill children were less

likely to be married, while marriage rates for developmentally

disabled children's parents weren't much different than for normative

children's parents.

Most important, though, was Ha's finding on " the moderating effects

of age. " As MIDUS II respondents grew older, the well-being gap

between normative children's parents and disabled children's parents

narrowed. Among those in their late 60s, there was almost no

difference at all. " Over time, " Ha says, " parents adjust to the

stress of their child's disability as they develop skills to better

respond to their family circumstances. "

By coincidence, MIDUS II parents of developmentally disabled children

tended to be several years younger than normative children's parents,

and they diverged more from the comparison group in negative affect

and psychological well-being, a finding Ha calls consistent with the

idea that advancing age improves well-being.

Ha's study was the first to use a nationally representative sample

and a comparison group to examine the effects on parental welfare of

raising children with developmental or mental problems. The next

step, she says, will be longitudinal studies to examine factors such

as how " socioeconomic status, race, health characteristics, social

support, and community resources influence the extent to which caring

for disabled children affects parents' physical and mental health. "

The parents in Ha's study did not differ by race, education, or

socioeconomic status.

Ha also compared the relative well-being of disabled children's

mothers and fathers and found no significant difference. Although the

responsibility of care falls mostly to mothers, they're also more

likely to have support networks and to find satisfaction and joy in

their parenting role.

Return to top WRITE THE EDITOR

----------------------------------------------------------

----------

EMAIL THIS ARTICLE

----------------------------------------------------------

----------

SHARE THIS ARTICLE

----------------------------------------------------------

----------

EDITOR'S PICKS

Behavioral Economics Guru Thaler

Brr...It's Time to Knit a U of C Scarf

Nate Silver, AB'00, Crunches Numbers on Baseball and Obama

Neil Shubin's Tetrapod Adventures; Fish out of Water

How To Catch a Higgs

© 2008 The University of Chicago® Magazine | 401 North Michigan Ave.

Suite 1000, Chicago, IL 60611

phone: 773/702-2163 | fax: 773/702-8836 | uchicago-

magazine@...

Link to comment
Share on other sites

I think ...not really sure things get better because we know the improvement

is as slow as a glacier. When Adam was awarded HBS,, I rested a bit easier

for about a week or so. We are all moving like perpetual motion. Soon we

will get tired and I think what this study reallly is seeing is by the time

we get to late 60s, 70s we are pooped and surrender to what it is. It is

mental protection as well. I cannot imagine going this hard when I am 15-20

years older.

I came to somewhat of an epiphany....Art and I will do the best we can to

see Adam having quality of life now...work, recreates, volunteer all big

time community. And I cannot run his life from the grave. I know you are

all smarter then me, it took me a while to get to this. I always thought

once Art and I die, his circle will continue to spin his great life. If it

happen s great. But I can see after a while not having the emotional

capacity to hang onto that. cindi

Link to comment
Share on other sites

That money is being spent on research like this is just annoying! In addition

to the other good questions already raised, what about as a factor does the

adult child LIVE WITH the 60+ parent or have they moved out into another

residential situation? I imagine that alone could skew the results.

Arrrrgggghhhh. Thanksgiving is still four days away, I need to get back into

the 'count your blessings' zone...and Ellen, this article isn't helping!!!!! :)

L.

Re: What do you think???

I think ...not really sure things get better because we know the improvement

is as slow as a glacier. When Adam was awarded HBS,, I rested a bit easier

for about a week or so. We are all moving like perpetual motion. Soon we

will get tired and I think what this study reallly is seeing is by the time

we get to late 60s, 70s we are pooped and surrender to what it is. It is

mental protection as well. I cannot imagine going this hard when I am 15-20

years older.

I came to somewhat of an epiphany....Art and I will do the best we can to

see Adam having quality of life now...work, recreates, volunteer all big

time community. And I cannot run his life from the grave. I know you are

all smarter then me, it took me a while to get to this. I always thought

once Art and I die, his circle will continue to spin his great life. If it

happen s great. But I can see after a while not having the emotional

capacity to hang onto that. cindi

Link to comment
Share on other sites

Cindi...it sounds so defeated and bleak, but SO realistic!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: What do you think???

I think ...not really sure things get better because we know the improvement

is as slow as a glacier. When Adam was awarded HBS,, I rested a bit easier

for about a week or so. We are all moving like perpetual motion. Soon we

will get tired and I think what this study reallly is seeing is by the time

we get to late 60s, 70s we are pooped and surrender to what it is. It is

mental protection as well. I cannot imagine going this hard when I am 15-20

years older.

I came to somewhat of an epiphany....Art and I will do the best we can to

see Adam having quality of life now...work, recreates, volunteer all big

time community. And I cannot run his life from the grave. I know you are

all smarter then me, it took me a while to get to this. I always thought

once Art and I die, his circle will continue to spin his great life. If it

happen s great. But I can see after a while not having the emotional

capacity to hang onto that. cindi

Link to comment
Share on other sites

Ok, Laurie...I will be on the look out for really POSITIVE vibes for the next

week...I promise :)

I am grateful I am able to communicate with all of you and share the good and

the not so good!

Ellen

Ellen Garber Bronfeld

egskb@...

Re: What do you think???

I think ...not really sure things get better because we know the improvement

is as slow as a glacier. When Adam was awarded HBS,, I rested a bit easier

for about a week or so. We are all moving like perpetual motion. Soon we

will get tired and I think what this study reallly is seeing is by the time

we get to late 60s, 70s we are pooped and surrender to what it is. It is

mental protection as well. I cannot imagine going this hard when I am 15-20

years older.

I came to somewhat of an epiphany....Art and I will do the best we can to

see Adam having quality of life now...work, recreates, volunteer all big

time community. And I cannot run his life from the grave. I know you are

all smarter then me, it took me a while to get to this. I always thought

once Art and I die, his circle will continue to spin his great life. If it

happen s great. But I can see after a while not having the emotional

capacity to hang onto that. cindi

Link to comment
Share on other sites

Have had one HECK of a weekend, not because of AT ALL but

because of my Mom and her nutty relatives.

I read the thread here, after reading the article, and have to tell

you not only do we get older and our kids get older and all the

stuff y'all mention but OUR PARENTS get older. As has been pointed

out here before, we are the sandwich generation and guess who gets

to deal with all of it? The first two guesses don't count LOL!

Seriously, who was interviewed?

I will agree with Laurie here and say we need some thankful

thoughts, positive vibes and good feelings for this week. I'll

start:

I am very thankful my Mom's cousins live two states away, otherwise

I would have throttled them when they questioned her cancer

treatment plan. Can you see how my weekend went?

Am so glad we are here together. Let's count our blessings.......

Marie

>

> Ok, Laurie...I will be on the look out for really POSITIVE vibes

for the next week...I promise :)

> I am grateful I am able to communicate with all of you and share

the good and the not so good!

> Ellen

> Ellen Garber Bronfeld

> egskb@...

> Re: What do you think???

>

> I think ...not really sure things get better because we know the

improvement

> is as slow as a glacier. When Adam was awarded HBS,, I rested a

bit easier

> for about a week or so. We are all moving like perpetual motion.

Soon we

> will get tired and I think what this study reallly is seeing is

by the time

> we get to late 60s, 70s we are pooped and surrender to what it

is. It is

> mental protection as well. I cannot imagine going this hard when

I am 15-20

> years older.

> I came to somewhat of an epiphany....Art and I will do the best

we can to

> see Adam having quality of life now...work, recreates, volunteer

all big

> time community. And I cannot run his life from the grave. I know

you are

> all smarter then me, it took me a while to get to this. I always

thought

> once Art and I die, his circle will continue to spin his great

life. If it

> happen s great. But I can see after a while not having the

emotional

> capacity to hang onto that. cindi

>

>

Link to comment
Share on other sites

Off to bed, Marie, but I got such a kick out of your

thankfulness...that put a smile on my tired face :)

Ellen

Ellen Garber Bronfeld

egskb@...

Re: What do you think???

>

> I think ...not really sure things get better because we know the

improvement

> is as slow as a glacier. When Adam was awarded HBS,, I rested a

bit easier

> for about a week or so. We are all moving like perpetual motion.

Soon we

> will get tired and I think what this study reallly is seeing is

by the time

> we get to late 60s, 70s we are pooped and surrender to what it

is. It is

> mental protection as well. I cannot imagine going this hard when

I am 15-20

> years older.

> I came to somewhat of an epiphany....Art and I will do the best

we can to

> see Adam having quality of life now...work, recreates, volunteer

all big

> time community. And I cannot run his life from the grave. I know

you are

> all smarter then me, it took me a while to get to this. I always

thought

> once Art and I die, his circle will continue to spin his great

life. If it

> happen s great. But I can see after a while not having the

emotional

> capacity to hang onto that. cindi

>

>

Link to comment
Share on other sites

Right...and wrong.

I'd bet that if the research survey was put to me ten years ago, and again

today, my answers would be different, and my current survey would be more

positive.  Why?  Because some of my previous anxiety stemmed from *not knowing*

what Neal's adult life would be like.  A lot of what I worried about in his

childhood did not come to pass.  (And some of what I should've worried about

then, I didn't even think of.)

With adulthood comes some answers to the mysteries of childhood.  You can see

the extent of education (reading, basic math, writing).  You can see whether or

not the relatives have come to grips with your family situation..  You can see

how the sibling issues play out. 

There are a few old issues, but there are mostly new issues to affect mental

health  I am less concerned about my son's ability to get and keep a job.  I am

more concerned about things outside my control, and his control:  job hunting in

a down economy, what job coaching will be like if the state goes bankrupt,

available housing options for him, what housing options will be open if he earns

a reasonable wage (will he be overqualified for DD housing), what kind of

society he will be dealing with in the future.

I'd like to see the questions for this survey.  I bet we'd all come up with

different ones than they did.  I also think the remarks about parents of adults

with mental illness were intriguing...including the comments about negative

affect vs. psychological well-being.

-Gail

From: ellenbronfeld <egskb@...>

Subject: What do you think???

IPADDUnite

Date: Sunday, November 23, 2008, 3:56 PM

Just curious what you think about this...

Ellen

Time heals

For parents with disabled children, age improves well-being, finds

SSA researcher Jung-Hwa Ha.

By Lydialyle Gibson

------------ --------- --------- --------- --------- --------- -

----------

Raising a mentally ill or developmentally disabled child can take a

tremendous physical and emotional toll. Parents find themselves

thrice burdened: by therapy and medical bills that insurance won't

always pay; by the day-to-day effort to care for their children and

control their behavior; and by the grief and stress of dealing with

social stigma, knowing their children may not reach the usual adult

milestones, and worrying about their future care after their parents'

deaths. But it does get easier, says Jung-Hwa Ha, an assistant

professor in the School of Social Service Administration who

coauthored a study this fall on well-being among disabled children's

parents. With age, she found, comes equanimity.

SSA researcher Jung-Hwa Ha Published in the September Journal of

Health and Social Behavior, Ha's research analyzed data from the

Study on Midlife in the United States (MIDUS). In 1994 and 1995

researchers sponsored by the MacArthur Foundation surveyed more than

7,000 Americans ages 25 to 74, looking at age-related differences in

mental and physical health. A decade later, the National Institute on

Aging funded MIDUS II, a follow-up survey using many of the same

respondents. Among the screening questions it asked were some about

rearing a child with problems such as cerebral palsy, Down syndrome,

learning disabilities, attention deficit hyperactivity disorder,

depression, schizophrenia, or bipolar disorder. Ha, who earned a

sociology and social-work PhD from the University of Michigan

studying late-life widowhood, examined the MIDUS II data to see how

stress from the disorders manifested itself in parents' lives. She

compared 1,393 parents who did not have disabled children with 163

parents whose children had developmental disabilities and 133 parents

whose children had mental-health problems.

What Ha and her team found was that among parents whose children had

either category of disability, " negative affect " was higher than for

the parents of normative children: they more often reported feeling

nervous, restless, hopeless, worthless, or " so sad nothing could

cheer you up. " They also registered more headaches, backaches, joint

stiffness, and difficulty sleeping. The psychological well-being of

parents with developmentally disabled children also suffered, but for

parents of children with mental illness, Ha says, psychological

health didn't differ significantly from those who had normative

children. Conversely, the parents of mentally ill children were less

likely to be married, while marriage rates for developmentally

disabled children's parents weren't much different than for normative

children's parents.

Most important, though, was Ha's finding on " the moderating effects

of age. " As MIDUS II respondents grew older, the well-being gap

between normative children's parents and disabled children's parents

narrowed. Among those in their late 60s, there was almost no

difference at all. " Over time, " Ha says, " parents adjust to the

stress of their child's disability as they develop skills to better

respond to their family circumstances. "

By coincidence, MIDUS II parents of developmentally disabled children

tended to be several years younger than normative children's parents,

and they diverged more from the comparison group in negative affect

and psychological well-being, a finding Ha calls consistent with the

idea that advancing age improves well-being.

Ha's study was the first to use a nationally representative sample

and a comparison group to examine the effects on parental welfare of

raising children with developmental or mental problems. The next

step, she says, will be longitudinal studies to examine factors such

as how " socioeconomic status, race, health characteristics, social

support, and community resources influence the extent to which caring

for disabled children affects parents' physical and mental health. "

The parents in Ha's study did not differ by race, education, or

socioeconomic status.

Ha also compared the relative well-being of disabled children's

mothers and fathers and found no significant difference. Although the

responsibility of care falls mostly to mothers, they're also more

likely to have support networks and to find satisfaction and joy in

their parenting role.

 

Link to comment
Share on other sites

When it comes to parents, I agree they become our children in some

ways. I think it is okay to allow ourselves to feel the frustrations,

sadness or anger if these are the emotions that pops up. We actually

must feel it, and then hopefully work through it.

Here is my advise for the feelings of frustration on parent problems,

a little piece of advise from a friend of mine who's parents were

both dead by the time she reached 21 years old. Her statement to

others is- imagine the alternative, have no parents!

Now, to those of us whose parents are suffering with Alzheimers,

cancer and the like, sometimes their " time " is their rest, and

ultimately ours too.

But, this advise I give for those of us who have challenging family

members a little, but more so parents, with needs, comments, or

behaviors not related to illness etc.

Diane S

> >

> > Ok, Laurie...I will be on the look out for really POSITIVE vibes

> for the next week...I promise :)

> > I am grateful I am able to communicate with all of you and share

> the good and the not so good!

> > Ellen

> > Ellen Garber Bronfeld

> > egskb@

> > Re: What do you think???

> >

> > I think ...not really sure things get better because we know

the

> improvement

> > is as slow as a glacier. When Adam was awarded HBS,, I rested a

> bit easier

> > for about a week or so. We are all moving like perpetual

motion.

> Soon we

> > will get tired and I think what this study reallly is seeing is

> by the time

> > we get to late 60s, 70s we are pooped and surrender to what it

> is. It is

> > mental protection as well. I cannot imagine going this hard

when

> I am 15-20

> > years older.

> > I came to somewhat of an epiphany....Art and I will do the best

> we can to

> > see Adam having quality of life now...work, recreates,

volunteer

> all big

> > time community. And I cannot run his life from the grave. I

know

> you are

> > all smarter then me, it took me a while to get to this. I

always

> thought

> > once Art and I die, his circle will continue to spin his great

> life. If it

> > happen s great. But I can see after a while not having the

> emotional

> > capacity to hang onto that. cindi

> >

> >

Link to comment
Share on other sites

In rereading the article, I would agree with you, Gail...yet, overall, I do not

feel more settled in my role nor do I think I have a greater sense of

well-being...I still get migraines and I have many more aches and pains and I am

working like a dog...probably harder than I have ever worked, even when I was in

graduate school and holding down a job.

Ellen

Ellen Garber Bronfeld

egskb@...

What do you think???

IPADDUnite

Date: Sunday, November 23, 2008, 3:56 PM

Just curious what you think about this...

Ellen

Time heals

For parents with disabled children, age improves well-being, finds

SSA researcher Jung-Hwa Ha.

By Lydialyle Gibson

------------ --------- --------- --------- --------- --------- -

----------

Raising a mentally ill or developmentally disabled child can take a

tremendous physical and emotional toll. Parents find themselves

thrice burdened: by therapy and medical bills that insurance won't

always pay; by the day-to-day effort to care for their children and

control their behavior; and by the grief and stress of dealing with

social stigma, knowing their children may not reach the usual adult

milestones, and worrying about their future care after their parents'

deaths. But it does get easier, says Jung-Hwa Ha, an assistant

professor in the School of Social Service Administration who

coauthored a study this fall on well-being among disabled children's

parents. With age, she found, comes equanimity.

SSA researcher Jung-Hwa Ha Published in the September Journal of

Health and Social Behavior, Ha's research analyzed data from the

Study on Midlife in the United States (MIDUS). In 1994 and 1995

researchers sponsored by the MacArthur Foundation surveyed more than

7,000 Americans ages 25 to 74, looking at age-related differences in

mental and physical health. A decade later, the National Institute on

Aging funded MIDUS II, a follow-up survey using many of the same

respondents. Among the screening questions it asked were some about

rearing a child with problems such as cerebral palsy, Down syndrome,

learning disabilities, attention deficit hyperactivity disorder,

depression, schizophrenia, or bipolar disorder. Ha, who earned a

sociology and social-work PhD from the University of Michigan

studying late-life widowhood, examined the MIDUS II data to see how

stress from the disorders manifested itself in parents' lives. She

compared 1,393 parents who did not have disabled children with 163

parents whose children had developmental disabilities and 133 parents

whose children had mental-health problems.

What Ha and her team found was that among parents whose children had

either category of disability, " negative affect " was higher than for

the parents of normative children: they more often reported feeling

nervous, restless, hopeless, worthless, or " so sad nothing could

cheer you up. " They also registered more headaches, backaches, joint

stiffness, and difficulty sleeping. The psychological well-being of

parents with developmentally disabled children also suffered, but for

parents of children with mental illness, Ha says, psychological

health didn't differ significantly from those who had normative

children. Conversely, the parents of mentally ill children were less

likely to be married, while marriage rates for developmentally

disabled children's parents weren't much different than for normative

children's parents.

Most important, though, was Ha's finding on " the moderating effects

of age. " As MIDUS II respondents grew older, the well-being gap

between normative children's parents and disabled children's parents

narrowed. Among those in their late 60s, there was almost no

difference at all. " Over time, " Ha says, " parents adjust to the

stress of their child's disability as they develop skills to better

respond to their family circumstances. "

By coincidence, MIDUS II parents of developmentally disabled children

tended to be several years younger than normative children's parents,

and they diverged more from the comparison group in negative affect

and psychological well-being, a finding Ha calls consistent with the

idea that advancing age improves well-being.

Ha's study was the first to use a nationally representative sample

and a comparison group to examine the effects on parental welfare of

raising children with developmental or mental problems. The next

step, she says, will be longitudinal studies to examine factors such

as how " socioeconomic status, race, health characteristics, social

support, and community resources influence the extent to which caring

for disabled children affects parents' physical and mental health. "

The parents in Ha's study did not differ by race, education, or

socioeconomic status.

Ha also compared the relative well-being of disabled children's

mothers and fathers and found no significant difference. Although the

responsibility of care falls mostly to mothers, they're also more

likely to have support networks and to find satisfaction and joy in

their parenting role.

Link to comment
Share on other sites

I'm not sure how I feel about this probably because when was little I

thought he'd be further advanced than he is at this point but I'm also very

thankful knowing what others have had to go through that we've done pretty

well!? I just don't have the energy I used to and dealing with my very ill mom

and dad who is in denial I'm not sure how I actually do get through some days.

That being said I have a lot of friends who are just as concerned about their

kids futures and they're as NT as they come.? People I work with have had their

kids and grandkids move back in with them, etc.? So I guess I can't complain too

much.

Happy Thanksgiving everyone!

H.

What do you think???

IPADDUnite

Date: Sunday, November 23, 2008, 3:56 PM

Just curious what you think about this...

Ellen

Time heals

For parents with disabled children, age improves well-being, finds

SSA researcher Jung-Hwa Ha.

By Lydialyle Gibson

------------ --------- --------- --------- --------- --------- -

----------

Raising a me

ntally ill or developmentally disabled child can take a

tremendous physical and emotional toll. Parents find themselves

thrice burdened: by therapy and medical bills that insurance won't

always pay; by the day-to-day effort to care for their children and

control their behavior; and by the grief and stress of dealing with

social stigma, knowing their children may not reach the usual adult

milestones, and worrying about their future care after their parents'

deaths. But it does get easier, says Jung-Hwa Ha, an assistant

professor in the School of Social Service Administration who

coauthored a study this fall on well-being among disabled children's

parents. With age, she found, comes equanimity.

SSA researcher Jung-Hwa Ha Published in the September Journal of

Health and Social Behavior, Ha's research analyzed data from the

Study on Midlife in the United States (MIDUS). In 1994 and 1995

researchers sponsored by the MacArthur Foundation surveyed more than

7,000 Americans ages 25 to 74, looking at age-related differences in

mental and physical health. A decade later, the National Institute on

Aging funded MIDUS II, a follow-up survey using many of the same

respondents. Among the screening questions it asked were some about

rearing a child with problems such as cerebral palsy, Down syndrome,

learning disabilities, attention deficit hyperactivity disorder,

depression, schizophrenia, or bipolar disorder. Ha, who earned a

sociology and social-work PhD from the University of Michigan

studying late-life widowhood, examined the MIDUS II data to see how

stress from the disorders manifested itself in parents' lives. She

compared 1,393 parents who did not have disabled children with 163

parents whose children had developmental disabilities and 133 parents

whose children had mental-health problems.

What Ha and her team found was that among parents whose children had

either category of disability, " negative affect " was higher than for

the parents of normative children:

they more often reported feeling

nervous, restless, hopeless, worthless, or " so sad nothing could

cheer you up. " They also registered more headaches, backaches, joint

stiffness, and difficulty sleeping. The psychological well-being of

parents with developmentally disabled children also suffered, but for

parents of children with mental illness, Ha says, psychological

health didn't differ significantly from those who had normative

children. Conversely, the parents of mentally ill children were less

likely to be married, while marriage rates for developmentally

disabled children's parents weren't much different than for normative

children's parents.

Most important, though, was Ha's finding on " the moderating effects

of age. " As MIDUS II respondents grew older, the well-being gap

between normative children's parents and disabled children's parents

narrowed. Among those in their late 60s, there was almost no

difference at all. " Over time, " Ha says, " parents adjust to the

stress of their child's disability as they develop skills to better

respond to their family circumstances. "

By coincidence, MIDUS II parents of developmentally disabled children

tended to be several years younger than normative children's parents,

and they diverged more from the comparison group in negative affect

and psychological well-being, a finding Ha calls consistent with the

idea that advancing age improves well-being.

Ha's study was the first to use a nationally representative sample

and a comparison group to examine the effects on parental welfare of

raising children with developmental or mental problems. The next

step, she says, will be longitudinal studies to examine factors such

as how " socioeconomic status, race, health characteristics, social

support, and community resources influence the extent to which caring

for disabled children affects parents' physical and mental health. "

The parents in Ha's study did not differ by race, education, or

socioeconomic status.

Ha

also compared the relative well-being of disabled children's

mothers and fathers and found no significant difference. Although the

responsibility of care falls mostly to mothers, they're also more

likely to have support networks and to find satisfaction and joy in

their parenting role.

?

Link to comment
Share on other sites

:

You are the perfect example of someone who sees the glass as half full!!!

LIfe is full of challenges and most people do have their share.

Ellen

Ellen Garber Bronfeld

egskb@...

What do you think???

IPADDUnite

Date: Sunday, November 23, 2008, 3:56 PM

Just curious what you think about this...

Ellen

Time heals

For parents with disabled children, age improves well-being, finds

SSA researcher Jung-Hwa Ha.

By Lydialyle Gibson

------------ --------- --------- --------- --------- --------- -

----------

Raising a me

ntally ill or developmentally disabled child can take a

tremendous physical and emotional toll. Parents find themselves

thrice burdened: by therapy and medical bills that insurance won't

always pay; by the day-to-day effort to care for their children and

control their behavior; and by the grief and stress of dealing with

social stigma, knowing their children may not reach the usual adult

milestones, and worrying about their future care after their parents'

deaths. But it does get easier, says Jung-Hwa Ha, an assistant

professor in the School of Social Service Administration who

coauthored a study this fall on well-being among disabled children's

parents. With age, she found, comes equanimity.

SSA researcher Jung-Hwa Ha Published in the September Journal of

Health and Social Behavior, Ha's research analyzed data from the

Study on Midlife in the United States (MIDUS). In 1994 and 1995

researchers sponsored by the MacArthur Foundation surveyed more than

7,000 Americans ages 25 to 74, looking at age-related differences in

mental and physical health. A decade later, the National Institute on

Aging funded MIDUS II, a follow-up survey using many of the same

respondents. Among the screening questions it asked were some about

rearing a child with problems such as cerebral palsy, Down syndrome,

learning disabilities, attention deficit hyperactivity disorder,

depression, schizophrenia, or bipolar disorder. Ha, who earned a

sociology and social-work PhD from the University of Michigan

studying late-life widowhood, examined the MIDUS II data to see how

stress from the disorders manifested itself in parents' lives. She

compared 1,393 parents who did not have disabled children with 163

parents whose children had developmental disabilities and 133 parents

whose children had mental-health problems.

What Ha and her team found was that among parents whose children had

either category of disability, " negative affect " was higher than for

the parents of normative children:

they more often reported feeling

nervous, restless, hopeless, worthless, or " so sad nothing could

cheer you up. " They also registered more headaches, backaches, joint

stiffness, and difficulty sleeping. The psychological well-being of

parents with developmentally disabled children also suffered, but for

parents of children with mental illness, Ha says, psychological

health didn't differ significantly from those who had normative

children. Conversely, the parents of mentally ill children were less

likely to be married, while marriage rates for developmentally

disabled children's parents weren't much different than for normative

children's parents.

Most important, though, was Ha's finding on " the moderating effects

of age. " As MIDUS II respondents grew older, the well-being gap

between normative children's parents and disabled children's parents

narrowed. Among those in their late 60s, there was almost no

difference at all. " Over time, " Ha says, " parents adjust to the

stress of their child's disability as they develop skills to better

respond to their family circumstances. "

By coincidence, MIDUS II parents of developmentally disabled children

tended to be several years younger than normative children's parents,

and they diverged more from the comparison group in negative affect

and psychological well-being, a finding Ha calls consistent with the

idea that advancing age improves well-being.

Ha's study was the first to use a nationally representative sample

and a comparison group to examine the effects on parental welfare of

raising children with developmental or mental problems. The next

step, she says, will be longitudinal studies to examine factors such

as how " socioeconomic status, race, health characteristics, social

support, and community resources influence the extent to which caring

for disabled children affects parents' physical and mental health. "

The parents in Ha's study did not differ by race, education, or

socioeconomic status.

Ha

also compared the relative well-being of disabled children's

mothers and fathers and found no significant difference. Although the

responsibility of care falls mostly to mothers, they're also more

likely to have support networks and to find satisfaction and joy in

their parenting role.

?

Link to comment
Share on other sites

HA, well Ellen, if I didn't see the glass that way I'd likely go crazy :)

H.

Re: What do you think???

:

You are the perfect example of someone who sees the glass as half full!!!

LIfe is full of challenges and most people do have their share.

Ellen

Ellen Garber Bronfeld

egskb@...

What do you think???

IPADDUnite

Date: Sunday, November 23, 2008, 3:56 PM

Just curious what you think about this...

Ellen

Time heals

For parents with disabled children, age improves well-being, finds

SSA researcher Jung-Hwa Ha.

By Lydialyle Gibson

------------ --------- --------- --------- --------- --------- -

----------

Raising a me

ntally ill or developmentally disabled child can take a

tremendous physical and emotional toll. Parents find themselves

thrice burdened: by therapy and medical bills that insurance won't

always pay; by the day-to-day effort to care for their children and

control their behavior; and by the grief and stress of dealing with

social stigma, knowing their children may not reach the usual adult

milestones, and worrying about their future care after their parents'

deaths. But it does get easier, says Jung-Hwa Ha, an assistant

professor in the School of Social Service Administration who

coauthored a study this fall on well-being among disabled children's

parents. With age, she found, comes equanimity.

SSA researcher Jung-Hwa Ha Published in the September Journal of

Health and Social Behavior, Ha's research analyzed data from the

Study on Midlife in the United States (MIDUS). In 1994 and 1995

researchers sponsored by the MacArthur Foundation surveyed more than

7,000 Americans ages 25 to 74, looking at age-related differences in

mental and physical health. A decade later, the National Institute on

Aging funded MIDUS II, a follow-up survey using many of the same

respondents. Among the screening questions it asked were some about

rearing a child with problems such as cerebral palsy, Down syndrome,

learning disabilities, attention deficit hyperactivity disorder,

depression, schizophrenia, or bipolar disorder. Ha, who earned a

sociology and social-work PhD from the University of Michigan

studying late-life widowhood, examined the MIDUS II data to see how

stress from the disorders manifested itself in parents' lives. She

compared 1,393 parents who did not have disabled children with 163

parents whose children had developmental disabilities and 133 parents

whose children had mental-health problems.

What Ha and her team found was that among parents whose children had

either category of disability, " negative affect " was higher than for

the parents of normative children:

they more often reported feeling

nervous, restless, hopeless, worthless, or " so sad nothing could

cheer you up. " They also registered more headaches, backaches, joint

stiffness, and difficulty sleeping. The psychological well-being of

parents with developmentally disabled children also suffered, but for

parents of children with mental illness, Ha says, psychological

health didn't differ significantly from those who had normative

children. Conversely, the parents of mentally ill children were less

likely to be married, while marriage rates for developmentally

disabled children's parents weren't much different than for normative

children'

s parents.

Most important, though, was Ha's finding on " the moderating effects

of age. " As MIDUS II respondents grew older, the well-being gap

between normative children's parents and disabled children's parents

narrowed. Among those in their late 60s, there was almost no

difference at all. " Over time, " Ha says, " parents adjust to the

stress of their child's disability as they develop skills to better

respond to their family circumstances. "

By coincidence, MIDUS II parents of developmentally disabled children

tended to be several years younger than normative children's parents,

and they diverged more from the comparison group in negative affect

and psychological well-being, a finding Ha calls consistent with the

idea that advancing age improves well-being.

Ha's study was the first to use a nationally representative sample

and a comparison group to examine the effects on parental welfare of

raising children with developmental or mental problems. The next

step, she says, will be longitudinal studies to examine factors such

as how " socioeconomic status, race, health characteristics, social

support, and community resources influence the extent to which caring

for disabled children affects parents' physical and mental health. "

The parents in Ha's study did not differ by race, education, or

socioeconomic status.

Ha

also compared the relative well-being of disabled children's

mothers and fathers and found no significant difference. Although the

responsibility of care falls mostly to mothers, they're also more

likely to have support networks and to find satisfaction and joy in

their parenting role.

?

Link to comment
Share on other sites

I agree, ...half empty glasses just scream for a washing...

Half full glasses need drinking...

Ellen

Ellen Garber Bronfeld

egskb@...

What do you think???

IPADDUnite

Date: Sunday, November 23, 2008, 3:56 PM

Just curious what you think about this...

Ellen

Time heals

For parents with disabled children, age improves well-being, finds

SSA researcher Jung-Hwa Ha.

By Lydialyle Gibson

------------ --------- --------- --------- --------- --------- -

----------

Raising a me

ntally ill or developmentally disabled child can take a

tremendous physical and emotional toll. Parents find themselves

thrice burdened: by therapy and medical bills that insurance won't

always pay; by the day-to-day effort to care for their children and

control their behavior; and by the grief and stress of dealing with

social stigma, knowing their children may not reach the usual adult

milestones, and worrying about their future care after their parents'

deaths. But it does get easier, says Jung-Hwa Ha, an assistant

professor in the School of Social Service Administration who

coauthored a study this fall on well-being among disabled children's

parents. With age, she found, comes equanimity.

SSA researcher Jung-Hwa Ha Published in the September Journal of

Health and Social Behavior, Ha's research analyzed data from the

Study on Midlife in the United States (MIDUS). In 1994 and 1995

researchers sponsored by the MacArthur Foundation surveyed more than

7,000 Americans ages 25 to 74, looking at age-related differences in

mental and physical health. A decade later, the National Institute on

Aging funded MIDUS II, a follow-up survey using many of the same

respondents. Among the screening questions it asked were some about

rearing a child with problems such as cerebral palsy, Down syndrome,

learning disabilities, attention deficit hyperactivity disorder,

depression, schizophrenia, or bipolar disorder. Ha, who earned a

sociology and social-work PhD from the University of Michigan

studying late-life widowhood, examined the MIDUS II data to see how

stress from the disorders manifested itself in parents' lives. She

compared 1,393 parents who did not have disabled children with 163

parents whose children had developmental disabilities and 133 parents

whose children had mental-health problems.

What Ha and her team found was that among parents whose children had

either category of disability, " negative affect " was higher than for

the parents of normative children:

they more often reported feeling

nervous, restless, hopeless, worthless, or " so sad nothing could

cheer you up. " They also registered more headaches, backaches, joint

stiffness, and difficulty sleeping. The psychological well-being of

parents with developmentally disabled children also suffered, but for

parents of children with mental illness, Ha says, psychological

health didn't differ significantly from those who had normative

children. Conversely, the parents of mentally ill children were less

likely to be married, while marriage rates for developmentally

disabled children's parents weren't much different than for normative

children'

s parents.

Most important, though, was Ha's finding on " the moderating effects

of age. " As MIDUS II respondents grew older, the well-being gap

between normative children's parents and disabled children's parents

narrowed. Among those in their late 60s, there was almost no

difference at all. " Over time, " Ha says, " parents adjust to the

stress of their child's disability as they develop skills to better

respond to their family circumstances. "

By coincidence, MIDUS II parents of developmentally disabled children

tended to be several years younger than normative children's parents,

and they diverged more from the comparison group in negative affect

and psychological well-being, a finding Ha calls consistent with the

idea that advancing age improves well-being.

Ha's study was the first to use a nationally representative sample

and a comparison group to examine the effects on parental welfare of

raising children with developmental or mental problems. The next

step, she says, will be longitudinal studies to examine factors such

as how " socioeconomic status, race, health characteristics, social

support, and community resources influence the extent to which caring

for disabled children affects parents' physical and mental health. "

The parents in Ha's study did not differ by race, education, or

socioeconomic status.

Ha

also compared the relative well-being of disabled children's

mothers and fathers and found no significant difference. Although the

responsibility of care falls mostly to mothers, they're also more

likely to have support networks and to find satisfaction and joy in

their parenting role.

?

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...