Re: Clarification on Townhall meeting

[Guest guest]

Ellen, and IPADD .. I also heard from ,and he reiterates, the

lawmakers are going to be at the townhall meeting to hear and learn about

the Blueprint and hear from consumers.. I still hope we can find a few

families who have been on PUNS and are in need of services, willing to speak

on Monday night because those are the consumers/voters lawmakers need to

hear from.This kind of opportunity is rare and we need to use this to the

best of our ability. Cindi

[Guest guest]

I agree, Cindi.

I also agree with Gail...that it would not be useful to sit and listen to

legislators making empty promises.

Thankfully, that is not what this Townhall meeting is about.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Clarification on Townhall meeting

Ellen, and IPADD .. I also heard from ,and he reiterates, the

lawmakers are going to be at the townhall meeting to hear and learn about

the Blueprint and hear from consumers.. I still hope we can find a few

families who have been on PUNS and are in need of services, willing to speak

on Monday night because those are the consumers/voters lawmakers need to

hear from.This kind of opportunity is rare and we need to use this to the

best of our ability. Cindi

[Guest guest]

I am planning on going on Monday but will only bring Quentin if he is alright,

otherwise he'll stay

with Dad. I did not volunteer to speak because we do have the home-based support

and Quentin is

still in school. I understood you wanted to hear from families still waiting for

services. My concern

(like many of you) is for adult services when school is over and housing.

Thais

--

WOW! Homepage (http://www.wowway.com)

[Guest guest]

I also am going on Monday with my 16 yr. old son w/DS.  My friend and her son

are also going. We're not speaking because our boys are still in school, but I

did want the legislators to see who the Blueprint is really for. I think it's

important to put faces and names to our concerns.  

From: fpalluau@... <fpalluau@...>

Subject: Re: Clarification on Townhall meeting

IPADDUnite

Date: Thursday, December 4, 2008, 3:40 PM

I am planning on going on Monday but will only bring Quentin if he is alright,

otherwise he'll stay

with Dad. I did not volunteer to speak because we do have the home-based support

and Quentin is

still in school. I understood you wanted to hear from families still waiting for

services. My concern

(like many of you) is for adult services when school is over and housing.

Thais

--

WOW! Homepage (http://www.wowway. com)

[Guest guest]

Thanks! I agree, Liz...though you could speak about what your hopes and dreams

are...that helps to inform the legislators about what the needs will be...

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Clarification on Townhall meeting

IPADDUnite

Date: Thursday, December 4, 2008, 3:40 PM

I am planning on going on Monday but will only bring Quentin if he is alright,

otherwise he'll stay

with Dad. I did not volunteer to speak because we do have the home-based

support and Quentin is

still in school. I understood you wanted to hear from families still waiting

for services. My concern

(like many of you) is for adult services when school is over and housing.

Thais

--

WOW! Homepage (http://www.wowway. com)

[Guest guest]

Those might be important points to make, Thais; community day programs are

scarce and housing is not available to us...

After all, though we are both grateful for our home based funding, if our

children want to move out (and indeed, Noah does want that), we are not eligible

for enhanced funding for residential options outside of our home, which means,

essentially that our children are trapped in our homes, without the means to

move out, unless we can afford to pay privately...

You might want to consider testifying...hopefully, closing some institutions

will free up some money that might open up possibilities in the future for more

housing opportunities....

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Clarification on Townhall meeting

I am planning on going on Monday but will only bring Quentin if he is alright,

otherwise he'll stay

with Dad. I did not volunteer to speak because we do have the home-based

support and Quentin is

still in school. I understood you wanted to hear from families still waiting

for services. My concern

(like many of you) is for adult services when school is over and housing.

Thais

--

WOW! Homepage (http://www.wowway.com)

[Guest guest]

I'll be there.  I do not know if my son will come, but I'll bring a big photo.

Bring a photo of your kid if you don't bring your kid!

-Gail

From: fpalluauwowway (DOT) com <fpalluauwowway (DOT) com>

Subject: Re: Clarification on Townhall meeting

IPADDUnite@gro ups.com

Date: Thursday, December 4, 2008, 3:40 PM

I am planning on going on Monday but will only bring Quentin if he is alright,

otherwise he'll stay

with Dad. I did not volunteer to speak because we do have the home-based support

and Quentin is

still in school. I understood you wanted to hear from families still waiting for

services. My concern

(like many of you) is for adult services when school is over and housing.

Thais

--

WOW! Homepage (http://www.wowway. com)

[Guest guest]

I would agree with Ellen ... feel encouraged to speak about your dream and

fears for the future.. Your voice is very important. All voices are, but

the lawmakers need to know why youcome out on a cold night. I look forward

to seeing all the cyber friends. cindi

[Guest guest]

Great idea about the photo, Gail.

I have done that. It is very effective.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Clarification on Townhall meeting

IPADDUnite@gro ups.com

Date: Thursday, December 4, 2008, 3:40 PM

I am planning on going on Monday but will only bring Quentin if he is alright,

otherwise he'll stay

with Dad. I did not volunteer to speak because we do have the home-based

support and Quentin is

still in school. I understood you wanted to hear from families still waiting

for services. My concern

(like many of you) is for adult services when school is over and housing.

Thais

--

WOW! Homepage (http://www.wowway. com)