Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 HHV-6 (roseola) was probably a major factor. It can be a really wicked virus. Giving vaccines at that time was probably not a good idea considering all the ways this virus can alter the immune system. ----Original Message Follows---- From: " meljackmom " <meljackmom@...> Reply- Subject: Vaccinations Date: Wed, 29 Sep 2004 12:58:11 -0000 I recently had to update a new preschool with vaccination history, and was a little amazed/questioned the history I received from the doctor...it has been awhile since I even bothered looking at it, and knowing more about the immune system....well I wonder what others think. In February 2001, Jack was 14 months old. He got really sick....high fever (102-103), fatigue....he layed on his back for 3 days. Doctor at the time said it was viral. Days later he got a rash, and my sister suggested he had roseola. Looked it up and he pretty fit the symptoms. I phoned the doc's office and said I suspected roseola and they said yes, could be. But nothing else to do about it right? He got better in a few days. Three weeks later we went to the doc's office for 15 month check up and of course vaccinations. On that day he received HIB Varivax (chicken pox) MMR Prevnar (for pneumococcal diseases?) Looking at this now and knowing what I know now really stresses me. I think his immune system was totally assaulted, and it was of course after that he started to stagnate. (so many people point to thimerosol or the MMR itself as a culprit, but most kids get multiple sticks.) Had to get this off my chest. Thanks _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 My son had his MMR shot and then came down with roseola shortly after. I counted back the days, based on the incubation period, and it appeared that he must have picked up the roseola at the doctor's office while getting his MMR. He was also around 14 or 15 months old. I remember him being very sick with a high fever for a few days. I took him to a clinic and some very old doctor told me he had measles. I took him to my family doctor the next day and she said it was roseola. He was never really the same after that. I had noticed a couple of things beforehand (like he didn't always seem to hear me when I called his name and he wasn't pointing at things), but he really dropped out after the roseola/MMR episode. I sometimes wonder if it was one or both of these factors that tipped him over the edge. I guess I'll never know. Sometimes I even wonder if it all started with my flu shot. They gave me one the day after I gave birth to him. They were giving it to all the new mothers because we would typically be run down (lack of sleep, etc.) and we were just heading into flu season so it seemed like a good idea at the time. I asked if it was okay to have it if I was breastfeeding and they said it was fine. I didn't have one after having my other two and I wonder sometimes if that had any part in all of this too. Rhoda Vaccinations Date: Wed, 29 Sep 2004 12:58:11 -0000 I recently had to update a new preschool with vaccination history, and was a little amazed/questioned the history I received from the doctor...it has been awhile since I even bothered looking at it, and knowing more about the immune system....well I wonder what others think. In February 2001, Jack was 14 months old. He got really sick....high fever (102-103), fatigue....he layed on his back for 3 days. Doctor at the time said it was viral. Days later he got a rash, and my sister suggested he had roseola. Looked it up and he pretty fit the symptoms. I phoned the doc's office and said I suspected roseola and they said yes, could be. But nothing else to do about it right? He got better in a few days. Three weeks later we went to the doc's office for 15 month check up and of course vaccinations. On that day he received HIB Varivax (chicken pox) MMR Prevnar (for pneumococcal diseases?) Looking at this now and knowing what I know now really stresses me. I think his immune system was totally assaulted, and it was of course after that he started to stagnate. (so many people point to thimerosol or the MMR itself as a culprit, but most kids get multiple sticks.) Had to get this off my chest. Thanks _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 My son had roseola at about 6 months old. He was sick with the high fever and everything- doctor said just to let it run its course. When he started to get better he broke out in the rash and I called the doctor on-call (weekend) and explained to him the sickness and then the rash. He said it was roseola and not to worry. And of course at that age there are vaccines about every month... but I never made the connection until your note that it might have been too much for a system recuperating. Though I do know that the HHV-6 is the big issue for us in treating my son and I knew that it somehow played a roll. Interesting... - in Mobile, AL Reality lies beyond the horizon... Wonderwegian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2004 Report Share Posted September 30, 2004 > everyone wants to put a name on the cause Mercury, Thermosil, metals. Lead. or what ever. Vacienines are engineered to stimulate a childs immune system. Our children already have an over stimulate or otherwise compromised immune system. The CDC (medical infrastructure) needs to realize that our kids are better at figthing deaseses than they(CDC)are. Drop the egos and the profit margins and they would have been fine. Mother nature already developed one hell of a great immune system, what right do they have to think they are smarter than 4 million years of evolution. MONEY MONEY MONEY --Politics -- a good friend just acquired a job as a lobbyist for a pharmacutical company $437.000 thousand dollars a year to start. Who many vaccines will they sell to pay him??? > From: " meljackmom " <meljackmom@...> > Date: 2004/09/29 Wed AM 08:58:11 EDT > > Subject: Vaccinations > > I recently had to update a new preschool with vaccination history, > and was a little amazed/questioned the history I received from the > doctor...it has been awhile since I even bothered looking at it, and > knowing more about the immune system....well I wonder what others > think. > > > In February 2001, Jack was 14 months old. He got really > sick....high fever (102-103), fatigue....he layed on his back for 3 > days. Doctor at the time said it was viral. Days later he got a > rash, and my sister suggested he had roseola. Looked it up and he > pretty fit the symptoms. I phoned the doc's office and said I > suspected roseola and they said yes, could be. But nothing else to > do about it right? He got better in a few days. > > Three weeks later we went to the doc's office for 15 month check up > and of course vaccinations. On that day he received > HIB > Varivax (chicken pox) > MMR > Prevnar (for pneumococcal diseases?) > > Looking at this now and knowing what I know now really stresses me. > I think his immune system was totally assaulted, and it was of > course after that he started to stagnate. (so many people point to > thimerosol or the MMR itself as a culprit, but most kids get > multiple sticks.) > > Had to get this off my chest. > Thanks > > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 My take on it is that it's a bad idea to give babies mercury--a known immuno-suppressant--and then follow it up with multiple shots containing viruses. I think that sometimes it's MMR, but really the kids are wide open to any virus that comes along--either in a shot or from normal environmental exposure. Jane On Sep 29, 2004, at 10:03 PM, BristolY@... wrote: >> everyone wants to put a name on the cause Mercury, Thermosil, >> metals. Lead. or what ever. Vacienines are engineered to stimulate a >> childs immune system. Our children already have an over stimulate or >> otherwise compromised immune system. The CDC (medical infrastructure) >> needs to realize that our kids are better at figthing deaseses than >> they(CDC)are. Drop the egos and the profit margins and they would >> have been fine. Mother nature already developed one hell of a great >> immune system, what right do they have to think they are smarter than >> 4 million years of evolution. MONEY MONEY MONEY --Politics -- a good >> friend just acquired a job as a lobbyist for a pharmacutical company >> $437.000 thousand dollars a year to start. Who many vaccines will >> they sell to pay him??? > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 Jane, I agree. My son regressed with his MMR, but regressed even worse with roseola. It's just a matter of how many stresses each immune system can handle before it overloads, I guess. Becky Re: Vaccinations > > My take on it is that it's a bad idea to give babies mercury--a known > immuno-suppressant--and then follow it up with multiple shots > containing viruses. I think that sometimes it's MMR, but really the > kids are wide open to any virus that comes along--either in a shot or > from normal environmental exposure. > Jane > On Sep 29, 2004, at 10:03 PM, BristolY@... wrote: > > >> everyone wants to put a name on the cause Mercury, Thermosil, > >> metals. Lead. or what ever. Vacienines are engineered to stimulate a > >> childs immune system. Our children already have an over stimulate or > >> otherwise compromised immune system. The CDC (medical infrastructure) > >> needs to realize that our kids are better at figthing deaseses than > >> they(CDC)are. Drop the egos and the profit margins and they would > >> have been fine. Mother nature already developed one hell of a great > >> immune system, what right do they have to think they are smarter than > >> 4 million years of evolution. MONEY MONEY MONEY --Politics -- a good > >> friend just acquired a job as a lobbyist for a pharmacutical company > >> $437.000 thousand dollars a year to start. Who many vaccines will > >> they sell to pay him??? > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 We had our children vaccinated, back in the days when we weren't into nutrition. I wish we hadn't. We've had the most problem with our 3rd child. After every vaccine, she immediately responded with some sort of illness. It depleted her immune system so badly, that she had ongoing ear infections for several months which led to pneumonia. If I had to do it over again, I'd decline them. FYI - vaccinations are routine immediately after delivery in many hospitals (at least here in the US). Thankfully, I did know about that, and turned those down. Hospital routine here includes Vit K (they claim this is necessary, especially for boys having circumcision, to improve their clotting factors, although they offered it to my girls too !!), and Hepatitis B. Other meds given immediately after birth include silver nitrate/erythromycin in their eyes (to treat possible infection due to contact with birth canal and STD's there). Stay informed; the evidence now points to serious problems in the contents of these vaccines, especially the multi-purpose ones. How can you isolate what a child reacts to, if a vaccine contained 2 or more viruses? Also, there is concern over mercury poisoning through vaccines leading to increased autism rates. If your child is not going to be exposed to likely contaminated people, I would consider delaying or declining vaccinations altogether. Rebekah vaccinations You don't have to fight the medical system and you don't have to feel rushed either. Look around for a doctor that supports a parents choice in either selectively vaxing or not vaxing at all. Take your time and do the research until you feel satisfied you are making the best choice for yourself and your child. The schedule that is put forth by the AAP is only a guideline set up to fit the usual, routine well baby schedule checkups. It's not written in stone. You can also choose to do only one at a time, or break up some shots into only vaccine rather than multiple shots in one. Don't let anyone tell you it HAS to be done at 2-4-6 months etc. We have a wonderful doctor that not only supports informed consent but does not start vaccinating a child until he/she is 12 months old. Date: Mon, 25 Oct 2004 10:31:07 -0700 (PDT) From: Pratick Mukherjee <pratickmukherjee@...> Greetings, We will soon be asked to have our daughter vaccinated (she is 4 weeks old now). I have been reading about the dangers of vaccination and am really concerned about it. What have others on this group chosen to do? Take a chance and have the " immunisations " done, or fight it out with the medical system? Please share your experience. Regards, Pratick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 Gee whiz Marcos, have you been living under a rock your whole life.....lol? Didn't you get most of these vaccines as a kid? As for the varicella, if you had chicken pox as a kid, you shouldn't need that one. I don't know anyone who didn't get chicken pox as a kid.....hence the " living under a rock " comment I know that many CMLer's have had the flu shot and as long as it's not a live vaccine, there shouldn't be a problem. As for the others, I would check out how much you're at risk of catching those diseases before deciding whether or not to have the vaccine. Isn't polio pretty much eradicated now? I didn't even know that there was a vaccine for TB but I found a site that suggests it only be given to a select group of people: http://www.cdc.gov/tb/pubs/tbfactsheets/BCG.htm There are risks with all vaccines, the question is, does the benefit outweigh the risk? I'm going through this decision right now with my daughter. The province wants to give the HPV vaccine to all 13 year old girls but from all the reading I've done so far, I have decided that the risk of the vaccine actually is outweighing the benefit so I won't have her vaccinated with this particular vaccine. On the other hand, I did let her have the Hep B vaccine because I feel that the benefit from that one does outweigh the risk. Look at each vaccine, the risk they impose and your likelihood of coming into contact with that disease, then decide if you really need them. Also, if you do decide to get them, be sure to ask about interactions with each other. I know that some vaccines are OK to combine with each other (MMR for example) but others must be given alone (like the HPV vaccine). Take care, Tracey > > I need to get my vaccinations in order and just left a message at my > local hemato asking about incompatibility with cml/gleevec, but it > takes sometime a while to get an answer. And he's not a cml specialist > so I figure it won't hurt to get more opinions. I am 40, dx in march > 05, in CCR for 2 years, 400mg of gleevec and doing pretty well in > general. The vaccinations I may (or may not) need are : > mumps, measles, rubella (MMR) > diphtheria , polio > tetanus > pertussis > haemophilus influenza type B > hepatitis B > varicella > meningitis > TB > > Marcos > > > -- > Marcos Perreau Guimaraes > Suppes Brain Lab > Ventura Hall - CSLI > Stanford University > 220 Panama street > Stanford CA 94305-4101 > 650 614 2305 > 650 630 5015 (cell) > marcospg@... > montereyunderwater@... > www.stanford.edu/~marcospg/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 I should have mentioned that it is a bureaucratic problem, nothing rational I am sure I got most of these but a very long time ago and it would take too long to get a hand on my vaccination records that are somewhere in France. Most of the vaccines would have to be redone anyway, again for bureaucratic reasons. I even got a tetanus shot with 8 stitches in Hawaii in January, but I don't have the record. I had series of vaccines for travel or when I was in the army, but last time was about 15 years ago. I didn't get sick from it, but I didn't have cml. Marcos. On 9/12/07, Tracey <traceyincanada@...> wrote: > > Gee whiz Marcos, have you been living under a rock your whole > life.....lol? Didn't you get most of these vaccines as a kid? > > As for the varicella, if you had chicken pox as a kid, you shouldn't > need that one. I don't know anyone who didn't get chicken pox as a > kid.....hence the " living under a rock " comment > > I know that many CMLer's have had the flu shot and as long as it's > not a live vaccine, there shouldn't be a problem. > > As for the others, I would check out how much you're at risk of > catching those diseases before deciding whether or not to have the > vaccine. > > Isn't polio pretty much eradicated now? I didn't even know that > there was a vaccine for TB but I found a site that suggests it only > be given to a select group of people: > http://www.cdc.gov/tb/pubs/tbfactsheets/BCG.htm > > There are risks with all vaccines, the question is, does the benefit > outweigh the risk? I'm going through this decision right now with my > daughter. The province wants to give the HPV vaccine to all 13 year > old girls but from all the reading I've done so far, I have decided > that the risk of the vaccine actually is outweighing the benefit so I > won't have her vaccinated with this particular vaccine. On the other > hand, I did let her have the Hep B vaccine because I feel that the > benefit from that one does outweigh the risk. > > Look at each vaccine, the risk they impose and your likelihood of > coming into contact with that disease, then decide if you really need > them. Also, if you do decide to get them, be sure to ask about > interactions with each other. I know that some vaccines are OK to > combine with each other (MMR for example) but others must be given > alone (like the HPV vaccine). > > Take care, > Tracey > > > > > > I need to get my vaccinations in order and just left a message at my > > local hemato asking about incompatibility with cml/gleevec, but it > > takes sometime a while to get an answer. And he's not a cml > specialist > > so I figure it won't hurt to get more opinions. I am 40, dx in march > > 05, in CCR for 2 years, 400mg of gleevec and doing pretty well in > > general. The vaccinations I may (or may not) need are : > > mumps, measles, rubella (MMR) > > diphtheria , polio > > tetanus > > pertussis > > haemophilus influenza type B > > hepatitis B > > varicella > > meningitis > > TB > > > > Marcos > > > > > > -- > > Marcos Perreau Guimaraes > > Suppes Brain Lab > > Ventura Hall - CSLI > > Stanford University > > 220 Panama street > > Stanford CA 94305-4101 > > 650 614 2305 > > 650 630 5015 (cell) > > marcospg@... > > montereyunderwater@... > > www.stanford.edu/~marcospg/ > > > > > -- Marcos Perreau Guimaraes Suppes Brain Lab Ventura Hall - CSLI Stanford University 220 Panama street Stanford CA 94305-4101 650 614 2305 650 630 5015 (cell) marcospg@... montereyunderwater@... www.stanford.edu/~marcospg/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 In that case, you can get blood tests to determine if you already have antibodies (immunity) to some of those diseases thus sparing you the need for the vaccine. Many of those vaccines are good for life and don't need to be repeated so if you had the vaccine at one time, you should still have the antibodies. Tracey > > > > > > I need to get my vaccinations in order and just left a message at my > > > local hemato asking about incompatibility with cml/gleevec, but it > > > takes sometime a while to get an answer. And he's not a cml > > specialist > > > so I figure it won't hurt to get more opinions. I am 40, dx in march > > > 05, in CCR for 2 years, 400mg of gleevec and doing pretty well in > > > general. The vaccinations I may (or may not) need are : > > > mumps, measles, rubella (MMR) > > > diphtheria , polio > > > tetanus > > > pertussis > > > haemophilus influenza type B > > > hepatitis B > > > varicella > > > meningitis > > > TB > > > > > > Marcos > > > > > > > > > -- > > > Marcos Perreau Guimaraes > > > Suppes Brain Lab > > > Ventura Hall - CSLI > > > Stanford University > > > 220 Panama street > > > Stanford CA 94305-4101 > > > 650 614 2305 > > > 650 630 5015 (cell) > > > marcospg@ > > > montereyunderwater@ > > > www.stanford.edu/~marcospg/ > > > > > > > > > > > > > -- > Marcos Perreau Guimaraes > Suppes Brain Lab > Ventura Hall - CSLI > Stanford University > 220 Panama street > Stanford CA 94305-4101 > 650 614 2305 > 650 630 5015 (cell) > marcospg@... > montereyunderwater@... > www.stanford.edu/~marcospg/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 Thanks Tracey. I just got a word from the hemato telling that there is no restriction on vaccines because of the cml (I have normal blood counts). I agree they do carry some risk, I ll see my pcp at Kaiser to discuss that and get what I need and what I can evade. Cheers, Marcos. On 9/12/07, Tracey <traceyincanada@...> wrote: > > In that case, you can get blood tests to determine if you already > have antibodies (immunity) to some of those diseases thus sparing you > the need for the vaccine. Many of those vaccines are good for life > and don't need to be repeated so if you had the vaccine at one time, > you should still have the antibodies. > > Tracey > > > > > > > > > > I need to get my vaccinations in order and just left a message > at my > > > > local hemato asking about incompatibility with cml/gleevec, but > it > > > > takes sometime a while to get an answer. And he's not a cml > > > specialist > > > > so I figure it won't hurt to get more opinions. I am 40, dx in > march > > > > 05, in CCR for 2 years, 400mg of gleevec and doing pretty well > in > > > > general. The vaccinations I may (or may not) need are : > > > > mumps, measles, rubella (MMR) > > > > diphtheria , polio > > > > tetanus > > > > pertussis > > > > haemophilus influenza type B > > > > hepatitis B > > > > varicella > > > > meningitis > > > > TB > > > > > > > > Marcos > > > > > > > > > > > > -- > > > > Marcos Perreau Guimaraes > > > > Suppes Brain Lab > > > > Ventura Hall - CSLI > > > > Stanford University > > > > 220 Panama street > > > > Stanford CA 94305-4101 > > > > 650 614 2305 > > > > 650 630 5015 (cell) > > > > marcospg@ > > > > montereyunderwater@ > > > > www.stanford.edu/~marcospg/ > > > > > > > > > > > > > > > > > > > > > -- > > Marcos Perreau Guimaraes > > Suppes Brain Lab > > Ventura Hall - CSLI > > Stanford University > > 220 Panama street > > Stanford CA 94305-4101 > > 650 614 2305 > > 650 630 5015 (cell) > > marcospg@... > > montereyunderwater@... > > www.stanford.edu/~marcospg/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2007 Report Share Posted November 22, 2007 Robyn, Wait until after you see Dr. G to do anything concerning vaccines. Remember most everyone else is vaccinated so your child is safe. Anyway, Dr. G does vaccines on an alternate schedule so as not to tax the immune system. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2007 Report Share Posted November 22, 2007 Thanks, Marcia. That's what my gut was telling me. Happy Thanksgiving! Robyn Marcia Hinds <hindssite@...> wrote: Robyn, Wait until after you see Dr. G to do anything concerning vaccines. Remember most everyone else is vaccinated so your child is safe. Anyway, Dr. G does vaccines on an alternate schedule so as not to tax the immune system. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Does anyone have a " list " of the alternate vaccination schedule Dr. Goldberg uses? If so, would you send it to me or post it? Thanks- --- Robyn & Greg Coggins <rngcoggs@...> wrote: > Thanks, Marcia. That's what my gut was telling me. > > Happy Thanksgiving! > > Robyn > > Marcia Hinds <hindssite@...> wrote: > Robyn, > > Wait until after you see Dr. G to do anything > concerning vaccines. Remember > most everyone else is vaccinated so your child is > safe. Anyway, Dr. G does > vaccines on an alternate schedule so as not to tax > the immune system. > > Marcia > > [Non-text portions of this message have been > removed] > > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better pen pal. Text or chat with friends inside . See how. http://overview.mail./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2007 Report Share Posted November 26, 2007 , It's old, but here it is! I don't think that anything has really changed as far as his opinions on this, so it's probably still " good " . I pulled it off of the " Ask Dr. Goldberg " section on his website a long time ago... I don't know if they still have that section with the new site design. By the way, he had us check our little guy for immunity gained from the MMR and since he DID have immunity, we were able to avoid the kindergarten booster. We have to take a letter in to the school EVERY year stating that he showed immunity, though. Caroline Here's what Dr. G said... " In general (depending upon the child, general health, allergy prevention, etc.) I would give the DPT / Polio / Hib (generally OK together) at 2, 4, 6 months old, DPT / Polio booster at 18 months old (note: still believe in Tylenol or Advil or Motrin for 24 hrs starting with a dose before heading to the physicians office), I do not give Hepatitis B in the nursery but generally give it during baby visits (not at same time as other vaccines). MMR (I do not generally separate it) can be given 12 15 months old (depending on measles risk in your area, time of year, etc.) ?? delay a little later (IF no exposure risk to measles). I am not currently in favor of the chickenpox vaccine before adolescence and do not recommend the 5 year MMR to any children in the practice (believe 10 11 yr. old booster far more logical medically). As I have discussed, the biggest key to lowering the risks for your son, is good allergy control, dietary eliminations, maintain a healthy not stressed child (under which circumstances the vaccines are fine too give) Again please see presentations and discussions on this site for further discussion. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Hi Amy, Personally, I have had just about every vaccination there is, including Typhoid, Hep A and B, Cholera and Yellow Fever. I had the first vaccinations for polio (thank God) in the early 50s and all the other kid vacs of my " era " . We didn't have the MMR vac at the time, so I got measles, mumps, and chicken pox, as did my peers. CMT manifested symptoms in me at age 7. This was not due to vaccinations, it is because CMT is in my unique genetic code and that's when it first became manifest. Below is info from Quackwatch.com and you might find this link interesting http://en.wikipedia.org/wiki/Vaccination Gretchen from Quackwatch.com Misconceptions about Immunization Misconception #9: Vaccines cause autism On October 3, 1999, Cable News Network aired a program on which the parents of three-year-old Liam Reynolds stated that he had developed autism two weeks after receiving measles, mumps and rubella (MMR) vaccine [1]. The program included the views of Cave, M.D., a Louisiana physician who " specializes in treating autism " with diet and nutritional supplements [2]. An American Academy of Pediatrics official and explained why there was no reason to believe that a link exists between autism and vaccination. But the dramatic before-and- after videotapes of the child probably had enough impact to persuade many parents to avoid having their children vaccinated. The program's narrator stated there had been " a puzzling jump in the number of children being diagnosed with autism. " However, the number being diagnosed may reflect increased reporting of cases rather than an increase in actual incidence. Autism is a chronic developmental disorder characterized by problems in social interaction, communication, and restrictive and repetitive interests and activities. Autism may be initially noted in infancy as impaired attachment, but it is most often first identified in toddlers, mostly boys, from 18 to 30 months of age. Boys are 3-4 times more likely to be afflicted with autism than girls. Girls as a group, however, may be more severely affected. Correct diagnosis of autism depends on an accurate developmental history focused on types of behaviors typical of autism and on evaluation of functional skills. Approximately 75% of persons with autism are mentally retarded. Fewer than 5% of children with autistic traits have fragile X or another known chromosomal abnormality. Although no cure exists, autism is treatable. Symptoms associated with autism often improve as children start to acquire language and learn how to communicate their needs. In most cases of autism, no cause is apparent. In a few cases, biologic causes have been identified, although none are unique to autism. Some prenatal factors include intrauterine rubella; tuberous sclerosis; chromosomal abnormalities, such as Down's syndrome; as well as brain abnormalities, such as hydrocephalus. Frequently cited postnatal conditions associated with autism are untreated phenylketonuria, infantile spasms, and herpes simplex encephalitis. In the majority of cases, however, no underlying cause can be identified. The current theory favored by many experts is that autism is a genetically-based disorder that occurs before birth [3]. Studies of persons with autism are finding abnormalities in brain structures that develop in the first few weeks of fetal development [4]. Evidence that genetics is an important, but not exclusive, cause of autism includes a 3-8% risk of recurrence in families with one affected child. A working group convened by the National Institutes of Health in 1995 reached a consensus that autism is a genetic condition. An issue unresolved by the group was the role of immune factors in autism spectrum disorders; it was suggested that studies to clarify the situation are needed. No Evidence of Link Some parents of children with autism believe that there is a link between measles, mumps, rubella (MMR) vaccine and autism. However, there is no sensible reason to believe that any vaccine can cause autism or any kind of behavioral disorder. Typically, symptoms of autism are first noted by parents as their child begins to have difficulty with delays in speaking after age one. MMR vaccine is first given to children at 12-15 months of age. Since this is also an age when autism commonly becomes apparent, it is not surprising that autism follows MMR immunization in some cases. However, by far the most logical explanation is coincidence, not cause-and-effect. If measles vaccine or any other vaccine causes autism, it would have to be a very rare occurrence, because millions of children have received vaccines without ill health effects. The only " evidence " linking MMR vaccine and autism was published in the British journal Lancet in 1998 [5]. An editorial published in the same issue, however, discussed concerns about the validity of the study [6]. Based on data from 12 patients, Dr. Wakefield (a British gastroenterologist) and colleagues speculated that MMR vaccine may have been the possible cause of bowel problems which led to a decreased absorption of essential vitamins and nutrients which resulted in developmental disorders like autism. No scientific analyses were reported, however, to substantiate the theory. Whether this series of 12 cases represent an unusual or unique clinical syndrome is difficult to judge without knowing the size of the patient population and time period over which the cases were identified. If there happened to be selective referral of patients with autism to the researchers' practice, for example, the reported case series may simply reflect such referral bias. Moreover, the theory that autism may be caused by poor absorption of nutrients due to bowel inflammation is senseless and is not supported by the clinical data. In at least 4 of the 12 cases, behavioral problems appeared before the onset of symptoms of inflammatory bowel disease. Furthermore, since publication of their original report in February of 1998, Wakefield and colleagues have published another study in which highly specific laboratory assays in patients with inflammatory bowel disease, the posited mechanism for autism after MMR vaccination, were negative for measles virus [7,8]. Other recent investigations also do not support a causal association between MMR (or other measles-containing vaccines) and autism or inflammatory bowel disease (IBD) [9-13]. In one investigation, a Working Party on MMR Vaccine of the United Kingdom's Committee on Safety of Medicines (1999) was charged with the evaluation of several hundred reports, collected by a firm of lawyers, of autism, Crohn's disease, or similar disorders developing after receipt of MMR or MR vaccines. The Working Party conducted a systematic, standardized review of parental and physician information. Although acknowledging that it is impossible to prove or refute the suggested associations (because of variable data quality, biased selection of cases, and lack of a control group), the Working Party concluded that the information available " ... did not support the suggested causal associations or give cause for concern about the safety of MMR or MR vaccines. " [12] In March 2000, a Medical Research Council report concludes that between March 1998 and September 1999 no new evidence had suggested a causal link between MMR and autism or IBD [13]. The American Medical Association has reached the same conclusion. A study by and colleagues provides population-based evidence that overcomes many of the limitations faced by the Working Party and by Wakefield and colleagues [14,15]. The authors identified all 498 known cases of autism spectrum disorders (ASD) in certain districts of London born in 1979 or later and linked them to an independent regional vaccination registry. ASD includes classical autism, atypical autism, and Asperger's syndrome, but the results were similar when cases of classical autism were analyzed separately. The authors noted: The known number of ASD cases has been increasing since 1979, but there was no jump after the introduction of MMR vaccine in 1988. Cases vaccinated before 18 months of age had similar ages at diagnosis as did cases who had been vaccinated after 18 months or not vaccinated, indicating that vaccination does not result in earlier expression of autistic characteristics. At age two years, the MMR vaccination coverage among the ASD cases was nearly identical to coverage in children in the same birth cohorts in the whole region, providing evidence of an overall lack of association with vaccination. The first diagnosis of autism or initial signs of behavioral regression were not more likely to occur within time periods following vaccination than during other time periods. A weak statistical association existed between MMR vaccination and initial parental concern, but this appears to have been due to parents' difficulty in recalling precise age at onset and a preference for approximating the age as 18 months. A study of the population of children in two communities in Sweden also found no evidence of an association between MMR vaccination and autism [16]. That study found no difference in the prevalence of autism in children born after the introduction of MMR vaccination in Sweden compared with children born before. In January 1990, an Institute of Medicine committee examining possible health effects associated with DPT vaccine concluded that there was no evidence to indicate a causal relation between DPT vaccine or the pertussis component of DPT vaccine and autism [17]. Also, data obtained from CDC's Monitoring System for Adverse Events Following Immunization (MASAEFI) system, showed no reports of autism occurring within 28 days of DPT immunization from 1978-1990, a period in which approximately 80.1 million doses of DPT vaccine were administered in the United States. From January 1990 through February 1998, only 15 cases of autism behavior disorder after immunization were reported to the Vaccine Adverse Events Reporting System (VAERS). Because of the small number of reports over an 8-year period, the cases reported are likely to represent unrelated chance occurrences that happened around the time of vaccination. The most frequent vaccines cited in the reports were diphtheria, tetanus, pertussis (DPT), oral polio vaccine (OPV), and MMR. Other vaccines reported as having a possible association with autism were Haemophilus influenzae type B and Hepatitis B. In 2000, the American Academy of Pediatrics convened a multidisciplinary panel of experts ro review what is known about the development, epidemiology, and genetics of ASD and the hypothesized associations with IBD, measles, and MMR vaccine. The panel concluded: Although the possible association with MMR vaccine has received much public and political attention and there are many who have derived their own conclusions based on personal experiences, the available evidence does not support the hypothesis that MMR vaccine causes autism or associated disorders or IBD. Separate administration of measles, mumps, and rubella vaccines to children provides no benefit over administration of the combination MMR vaccine and would result in delayed or missed immunizations. Pediatricians need to work with families to ensure that children are protected early in the second year of life from these preventable diseases. Continued scientific efforts need to be directed to the identification of the causes of ASD [18]. The fact that autism is diagnosed during the second or third year of life does not mean that it began at that age. Analyses of home movies made from birth onward have shown that most children who are diagnosed as autistic during the second or third year have abnormal signs during the first year—and some even show abnormalities at birth [19-26]. Recently, the National Childhood Encephalopathy Study (NCES) was examined to see if there was any link between measles vaccine and neurological events. Researchers in England found no indication that measles vaccine contributes to the development of educational and behavioral deficits or other possible signs of long-term neurological damage [27]. Most people have no adverse reaction after receiving a MMR vaccination. About 5%-15% of vaccines may develop a fever 5-12 days after MMR vaccination and 5% may develop a rash. Central nervous system conditions, including encephalitis and encephalopathy, have been reported with a frequency of less than one per million doses administered. In July 2002, after Wakefield testified before a U.S. Congressional committee chaired by a vaccine opponent, Dr. Fitzpatrick (a British general physician and parenbt of an autistic child) charged that Wakefield " has opted out of medical science to join the world of pseudoscientific dogma, media celebrity and populist campaigning. " [29] In a devastating review of the conduct of Wakefield and Shattock, a pharmacist and vaccine opponent who runs the so-called Autism Research Unit at the University of Sunderland, Fitzpatrick stated: There is now a flourishing network of private laboratories offering urine and blood tests of the sort carried out by Mr Shattock—all of no recognised diagnostic value. There is a substantial business sector selling dietary supplements, vitamins, minerals, enzymes and all manner of special dietary products —all of no proven therapeutic value. The common feature of both tests and supplements is their exorbitant cost, suggesting that high profits are being made from peddling interventions of no proven value, often to desperate parents, many on low incomes. There are other beneficiaries of the anti-MMR campaign. Private GPs are now making profits of several hundred percent from selling separate vaccines. Lawyers are eagerly collecting legal aid fees by inflating the hopes of parents that they may gain substantial compensation for the alleged damages from MMR through the pursuit of litigation. It is not surprising that both are enthusiastic supporters of Dr Wakefield's crusade. It seems that Britain's investigative journalists are so smitten by Dr Wakefield's charisma and so credulous towards junk science, that they are reluctant to investigate the real abuses generated around the anti-MMR campaign [29]. As with the administration of any agent that can produce fever, some children may have a febrile seizure. Most that follow measles vaccination are simple febrile seizures and affect children without known risk factors. An increased risk of febrile convulsions may occur among children with a prior history of convulsions. The Bottom Line There are no proven data to suggest that measles vaccine will increase the risk of developing autism or any other behavioral disorder [28]. The known benefits vastly exceed any unknown risks. The CDC continues to recommend two doses of MMR vaccine for all children who do not have a known medical contraindication; the first dose is recommended at 12-15 months of age and the second dose is recommended at either 4-6 years of age or at 11-12 years of age [30,31]. To assure the safety of vaccines, the CDC, the FDA, the National Institutes of Health (NIH), and other federal agencies routinely examine any new evidence that would suggest possible problems with the safety of vaccines. Currently, CDC is conducting a study in the metropolitan Atlanta area to further evaluate any possible association between MMR vaccination and autism. Immunization against measles has led to a dramatic decrease in the incidence of measles, which is sometimes fatal. I believe that the manner in which CNN covered this issue was extremely irresponsible and will result in the death of children whose parents are scared out of having their children receive it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Amy, forgot to send this in my last post http://en.wikipedia.org/wiki/Vaccine_controversy Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Actually, we don't know exactly what causes genetic mutations in all cases, so in all honesty, vaccinations have to stay on the table for consideration. Too many children (and to a lesser extent, adults) die, or are severely, and permanently, disabled each year due specifically to vaccinations. And those are just the ones that we know about due to lawsuits/reporting. And, remember, each corpus is different, and so responds to environmental impacts differently. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Well, we could debate immunizations until the cows come home, but I will refrain. What I will say is that as there are in many areas, there is alot of " conflicts of interest " going on within large pharmaceutical companies, the CDC, the FDA, etc. There are people who stand to lose financially if vaccinations and other drugs are pulled from the market. Pediatricians are at the bottom of the food chain when it comes to pay, and vaccinations are another revenue generating " vertical market " for them. There are also lots of harmful preservatives that that are still used in many of these vaccinations, and I believe that this is just another area where people should educate themselves about this as well as other things. The verdict on whether Autism is caused by the MMR vac is still out there. I personally believe that vaccinations should be given only if the benefit outweighs the risk. It seems to me that the risks could be chronic diseases like diabetes, autism, MS, etc...and these are too serious to discount. Diseases like Polio are really serious too, but I do not necessarily believe that the vaccination itself has decreased the incidents of polio, rather general improvements in nutrition, sanitation, and standards in medical care might be the reason Polio has been practically eradicated. I was vaccinated too...but it was because my parents were of that generation that thought that doctors were " Gods " and failed to use their own reasoning skills and trusted that the doctors knew what they were doing. We all know that doctors can make mistakes. As far as the link with vaccinations and CMT...for me, I believe that I was possibly born with a mutation in my f/Simple gene that eventually led to CMT. However, I believe that had I not been vaccinated, had I not had so much radiation as a child from bladder problems, had I not been given so many antibiotics over the course of my life, had I not had too much sun exposure, had I not eaten crap most of my life, my DNA might have not have been damaged to a point to where this mutated gene decided to " activate " . My hope is that by avoiding all of those items listed above with my children, it may perhaps " spare " them of their mutated gene/CMT raising its ugly head too. That is at least my " hope " for my daughter, Hope:) Amy Hodge Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 I wondered that after my son was diagnosed with CMT at age 3. We thought of anything that could have caused it. The CMT was caused by something in his genes (DNA), not anything in the environment. You still wonder about it though. He recently had the Polio vaccine at age 4 and could barely walk for 2 days. I think it was because he was sore and his muscles weaken so much more than other kids. We have done all of the vaccines on him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Hi Amy, You said < " had I not been given so many antibiotics over the course of my life, had I not had too much sun exposure, had I not eaten crap most of my life, my DNA might have not have been damaged to a point to where this mutated gene decided to " activate " . > I just want you to know I had many antibiotics over the years, hard core ones both intreveinous and strong injection types) especially for Rheumatic Fever and several major staph infections. While my diet was good as a child, once away at college my diet included way to much alcohol. other substances and tons of junk food. In addition, I grew up on the So. California beaches, lived in the sun of Phoenix for a long time, and vacationed often at numerous beaches - I had intense exposure to sun for close to 50 years. Having a deep tan was extremely important to me for quite awhile. None of this had anything to do with CMT manifesting in me. (The alcohol only made CMT worse and my general health suffered greatly) Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Gretchen's response was spot-on. I'd just like to stress that CMT is a genetic disorder. It is triggered by choosing the right (or wrong) parents, not by getting a vaccine. I am also an MD and I have vaccinated all of my children. I strongly believe that it is protective and a good thing to do. If a very few folks choose to skip it they will probably be lucky enough to be protected by the rest of us who did get vaccinated and our " herd immunity " . However, the wild-type pertussis, measles, polio, meningitis, etc, etc are SOOOO much worse than vaccine side effects, possibly deadly. I wouldn't take the chance with MY children. At the very worst, if there are side effects I know to be watching for them and treating them because I know the moment of exposure, unlike a random encounter with a virulent bug. There is a good reason why childhood deaths are now shockingly rare when it was not uncommon for several siblings to not reach adulthood in our grandparent's era and before. Vaccinations have had the biggest positive impact on childhood mortality rates of almost any of our societal improvements. Holli in Topanga, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Amy, You echo my words. Adam's CMT was not bad and 's was so mild the doctor was not even sure that she had CMT. UNTIL the vaccinations. I finally found a doctor that agreed with me about the neuro- toxic effects of the DPT series. She explained that the old DPT was a toxin but the new killed version is safe. I broke down and let my CMT kids have the rest of the series of killed DPT. I was so scared but it was okay. The set at 4 is what really set the CMT off in my kids. My experience of course. Think about how many of our kids are diagnosed with CMT after the first school shots. So YES I did see a trigger with the vaccinations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Originally I sent my response to Amy personally and noit to the group, but now I think I'll send it to all since there are so many of you who unwisely seem to agree with her. Amy, I apologize in advance if my email seems harsh, but I feel very strongly. In my youth I worked in a neurological hospital. If you have ever seen what measles can do to a child in terms of retardation and/or blindness, you would run out and get your child vaccinated. CMT was around long before vaccinations. You might reconsider your decision after reading the following: _http://www.waldorfcritics.org/active/articles/AtlanticMonthlyVaccines.html_ (http://www.waldorfcritics.org/active/articles/AtlanticMonthlyVaccines.html) _http://www.spiked-online.com/Articles/0000000CA6D2.htm_ (http://www.spiked-online.com/Articles/0000000CA6D2.htm) I have personally seen what measles can do, and I have heard from a late friend of my mother's how very sick she was as a child with whooping cough. You are doing nothing more than relying on other parents to vaccinate their children so yours won't get sick. That is at the very least shortsighted as enough of you could do the same thing, which would assure the return of these dread diseases to say nothing about the added risk you are imposing on the immune compromised children who can't get the vaccinations. Elinor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Hi all, I have no idea about whether or not vaccinations could set off CMT although I believe that they can set off other things so CMT could quite easily be one of them. I just wanted to say though, that I have two children with CMT 1A, a 12 yr old girl and a 6 yr old boy and neither of them have had vaccinations at all as I believe they are extremely harmful. So they haven't had anything to set off their CMT, it just progressed naturally (or as naturally as something as stupid as CMT can progress). Megs from NZ Amy, You echo my words. Adam's CMT was not bad and 's was so mild the doctor was not even sure that she had CMT. UNTIL the vaccinations. I finally found a doctor that agreed with me about the neuro- toxic effects of the DPT series. She explained that the old DPT was a toxin but the new killed version is safe. I broke down and let my CMT kids have the rest of the series of killed DPT. I was so scared but it was okay. The set at 4 is what really set the CMT off in my kids. My experience of course. Think about how many of our kids are diagnosed with CMT after the first school shots. So YES I did see a trigger with the vaccinations. _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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