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Reply posted by " Carol Ann " saffireskyes@... saffireskyes

Wed Dec 19, 2007 8:00 pm (PST)

,

I am sorry for your families medical hardships. May I ask how it

came to be that all 3 of you became infected. Was it that you live

in a wooded area heavily affected by a carrier or were exposed to

different pathogens at different times. I do not have Lyme but will

certainly sign the petition on behalf of those that do.

------------------------

Carol Ann,

The house we were renting nearly 10 yrs. ago was invaded by roof

rats. They made nests in the walls. They rats carried mites that

bit us. Lyme is transmitted by mites, mosquitoes and other blood

sucking insects, not just ticks. At the time, I didn't realize that

the sudden new symptoms I developed were Lyme or otherwise related

because I have Hepatitis C and my doctors and I assumed it was

related to that...namely severe kidney and joint pain, also

migraines. Now, I know it was really Lyme and babesia....nearly 10

years after the fact. We were all bit by the mites...my son was

just a baby in diapers. It was really horrific. I felt things

biting me. I went to the doctor and he said it was probably

dermatitis or a reaction to something in the garden as I told him

I was into organic gardening. One night I got a magnifying glass

and looked and saw extremely small red dots moving around where I

felt the bites. Internet research led me to learn that rats carried

mites which in turn carried some serious " tropical " disseases

including Bb (Borellia burgdorfii), aka Lyme. I really didn't give

it any more thought and believed that nothing would happen to us.

We moved shortly thereafter and that's when I developed the new set

of very severe symptoms. My docs were clueless and the only help I

got was from self seeking and traditional Chinese acupuncture. Last

year, I developed another new set of symptoms including

lesions/sores that led me to the conclusion that I now have what

many are calling Morgellon's for lack of a satisfactory diagnosis.

More than 90% of people with Morgellon symptoms test positive for

Lyme disease. It led me to get tested via the Bowen institute by

PCR genetic methods and I was found to be high titer. That test &

lab is no longer available, so I had my son & husband tested by the

new lab - Florida Research...they both tested negative. However,

others in the Lymestrategies group who know conclusively that they

have Lyme re-tested by that lab and were found negative. Being that

the new flow-cytometry test is still an antibody/antigen test, it's

results can't be trusted...the conclusion is...more junk medicine.

I had my son retested by a reliable source in Arizona and just found

out he is also high titer for Lyme. I haven't had my husband tested

again, but based on symptoms, we know he is also infected.

This is truly a nightmare. I'm praying that MMS proves to be

effective. For now, I'm waiting and watching. Due to the Hep C and

my liver status, I'm wary. My health has been very problematic and

I can't take a risk right now. I'm doing herbal protocol pulsing

and have a Photon Genie. My husband and son will have to start

treating now too.

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