Re: Update 9/13/00

[Guest guest]

Kurt;

I cannot tell you in words how I feel for you and your family! Prayers, I

can offer. If there is anything else I can do, please let me know! Have you

heard about the Make a Wish foundation? They grant wishes to children that

are terminally ill, I don't know exactly what has, but it doesn't

sound good. I would be happy to get you the info about Make A wish if you

would like it. I would love to be able to help grant this wonderful little

girl the wish of her choice. Let me know what you think, okay?

Your friend,

webemeat@...

Update 9/13/00

> Hi Everyone,

>

> 's condition continues to deteriorate. She has a difficult time

sitting

> up by herself and no longer can effectively walk. Today she vomited twice

> and complained of being dizzy while sitting on the couch. Her Indianapolis

> radioncologist surmised that it was due to tumor growth and not edema.

> Therefore, she can continue to decrease her steroids and start taking

Zofran

> for the vomiting. Hopefully, this will take care of it.

>

> will be contacting the Lafayette hospice to get advice and support

> for our continuing care of at home.

>

> Your continued prayers are appreciated.

>

> Regards,

>

> Kurt, Dad to , age 11

> dx 8/19/99 - diffuse intrinsic pontine glioma

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