Re: Update with MMS and Lyme and need some advice

[Guest guest]

Hi Olive,

So sorry to hear of this development. I do not have any advice, but as

a fellow lymie my story is somewhat similar.

During my initial stages of Lyme (I count that as about 20 years) most

of my musculosketal problems were in my neck and upper thoracic

region. For the last 10 years this has shifted to my low back and left

hip. I am just now coming out of another episodic attack (they occur

more and more frequently). I couldn't sit or stand for 2 weeks and now

have to use a back brace and cane while those regions continue to heal.

Lyme affects and inflames all tissue but I think especially connective

tissue. Whether this problem (and what you describe) are related to

this, or some other anomaly, I do not know. It is frustrating though

because it is difficult to know how to treat - continue working

systemically on Lyme as the causative factor or go down another road

..... or both. I'm having an MRI done next week. I was so incapacitated

I finally decided to try the allopathic route. The orthro doc thinks a

disc may need surgery. Did Lyme cause this problem?

As I said, no answers, just commiserating and hoping you get some

relief soon and/or possible suggestions from others here.

Ballady

>

> Hi All,

>

> I don't post often but I am writing to provide an update on MMS and

> also get some advice.

>

> I have had Lyme disease since 1999 but started having debilitating

> neck symptoms since 2003. In 2004 I realized that what I had was Lyme

> so have been treating since then.

>

> I did salt/c for about 18 months but am no longer doing it, having

> about 20-30% improvement. I started UT in July of 2007 and then added

> MMS to my regimen in late December of 2007. I have modified my MMS

> regimen a few times but over the last 2 weeks or so have been doing it

> at night only. I am up to 8 drops. I have had continual improvement in

> symptoms until 2 days ago.

>

> My right arm, the upper arm and shoulder area, has become very weak

> and painful and my range of motion is limited. My back is very sore

> also and I am afraid to bend because it feels like I will put in out.

> This is very unusual for me. For the past 5 years my symptoms have

> pretty well been confined to my neck and jaw and now it seems that it

> has spread.

>

> Has anyone gone through something similar with MMS?

>

> Thanks,

> Olive

>