Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Hi kathy Ok now I understand I am so sorry you have this going on I to have it well I did below my knee but with time the pain is in my knee now and I do not have much ligaments and cartilaget left I lost alot of my reflex in my left leg because of this and my leg is very very cold and red and blue the color was just below the knee but now is up to my hip. I do walk with a cane sometimes but use my scooter if i have to walk more then 20 feet. suzy > > Hi, Suzy... > > the reason is that my foot and ankle are so severely damaged and there is so > much RSD through out that foot and ankle...it is " not salvegable " as the > doctors call it. The bones, ligaments and cartilage have all turned inward. > they are all permanently inward causing the pain to be even worse. Of course I > would never consider this in the other areas where the RSD is located...even > where it is moderately severe. The doctors at the cleveland clinic, johns > hopkins, mayo clinic and jefferson have all told me and my pm dr that my foot > is the worst case they have seen to date. They have taken so many pictures of > my foot, and asked me to sign permission slips to teach about RSD, and to > 1put if in the New Enland Journal regarding RSD. They have used these photos > in medical schools all over. > > These doctors have told me that in the past, they did amputations more > frequently, but now they only do them for the patients that have no hope of a > productive life due to the limb. My RSD is below the knee right now...it is not > above the knee...so unless it spreads from the surgery, i would not have the > pain any longer from the RSD. > > One pain that does ocurr frequently with amputation is phantom pain. That > is one of the biggest Draw backs on an amputation. > > Thanks for your thoughts and your well wishes. > > Kathy G. > Group Co-owner > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > steps! > (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol? redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072% 26hmpgID=62%26bcd=De > cemailfooterNO62) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 hi Kathy?? I'm ? R? ?from Ohio?? phantom cam be a real pain? but as time goes on its severity fades?? about 6 years ago? my foot went under a push mower while I was mowing a yard for my sis in law?? needless to say it did amputations? then the doc had to do more to try save my foot and ankle .? I still have faint phantom pain where pieces of my foot should be , that accident is the reason I now fight with rsd pain? all the way up my right leg?? at first it was just in my foot and ankle?? , but its up to my hip?now????? I still get the phantom? but its not to bad now?? so if you need to chat? I'd love to have someone to talk to?? Re: Re: (no subject) Hi, Suzy... the reason is that my foot and ankle are so severely damaged and there is so much RSD through out that foot and ankle...it is " not salvegable " as the doctors call it. The bones, ligaments and cartilage have all turned inward. they are all permanently inward causing the pain to be even worse. Of course I would never consider this in the other areas where the RSD is located...even where it is moderately severe. The doctors at the cleveland clinic, johns hopkins, mayo clinic and jefferson have all told me and my pm dr that my foot is the worst case they have seen to date. They have taken so many pictures of my foot, and asked me to sign permission slips to teach about RSD, and to 1put if in the New Enland Journal regarding RSD. They have used these photos in medical schools all over. These doctors have told me that in the past, they did amputations more frequently, but now they only do them for the patients that have no hope of a productive life due to the limb. My RSD is below the knee right now...it is not above the knee...so unless it spreads from the surgery, i would not have the pain any longer from the RSD. One pain that does ocurr frequently with amputation is phantom pain. That is one of the biggest Draw backs on an amputation. Thanks for your thoughts and your well wishes. Kathy G. Group Co-owner **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Hey !! Hi, Hon...I am always here if you would like to chat....you can either email me....@ this address...or@ _eyes4Lenny@..._ (mailto:eyes4Lenny@...) this is my other address. You can also reach me at my cell Number I have for the group....(215) 783-9066. (this goes for all the incredible members of this group.... I hope you have a great week coming up and please know that I am here if you need chat. Love, Kathy G. Co-Owner **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 I have Diabetes to i take lryica for nerve type pain.I hope it helps you I never taking cymb but heard it helps diabete nerve pain. Mike group owner > > Hey Gang... > > has anyone been on the med Cymbalta???? > > I was given this to try for the Diabetic Neuropathy in my leg. I was > wondering if anyone had success with this med for either Neuropathy (Diabetic) or > for RSD? > > My right leg is giving me alot of problems now with the Diabetic Neuropathy. > As this is supposed to be my " good Leg " , I really would like to get the > pain from this under control. > > Please let me know....either way...positive or negative. > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > steps! > (http://pr.atwola.com/promoclk/100126575x1218822736x1201267884/aol? redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072% 26hmpgID=62%26bcd=fe > bemailfooterNO62) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Kathy, I have heard over and over that it is wonderful or aweful and there is no way to know until you try it. For me it was aweful. I became depressed to dangerous levels. I pray it is a Godsend for you. Peace, Lexie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 Hey Kathy,,  Well Thank you very much. I really enjoy doing this so much.. I have became pretty close to some of the members,,and of course you are one of them  You are just to sweet...  How you feeling hon??? Are your  legs getting any better??? I keep you in all of my prayers.. I pray everyday that you start getting better...  My sister Margie is doing pretty good. Our oldest sister that takes care of her is on vacation for a week. Her and her male friend went to Aruba. So our other sister and some of Margie's friends are staying with her. Saturday our sister a had to leave to go to work, the friend that was on her way (running late) wasn't there yet. Margie told a to go ahead and leave. Well before Sue got there Margie had a seizure.. Sue found her on the living room floor..When Margie came to she refused to go the hospital. They wont do anything for her any way.. They say there is nothing they can do...Her Dr took her off the steroids.. now the seizures are starting again.. I just don't know what is gonna happen.. As of her last PET scan she was still cancer free. Its just the brain dying..Thee Gamma Knife radiation they did on her keeps working for up to 2 years.. 2 years wont be up till May...It hard to believe she has been battling this for 4 years in May.She is so much stronger then I could ever be..       I'm not doing to bad.. Last week I had a couple bad days... My soon to be x asked if I had done an adjustment with them stem.. well I never thought about that.. I changed my rate and with in an half hour I was up cooking and doing dishes.. I just never thought about changing the rate..lol.. well it worked...  I'm also a volunteer for the Family Crisis Center here in town, This is my week to be on call.. I have the crisis phone.. And of course it was a busy weekend... The phone had been quite for the last couple weeks,, well I got it Friday,, I had 9 calls over the weekend... not quite for me.. I did take 1 woman into shelter. So this afternoon I will go to court with her..   Other then that,,, Life is good...  I Hope you are getting rest and starting to feel better.. Thanks so much for the sweet note... If you ever need to talk hon, you have my #'s...           soft hugs and love to you                   T  lisa From: KGAVI@... <KGAVI@...> Subject: (no subject) Stimulator Date: Monday, March 2, 2009, 4:37 AM Hey ! I just wanted to tell you that you are doing such a wonderful job as one of our moderators!! ! You are so upbeat and supportive to the new members. If I were a new member and spoke with you online, I would really feel welcomed, and very comfortable! Way to go, ! Hey....by the way, how is Margie doing, my friend? I truly hope just as great as ever!! Love ya, Kathy G. Group Co-Owner ************ **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola. com/promoclk/ 100126575x121882 2736x1201267884/ aol?redir= http:%2F% 2Fwww.freecredit report.com% 2Fpm%2Fdefault. aspx%3Fsc% 3D668072% 26hmpgID %3D62%26bcd% 3Dfebemailfooter NO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Kathy: Absolutely, could be anything. Follow-up w/ primary care Dr. ia already scheduled. Just hope he gets copies of hospital records before. Thank you for your concern...don't worry, 10yrs. of dealing w/ workers comp & 21 yrs. of Social Security, numerous Drs. taght me to be proactive, persistant, and informed. I appreciate your input. Thanks, Patt > > Hey Pat! > > I have been thinking...if you are still having that pain...why not go to a > cardiologist just to rule it out? > > Also, I remember about 18 years ago, I swore I was having a heart attack. > It was my gall bladder. I had to have it removed due to all the stones that > were causing the horrible pain. Perhaps this is your problem...just a > thought? A simple ultra sound would show stones. > > I don't ignore anything anymore....I used to be called a hypochondriac by my > former family doctor...notice I said former... every symptom I would have > would be a real problem that was from a real disease....but when he heard I > was diagosed with RSD (at the age of 15) any problem I had was " made up " ,as he > didn't beleive in RSD. Well, when I had to get my appendix and gall > bladder surgically removed and when my my urethra collapsed from my daughter being > so big during my pregnancy, he shut up real quick. I told him that I had > pain in all these areas, and he just swept it under the carpet....well, my > appendix was about to burst...I wasn't waiting for that to happen with the gall > bladder and I couldn't take the pain of the urethra...so thankfully my ob took > care of me and got me to a urologist who put two stents in. Now, I have a > supportive and loving family doc...actually he is my old boss. I worked for > him for a little over a year. I respect him as a boss and love him as a > doctor. > > As I said, I was thinking about you and I didn't want you to think that I > was saying that it could only be stress...hell...it could be anything....so > maybe just make an appointment with the doctor to be sure, you know? > > Take care, my friend. > > Gentle hugs, > > kathy G > Group Co-Owner > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > steps! > (http://pr.atwola.com/promoclk/100126575x1219957551x1201325337/aol?redir=http:%2\ F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID > %3D62%26bcd%3DfebemailfooterNO62) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 Kathy, I am now on my 4th pump and I have never seen a neurosurgeon. My pumps have all be implanted by my pain management doctors who were initially anesthesiologists. Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 Hay Kathy,,  Thank you so much for worring about me.. Im doing fine.. If your gonna be around Ill give you a call... Ill be home,, maybe till 1:30... Let me know what time would be good for me to call ya.. Thanks sweetie      T  lisa From: KGAVI@... <KGAVI@...> Subject: (no subject) Stimulator Cc: bluejeans412003@... Date: Friday, May 22, 2009, 6:21 AM Hey ! How are you making out at work, honey? How did you make out at the foot doctor? I hope that you can get a bone scan, as it will show RSD or not. The CT was a great idea too. I will be more than happy to look for a Pain Doc for you in your area, if you would like me to, honey. As you said, it really is t he best bet....and I am sure you are weary of this...since the last one was a real putz, but not all of them are, hon. Please let me know how you are, okay. I am worried about you , lovey. Love, kathy G ************ **Recession- proof vacation ideas. Find free things to do in the U.S. (http://travel. aol.com/travel- ideas/domestic/ national- tourism-week? ncid=emlcntustra v00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Hi!  Just popping in so say " still hanging in there " .  Went out for a nice ride with the husband in the convertible on Sunday and to my son and daughter-in-laws on Memorial Day. Not much quality time with the grandson there though. Mr. Max (my little darling) went down for a nap soon after we got there. How was yours? Take care everyone!.............................sheryl ________________________________ From: " KGAVI@... " <KGAVI@...> Stimulator Sent: Thursday, May 28, 2009 1:34:28 AM Subject: (no subject) Hello Everyone! It has been a wee bit quiet....what is everyone up to? Anyone need anything? How was your Memorial Day Weekend...hope all had a great holiday with family and friends. Usually when it is quiet...folks are away or super busy with kids etc...I am just checking in to make sure all is ok. Gentle Hugs to you all, Kathy G. Group Co-Owner ************ **We found the real ‘Hotel California’ and the ‘Seinfeld’ diner. What will you find? Explore WhereItsAt.com. (http://www.whereitsat.com/?ncid=emlwenew00000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Hi kathy Thanks for checking in on us. Things in my lil part of the world are good. Work is going ok after 6 hours im ready for my nap. and I are headed to my moms today for a weekend away. I love to go to her place small quiet rural town of 200. Its so peaceful and I can relax as my mom takes over with samuel. Hope you are doing well and had a good holiday also. Hugs and loves maria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 Hey ! IHope you and your wee one have a fantastic time @ your parents! love kathy g **************We found the real ‘Hotel California’ and the ‘Seinfeld’ diner. What will you find? Explore WhereItsAt.com. (http://www.whereitsat.com/#/music/all-spots/355/47.796964/-66.374711/2/Youve-Fo\ und-Where-Its-At?ncid=eml cntnew00000007) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2012 Report Share Posted March 29, 2012 I would like to get in touch with people who have used 714x or Essiac or people who can give me valuable information. Melania ----- Free e-mail group hosting at http://www.eGroups.com/ ______________________________________________________________________ NextCard Internet VISA - 2.9% intro APR Earn free airline tickets WITH DOUBLE Rew@rds points. http://ads./click/63/0/nextcard Quote Link to comment Share on other sites More sharing options...
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