Guest guest Posted December 23, 2008 Report Share Posted December 23, 2008 A new support group for people with Asperger syndrome begins meeting in January and organizers hope to attract teenagers and young adults with this disability as they enter the adult world. Families, business people and community members are invited to Planning Asperger Syndrome Success and Generating Experiences (PASSAGE), which meets the first Tuesday of the month from 7 to 9 p.m. at Plaza Office Park, 121 S. Wilke Road, seventh floor, Arlington Heights. Schaumburg residents Donna and Teri Dudasik have sons diagnosed with Asperger syndrome -- a high-functioning form of autism -- prompting both women to become coordinators of the help group. said older adults with the syndrome can attend and that PASSAGE was mainly formed to help younger people overcome difficulties in job interviews, college life and independent living. Because Asperger syndrome is a nonverbal learning disability, said people such as employers may be unaware if someone has been diagnosed. " Most disabilities can be seen visually, but when talking with someone Asperger you may not know they have a disability. The main focus of PASSAGE is teaching skills for appropriate behavior for finding a job, for example, " said. " Young people with Asperger are bright academically. They just have difficulty communicating with people, " she said. Dudasik said most people with Asperger exhibited difficulty in social interaction, unusual ways communicating and using language and, lastly, an " interest in a topic to the point of obsession. " At PASSAGE's first meeting, Jan. 27, Jody Quirk from the Vocation Transition Program at Northwest Suburban Special Education Organization, Mount Prospect, will be the guest speaker. , a clinical psychologist, and Hoeck, an autism coordinator for Northwest Suburban Special Education Organization, will facilitate the meeting. Also attending will be Stacey , a disability counselor, and Brent Greiner, head of accommodations, both of Harper College. For more information, contact Donna at (847) 524-1089 or pehedonna@... or Teri Dudasik at (847) 923-7173 or ddudasik@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2008 Report Share Posted December 28, 2008 Hi I would I like to join that group since I lived in Arlington Heights, but my parents had me move with them out to Lake Zurich. There was more things that I was interesting in that started in Arlington Heights which is a shame that I came here. One of my friends asked me if I was going to move into my own apartment. My father borrowed money from me and has a dept. He never paided me back when he got a job in the 80's and 90's. I do not have a car and it was nicer in Arlington Heights because it has public transportation even though the 690 route was made smaller and there keeps on being fare increases. I had a bus driver friend who told me about SSI and about the curcuit breaker, but only got it for one year and my parents scared me into letting them use the SSI. Do not usderstand my disablity either. I hope to live close to support groups. I had already lived through one bad economy in the 80's with the older Bush. The economy finallhy got better, but I did not know about this group until the bad economy returned. Thank you for telling us about. I can only fantasise about what it would have been like if I had stayed there. > > A new support group for people with Asperger syndrome begins meeting > in January and organizers hope to attract teenagers and young adults > with this disability as they enter the adult world. > > Families, business people and community members are invited to > Planning Asperger Syndrome Success and Generating Experiences > (PASSAGE), which meets the first Tuesday of the month from 7 to 9 p.m. > at Plaza Office Park, 121 S. Wilke Road, seventh floor, Arlington > Heights. > > Schaumburg residents Donna and Teri Dudasik have sons > diagnosed with Asperger syndrome -- a high-functioning form of autism > -- prompting both women to become coordinators of the help group. > > said older adults with the syndrome can attend and that > PASSAGE was mainly formed to help younger people overcome difficulties > in job interviews, college life and independent living. > > Because Asperger syndrome is a nonverbal learning disability, > said people such as employers may be unaware if someone has > been diagnosed. > > " Most disabilities can be seen visually, but when talking with someone > Asperger you may not know they have a disability. The main focus of > PASSAGE is teaching skills for appropriate behavior for finding a job, > for example, " said. > > " Young people with Asperger are bright academically. They just have > difficulty communicating with people, " she said. > > Dudasik said most people with Asperger exhibited difficulty in social > interaction, unusual ways communicating and using language and, > lastly, an " interest in a topic to the point of obsession. " > > At PASSAGE's first meeting, Jan. 27, Jody Quirk from the Vocation > Transition Program at Northwest Suburban Special Education > Organization, Mount Prospect, will be the guest speaker. > > , a clinical psychologist, and Hoeck, an > autism coordinator for Northwest Suburban Special Education > Organization, will facilitate the meeting. > > Also attending will be Stacey , a disability counselor, and > Brent Greiner, head of accommodations, both of Harper College. > > For more information, contact Donna at (847) 524-1089 or > pehedonna@... or Teri Dudasik at (847) 923-7173 or > ddudasik@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 I had a bus driver friend who told me about SSI and about the curcuit breaker, but only got it for one year and my parents scared me into letting them use the SSI. Wm, My heart breaks for you....I'm wondering if you have a caseworker or somebody who could step up to bat for you? Would the Human Rights or Guardianship & Advocacy help? Anybody know? I'm gun shy about contacting too many places, as we haven't had much luck with the places I have contacted. When my son was getting SSI, we were told we had to take some of it for household expenses, (I was going to use way less than what I was told was the amt we should use). But I made sure he had what he needed & some of the things he wanted. Hope this is happening, in your case. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 , happy to have you with IPADDU...Perhaps this group will at least provide a little online support. I am not sure what to tell you about your family helping themselves to your SSI money. If you are living in your parent's home, they may be entitled to some reimbursement for your rent and living expenses. It hope this is something you might be able to discuss openly with them. Here is another group that might prove interesting to you: Ari Ne'eman President The Autistic Self Advocacy Network 1660 L Street, NW, Suite 700 Washington, DC 20036 http://www.autisticadvocacy.org 732.763.5530 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Thank You.reimbursement for your rent and living expenses. It hope this is something you might be able to discuss openly with them. > Here is another group that might prove interesting to you: > Ari Ne'eman > President > The Autistic Self Advocacy Network > 1660 L Street, NW, Suite 700 > Washington, DC 20036 > http://www.autisticadvocacy.org > 732.763.5530 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 I did not think to say that this bus driver drove me to and from the sheltered work shop that I went to and she had s son whith autism. She later told my dad. I had to jump through some hoops to see if I qualified. My father was letting use it and they only put the first check in the bank until my middle sister's husband gained axcess to the house and stole money it along with my youngess sisters's squirial bank. I did not know why he was not taken to court though. He was already on probation for drug posession. Now back to the money. First my father asked me if he may use the money or account to help him get a bank loan. This was in 1988 0r 1989. In 1993 0r 1994 my mother said he used it for his utilityies. He said he was helping me spend it so I can continue to get it. Social Security only wanted me to spend the increase though. My fahter usually having fancial problems when he over spend like some governments do or school dictricts. My father used to borrow what little money I made the workshop. My Two of my sisters had a job and evenently three of my4 sisters did. My dad used to tell people that my sister opened the store that she worked at which may show she earned enouph to pay rent. My father never said I payed rent until I mentioned I am supposed to have it put in my checking account. An disbilities advicate from " The Lake County Center For Indepenant Living told me this and let me talk to a representive when I was going to have my fahter's and mine septerated. She said it was my own name like last time when my academic counciler had me talk to one. Someone at the bank told them that I am old enouph to have it in my own name. The advocate was told me what to say in a letter, but it would not have to the right person since my father changed to SSDI or an adult with a disability instead of SSI. In 2000 or 2001 My father came to my bed room with a brief case said he changed it so I would get little mor money and he would pay back the money he borrowed from my pell grant check and the money. He might have also meant the money he somnehow took out of my savings account which as half of my Countryside Assooiation Paycheck. I only got about 40 dollars or 6 dollars for a a check every two weeks and this was fall 1992 to February 1987. I mean saved. I also spent the other half sometimes, but also gave my father a lot of it when he was un employed or when he spent too much. I was sure I realy had a disability until 2007 when the case manager said I had aspergers syndrom I needed to a new test since it was over 20 years since the last one. My parents use it for groceries now that my mother gave up getting a job. My mother used to work part time at K Mart and had to get a full time job when it was too much for my dad to have a full time and a part time job. My eldest sister who is a little over a year youhger than I lived with us until she was thrown out because of her boyfriend's drinking problem. I can probably tell she did not pay rent then. The one who had the husband started to live with her boyfriend at his mother's before they were married. She had got married because of her pregnancy. She had job at Burger King while the older one had a job ad Duncan Donuts and then The Super Gap which was part of The Gap. the second from the youngest had a job I did not know the name of then she worked at Home Economist which she worked her way up to opneing and closing the store. She moved out she got married. She never was told to move out when my mother called the police n two of her past boyfriends. My parents had people rent the garage in the early 90's before we moved. My mother was happy about one of the part time jobs my father had where they could even get new things for the house even though my mother probably used my money too. I did not have a job then. My father probably started to use it for utiliies after he told me about being behind on the bills. He was unemployed then. He had to pay back taxes and that was probably why my mother thought they got so much money from it. After we moved my father started to use the it for his car payment. He got a new car and let my youngst sister have the used car he bought. He bought a old used car before, but it was reposssed. He said at the dinnner table that people at work said he could not afford it. He got a veteran's loan for the house that we moved into. My father started to borrow 800 dollars from my pell grant check for it after he alread got the ssi money which was over 600 dollars. My counselor at Harper College wanted to have meeting about the social security money to tell my parents they should let me have it in my own account. The adviacate from Inpendant Living said it is not my car payment. He even borrowed for the mortgage. Before he would just move to another house when he could not afford it. My mother said he even used the money that our relatives gave to me for a house that we moved out of about 2 years later. I was only 3 then. I hope this was not too long. In 2002 I saw the adivicate from " Lake County Center For Independant Living told me that I should send the letter to Social Security. There was a health fair at Harper College where there ewas a Social Security Table and a lady said I should have it in my own account and before the counelor at Harper said she wanted to have a meeting with my parents. My mother did not believe me and my father said the laws did not allow it to be in my own account when it is the opisite. He said this the next time I brought it up though and my father said I payed rent that time. My mother said once they should show me how much hte rent is when I said I wanted to move out. This was in 1989 or so when my parents rented. My friend 700 was ntthat much for rent. My youngest sister said she thought was too much when she found it in Lake Zurich. My parents are charging me about that much for just a small bedroom. My younest sister has the whole basement. It floods without a sump pump though. Her daughter lives here too. She did not have a job when we first moved here. She was 19 when we moved her. My parents let her boy friend stay here too. Now she does not do that though. They tried to get social securtiy for her, but she did not get it. She was late in talking though. She finally got a job after 1998. She probably does not pay rent because she has a car payment and insurance, a cell phone, cigarett. She usd have used cars and last year or the year before she got a new car. She used help her last boy friend. He was not the one who stayed over, but she stayed at his parents' house on the weekends. She broke up with him in 2006. My sister has a job at a register at Petco and I work at Dominicks as a bagger. I used to work at Walgreens. When I fot that job my father said for me to save for a car. Before I had the job my wife said she would help me to save some of the socil security money after I said my father uses all of it. The advicate said after I told her what my father said about my paying rent now that if my parents act like land lords to give them some of it. She wrote a figure down which was less than 200 dollars. My father used up all of his credit union money after my mother did not go back to her job or get another one and they got food from out church. They got most of it from the store though. My father still had a job at the Postal Service. My mother thought no one would hire her because of the way her teeth looked. She worked at Target after she did ot get to transfer to another K Mart. My father would drive her there and she finally worked at Target. She said she got sick and Target said she would not get to go back to work until she brought a note from a doctor. > > I had a bus driver friend who told me about SSI and > about the curcuit breaker, but only got it for one year and my > parents scared me into letting them use the SSI. > > Wm, My heart breaks for you....I'm wondering if you have a caseworker > or somebody who could step up to bat for you? Would the Human Rights > or Guardianship & Advocacy help? Anybody know? I'm gun shy about > contacting too many places, as we haven't had much luck with the > places I have contacted. > > When my son was getting SSI, we were told we had to take some of it > for household expenses, (I was going to use way less than what I was > told was the amt we should use). > > But I made sure he had what he needed & some of the things he wanted. > > Hope this is happening, in your case. > > Liz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 My workshop case manager who is a case manager for looking for a job in the community said I should join a support group. I first found A Group called Asperger's,but that does not have much activity and the owner told me I should have the money in my own bank accountw which I know, and then I joined Grasp. My father said has a lawyer when I mentioned the that account again. That was in May 2006. The center for indpendant living gave me a number for lawyers that help people who have a guardian, but I said my parents are not my guaridian. I did not need it them. I do not know will happen to me when I have the money sent to my account. A man at the National Social Security number was ready to have it changed, but I stopped him. I wonder if Social Security will have someone tell my parents to let me have it in my own acount. So far I was expected to have it done my self. My father even has me give him a check in edition to that just because Medacaid takes money out now. I would move out if I saved money from that. My father said should try to get rich. He even had me save receipts from what I bought because he thought Social Securtity wanted me to show what I spent it for. My mother said the stores charge more money for food than in Arlington Heights. My father said it was not true. The houses were less money here. That is another reason why my parents chose to move here. I saw the links section this web site did not let me see them. I wonder how to join it. > > , happy to have you with IPADDU...Perhaps this group will at least provide a little online support. I am not sure what to tell you about your family helping themselves to your SSI money. If you are living in your parent's home, they may be entitled to some reimbursement for your rent and living expenses. It hope this is something you might be able to discuss openly with them. > Here is another group that might prove interesting to you: > Ari Ne'eman > President > The Autistic Self Advocacy Network > 1660 L Street, NW, Suite 700 > Washington, DC 20036 > http://www.autisticadvocacy.org > 732.763.5530 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 I will ask Laurie, one of the other co-moderators why you cannot access the Links...I am not the technical guru, unfortunately! Ellen Ellen Garber Bronfeld egskb@... Re: New Asperger Support Group for Adults - Arlington Heights My workshop case manager who is a case manager for looking for a job in the community said I should join a support group. I first found A Group called Asperger's,but that does not have much activity and the owner told me I should have the money in my own bank accountw which I know, and then I joined Grasp. My father said has a lawyer when I mentioned the that account again. That was in May 2006. The center for indpendant living gave me a number for lawyers that help people who have a guardian, but I said my parents are not my guaridian. I did not need it them. I do not know will happen to me when I have the money sent to my account. A man at the National Social Security number was ready to have it changed, but I stopped him. I wonder if Social Security will have someone tell my parents to let me have it in my own acount. So far I was expected to have it done my self. My father even has me give him a check in edition to that just because Medacaid takes money out now. I would move out if I saved money from that. My father said should try to get rich. He even had me save receipts from what I bought because he thought Social Securtity wanted me to show what I spent it for. My mother said the stores charge more money for food than in Arlington Heights. My father said it was not true. The houses were less money here. That is another reason why my parents chose to move here. I saw the links section this web site did not let me see them. I wonder how to join it. > > , happy to have you with IPADDU...Perhaps this group will at least provide a little online support. I am not sure what to tell you about your family helping themselves to your SSI money. If you are living in your parent's home, they may be entitled to some reimbursement for your rent and living expenses. It hope this is something you might be able to discuss openly with them. > Here is another group that might prove interesting to you: > Ari Ne'eman > President > The Autistic Self Advocacy Network > 1660 L Street, NW, Suite 700 > Washington, DC 20036 > http://www.autisticadvocacy.org > 732.763.5530 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 : It sounds like you have a great deal to share and a need to talk. I wish we could do more for you on IPADDU but this group is really a resource for families, friends, professionals AND self-advocates to share information and for some support, but not necessarily to share full life stories. We would be happy to hear from you at any time if you have questions or you have recommendations for others who ask questions within our group. Thanks, . Ellen Ellen Garber Bronfeld egskb@... Re: New Asperger Support Group for Adults - Arlington Heights I did not think to say that this bus driver drove me to and from the sheltered work shop that I went to and she had s son whith autism. She later told my dad. I had to jump through some hoops to see if I qualified. My father was letting use it and they only put the first check in the bank until my middle sister's husband gained axcess to the house and stole money it along with my youngess sisters's squirial bank. I did not know why he was not taken to court though. He was already on probation for drug posession. Now back to the money. First my father asked me if he may use the money or account to help him get a bank loan. This was in 1988 0r 1989. In 1993 0r 1994 my mother said he used it for his utilityies. He said he was helping me spend it so I can continue to get it. Social Security only wanted me to spend the increase though. My fahter usually having fancial problems when he over spend like some governments do or school dictricts. My father used to borrow what little money I made the workshop. My Two of my sisters had a job and evenently three of my4 sisters did. My dad used to tell people that my sister opened the store that she worked at which may show she earned enouph to pay rent. My father never said I payed rent until I mentioned I am supposed to have it put in my checking account. An disbilities advicate from " The Lake County Center For Indepenant Living told me this and let me talk to a representive when I was going to have my fahter's and mine septerated. She said it was my own name like last time when my academic counciler had me talk to one. Someone at the bank told them that I am old enouph to have it in my own name. The advocate was told me what to say in a letter, but it would not have to the right person since my father changed to SSDI or an adult with a disability instead of SSI. In 2000 or 2001 My father came to my bed room with a brief case said he changed it so I would get little mor money and he would pay back the money he borrowed from my pell grant check and the money. He might have also meant the money he somnehow took out of my savings account which as half of my Countryside Assooiation Paycheck. I only got about 40 dollars or 6 dollars for a a check every two weeks and this was fall 1992 to February 1987. I mean saved. I also spent the other half sometimes, but also gave my father a lot of it when he was un employed or when he spent too much. I was sure I realy had a disability until 2007 when the case manager said I had aspergers syndrom I needed to a new test since it was over 20 years since the last one. My parents use it for groceries now that my mother gave up getting a job. My mother used to work part time at K Mart and had to get a full time job when it was too much for my dad to have a full time and a part time job. My eldest sister who is a little over a year youhger than I lived with us until she was thrown out because of her boyfriend's drinking problem. I can probably tell she did not pay rent then. The one who had the husband started to live with her boyfriend at his mother's before they were married. She had got married because of her pregnancy. She had job at Burger King while the older one had a job ad Duncan Donuts and then The Super Gap which was part of The Gap. the second from the youngest had a job I did not know the name of then she worked at Home Economist which she worked her way up to opneing and closing the store. She moved out she got married. She never was told to move out when my mother called the police n two of her past boyfriends. My parents had people rent the garage in the early 90's before we moved. My mother was happy about one of the part time jobs my father had where they could even get new things for the house even though my mother probably used my money too. I did not have a job then. My father probably started to use it for utiliies after he told me about being behind on the bills. He was unemployed then. He had to pay back taxes and that was probably why my mother thought they got so much money from it. After we moved my father started to use the it for his car payment. He got a new car and let my youngst sister have the used car he bought. He bought a old used car before, but it was reposssed. He said at the dinnner table that people at work said he could not afford it. He got a veteran's loan for the house that we moved into. My father started to borrow 800 dollars from my pell grant check for it after he alread got the ssi money which was over 600 dollars. My counselor at Harper College wanted to have meeting about the social security money to tell my parents they should let me have it in my own account. The adviacate from Inpendant Living said it is not my car payment. He even borrowed for the mortgage. Before he would just move to another house when he could not afford it. My mother said he even used the money that our relatives gave to me for a house that we moved out of about 2 years later. I was only 3 then. I hope this was not too long. In 2002 I saw the adivicate from " Lake County Center For Independant Living told me that I should send the letter to Social Security. There was a health fair at Harper College where there ewas a Social Security Table and a lady said I should have it in my own account and before the counelor at Harper said she wanted to have a meeting with my parents. My mother did not believe me and my father said the laws did not allow it to be in my own account when it is the opisite. He said this the next time I brought it up though and my father said I payed rent that time. My mother said once they should show me how much hte rent is when I said I wanted to move out. This was in 1989 or so when my parents rented. My friend 700 was ntthat much for rent. My youngest sister said she thought was too much when she found it in Lake Zurich. My parents are charging me about that much for just a small bedroom. My younest sister has the whole basement. It floods without a sump pump though. Her daughter lives here too. She did not have a job when we first moved here. She was 19 when we moved her. My parents let her boy friend stay here too. Now she does not do that though. They tried to get social securtiy for her, but she did not get it. She was late in talking though. She finally got a job after 1998. She probably does not pay rent because she has a car payment and insurance, a cell phone, cigarett. She usd have used cars and last year or the year before she got a new car. She used help her last boy friend. He was not the one who stayed over, but she stayed at his parents' house on the weekends. She broke up with him in 2006. My sister has a job at a register at Petco and I work at Dominicks as a bagger. I used to work at Walgreens. When I fot that job my father said for me to save for a car. Before I had the job my wife said she would help me to save some of the socil security money after I said my father uses all of it. The advicate said after I told her what my father said about my paying rent now that if my parents act like land lords to give them some of it. She wrote a figure down which was less than 200 dollars. My father used up all of his credit union money after my mother did not go back to her job or get another one and they got food from out church. They got most of it from the store though. My father still had a job at the Postal Service. My mother thought no one would hire her because of the way her teeth looked. She worked at Target after she did ot get to transfer to another K Mart. My father would drive her there and she finally worked at Target. She said she got sick and Target said she would not get to go back to work until she brought a note from a doctor. > > I had a bus driver friend who told me about SSI and > about the curcuit breaker, but only got it for one year and my > parents scared me into letting them use the SSI. > > Wm, My heart breaks for you....I'm wondering if you have a caseworker > or somebody who could step up to bat for you? Would the Human Rights > or Guardianship & Advocacy help? Anybody know? I'm gun shy about > contacting too many places, as we haven't had much luck with the > places I have contacted. > > When my son was getting SSI, we were told we had to take some of it > for household expenses, (I was going to use way less than what I was > told was the amt we should use). > > But I made sure he had what he needed & some of the things he wanted. > > Hope this is happening, in your case. > > Liz > Quote Link to comment Share on other sites More sharing options...
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