Re: Institution vs. ICF-DD (group home)

[Guest guest]

Ellen,

 

I'm thinking it's not really a good fit, but I'm thinking any 16 bed facility is

going to be the same thing. I wanted to get him into a 4 or 6 bed CILA when he

first moved out, but as I've said before he didn't meet the criteria of being

abused, homeless or neglected.

 

One of the facilities we looked at with another agency is a 4 bed CILA, but

wouldn't fit well with the other residents that are there; they are older,

nonverbal, don't get out into the community much & there's no openings.  The

administrator there is a guy that used to be one of his supervisors at a day

program. , him & I used to butt heads a lot.

 

The case manager doesn't work or even contact us now that he moved into the

group home. We did get a letter to update his PUNS in March.....I think it's

pointless, but I'll do it anyway.

Hate to sound so negative all the time, but that's reality.

 

Liz

[Guest guest]

Liz:

This is one of the big problems in our system...people do not have a choice

where they live and with whom...it is not individualized and we set many people

up for failure...

I don't have any good answers except that we do have a Director, Lilia Teninty,

who has plans to write another waiver to remedy some of this, especially looking

at individual support options and she is also working on quality measures

throughout the system. If the Blueprint gets fully operationalized, we should

see down-sizing of state operated facililites. If the funds that are saved in

down-sizing are reinvested back into the community system, that should provide

for improved supports and services...that said...we each have to push and push

and push to get what our own children need in the meantime....Grease your wheels

and squeak as loudly as you can...for now, that is about all we can

do...remember to present your situation to your legislators as often as you

can...

It is, I know very discouraging and frustrating...in a word, it sucks.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Institution vs. ICF-DD (group home)

Ellen,

I'm thinking it's not really a good fit, but I'm thinking any 16 bed facility

is going to be the same thing. I wanted to get him into a 4 or 6 bed CILA when

he first moved out, but as I've said before he didn't meet the criteria of being

abused, homeless or neglected.

One of the facilities we looked at with another agency is a 4 bed CILA, but

wouldn't fit well with the other residents that are there; they are older,

nonverbal, don't get out into the community much & there's no openings. The

administrator there is a guy that used to be one of his supervisors at a day

program. , him & I used to butt heads a lot.

The case manager doesn't work or even contact us now that he moved into the

group home. We did get a letter to update his PUNS in March.....I think it's

pointless, but I'll do it anyway.

Hate to sound so negative all the time, but that's reality.

Liz