Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 Hi, and welcome, There are several people on this list with children in your childs age group that will help you with their experiences and answer your questions. Welcome to our wonderful group of caring and loving folks. If you go the egroups web site and pull up liversupport-L. then go to messages, you will find the archives . We have just cone thru profiles or bios about our experiences with AIH. There are also a lot of research articles there also. Get ready for tons of mail. We are all here to share and hopefully help. Hugs, Ginger-gehud119@... -AIH-IN FLA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 Welcome to our group. My 42 year old daughter was diagnosed with AIH in July of this year. I, like you, had many questions , since I had never heard of this disease before. This is a great group as far as sharing experiences and knowledge. If you have trouble getting information, I have saved many files in the past months and would be happy to share. Let me know. Also the archives are loaded with materials. You will find that address at the bottom of most emails. It is 1/9699/8/_/435357/_/971842572/ Good luck!! Pat (Cyndi's Mom) fisho@... [ ] many questions >My 15 year old daughter has just been diagnosed with autoimmune >hepatitis. I have so many questions, have read as much as I can, and >am seeking additional information that anyone can share. >She has started prednizone treatment and will soon changeover to >imuran. No biopsy yet - dr. plans to wait about 6 months. >Please refer us to any sites, books, etc. you have found helpful. >Also, please share personal stories and suggestions. Thank you. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 Hi and Welcome to our group.... Their are alot of people who can answer all your questions....and lots of others who give great support when you need it.... So ask away and be prepared to get lots of e-mail... I am also a mom here...My son just turned 18 last week and he was diagnosed with AIH and PSC (both auto-immune liver diseases..) over 2 years ago....He also has Crohns (diagnosed age 9 ) and Rhuematoid Arthritis (diagnosed age 14).. Tell us what your daughters name and yours....and a little about yourselves.... Tyler is my " baby " I also have a 22 yr old son and an almost 26 yr old daughter... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 Welcome to the group. What is your name? Genny/Jodi's Mom/AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 -Yes, Dr. Brackmann was my surgeon. He was great. It'll be 4 weeks this Monday since I've had my CWD and so far so good. It's my first (and hopefully last, besides the reconstruction) time tackling ctoma. Feel free to ask me anything I can answer I will be happy to do. -- In cholesteatoma , " davein_gaz " <davein_gaz@y...> wrote: > > > Hi, > has anyone had a surgery done by Dr.Brackman at the House Ear > Clininc? I have had 8 sugeries to date and was wonder if anyone has > been able to get rid of this horrible thing for good after as many > unsuccessful attempts? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 > > Our DAN doc prescribed some supplements I can't find: > > -MCT oil ( medium chain triglycerides): does anyone know of a brand of > MCT? Stores where I didn't find it said they could order it for me > if I knew what brand makes it. http://www.illnessisoptional.com/ace/product.asp?ProdID=1773 & CtgID= http://spinelife.stores..net/sp616.html (medium chain triglycerides) > -Magnesium citrate: I use to give magnesium oxide; I found Magnesium > citrate just in the form of tablets, I wonder if anyone knows of a brand > that makes capsules of http://www.illnessisoptional.com/ace/product.asp?ProdID=3445 & CtgID= http://www.illnessisoptional.com/ace/product.asp?ProdID=18773 & CtgID= http://www.illnessisoptional.com/ace/product.asp?ProdID=12060 & CtgID= http://www.illnessisoptional.com/ace/product.asp?ProdID=4312 & CtgID= (there are more brands at the same site) These brands are best ordered online rather than through a local health food store. Twinlab has each of the ones you want, too, I think and can be ordered through a HFS. W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Try Galaxy International Foods Rice slices. I get it at my local health food store. My son likes the pepper jack flavor on pizza. It's not really spicy, just a hint of pepper. It's GFCFSF and contains no preservatives. It also melts under the broiler. I've switched from rice milk to Dari-free, sold by Kirkmans. It's also GFCFSF. We've been using canola oil instead of butter, even on toast. My son eats it fine, I just add a little salt to the oil and drizzle it on. Fleishman's diet margarine is supposed to be GFCFSF but it contains partially hydrogenated oils so I rarely use it. Hope this helps. Sissy [ ] Many questions Hi all, Our DAN doc prescribed some supplements I can't find: -MCT oil ( medium chain triglycerides): does anyone know of a brand of MCT? Stores where I didn't find it said they could order it for me if I knew what brand makes it. -Magnesium citrate: I use to give magnesium oxide; I found Magnesium citrate just in the form of tablets, I wonder if anyone knows of a brand that makes capsules of it. Latest tests showed sensitivity to soy bean and many nuts including almonds: -Are there other brands of GFCF rice milk besides Pacific? - Is there any GFCFSF icecream? Cheese? Margarine? TIA for any help, Sophia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Thanks and Sissy, your links and tips help a lot! Do you know of any brands that does GFCFSF yogurt or icecream? Sophia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Hi Sophia, There are some good GFCF sorbets that I think are also SF. Belizza and Blue Moon come to mind. They're not cheap. S S Thanks and Sissy, your links and tips help a lot!<br> <br> Do you know of any brands that does GFCFSF yogurt or icecream?<br> <br> Sophia<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 HEB (Central Market)grocery store has some excellent sorbets that are very good.... I really like their mango sorbet! Bethany > > Thanks and Sissy, your links and tips help a lot!<br> > <br> > Do you know of any brands that does GFCFSF yogurt or icecream?<br> > <br> > Sophia<br> > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Be aware that Dari-Free does (or at least did, if it's the same as what used to be Vance's Dari-Free) contain significant amounts of titanium and some kids using it were coming back with high titanium on their hair tests. S S <p>Try Galaxy International Foods Rice slices. I get it at my local health food store. My son likes the pepper jack flavor on pizza. It's not really spicy, just a hint of pepper. It's GFCFSF and contains no preservatives. It also melts under the broiler. <br> <br> I've switched from rice milk to Dari-free, sold by Kirkmans. It's also GFCFSF. <br> <br> We've been using canola oil instead of butter, even on toast. My son eats it fine, I just add a little salt to the oil and drizzle it on. Fleishman's diet margarine is supposed to be GFCFSF but it contains partially hydrogenated oils so I rarely use it. <br> <br> Hope this helps.<br> <br> Sissy<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 You've got to be kidding! My son already has slightly high titanium. Re: [ ] Many questions Be aware that Dari-Free does (or at least did, if it's the same as what used to be Vance's Dari-Free) contain significant amounts of titanium and some kids using it were coming back with high titanium on their hair tests. S S <p>Try Galaxy International Foods Rice slices. I get it at my local health food store. My son likes the pepper jack flavor on pizza. It's not really spicy, just a hint of pepper. It's GFCFSF and contains no preservatives. It also melts under the broiler. <br> <br> I've switched from rice milk to Dari-free, sold by Kirkmans. It's also GFCFSF. <br> <br> We've been using canola oil instead of butter, even on toast. My son eats it fine, I just add a little salt to the oil and drizzle it on. Fleishman's diet margarine is supposed to be GFCFSF but it contains partially hydrogenated oils so I rarely use it. <br> <br> Hope this helps.<br> <br> Sissy<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Hi, Dr. Amy's site at www.holisticheal.com sells Mag. Citrate (that's where we get ours), here is the link http://www.holisticheal.com/store/product.php? productid=27 & cat=0 & page=1 We get our MCT oil from our DAN! office, the brand is Vitamin Research Products, 16 fl. oz. I think we paid like $13.00 for it. The website on the bottle says www. vrp.com. I can't help you with the other things, sorry. HTH, > > > Hi all, > > Our DAN doc prescribed some supplements I can't find: > > -MCT oil ( medium chain triglycerides): does anyone know of a brand of > MCT? Stores where I didn't find it said they could order it for me > if I knew what brand makes it. > > -Magnesium citrate: I use to give magnesium oxide; I found Magnesium > citrate just in the form of tablets, I wonder if anyone knows of a brand > that makes capsules of it. > > Latest tests showed sensitivity to soy bean and many nuts including > almonds: > > -Are there other brands of GFCF rice milk besides Pacific? > > - Is there any GFCFSF icecream? Cheese? Margarine? > > TIA for any help, > > Sophia > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 Thank you all for your tips, I'll definitely try those sorbets! Dari-free is out of my shopping list Sophia > > <p>Try Galaxy International Foods Rice slices. I get it at my local health food store. My son likes the pepper jack flavor on pizza. It's not really spicy, just a hint of pepper. It's GFCFSF and contains no preservatives. It also melts under the broiler. <br> > <br> > I've switched from rice milk to Dari-free, sold by Kirkmans. It's also GFCFSF. <br> > <br> > We've been using canola oil instead of butter, even on toast. My son eats it fine, I just add a little salt to the oil and drizzle it on. Fleishman's diet margarine is supposed to be GFCFSF but it contains partially hydrogenated oils so I rarely use it. <br> > <br> > Hope this helps.<br> > <br> > Sissy<br> > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 http://www.vancesfoods.com/nutritiondarifree.html We use Pacific brand low fat vanilla almond mylk, available at HFS and some mainstream groceries in their health aisle. We don't drink it straight, but use it on cereal, for baking and in hot chocolate. It's better cold than room temperature. S S <p>You've got to be kidding! My son already has slightly high titanium.<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 Thanks , it was very helpful. I've got tips for my other questions, it may help someone here: Galaxy International Rice Slices,Provamel, 365 and Westsoy rice milk, Fleishmann's light margarine, Ghee purified butter, Rice Dream ice cream (it doesn't have gluten as their milk does), and Devon sorbet are all GFCFSF and NF (nuts free Sophia > > > > > > Hi all, > > > > Our DAN doc prescribed some supplements I can't find: > > > > -MCT oil ( medium chain triglycerides): does anyone know of a > brand of > > MCT? Stores where I didn't find it said they could order it for me > > if I knew what brand makes it. > > > > -Magnesium citrate: I use to give magnesium oxide; I found Magnesium > > citrate just in the form of tablets, I wonder if anyone knows of a > brand > > that makes capsules of it. > > > > Latest tests showed sensitivity to soy bean and many nuts including > > almonds: > > > > -Are there other brands of GFCF rice milk besides Pacific? > > > > - Is there any GFCFSF icecream? Cheese? Margarine? > > > > TIA for any help, > > > > Sophia > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 Comments interspersed. S S Hi all,<br> Latest tests showed sensitivity to soy bean and many nuts including<br> almonds:<br> <br> -Are there other brands of GFCF rice milk besides Pacific?<br> <br> *Is he ok with hazelnut? Pacific makes hazelnut mylk, too. - Is there any GFCFSF icecream? Cheese? Margarine?<br> <br> TIA for any help,<br> <br> Sophia<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Hi there, ooooohhhhh dont ever " chug water " if you feel like something is stuck! that is very bad for your band! I have made that mistake and it only took me once, because there was pain and it was really bad. When you do that you are stretching your pouch and putting more pressure on your band. I would almost think it would be better to pb then to chug water! you will have to be very careful after your fill! there may be certain types of food that you will have to avoid. most people have problems with meats and veggies. I was so nervous after my fill to go to public places. But what I have learned to do (especially in a social situation) is take foods that I know will go down well and eat very slowly! I also visit and talk so it will help me to eat slower. so if you eat very slowly and chew very well and avoid certain foods you should be fine. You will learn what works for you and what doesnt. You do want to avoid pb'ing if at all possible, but sometimes you just cant avoid it. It sort of comes with the territory of the band. One thing that happens after a fill that can be frusturating is the lack of food you can eat. sometimes a bite or two is all you will be able to do. My family feels sorry for me sometimes because I have gotten so frusturated. You sit down to eat and it taste so good and you just want more, not because of hunger, but because it is so yummy. and sometims a bite of something just doesnt fullfill your needs. But when that happens I try to tell myself that I signed up the band and when I did I realized that I put food in a different place in my life when I did this. Food is no longer the outlet, the cruch, the friend, the comfort. It is just food! So, with your new restriction will come new mental and physical stuff! I am getting one next week and I am a bit nervous too. It is my second, and I know I will be going through all of these emotions again. But we just have to keep our eyes on the prize and realize that there is a much bigger picture to look at. :-) So take it easy with yourself and be good to your band! hugs, > > Ok so I'm at the six week mark and I'm getting my first fill on > Saturday. I'm down 25 pounds and can't wait to start losing more. Can > someone please explain to me what the fill is going to be like? What > am I going to feel like? Anthing I should avoid? Anything I need to > know at all? I'm kind of nervous, because for the past few weeks I've > pretty much been able to eat whatever I want and haven't had any > restriction and I'm not sure what to expect. > > Also, can anyone explain to me the art of PBing. There have been a > couple of times where I have eaten something, that has not wanted to > go down very easily, and it's gotten stuck and I just cant figure out > what I'm supposed to do when that happens. I usually panic and start > chugging water to flush it down, but that doesn't feel very well and > I've been told so many times that throwing up can be very dangerous. > So what am I supposed to do when that happens? How does PBing differ > from throwing up? And how the heck do I do it, especially when I'm in > public? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2007 Report Share Posted July 22, 2007 > > It seems I will not be able to take all supplements I need because > of many side effects. I tried 3 diffrent types of vitamin C and I > always got pain in my stomach. It seems i have not only gastritis > and duodenitis but also urcels. I tried lemon juice in water and > pain was very bad too in addition to reflux (I have GERD). Recently > I bought Liver tablets for anemia but it happen to be with vitamin B > 12 so I am not sure that my stomach can take it too. > The most important I can`t take Pau d`Arco for a long time because I > had headches from it. I tested it and it seems it is too bitter to > me.I always have such reaction to bitter herbs amd meds.I have > already dropped Nystatin Powder because I got allergy to it too and > it is so bitter that I can`t stand it any more. > I have tried other supplements but it did not worked. This time I > will try to take big doses of Olive Leaf supplement but again I am > not sure how long I can take it. Too much garlic cause nausea and I > can get reflux too. > I red that MSM can help for lining of the esophagus. If somebody > tried it? it is usually help for joints but it is also recommended > for skin sroblems because it can reduce imflamation. > Sorry for many complains but probably somebody can help.My thrush is > back again. And I am afraid I will be too weak to fight infection if > I will be on such diet for a long time. I can`t resist desire to eat > grains and nuts because probably I am too weak.It seems I will have > to go for Duflican though I am afraid for my liver. I was told that > my bile stuck in the gallbladder and I have cholesistitis. ==> Liz, all of your problems are because you have candida, so it is extremely important that you follow the diet very carefully, including not eating grains. Grains will cause you much more problems and symptoms. Until you can eliminate them the rest of the program cannot help you. Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2007 Report Share Posted December 10, 2007 Dear Necromanser, Table: Measure 2 inches from the edge, you need to work. beyond that point and the width could be about 2 feet. Height about 3 ft and length about 5 feet. That could simulate a horizontal hood. . An anti-cancer drug site was just recently posted by Kerri. Try older messages or go to the pharmacology folder for this site. Hope this helps, Jeanetta prince_sonono <necromanser_blacky@...> wrote: hi jeanetta, sorry about asking u questions away from PTCB & strange questions can u suggest to me a table of what i need to make a very small lab in my house by low cost as possible #2nd i agree with u a bout the color coding # can u tell me about sites concerning with anti cancer drugs ? thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 What meds are you taking? What kind of diet are you on? Happy New Year, Pepper --- tmcle1474 <mclem64@...> wrote: > I was just wondering what ways you all cope with the > tiredness. Do any > of you have this feeling that I have? I feel like I > am too tired to > breathe. I get short of breath so easy. I sleep all > night but by the > time I get a shower every morning, I am exhausted > and feel like I need > to go back to bed. I can't even walk to the mailbox > and back without > feeling like I am going to faint. I also stay so > dizzy all the time. I > thank God everyday for blessing me with my children > because they help > me so much. They are all teenagers and I could not > do it without them. > Many days I cannot even cook them supper. We have a > lot of sandwiches > or take out or what I call bring home. I am sooo > tired. I so want to > get out and live life and not be stuck at home so > much. I am so tired > of fighting this. What used to be a once in a while > thing is now an > every day battle. It is like I have gotten to the > point where I never > stop flaring. I have been to the doctor several > times but nothing seems > to work. How do ya'll cope? Do any of you have this > everyday > discomfort? Is dizziness an everyday factor for any > of you? What meds > do you take that help? What about alternative > medicines?? I thought > about going to the Mayo clinic? Anyone ever been > there? Any advice is > greatly appreciated!!!! Thanks, Tammy in MS > > Alternative Epilepsy Treatments http://epilepsyalternatives.freeservers.com ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 look into Chronic Fatigue Syndrome, Fibromyalgia and Asthma, There are many factors that can cause your tiredness. Not breathing well Asthma can make you really, really tired and not sleep well, and always fatigued. I had asthma my whole life and it was not caught until I was 30yrs old. Things that cause asthma using chemical cleaners, chemical anything in your home. I could go on and on with information, but really look things up you will find your answer. " Namaste " Tia Re: [ ] many questions What meds are you taking? What kind of diet are you on? Happy New Year, Pepper --- tmcle1474 <mclem64aol (DOT) com> wrote: > I was just wondering what ways you all cope with the > tiredness. Do any > of you have this feeling that I have? I feel like I > am too tired to > breathe. I get short of breath so easy. I sleep all > night but by the > time I get a shower every morning, I am exhausted > and feel like I need > to go back to bed. I can't even walk to the mailbox > and back without > feeling like I am going to faint. I also stay so > dizzy all the time. I > thank God everyday for blessing me with my children > because they help > me so much. They are all teenagers and I could not > do it without them. > Many days I cannot even cook them supper. We have a > lot of sandwiches > or take out or what I call bring home. I am sooo > tired. I so want to > get out and live life and not be stuck at home so > much. I am so tired > of fighting this. What used to be a once in a while > thing is now an > every day battle. It is like I have gotten to the > point where I never > stop flaring. I have been to the doctor several > times but nothing seems > to work. How do ya'll cope? Do any of you have this > everyday > discomfort? Is dizziness an everyday factor for any > of you? What meds > do you take that help? What about alternative > medicines?? I thought > about going to the Mayo clinic? Anyone ever been > there? Any advice is > greatly appreciated! !!! Thanks, Tammy in MS > > Alternative Epilepsy Treatments http://epilepsyalte rnatives. freeservers. com ____________ _________ _________ _________ _________ _________ _ Looking for last minute shopping deals? 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Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Diane, I had a few skin tags that dropped off within a week of starting MMS. I have heard others report the same, both here and on the LS forum. Ballady > > Hello Everyone, > > I have some questions that I have yet to see the answers to everywhere I > have looked, but some of you might be able to provide them. I am curious to > know if MMS has helped anyone with the following issues: > > Skin tags, does MMS get rid of them? > > Skin lesions that almost look like warts, but they are flatter have invaded > my neck and upper chest, some darker than others. Has anyone had these and > gotten results in getting rid of them? I don't know if they are a form of > herpes and if they are, then I hope that running a full course of MMS will > get rid of them. > > Foot neuropathy, circulation issues. Has MMS had an affect for anyone? I > have read that it can clean out your arteries and capillaries. I would like > to hear from anyone who has experienced better circulation or relief from > nerve pain. > > Candida rashes. Has MMS cleared them up for anyone? > > I realize that MMS has only been available to others for about 6 months but > where it has worked so well for some things, I have not read anything about > the above subjects. > > I'm on my fifth day, 5 drops twice a day activated with ACV and my ears got > itchy the past two days. Today I awoke and one of my ears popped and I can > hear clearly again! My ears have been blocked for about 20 years and no > remedy has lasted to reverse the condition. My sinus is draining quite a > bit too. > > Diane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2010 Report Share Posted February 7, 2010 I am new to the site so please bear with me. I recently was diagnosed as having low T and given a prescription for Androgel 5 mg/1ce a day. I have been taking it for about 4 days and been trying to do research on the internet. I haven't really felt any changes in anything(moods,less fatigue,etc). Is it really too early and if so, how long should I take it before I begin to notice tangible results? Also, I have read from others that they prefer and got better results from injections rather than gel. And those who took the gel preferred that over the patches. First of all, I have a phobia of needles and could never give myself injections( I would be highly stressed should I be told that I have diabetes and would have to give myself shots.) My insurance covers the gel. Given this, do you think they would also cover injections and would they have to be pre authorized just like the gel or since that has already been approved, would that just convert over to the injections? I have also read that many have endocrinologists that they see for this. Would you reccomend that I see an endocrinologist rather than my family physician? And if so, why? How often and what sort of tests should I be having run while on Androgel? What tests should I have had run before being prescribed Androgel? The only thing that I had run was blood work? How often should I have tests run? The doctor also never said how long I should take Androgel? Is it given that it will be for life or should there be a limit or time frame on it? And how can I get levels and results since I have started this? Am I being too forward on asking for a printout for records regarding my T levels, etc to insure that it is indeed effectively working? Your help will be greatly appreciated. I am a new member and new to this. I also am a 59 year old,white male with high blood pressure, high cholesterol, gerd(anti-reflux). Feel free to email me at calvinstucker@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 Hi Calvin and Welcome, Your starting on a low does a starter dose if it's enough you will feel something in about 10 days. If you do feel a little better and it falls back by 2 weeks call your Dr. tell him. Your base T levels can fall lower then you started. This can happen because your brain sees the T in your blood and slows down sending the LH and FSH messages to your testis and they stop making the T your were making before going on Androgel. And if the 5 gram dose is not enough your can feel lower then you started. So I tell men get tested again in two weeks to be sure the gel is getting through your skin and the dose is high enough. Some Dr. a lot of them don't do this they put men on gels and tell them to come back in 30 to 90 days and if the gel is not working they end up lower and feel worse. I feel if a man can pay for the gel or it's covered by a health care plain it's the best type of TRT to try first and if it works the best. The big problem with going on gels is if you have a Thyroid problem men with this problem can get a thicker skin and the gels or creams can't get through the skin and there levels don't come up. You need to get your Total and Free T levels up into the upper 1/3 of your labs range. And you need to test your Estradiol levels they should be at about 20 pg/ml some men do good at 30. If your levels are to high it will kill your sex life. One way to tell if your to high is the lose of your involuntary nocturnal erections that appear during REM (Rapid Eye Movement) sleep. http://www.sexdictionary.info/erection_nocturnal.html Almost all men over 50 can end up with higher levels of Estradol E2 then the women in there life. So you need to test this should be tested before going on TRT if it's high it can lower your T levels and if you fix this your levels can come back up some 200 to 300 points. Read these links. http://jcem.endojournals.org/cgi/content/full/89/3/1174 http://www.medibolics.com/ArimidexBoostsTestosterone.htm http://www.lef.org/magazine/mag2008/nov2008_Dangers-of-Excess-Estrogen-in-the-Ag\ ing-Male_01.htm Endo's and Uro's are not good Dr.'s for low testosterone don't waste your time. Go to Dr. 's site at www.allthingsmale.com he is one of the best male hormone Dr.'s in the world and he puts this on his site free for you and your Dr. So read TRT: A Recipe for Success and his HCG update print this out and give it to your family Dr. In this are labs you need and why. Shots are not that bad once you get going on them if you need them. We have found we can do them with smaller needles and we do them into the thigh no pain. Be careful not to get the gel on your skin on your wife or your Grand kids it can make them dam sick. When I was on Androgel I put the gel on my upper arms and shoulders and down my back as far as I could reach. Spread it around but don't rub it in let it dry from wet then put on a T shirt to keep it from getting on any kids or your wife. At night before your go to bed with your wife shower the gel off. When you do labs on gels get up shower real good go to the labs get your labs in the morning come home and put on the gel after they take your blood. If you put the gel on first and do labs in less then 6 hrs it can spike up your labs and look very high. Your Dr. will see this and lower your dose and you will crash. All ways get a copy of your labs so you can post them and we all can talk about them and give better help. Going on TRT is for life so this is why we tell men to find out why they are low first before going on TRT. Here are some things that cause low T and if you fix them your levels can come back up. Stress, Sleep Problems, High Iron levels, a low Grade Infection like a tooth the list is long. In this link it has the most info about low T I ever seen on one place. http://answers.google.com/answers/threadview?id=450553 And in this link it talks about low T and high Estradiol and where you need to get your labs to feel better. http://www.griffinmedical.com/male_hormone_modulation_therapy.html This is a lot to take in here take your time and learn about this so you know your getting the best care from your Dr. If you have more questions just ask. Co-Moderator Phil > From: Calvin <calvinstucker@...> > Subject: Re: Many questions > > Date: Monday, February 8, 2010, 1:06 AM > I am new to the site so please bear > with me. I recently was diagnosed as having low T and > given a prescription for Androgel 5 mg/1ce a day. I have > been taking it for about 4 days and been trying to do > research on the internet. I haven't really felt any > changes in anything(moods,less fatigue,etc). Is it > really too early and if so, how long should I take it before > I begin to notice tangible results? > > Also, I have read from others that they prefer and got > better results from injections rather than gel. And > those who took the gel preferred that over the > patches. First of all, I have a phobia of needles and > could never give myself injections( I would be highly > stressed should I be told that I have diabetes and would > have to give myself shots.) My insurance covers the > gel. Given this, do you think they would also cover > injections and would they have to be pre authorized just > like the gel or since that has already been approved, would > that just convert over to the injections? > > I have also read that many have endocrinologists that they > see for this. Would you reccomend that I see an > endocrinologist rather than my family physician? And > if so, why? > > How often and what sort of tests should I be having run > while on Androgel? What tests should I have had run > before being prescribed Androgel? The only thing that > I had run was blood work? > > How often should I have tests run? The doctor also > never said how long I should take Androgel? Is it > given that it will be for life or should there be a limit or > time frame on it? And how can I get levels and results > since I have started this? > > Am I being too forward on asking for a printout for records > regarding my T levels, etc to insure that it is indeed > effectively working? > > Your help will be greatly appreciated. I am a new > member and new to this. I also am a 59 year old,white > male with high blood pressure, high cholesterol, > gerd(anti-reflux). > > Feel free to email me at calvinstucker@... > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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