Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 Hi Thank you for the welcome. I am 40 and was diagnosed when I was 20 although had been suffering for a couple of years. First GP was rubbish but I sought a second opinion who listened carefully and realised my symptoms were after I ate so referred me immidiately and I got diagnosed then pretty quickly. the last 10 years I have had a great consultant who works with me rather than simply telling me how to be. I am lucky to have a lot of support from him. the doctors you meet along the way really influence how well you manage this. I live in Oxfordshire (UK)and work for myself as a gardener which is something I have always done as a hobby but found it so relaxing in the last few years I have made it my job. This helps because I can work at my own pace and feel none of the pressures of having to 'perform' on days when my energy is low. Not everyone manages to be self employed but I love it. What an amazing feeling it is to have found others. Kay xx > > > > Hi everyone. I have just discovered this group and felt a wave of emotion. I have suffered with acholasia for many years and have real ups and downs with it. there are times when I cope very well and other times when the struggle feels so totally exhausting and overwhelming. To be able to read other people's stories and to be part of somewhere where we can encourage each other is so great as I have never met anyone else with it and most people struggle to really understand how it must be. > > > > Like so many of you I find the spasm pain overwhelming but fortunately have found that Nifedipine eases it within 20 minutes. I am sure it dosn't work for everyone but for those of you yet to try it do give it a go. It dosn't have any effect on the motility for me but I am grateful to have something that takes away the pain. I still feel fragile for a few hours but at least I can function and work. It comes in capsule form which you can bite, swallow the ligued and not have to try to swallow the whole capsule. Tastes horrid but hey who cares when the alternative is acute pain! > > > > After many years of balloon dilatations I found the courage to have a Heller Myotomy which so far has worked although my gullet generally has such poor motility and the upper end is also in spasm fairly regularly so the relief tends to be limited. > > I find knowing how my gullet works and what it is doing and what causes the sypmtoms to be so helpful. I know this condition is never going away but every day is a new day. > > > > thanks to all of you for your posts. I no-longer feel alone with this. My very best wishes, Kay > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 thank you so much, Ann. Kay xxx > > > From: Kay Davies <kayf.davies@...> > Subject: Thankyou! > achalasia > Date: Tuesday, 8 February, 2011, 14:53 > > > Â > > > > Hi everyone. I have just discovered this group and felt a wave of emotion. I have suffered with acholasia for many years and have real ups and downs with it. there are times when I cope very well and other times when the struggle feels so totally exhausting and overwhelming. To be able to read other people's stories and to be part of somewhere where we can encourage each other is so great as I have never met anyone else with it and most people struggle to really understand how it must be. > > Like so many of you I find the spasm pain overwhelming but fortunately have found that Nifedipine eases it within 20 minutes. I am sure it dosn't work for everyone but for those of you yet to try it do give it a go. It dosn't have any effect on the motility for me but I am grateful to have something that takes away the pain. I still feel fragile for a few hours but at least I can function and work. It comes in capsule form which you can bite, swallow the ligued and not have to try to swallow the whole capsule. Tastes horrid but hey who cares when the alternative is acute pain! > > After many years of balloon dilatations I found the courage to have a Heller Myotomy which so far has worked although my gullet generally has such poor motility and the upper end is also in spasm fairly regularly so the relief tends to be limited. > I find knowing how my gullet works and what it is doing and what causes the sypmtoms to be so helpful. I know this condition is never going away but every day is a new day. > > thanks to all of you for your posts. I no-longer feel alone with this. My very best wishes, Kay > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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