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If you have been in communication with your state legislator(s), email this link

to them.

Emphasize that an article like this in a major national newspaper is telling the

whole country that Illinois is one of the worst states in the nation for serving

those with DD.

-Gail

From: ellenbronfeld <egskb@...>

Subject: Do not miss this!!!

IPADDUnite

Date: Friday, November 28, 2008, 7:33 PM

http://online. wsj.com/article/ SB12278316877316 2977.html?

mod=rss_Page_ One

I couldn't make this link work, but I think each and every one of you

had better find this article and read it...NOW!

This is what our state has come to...

I want you to read this and comment...How does this make you feel?

Ellen

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Good suggestion, Gail...I did that before I even sent the link to IPADDU.

I will fax it to the Governor's office as well...

Ellen

Ellen Garber Bronfeld

egskb@...

Do not miss this!!!

IPADDUnite

Date: Friday, November 28, 2008, 7:33 PM

http://online. wsj.com/article/ SB12278316877316 2977.html?

mod=rss_Page_ One

I couldn't make this link work, but I think each and every one of you

had better find this article and read it...NOW!

This is what our state has come to...

I want you to read this and comment...How does this make you feel?

Ellen

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Share on other sites

Here, and in your earlier post, you imply, but don't say, something

worked. You mean the " w or w/o http// " worked for you? If so,

others may want to try it -- and I get to change my member ID

to " geek. Cool. I've got the old HS pic's to go with it.

>

> > http://online.wsj.com/article/SB122783168773162977.html?

> > I want you to read this and comment...How does this make you

feel?

> > Ellen

> >

>

>

>

>

>

>

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Nada. I did the same as always -- highlight a little more than the

http address itself (so the " click " doesn't just go to it), then

edit, copy, go to destination, set cursor, edit, paste, delete the

few extra characters carried with, and Voila! Works for me.

Like the Swimming with Whales?

> >

> > > http://online.wsj.com/article/SB122783168773162977.html?

> > > I want you to read this and comment...How does this make you

> feel?

> > > Ellen

> > >

> >

> >

> >

> >

> >

> >

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Ellen,

This truly makes me sick. The group home is about 15 miles from me. I

had heard that it was to be closing, but when I read the article, it

truly made me unhappy. There just aren't enough of them to go around &

then to uproot the residents when they are happy where they are is so

wrong. There is a shelter care in our county also that had been

housing 42 people. They are also closing, because the county chairman

wants to get out of the shelter care business.

I can't call my state reps til Tuesday, but will copy the article, if

I can & may hand deliver it to at least one.

Liz

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The only saving grace (selfish I know) is that my oldest is 16 and there is

some time before he will be in this position...hopefully through our voices,

Illinois will be vastly improved by the time he enters residential care...

NOw tell me Illinois politicians (regardless of party) shouldn't our tax

dollars highest priority be to spend on those who are unable to take care of

themselves...or at least pay the bills we already owe???

In a message dated 11/28/2008 7:34:03 P.M. Central Standard Time,

egskb@... writes:

_http://online.http://online.<Whttp://online.<Whttp://onl_

(http://online.wsj.com/article/SB122783168773162977.html?)

mod=rss_Page_mod=rss_

I couldn't make this link work, but I think each and every one of you

had better find this article and read it...NOW!

This is what our state has come to...

I want you to read this and comment...How does this make you feel?

Ellen

**************Finally, one site has it all: your friends, your email, your

favorite sites. Try the NEW AOL.com.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000006)

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The problem as I see it, is that things get better than they get worse,

here and elsewhere...

I would agree that conditions for our children and certainly general economic

conditions will improve eventually...but there is no sustainable future for our

children. When the economy tanks, one of the ways governments balance the

budget is to take from the higher end costs such as human services and since

most of those affected cannot advocate for themselves, it is an easy

solution...Our children will be an ever ready source of revenue because there is

no mandate for community supports and services.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Do not miss this!!!

The only saving grace (selfish I know) is that my oldest is 16 and there is

some time before he will be in this position...hopefully through our voices,

Illinois will be vastly improved by the time he enters residential care...

NOw tell me Illinois politicians (regardless of party) shouldn't our tax

dollars highest priority be to spend on those who are unable to take care of

themselves...or at least pay the bills we already owe???

In a message dated 11/28/2008 7:34:03 P.M. Central Standard Time,

egskb@... writes:

_http://online.http://online.<Whttp://online.<Whttp://onl_

(http://online.wsj.com/article/SB122783168773162977.html?)

mod=rss_Page_mod=rss_

I couldn't make this link work, but I think each and every one of you

had better find this article and read it...NOW!

This is what our state has come to...

I want you to read this and comment...How does this make you feel?

Ellen

**************Finally, one site has it all: your friends, your email, your

favorite sites. Try the NEW AOL.com.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000006)

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Ok here is something I need help with....... please don't post or

send me emails telling me how insensitive I am either, I am asking a

legitamite, non judgemental question, that I need an answer to.

Okay, here is a senerio..... I know some family very well, and know

thses facts:

1) Mother is working as a teacher

2) Father was working as a minister

3) Father died in a car accident a few years ago

4) They do not meet poverty standards

5) They own a home

6) Father had 2 insurance policies of AT LEAST $500,000

7) children get SSI? each one every month, even though mom makes a

decent wage.

8) children are NT kids

9) here is the one I can't understand: they waste the money on fast

food, " hanging out " , etc.

okay, now I am very sorry for the loss of the father ( my kids lost

their's as well, but to divorce (and they never see him), so I get

it, I feel bad for the kids that lost their dad so tragically.

BUT, why are these people MORE deserving than our kids- who cannot

take care of themselves, for the basics like housing (CILAS), or able

to work in most cases at a job where they can earn enough to support

food, housing etc.

Okay, I know mom and dad both worked and put into the system.....

but I have as well, as probably all of us on this site have as well,

so where is our children's money?

Also in my case,Don't say child support, I don't get any. And no, I

am not at poverty level either-(smae as this family I speak of)

Is there something wrong with this system? Should those who cannot

support themselves due to a disability be entitled AS WELL?

D.S.

>

> The only saving grace (selfish I know) is that my oldest is 16 and

there is

> some time before he will be in this position...hopefully through

our voices,

> Illinois will be vastly improved by the time he enters residential

care...

>

> NOw tell me Illinois politicians (regardless of party) shouldn't

our tax

> dollars highest priority be to spend on those who are unable to

take care of

> themselves...or at least pay the bills we already owe???

>

>

>

>

> In a message dated 11/28/2008 7:34:03 P.M. Central Standard Time,

> egskb@... writes:

>

>

>

>

>

> _http://online.http://online.<Whttp://online.<Whttp://onl_

> (http://online.wsj.com/article/SB122783168773162977.html?)

> mod=rss_Page_mod=rss_

>

> I couldn't make this link work, but I think each and every one of

you

> had better find this article and read it...NOW!

> This is what our state has come to...

> I want you to read this and comment...How does this make you feel?

> Ellen

>

>

>

>

> **************Finally, one site has it all: your friends, your

email, your

> favorite sites. Try the NEW AOL.com.

> (http://www.aol.com/?optin=new-

dp & icid=aolcom40vanity & ncid=emlcntaolcom00000006)

>

>

>

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I see the knowledgeable folks have already clarified that this is

probably survivor benefits. But I think I see a deeper question in

your post, one we all run into sometimes.

When our democracy sets up entitlements and aid programs, there is

often not parity and is that right? Obviously, on one level the

answer is " no " . But the reality of a democracy is that among the

competing interests, the self-serving will be the strongest. We may

wish our Constitution stated that programs for the most disabled must

be funded before we spend any money on ourselves -- a noble thought,

but probably unworkable.

So, as it relates to Social Security, the program was set up in a

time when " welfare " was socially very unacceptable, and yet something

had to be done to reduce poverty in the elderly. So the program was

designed more or less as a guarenteed pension plan and the

participants have a real entitlement to the payouts (I don't use the

word " right " , because I think it is vastly over used). Now, you will

note that there is still an element of " welfare " in the program --

obviously the low income folks often take out more than they put in,

and the high income folks, while they get more, don't get back what

they put in unless they live incredibly long lives. Such was

the " figleaf " that allowed the program to be acceptable to a broad

enough majority.

Since that time, we have expanded the inequality of payout as society

became more comfortable with the welfare aspect. We even put the SSI

program under Social Security, an expedient, but perhaps longterm

risky move, as noted below. There is even now (witness the recent

election) a resistance, for example, to raising the limits of income

on which FICA is assessed. A recent editorial in the Wall Street

Journal argues that resistance may be a good thing, because Social

Security has been a very successful program, and to push it farther

into a welfare mode risks losing the wide support it has always had.

They cite the SSI addition, particularly, as adding the aura of

welfare to the system.

I know this is cold comfort, but the Social Security program has done

a massive amount of good in ameliorating elder and orphan poverty. I

don't think it's insensitive at all to question why this program

doles out so much money while some programs for the disabled are

underfunded. But I think the answer lies in finding other money for

the disabled. Social Security " entitlements " will always be better

funded than " benefits " just as we all keep more money than we give to

charity (with apologies to Rev. Warren, Mr. Buffett and all other

exceptions).

> >

> > The only saving grace (selfish I know) is that my oldest is 16

and

> there is

> > some time before he will be in this position...hopefully through

> our voices,

> > Illinois will be vastly improved by the time he enters

residential

> care...

> >

> > NOw tell me Illinois politicians (regardless of party) shouldn't

> our tax

> > dollars highest priority be to spend on those who are unable to

> take care of

> > themselves...or at least pay the bills we already owe???

> >

> >

> >

> >

> > In a message dated 11/28/2008 7:34:03 P.M. Central Standard

Time,

> > egskb@ writes:

> >

> >

> >

> >

> >

> > _http://online.http://online.<Whttp://online.<Whttp://onl_

> > (http://online.wsj.com/article/SB122783168773162977.html?)

> > mod=rss_Page_mod=rss_

> >

> > I couldn't make this link work, but I think each and every one of

> you

> > had better find this article and read it...NOW!

> > This is what our state has come to...

> > I want you to read this and comment...How does this make you

feel?

> > Ellen

> >

> >

> >

> >

> > **************Finally, one site has it all: your friends, your

> email, your

> > favorite sites. Try the NEW AOL.com.

> > (http://www.aol.com/?optin=new-

> dp & icid=aolcom40vanity & ncid=emlcntaolcom00000006)

> >

> >

> >

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Yea, I guess this is what they are receiving. However, how come a

dead parent's children get money (when it's debateable whether they

need it to survive), and a child with disabilities who has a dead

beat father doesn't get money so the mom can stay home and take care

of him? Seems weird. I think if this is an old policy as you stated

was started back when there was only one parent working, shouldm;t it

be revised now. I mean right there would free up tons of money for

states and fed govt.?

I mean we all pay into stuff that we will likely never get, ie:

welfare and possibly social security if you are as young as I am. So

seems in tough times, everything should be on the table and looked at

right?

Diane

>> The only saving

grace (selfish I know) is that my oldest is 16 and there is > some

time before he will be in this position...hopefull y through our

voices, > Illinois will be vastly improved by the time he enters

residential care...> > NOw tell me Illinois politicians (regardless

of party) shouldn't our tax > dollars highest priority be to spend on

those who are unable to take care of > themselves.. .or at least pay

the bills we already owe???> > > > > In a message dated

11/28/2008 7:34:03 P.M. Central Standard Time, > egskb@ writes:> > >

> > > _http://online. http://online.<Whttp://online.<Whttp://onl_ >

(http://online. wsj.com/article/ SB12278316877316 2977.html?) >

mod=rss_Page_ mod=rss_> > I couldn't make this link work, but I think

each and every one of you > had better find this article and read

it...NOW!> This is what our state has come to...> I want you to read

this and comment...How does this make you feel?> Ellen> > > > >

************ **Finally, one site has it all: your friends, your

email, your > favorite sites. Try the NEW AOL.com. > (http://www.aol.

com/?optin= new-dp & icid=aolcom40van ity & ncid= emlcntaolcom0000 0006)>

> >

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Ellen,

Plase share your story, I think if we have battles to face and

continue to be the group of least entitlements, we should understand

all sides of the issues. Thanks.

Diane

> >

> > The only saving grace (selfish I know) is that my oldest is 16

and

> there is

> > some time before he will be in this position...hopefully

through

> our voices,

> > Illinois will be vastly improved by the time he enters

residential

> care...

> >

> > NOw tell me Illinois politicians (regardless of party)

shouldn't

> our tax

> > dollars highest priority be to spend on those who are unable to

> take care of

> > themselves...or at least pay the bills we already owe???

> >

> >

> >

> >

> > In a message dated 11/28/2008 7:34:03 P.M. Central Standard

Time,

> > egskb@ writes:

> >

> >

> >

> >

> >

> > _http://online.http://online.<Whttp://online.<Whttp://onl_

> > (http://online.wsj.com/article/SB122783168773162977.html?)

> > mod=rss_Page_mod=rss_

> >

> > I couldn't make this link work, but I think each and every one

of

> you

> > had better find this article and read it...NOW!

> > This is what our state has come to...

> > I want you to read this and comment...How does this make you

feel?

> > Ellen

> >

> >

> >

> >

> > **************Finally, one site has it all: your friends, your

> email, your

> > favorite sites. Try the NEW AOL.com.

> > (http://www.aol.com/?optin=new-

> dp & icid=aolcom40vanity & ncid=emlcntaolcom00000006)

> >

> >

> >

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No problem Ellen. Maybe someday, and the time is not right now. No

offense taken. I do realize as well, that we do not want to make

anyone upset either, and what you have to say might make others

defensive, upset, sad, etc. Some things are better left unsaid for

the good of everyone. I get it.

> > >

> > > The only saving grace (selfish I know) is that my oldest is

16

> and

> > there is

> > > some time before he will be in this position...hopefully

> through

> > our voices,

> > > Illinois will be vastly improved by the time he enters

> residential

> > care...

> > >

> > > NOw tell me Illinois politicians (regardless of party)

> shouldn't

> > our tax

> > > dollars highest priority be to spend on those who are unable

to

> > take care of

> > > themselves...or at least pay the bills we already owe???

> > >

> > >

> > >

> > >

> > > In a message dated 11/28/2008 7:34:03 P.M. Central Standard

> Time,

> > > egskb@ writes:

> > >

> > >

> > >

> > >

> > >

> > > _http://online.http://online.<Whttp://online.<Whttp://onl_

> > > (http://online.wsj.com/article/SB122783168773162977.html?)

> > > mod=rss_Page_mod=rss_

> > >

> > > I couldn't make this link work, but I think each and every

one

> of

> > you

> > > had better find this article and read it...NOW!

> > > This is what our state has come to...

> > > I want you to read this and comment...How does this make you

> feel?

> > > Ellen

> > >

> > >

> > >

> > >

> > > **************Finally, one site has it all: your friends,

your

> > email, your

> > > favorite sites. Try the NEW AOL.com.

> > > (http://www.aol.com/?optin=new-

> > dp & icid=aolcom40vanity & ncid=emlcntaolcom00000006)

> > >

> > >

> > >

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