(No subject)

[Guest guest]

Well, I still have been staying above water even though I feel like these

graduate classes are pulling me down. To top it off, my migraines have

kicked in over drive the past few days.

I'm beginning to think I need to go back onto a beta blocker. It seems the

Migranol was working for quite awhile and now all of a sudden, the migraines

are going through this uncontrollable phase again. So, I'll be bringing it

up to the doctor when I see him again in October.

At any rate, I have a thesis paper to write this weekend and need to get

started on it. Will check back in later.

-Sue E.

[Guest guest]

Kathy

 

I am so sorry to hear that you broke your leg. I wish you a speedy recovery.. As

if your plate wasn't full enough!! Please take care of yourself and Lenny.

 

Sue C

Moderator

From: KGAVI@... <KGAVI@...>

Subject: (no subject)

Stimulator

Date: Monday, November 17, 2008, 6:39 AM

Hello to the wonderful friends and group members!

I have been offline now for so long...I apologize! My husband was in a

serious car accident and I need to take care of him...along with keeping up with

my own health problems..which has been much worse now....I tripped on the way

home from the pharmacy and broke my other leg. Since I have RSD all over,

and casting is the worst thin you can possible do for RSD....I am in a cam

walker in that leg too. The pain is incredible.

I really do not know when we are going to get a break....I have been out of

work now for 7 years...my husband will be out of work now for a while and now

this.

Mike...I appreciate all your loving and kind words. you are true blue

friend and I am honored to be your partner and co-owner in our group.

To all the moderators.. .you guys are doing such an awesome job...I thank you

in my absence for all the help, yet again. God bless you...you are all my

angels to the group. To the ones that I am close with..I love you dearly...to

the ones I need to get to know better....please know that Mike and I felt

that we know you enough to choose you for such an awesome role in our

group...but I would love to get to know ya better...thank you!

To our members...espeicall y the new ones...my name is Kathy G. and I am

Mike's co-owner. I have had rsd now for 26 years...and can really understand

pain and it's warpath that it spreads to your life and your love ones ...please

know that I will be back ASAP to chat with you all and to have fun with the

group...I really miss you all so much!

...how is your sister doing, honey? I have been praying for her

everyday. I hope she is doing okay. How is the apartment and most

importantly. ..how are you, honey?

To the rest of my beautful friends...please kow that I miss you all dearly

and will be back online DEFINITELY by the end of November...no matter what!

All my love,

Kathy

************ **Get the Moviefone Toolbar. Showtimes, theaters, movie news &

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[Guest guest]

Kathy,

Oh no, you poor thing! I hope your husband is doing ok and I really

hope your leg will heal quickly. Im so sorry that you are having to

go through all of this at once. You have such a big heart and I will

pray for you and keep you in my thoughts daily.

Please take it easy and I pray that you will heal very quickly!

Hugs

>

> Hello to the wonderful friends and group members!

>

> I have been offline now for so long...I apologize! My husband was

in a

> serious car accident and I need to take care of him...along with

keeping up with

> my own health problems..which has been much worse now....I tripped

on the way

> home from the pharmacy and broke my other leg. Since I have RSD

all over,

> and casting is the worst thin you can possible do for RSD....I am

in a cam

> walker in that leg too. The pain is incredible.

>

> I really do not know when we are going to get a break....I have

been out of

> work now for 7 years...my husband will be out of work now for a

while and now

> this.

>

> Mike...I appreciate all your loving and kind words. you are true

blue

> friend and I am honored to be your partner and co-owner in our

group.

>

> To all the moderators...you guys are doing such an awesome job...I

thank you

> in my absence for all the help, yet again. God bless you...you are

all my

> angels to the group. To the ones that I am close with..I love you

dearly...to

> the ones I need to get to know better....please know that Mike and

I felt

> that we know you enough to choose you for such an awesome role in

our

> group...but I would love to get to know ya better...thank you!

>

> To our members...espeically the new ones...my name is Kathy G. and

I am

> Mike's co-owner. I have had rsd now for 26 years...and can really

understand

> pain and it's warpath that it spreads to your life and your love

ones ...please

> know that I will be back ASAP to chat with you all and to have fun

with the

> group...I really miss you all so much!

>

> ...how is your sister doing, honey? I have been praying for

her

> everyday. I hope she is doing okay. How is the apartment and

most

> importantly...how are you, honey?

>

> To the rest of my beautful friends...please kow that I miss you all

dearly

> and will be back online DEFINITELY by the end of November...no

matter what!

>

> All my love,

>

> Kathy

> **************Get the Moviefone Toolbar. Showtimes, theaters, movie

news &

> more!

(http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?

redir=htt

> p://toolbar.aol.com/moviefone/download.html?

ncid=emlcntusdown00000001)

>

>

>

[Guest guest]

So sorry things are still not well there, but thank you for your kind wishes.

Hope things improve soon.

 

Sue C

From: KGAVI@... <KGAVI@...>

Subject: (no subject)

Stimulator

Date: Monday, December 22, 2008, 7:22 AM

Hey Sue!

Happy Birthday, Honey!!! I hope you had a beautiful day. I am so sorry

that my message to you is late, not doing well at all here. So much is going

on....I will fill you later, but for now, my kind and loving friend...

HAPPY BIRTHDAY TO YOU,

HAPPY BIRTHDAY TO YOU,

HAPPY BIRTHDAY, DEAR SUE,

HAPPY BIRTHDAY TO YOU!!

All my love and best wishes for a special day to a special person!

Love,

Kathy

Co-Owner

************ **One site keeps you connected to all your email: AOL Mail,

Gmail, and Mail. Try it now.

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[Guest guest]

Kathy..

 Im so sorry hon about Len.. It has just been never ending for you guys,,, I

sure pray the new year will be much better for the both of you.... I keep the

both of you in all my prayers...

 Thank you so much hon... It was a very nice relaxing day....take care hon, If

you need to talk ,you know my # hon... Take care hon and Ill talk to ya soon...

               Love and soft hugs

                        T

 lisa

From: KGAVI@... <KGAVI@...>

Subject: (no subject)

Stimulator

Date: Tuesday, December 30, 2008, 4:51 AM

happy birthday, !

So sorry I haven't written in for a while. things here are just crazier

then ever..Len fell on ice and broke his leg horribly. He is still in the

hospital after two weeks.

I hope your day was beautiful.

love

kathy

co-owner

************ **One site keeps you connected to all your email: AOL Mail,

Gmail, and Mail. Try it now.

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m00000025)

[Guest guest]

Kathy,

Sorry to hear about your husband's leg. Guess we need that bubble wrap for both

of you.

Dorothy

[Guest guest]

Kathy sorry to hear about your husband im here for you if you need

me. mike group owner

>

> happy birthday, !

>

> So sorry I haven't written in for a while. things here are just

crazier

> then ever..Len fell on ice and broke his leg horribly. He is

still in the

> hospital after two weeks.

>

> I hope your day was beautiful.

>

> love

>

> kathy

> co-owner

> **************One site keeps you connected to all your email: AOL

Mail,

> Gmail, and Mail. Try it now.

> (http://www.aol.com/?optin=new-

dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

>

>

>

[Guest guest]

Kathy

So sorry that you and Lenny are having more troubles! I swear you have got to

get going better soon! I hope he is out of the hospital and healing soon.

(no subject)

happy birthday, !

So sorry I haven't written in for a while. things here are just crazier

then ever..Len fell on ice and broke his leg horribly. He is still in the

hospital after two weeks.

I hope your day was beautiful.

love

kathy

co-owner

**************One site keeps you connected to all your email: AOL Mail,

Gmail, and Mail. Try it now.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

[Guest guest]

I thought that I wrote down Len's dad.....I am so sorry!!!! It is horrible

enough for it to be his dad....let alone hiim...sorry for the mis wording...I

think that I have Len on the brain so much now that he is returning to work

on the 5th. I just am concerned it is too soon. We will see.

but Mike...I do appreciate it. We are going to the rehab center each

day....even if just for a few hours to see him...we don't stay too long, since

he

is tired after a long work out with rehab, but we want him to know we are

there for him....Len has a great sister and a wonderful brother who are married

with really great spouses. They are also going to the center on a regular

basis. I am truly blessed with a great family and a great family of inlaws.

My heart just breaks for my father in law. He is just a great, loving and

generous man. I hate to see him in pain. He is really doing remarkable. He

is working so hard at Pt and OT, and they are really helping him to learn how

to get around. He has a tremendous amount of front steps. This is the

biggest hurtle ow for him to face. He broke his leg so badly that he crushed

his

fib. He had a fractured, dislocated and severely displaced tib-fib fracture.

They actually had to place a rod through the crushed bone to salvage it. It

is amazing what they can do these days!!!

Thanks again, Mike. HOpe your holidays were beautiful for you and yours.

love ya

kathy

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

Hey HOney!

I am an idiot!

I miswrote about Len and the fall...it was his dad that fell on the ice. Of

course it was horrible for his dad and we just feel so bad for him, but

thank God it was not my Len. I meant to write Len's dad.

We go to the rehab center where he is now quite frequently to let him know

we are here for him, as well as his sister and brother, who are married with

great apouses. so, he is feeling the love aruond him.

You are so right though...it has really been non ending for us this year.

With Len and his horrible accident...which he is recovering beautifully

from...thank God. to my damned RSD...which is the worst in my left leg. I

really need to decide what to do about the below the knee amputation. I just

wish

that there would be NO chance of it spreading even morewith the damned major

surgery. I really wish that I could speak with another person who had a BKA

and has RSD. I would love to hear it from the mouth of a real live patient

and not the dr who is all for the amputation....but there are just so many in

favor of the BKA, and only 1 against. We don't know where we stand...pardon

the pun....lol

I am so glad to hear that you had a nice relaxing day for the holidays. If

anyone deserves it...it certainly is YOU, my friend.

I am so glad for you that things are looking brighter, sweetie!! You have

worked hard are entitle to enjoy the benefits from that hard work.

I am so proud of you...and you should be emensouly proud of yourself...you

go, girl!

How is your sister doing? I pray for her every night at my bed time

prayers. I hope she is doing better.

Love ya

Gentle hugs to all

Kathy G.

Co-owner

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

Happy New Year Kathy !!!!

 I'm so sorry about Lens Dad. It is so hard when an older person gets hurt like

that.Hopefully he will make a complete recovery.

as far as the amputation goes, I have met a lady with RSD that did have one leg

removed. Her leg was completely black,dead... But I haven't seen her since it

was removed. She is a friend of one of my sisters. She worked at K-mart for

years ( in a wheelchair).Ill have to see if Margie know her phone #.. that is if

she can remember.. She is having a real bad problem with her memory. But she

seems to be fairly OK, she still complains that her head hurts so bad. She can

barely walk anymore,She is constantly falling..But they say she is cancer free

right now. So I guess right now it a wait and see what happens next.. Thank you

so much for all the prayers...We all know prayers do help

   Well sweetie,, you have a wonderful New year,, Hope the new year is so much

better for you and your family.. thank you so much for being there for me,,,

              Love and soft hugs to you

                       T

 lisa

From: KGAVI@... <KGAVI@...>

Subject: Re: (no subject)

Stimulator

Date: Thursday, January 1, 2009, 6:04 AM

Hey HOney!

I am an idiot!

I miswrote about Len and the fall...it was his dad that fell on the ice. Of

course it was horrible for his dad and we just feel so bad for him, but

thank God it was not my Len. I meant to write Len's dad.

We go to the rehab center where he is now quite frequently to let him know

we are here for him, as well as his sister and brother, who are married with

great apouses. so, he is feeling the love aruond him.

You are so right though...it has really been non ending for us this year.

With Len and his horrible accident...which he is recovering beautifully

from...thank God. to my damned RSD...which is the worst in my left leg. I

really need to decide what to do about the below the knee amputation. I just

wish

that there would be NO chance of it spreading even morewith the damned major

surgery. I really wish that I could speak with another person who had a BKA

and has RSD. I would love to hear it from the mouth of a real live patient

and not the dr who is all for the amputation.. ..but there are just so many in

favor of the BKA, and only 1 against. We don't know where we stand...pardon

the pun....lol

I am so glad to hear that you had a nice relaxing day for the holidays. If

anyone deserves it...it certainly is YOU, my friend.

I am so glad for you that things are looking brighter, sweetie!! You have

worked hard are entitle to enjoy the benefits from that hard work.

I am so proud of you...and you should be emensouly proud of yourself...you

go, girl!

How is your sister doing? I pray for her every night at my bed time

prayers. I hope she is doing better.

Love ya

Gentle hugs to all

Kathy G.

Co-owner

************ **New year...new news. Be the first to know what is making

headlines. (http://www.aol. com/?ncid= emlcntaolcom0000 0026)

[Guest guest]

Kathy

  Thank you so much for all the support..I hope to be a help to everyone..

 Thanks so much for the opportunity.

                   Love and soft hugs to you

                                T

 lisa

[Guest guest]

Wow....cancer free!!!! Yes!!!! I am sure that it si so hard with all the

falls and all the memory problems ....but hopefully, Margie will be backa to

herself in a short time...and still be cancer free...I am so glad that all

the prayers have been answered, my friend.

So, ...how is your new year so far? Mine is just about the same...same

shit...different day...but hey, at least I wake up every day and have my

family and friends with me...right?

Thanks for the prayers for my father in law...he is just the nicest

man...very sweet, loving, funny and a gentlemen...just like my Lenny...he taught

his

son well.

Take care and Happy New Year to you and yours!

Love,

Kathy

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

Thank you very much !!!

 Yes this is a wonderful group !!.. I may not talk alot but I sure do love to

read alot !!!!

And iI agree ,, this is the best group  !!! Thanks everyone !!!!!

               Soft hugs

                      T

 lisa

From: KGAVI@... <KGAVI@...>

Subject: (no subject)

Stimulator

Date: Friday, January 2, 2009, 6:15 PM

Hey T.!

So glad that you agreed to be a moderator! You are exactly what we need to

help Mike and I out!!

You among all our other moderators are sweet, loving, caring, funny as hell,

and very comapssionate folks. Thanks to you all our group runs so smoothly.

As you all know, I have been in and out of the computer for a while now due

to my failing health, and now my husband's car accident. I thank all the

awesome moderators for doing such a great job of stepping up and stepping in

when needed.

Mike and I really appreciate all your help, and TLC to all our awesome

members.

Happy New Year to everyone. I wish you all pain free days and sleep

filled-nights.

God Bless you all.

Gentle Hugs to all,

Kathy G.

Co-Owner

************ **New year...new news. Be the first to know what is making

headlines. (http://www.aol. com/?ncid= emlcntaolcom0000 0026)

[Guest guest]

It has been pretty quit the last few days ,, just me and my whining lol.... Hope

everyone is doing good...

          soft hugs

                    T

 lisa

From: KGAVI@... <KGAVI@...>

Subject: (no subject)

Stimulator

Date: Tuesday, January 6, 2009, 1:44 PM

Hello Everyone!

How is everybody doing? I have spoken with some of our great folks, and

have seen some chatter....but how is everyone else? Just a wee bit concerned .

Love,

Kathy G.

Co-owner

************ **New year...new news. Be the first to know what is making

headlines. (http://www.aol. com/?ncid= emlcntaolcom0000 0026)

[Guest guest]

Hey Chick...

You were entitled to vent...not whine...vent. I would of been screaming

from the mountain top to anyone who would listen to me!!!

How are ya feeling? Any better, ? I sure hope so, hon.

hang in there, sweets!

Love ya lots,

Kathy G.

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

You are most wlecome, my friend. I am so glad that I could be there for you.

yeah....I know no sleep yet again...three nights and counting.

hope you are catching some well needed Z " S now., .

Love,

Kathy

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

hey Kathy,, Yep Im feeling much better,, other then not being able to sleep

tonight lol,, oh well nothing new.. Thank you so much for being there for me...

It means alot to me...well im gonna lay back down and hope for sleep,, Hope you

have a restful night..

         soft hugs

            T

          Group moderator

 lisa

From: KGAVI@... <KGAVI@...>

Subject: Re: (no subject)

Stimulator

Date: Wednesday, January 7, 2009, 3:07 AM

Hey Chick...

You were entitled to vent...not whine...vent. I would of been screaming

from the mountain top to anyone who would listen to me!!!

How are ya feeling? Any better, ? I sure hope so, hon.

hang in there, sweets!

Love ya lots,

Kathy G.

************ **New year...new news. Be the first to know what is making

headlines. (http://www.aol. com/?ncid= emlcntaolcom0000 0026)

[Guest guest]

Kathy,

I am sorry to tell you that I have never had contact with anyone who had good

success with a BKA or other amputation. I remember years ago we had a fellow in

our group who underwent total arm amputation, the RSD did spread to the point

that he eventually committee suicide. I met one woman who underwent BKA and is

now totally bedridden. Initially she attempted a prosthesis but it was far too

painful and then as the RSD spread as I say she is now totally bedridden.

I know of both Dr. Stanton-Hicks and Dr. Racz and would respect an opinion from

either one of these men. Being that you have more than one advising the BKA I

think I would be leaning more in that direction than the other. What did Dr.

Racz advise for pain management in lieu of the BKA?

I have also had surgery as well as a heart attack without it affecting or

spreading the RSD. However, I have never had anything that was directly related

to the nerves involved with the areas of my RSD. I can tell you that the stroke

that I had a year ago, which affected my entire left side has definitely

affected the RSD in my left leg. The spread is not intollerable but it has

definitely increased my pain levels.

Sorry I can't be of much help to you except to pray that whatever you decide it

is the right choice for you.

Dorothy

[Guest guest]

Hello,. Dorothy!

Thanks for getting back to me so soon.

You did help me with your advise. I knew if anyone would know...it would be

you. Unfortunatley, we have both had the damned disease for so long, that I

have a full respect of your knowledge of it. It is so nice to be able to

talk to someone who knows about it and has had it as long as I have.

It is horrendous to have to go through...but with friends like you....it is

made somewhat easier. Thank you, my friend.

I am so sorry about your stroke and your other health issues. Why all this

sadness and pain happens to kind, good and loving folks, I will NEVER, EVER

understand.

Regarding Drs. Hicks and Racz....that is why is so frustrating....they are

both so involved with RSD for so many years, and are both classified as TRUE

specialists, that I don't know whose medical advise to follow.

Dr. Racz told me that until I get the very first RSD out of my body, I will

never be able to be whole again. This has been there now for over 26

years.....good luck getting it outy...yeah, right!!! As far as pain

relief...he

suggested another stimulator be placed for my left leg. He truly believes that

if I had two for my legs, it would make the difference that I need and would

manage the pain so much more. He doesn't seem to understand, though, that my

back is so bad already from all the surgeries. I already have two stims,

have had a pain pump, and have had spinal surgery. How much more can my poor

back handle...and whose to say that the RSD wiil not spread further from yet

another surgery...although, true it has never spread from any surgery that I

have had.

I will certainly keep you in my thoughts and daily prayers also, Dorothy.

God Bless you, my friend.

Love,

kathy G.

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

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cemailfooterNO62)

[Guest guest]

Kathy:

A BKA is a major decision. I totally understand why you would be

looking for someone who has had good results with it. Dorthy said

she had never had anything directly related to the affected nerves.

I've had three knee surgeries on the leg that is affected with RSD.

None of those surgeries caused my RSD to spread. My pain management

had to ok the surgeries before my orthopedic would do them. My pm

doctor told the orthopedic to ask anethesiology to do a block to keep

the RSD from spreading. I'm drawing a blank right now on what the

block was called, but they put it in at the top of my leg and it

numbed my leg and they kept my leg numb for 24-36 hours after

surgery.

Of course my knee surgeries were minor compared to an amputation, but

I thought I would share that I had three surgeries in the RSD

affected leg and it didn't spread my RSD. Of course I was only 16

when the first knee surgery was done, 18 when the second was done and

26 at the time of the last surgery. My young age could have played a

role in my recovery and RSD not spreading. I don't know your age,

but with my last knee surgery it took longer to heal. I'm assuming

it might be because I'm getting older and my body's slowing down.

Good luck with whatever decision you make. I'll keep you in my

prayers.

>

> Kathy,

> I am sorry to tell you that I have never had contact with anyone

who had good success with a BKA or other amputation. I remember years

ago we had a fellow in our group who underwent total arm amputation,

the RSD did spread to the point that he eventually committee suicide.

I met one woman who underwent BKA and is now totally bedridden.

Initially she attempted a prosthesis but it was far too painful and

then as the RSD spread as I say she is now totally bedridden.

>

> I know of both Dr. Stanton-Hicks and Dr. Racz and would respect an

opinion from either one of these men. Being that you have more than

one advising the BKA I think I would be leaning more in that

direction than the other. What did Dr. Racz advise for pain

management in lieu of the BKA?

>

> I have also had surgery as well as a heart attack without it

affecting or spreading the RSD. However, I have never had anything

that was directly related to the nerves involved with the areas of my

RSD. I can tell you that the stroke that I had a year ago, which

affected my entire left side has definitely affected the RSD in my

left leg. The spread is not intollerable but it has definitely

increased my pain levels.

>

> Sorry I can't be of much help to you except to pray that whatever

you decide it is the right choice for you.

>

> Dorothy

>

>

>

>

[Guest guest]

Hi Kathy,

I wish I could have been more help to you. I know that I would not want to be

facing the decision that you are. I don't know how Dr. Racz expects you to get

rid of your initial site or any other RSD site. I do think though that I might

be willing to at least try his recommendation of a 2nd SCS for your leg before

the BKA. I agree that there is a chance that the additional surgery may cause

problems but I personally would be more willing to try that than risking the

spread of the RSD due to the BKA. The thing is, even if you have the leg

removed, that does not mean that the RSD will be gone from that leg and the pain

in your upper leg will simply be magnified rather than distributed throughout

the whole leg.

With the BKA there is also the problem with your diabetes and the fact that

healing is not one of your best qualities. Have you spoken with your

endocrinologist about the fact that you are considering the surgery?

Dorothy

[Guest guest]

HI, Dorothy!

Thanks for your concern. You are helping me more than you know. Yes, I

spoke with my endo...he seems to agree with the BKA. He was also concerned

with

the DM...since it is such a drastic surgery, but when he looked at all my

records, saw the foot, and spoke with the other drs....he told me he doesn't

see another course of treatment.

I agree with you about the third stim. I know that it will be hard on

me...yet another back surgery and yet another stim...but once I do the BKA,

there

is no going back...I certainly can't super glue it back on.

I have spoken with all the docs regarding the fact that the RSD will still

be in the left leg....at the point of the stump and possibly above...but they

all disagree with me...saying that the RSD in my left leg is all under my

knee. This is where all the pain is...this is where all the color changes,

swelling and all the symptoms are located. Maybe they are right...I just don't

know...????!?!

I also agree with you that how the hell am I supposed to get the original

RSD out of the knee...it happened 26 years ago...good luck with that one,

right?

Thanks again for your thoughts, Dorothy.

How are you feeling today? I hope well.

Take care!

Gentle hugs,

kathy

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[Guest guest]

Hi, Suzy...

the reason is that my foot and ankle are so severely damaged and there is so

much RSD through out that foot and ankle...it is " not salvegable " as the

doctors call it. The bones, ligaments and cartilage have all turned inward.

they are all permanently inward causing the pain to be even worse. Of course I

would never consider this in the other areas where the RSD is located...even

where it is moderately severe. The doctors at the cleveland clinic, johns

hopkins, mayo clinic and jefferson have all told me and my pm dr that my foot

is the worst case they have seen to date. They have taken so many pictures of

my foot, and asked me to sign permission slips to teach about RSD, and to

1put if in the New Enland Journal regarding RSD. They have used these photos

in medical schools all over.

These doctors have told me that in the past, they did amputations more

frequently, but now they only do them for the patients that have no hope of a

productive life due to the limb. My RSD is below the knee right now...it is

not

above the knee...so unless it spreads from the surgery, i would not have the

pain any longer from the RSD.

One pain that does ocurr frequently with amputation is phantom pain. That

is one of the biggest Draw backs on an amputation.

Thanks for your thoughts and your well wishes.

Kathy G.

Group Co-owner

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[Guest guest]

But I dont understand this if you have rsd in your leg below the knee

like I do. why do they want to take off your leg? back years ago yes

they did take off your leg or arms if you had the rsd but they found

that it did nothing you still had the rsd pain because its your brain

that is telling us we have pain there I to ask what if we take my leg

off so the pain would not be there. every dr I went to In new york

city said you will still have the rsd pain so no we will not take any

part off. maybe I miss some of the message you all wrote and only

reading part of it. what ever you do I wish you the best.

suzy

>

> HI, Dorothy!

>

> Thanks for your concern. You are helping me more than you know.

Yes, I

> spoke with my endo...he seems to agree with the BKA. He was also

concerned with

> the DM...since it is such a drastic surgery, but when he looked at

all my

> records, saw the foot, and spoke with the other drs....he told me

he doesn't

> see another course of treatment.

>

> I agree with you about the third stim. I know that it will be

hard on

> me...yet another back surgery and yet another stim...but once I do

the BKA, there

> is no going back...I certainly can't super glue it back on.

>

> I have spoken with all the docs regarding the fact that the RSD

will still

> be in the left leg....at the point of the stump and possibly

above...but they

> all disagree with me...saying that the RSD in my left leg is all

under my

> knee. This is where all the pain is...this is where all the color

changes,

> swelling and all the symptoms are located. Maybe they are

right...I just don't

> know...????!?!

>

> I also agree with you that how the hell am I supposed to get the

original

> RSD out of the knee...it happened 26 years ago...good luck with

that one, right?

>

> Thanks again for your thoughts, Dorothy.

>

> How are you feeling today? I hope well.

>

> Take care!

>

> Gentle hugs,

>

> kathy

> **************A Good Credit Score is 700 or Above. See yours in

just 2 easy

> steps!

> (http://pr.atwola.com/promoclk/100000075x1215047751x1200957972/aol?

redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%

26hmpgID=62%26bcd=De

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>

>

>