One more question

[Guest guest]

In a message dated 02/25/2000 9:55:39 PM Eastern Standard Time, BBHMM@...

writes:

<< as of the last three weeks

my jaws and the bones around them have been bothering me....any ideas ?

Thank you : ) >>

, that can be lyme pain also. Be sure to write this all down so you

can let your doctor know about it at your visit. TMJ is also associated with

Lyme in some patients.

[Guest guest]

Hi ,

I don't have TMJ, but when I was put on Doxycycline for my first Lyme

treatment, my jaw hurt terribly the whole time I was on it...a herx?

Take Care,

Joan LI NY

[Guest guest]

<< I don't have TMJ, but when I was put on Doxycycline for my first Lyme

treatment, my jaw hurt terribly the whole time I was on it...a herx?

>>

Thanks Joan, but I can't blame it on abx because I am not on any.

Your Lyme Friend,

in VA

[Guest guest]

In a message dated 2/26/00 3:30:00 AM Eastern Standard Time,

lyme-aidonelist writes:

<< , that can be lyme pain also. Be sure to write this all down so

you

can let your doctor know about it at your visit. TMJ is also associated

with

Lyme in some patients. >>

Thank you Lorraine, I have heard that it can be related and I am putting it

on my list, which grows by the day...lol.

Has anyone else had this problem ?

Your Lyme Friend,

in VA

[Guest guest]

Hi ,

I've been busy moving--in here almost a month now!! Us Lyme people move

slowly--still have lots to do. I've barely been out due to bad days, now

better ones. I'd be glad to share my thoughts on facial pain. I did have a

TMJ arthroscopy but it WAS NOT necessary. Marta, congratulations on your IV

tx and getting pain relief (I hope) Hello to everybody. I'm reading posts all

the time. Just to busy, etc., to comment on all. Welcome to all our new

friends. I am hoping to do HBOT end of March. Not quite sure where yet.

Love to all,

Helen

[Guest guest]

Hi ,

I know that TMJ can be a symptom with LD, poor Helen on our list has

been through hell and back with TMJ pain. Not sure if any treatment other

than LD abx will help you. If you care to write Helen about this, her

address is:Liveitup2@...

Good luck,

Hugs,

Marta

>From: BBHMM@...

>

>

> Hi to All,

> I am sorry to be so pesky, but I for got to ask on my last post about

>jaw pain. I have had TMJ for 10 to 12 years, but as of the last three weeks

>my jaws and the bones around them have been bothering me....any ideas ?

>Thank you : )

>

>Your Lyme Friend,

> in VA

>

[Guest guest]

Hi ,

I've been busy moving--in here almost a month now!! Us Lyme people move

slowly--still have lots to do. I've barely been out due to bad days, now

better ones. I'd be glad to share my thoughts on facial pain. I did have a

TMJ arthroscopy but it WAS NOT necessary. Marta, congratulations on your IV

tx and getting pain relief (I hope) Hello to everybody. I'm reading posts all

the time. Just to busy, etc., to comment on all. Welcome to all our new

friends. I am hoping to do HBOT end of March. Not quite sure where yet.

Love to all,

Helen

[Guest guest]

Hi ,

I know that TMJ can be a symptom with LD, poor Helen on our list has

been through hell and back with TMJ pain. Not sure if any treatment other

than LD abx will help you. If you care to write Helen about this, her

address is:Liveitup2@...

Good luck,

Hugs,

Marta

>From: BBHMM@...

>

>

> Hi to All,

> I am sorry to be so pesky, but I for got to ask on my last post about

>jaw pain. I have had TMJ for 10 to 12 years, but as of the last three weeks

>my jaws and the bones around them have been bothering me....any ideas ?

>Thank you : )

>

>Your Lyme Friend,

> in VA

>

[Guest guest]

Hi Donna

These aren't stupid questions! I have noticed that any 'itching' I have will be worse at nightime than during the day. Hot days are worse than cool ones. Don't know if anyone else has had this; but just something I noticed!

.

one more question

does anyone get itching instantly, when they eat sugar, or maybe something else, however the allergist said i was not allergic to any food. it seems that certain foods i eat instantly give me like a prickling itcy feeling, like something biting me.could this me parasites. as i have checked for all the normallice, crabs, or scabies and it is not any of that. it is not consistent even with the same foods on the same day, only certain times of the day, but i cannot put my finger on it, it is not the same foods. could it be from something other than food. cigarette smoke, more so at night. wierd!!!!sorry i am asking so much stupid questionsDonna JeanSend blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE !

[Guest guest]

Hi Donna Jean

Me too. I got patches like excema on my skin that appeared whenever I ate sugar. Also I have like little spots that appear that are extremely itchy, then turn into moles after appearing. Bizarre!

p.s. No question is silly - we are all on this journey finding out these little quirks along the way. Ask anytime.

one more question

does anyone get itching instantly, when they eat sugar, or maybe something else, however the allergist said i was not allergic to any food. it seems that certain foods i eat instantly give me like a prickling itcy feeling, like something biting me.could this me parasites. as i have checked for all the normallice, crabs, or scabies and it is not any of that. it is not consistent even with the same foods on the same day, only certain times of the day, but i cannot put my finger on it, it is not the same foods. could it be from something other than food. cigarette smoke, more so at night. wierd!!!!sorry i am asking so much stupid questionsDonna JeanSend blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE !

[Guest guest]

No I get quite itchy quickly when I eat certain spices or too much salt.

Then a little later when sugar or low carbs go through my body.

> one more question

>

> does anyone get itching instantly, when they eat sugar, or maybe something

>

> else, however the allergist said i was not allergic to any food. it seems

> that certain foods i eat instantly give me like a prickling itcy feeling,

> like something biting me.

> could this me parasites. as i have checked for all the normal

> lice, crabs, or scabies and it is not any of that. it is not consistent

> even

> with the same foods on the same day, only certain times of the day, but i

> cannot put my finger on it, it is not the same foods. could it be from

> something other than food. cigarette smoke, more so at night. wierd!!!!

> sorry i am asking so much stupid questions

>

>

> Donna Jean

>

> Send blank message to candidiasis-unsubscribeonelist if you want to

> UNSUBSCRIBE !

>

[Guest guest]

,

Forgive me, but how old is your baby again? I ask because one of my twins (in fact the non-plagio one) started shrieking in his sleep at about 10 months, and does it more or less nightly. Dr. says it's normal.

Jill Ramos, Las Vegas, NV

[Guest guest]

Jill, She is 17.5 months now - my doc said it is normal too, but I

don't know very many people that have a child that shreiks at night

which makes me wonder how normal that is

- Popik

Canada

> ,

> Forgive me, but how old is your baby again? I ask because one of

my twins

> (in fact the non-plagio one) started shrieking in his sleep at

about 10

> months, and does it more or less nightly. Dr. says it's normal.

>

> Jill Ramos, Las Vegas, NV

[Guest guest]

:

My daughter began waking in the middle of the night when she was

about 1 yr old til she was 17 mos old, (yeah, VERY long 5 mos,

VERY!). She woke to play. Our ped. told us it is quite common for

children to that at that age, mainly becuz of separation anxiety. I

know your daughter is a bit older. DOes she have all her molars in

yet? Maybe it could be from teething pain? It's so frustrating, I

know. But if it's just when she is sleeping, then I would assume

it's nightmares or teething, or just being a difficult little toddler

like mine was/is (hehe).

Debbie Abby's mom DOCGrad

MI

> The more I read into this and read that side effects can be

> headaches, I now wonder. My daughter wakes up (orsometikes doesn't

> even wake up) with a blood curdling scream, as if she is in pain or

> has been scared. She does this for now reason almost nightly.

> Sometimes she wakes up and sometimes she doesnt - she also

sometimes

> does this during the day. I used to think it was nightmares, but

my

> mom suggested one day that maybe she was getting headaches. Now I

> wonder.

>

> I know she is older than most of your kids when they started

> treatment, but has anyone else experienced something similar to

this?

>

> -

[Guest guest]

In a message dated 6/8/03 7:21:36 PM Central Daylight Time, mosierosy@...

writes:

> rheumatic One more question

Absolutely!!! Dr S. checked my blood monthly because of the Nizoral. He

said it was really rare but that it was wise to watch it so one could be taken

off if they were sensitive to it. Remember some people can take an aspiren

and have life threatening reactions..and I supose if one had liver problems and

was not aware of it the Nizotal might show this. At that time he said he had

never had to take anyone off it but a check is always correct procedure.

After all the doc is there to help not hurt us further. Your doc is simply

doing

the right thing. Have no fear I was on it for five months with no problems

and have known several others who had no problems. This also might be a problem

if one is getting up in years as the liver is not always as functional as it

is in younger people.(along with all of the other organs)!!! Just my thoughts

on the subject. Martha

[Guest guest]

Hi Maureen,

I am on the cocktail and am minitored as well.It works fine.

Enbrel is waymore toxic(my opinion only) than nizoral. I do take a

good dose of milk thistle and the GA doc recommends that too.

Adding this should calm the flare down. Do them one at a time as I

had a lot of fatigue from the herx and I did do them one a\t a time.

Let us know if we can help but you should do well.

Love

Marge

> Hi All Again,

> Has anyone on the nizerol, flagyl cocktail been told that the

> nizerol could be toxic? This new doctor I'm seeing told me I'd have

> to have my blood tested every 6 weeks to check my liver as the

> nizerol could be toxic. I don't know if he's trying to scare me

away

> from taking it or not. My #'s have also gone up a bit with this

> flare, which hasn't happened in a long time. If anyone has any

info,

> I would appreciate sharing it!

> Thanks

> Maureen

[Guest guest]

Marge, are you on alpha lipoic acid? Not only is it a powerful antioxident,

but it is a precursor to glutathione which the liver must have to process

the toxins. People with chronic disease and older people are low in

glutathione. Since it does not survive stomach acid very well, the

preferred method to give it is IV. If taken orally, it should be taken

sublingually.

Ethel

rheumatic Re: One more question

> Hi Maureen,

> I am on the cocktail and am minitored as well.It works fine.

> Enbrel is waymore toxic(my opinion only) than nizoral. I do take a

> good dose of milk thistle and the GA doc recommends that too.

> Adding this should calm the flare down. Do them one at a time as I

> had a lot of fatigue from the herx and I did do them one a\t a time.

>

> Let us know if we can help but you should do well.

>

> Love

> Marge

>

>

>

> > Hi All Again,

> > Has anyone on the nizerol, flagyl cocktail been told that the

> > nizerol could be toxic? This new doctor I'm seeing told me I'd have

> > to have my blood tested every 6 weeks to check my liver as the

> > nizerol could be toxic. I don't know if he's trying to scare me

> away

> > from taking it or not. My #'s have also gone up a bit with this

> > flare, which hasn't happened in a long time. If anyone has any

> info,

> > I would appreciate sharing it!

> > Thanks

> > Maureen

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

How does one know the difference between herxing, or whether the disease

is just getting worse?

Libby

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[Guest guest]

I speak for myself, of course, but, I get better after suffering some. I really

AM better than in my past. Journaling helps us keep track of improvements. I

honestly would not remember all, if I didn't. I hope you are journaling too.

Re: [ ] One more question

How does one know the difference between herxing, or whether the disease

is just getting worse?

Libby

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

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[Guest guest]

> Brittany has these " mystery " fevers several times a month, no other

symptoms.

We had these mystery fevers too when my daughter was younger. She had

a viral panel that came back showing problems as well. We are seeing

some positive things with the high dose Virastop.

For us enzymes have really been the thing for our bowel troubles. My

daughter's constipation is pretty much gone. In fact, you can almost

set the clock by how regular she is, same time every day. It's almost

funny because we know when it's " poopy time. "

As for your earlier enzyme question. We have used both Houston's and

Kirkman's. Hands-down Houston's is the best. We basically saw nothing

with the Kirkman's. In fact I pretty much gave up on enzymes because

we tried the Kirkman's first. Thank goodness I gave them another try

with Houston's.

[Guest guest]

> Brittany has these " mystery " fevers several times a month, no other

symptoms. She tested positive for the Epstein Barr and the CMV 3

summers ago. Would virastop be something that I should try?

I never used ViraStop, but I used olive leaf extract for virus issues,

and it worked very well for my son.

Dana

[Guest guest]

Dear Robin,

Sounds like good credentials...Royal College of Surgeons is a good

thing. You may want to know how many of these surgeries he has

done. Have you met him? What is his office like? One doc said to

me, if you're having a fusion, you're going to be married to your

surgeon...you'd better like him.

On Oct 16, 2005, at 7:31 AM, Robin wrote:

> Found my doctor on the s Hopkins site.

>

> My concern is that he is not board certified apparently. He passed

> part one in 2000.Part of this may be he had been practicing outside

> the United States and needs to take the board tests for board

> certification in this country. Would you let this doctor operate?

>

> I'm going to post his bio here...any feedback would be appreciated.

>

> Khaled M. Kebaish, M.D., M.Sc., F.R.C.S.©

>

>

> Attending Orthopaedic & Spine Surgeon

> Assistant Professor

> 601 North Caroline St., Rm #5244

> Baltimore, MD 21205

>

> Office Phone: 410-955-3376

> E-Mail Address: kkebais@...

> Administrative Title: Attending Orthopaedic and Spine Surgeon

> Faculty Appointment: Assistant Professor

> Principal Hospital: The s Hopkins Hospital

> Educational Background:

> Fellowship: s Hopkins School of Medicine

>

> Residency: University of Toronto

>

> Medical School: Cairo University

>

>

> Board Certification:

>

> MCCEE (Canada)

>

> USMLE (step 3)

>

> FRCSC (Canada)

>

> BOARD Eligible (Part I, passed July 2000)

>

> Orthopaedic Surgery (BE)

>

> Fellow of the Royal College of Surgeons (Canada)

>

>

> Clinical Interests:

> Spine Deformities and Scoliosis

>

> Degenerative Spinal Disorders

>

> Spine Tumors and Osteoporosis

>

> Minimally Invasive Spinal Surgery

>

>

> Research Interests:

>

> Clinical Outcome

>

> Spine Biomechanics

>

> Disc Degeneration

>

> Disc Replacement

>

>

>

>

>

>

>

>

[Guest guest]

to find out check abms.org american board of

medical specialties....

--- diana marder <dianamarder@...> wrote:

> Dear Robin,

>

> Sounds like good credentials...Royal College of

> Surgeons is a good

> thing. You may want to know how many of these

> surgeries he has

> done. Have you met him? What is his office like?

> One doc said to

> me, if you're having a fusion, you're going to be

> married to your

> surgeon...you'd better like him.

>

>

>

>

> On Oct 16, 2005, at 7:31 AM, Robin wrote:

>

> > Found my doctor on the s Hopkins site.

> >

> > My concern is that he is not board certified

> apparently. He passed

> > part one in 2000.Part of this may be he had been

> practicing outside

> > the United States and needs to take the board

> tests for board

> > certification in this country. Would you let this

> doctor operate?

> >

> > I'm going to post his bio here...any feedback

> would be appreciated.

> >

> > Khaled M. Kebaish, M.D., M.Sc., F.R.C.S.©

> >

> >

> > Attending Orthopaedic & Spine Surgeon

> > Assistant Professor

> > 601 North Caroline St., Rm #5244

> > Baltimore, MD 21205

> >

> > Office Phone: 410-955-3376

> > E-Mail Address: kkebais@...

> > Administrative Title: Attending Orthopaedic and

> Spine Surgeon

> > Faculty Appointment: Assistant Professor

> > Principal Hospital: The s Hopkins Hospital

> > Educational Background:

> > Fellowship: s Hopkins School of Medicine

> >

> > Residency: University of Toronto

> >

> > Medical School: Cairo University

> >

> >

> > Board Certification:

> >

> > MCCEE (Canada)

> >

> > USMLE (step 3)

> >

> > FRCSC (Canada)

> >

> > BOARD Eligible (Part I, passed July 2000)

> >

> > Orthopaedic Surgery (BE)

> >

> > Fellow of the Royal College of Surgeons (Canada)

> >

> >

> > Clinical Interests:

> > Spine Deformities and Scoliosis

> >

> > Degenerative Spinal Disorders

> >

> > Spine Tumors and Osteoporosis

> >

> > Minimally Invasive Spinal Surgery

> >

> >

> > Research Interests:

> >

> > Clinical Outcome

> >

> > Spine Biomechanics

> >

> > Disc Degeneration

> >

> > Disc Replacement

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

>>When he wanted something, didn't get

> his way, or they were trying to make him do something that he didn't

> want to do, he would lay on the floor and scream- the way he used to

> last year. Could it be a virus in his system that he's fighting- two

> days ago, he threw up in the afternoon, but has seemed to be feeling

> better since then. I haven't given him any new supplements, or foods.

> Any ideas??

It might be that the virus has moved to his brain or other parts of

his body. It also might be yeast overgrowth, because viral " die off "

does tend to cause yeast. Try increasing your yeast protocol, see if

that helps.

Dana

[Guest guest]

After three months if it is still bothering you. you should have someone look at

it. Do you have a same day care system in your clinic or hospital? That how my

doc take care of people she can't see.

Are you diabetic? I am just , take no meds for it, control with diet. But I

fell in December and got a huge hemotoma on my leg. can not tell you how may

time the doc looked at it, took forever to heal, and affected when I could start

taking humeri.

in WI

eandsspivey <espivey@...> wrote:

I have to ask someone about this. Back in March I dropped a piece of

paneling and it glanced off my upper leg, not a serious thing at all.

A large dark bruise appeared and it ran the usual course of colors and

faded to a shadow. It's still there. If I rub across it, it becomes

darker again for a day or two and fades again. I think there is a

slight knot underneath it but it's hard to tell because I'm so lumpy

and bumpy anyway. Should I be concerned? My doc is so busy she has

resorted to telephone appointments at night for follow up patients and

it's hard to get everything in when I do get to talk to her. Thanks

again!

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