Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 I received a list from my PAS agency which is PACT. They can provide a list and contact information. -- In Christ, mar <>< -------------- Original message -------------- From: " momofchris2007 " <slpanda2@...> This sounds like a good place for to go when the time comes. Anyone have a list in the Illinois area? I sure want to visit whatever is available in our area for the future. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Shirley, I just got a listing of ICF-DD's that are in IL & then saw your email. I've got a call into the pas agent & will see if I can get a listing for CILA's. Because I'd like to have that info,too. Trying to get into one though, is another story. The following I took from the March 2008 Family Support Newsletter. " A number of capacities will be held open each month for immediately urgent situations such as abuse, neglect and homelessness. " I have been told by our pas agent that it's 10 throughout the whole state of IL. My hubby & I have a couple urgent situations at present, but it doesn't fit THAT criteria. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 I have heard that there is or will be a website that lists housing that agencies across the state have available...I will have to look in to that unless someone in the group has more information? If you are looking for community living supports, it is probably best to start with the agencies that are closest to your home, if your desire is to have your son living nearby. If they are not able to accomodate Chris' needs or you or are not satisfied with what they have to offer, then you go to the next closest agency that provides community living supports. Ellen Ellen Garber Bronfeld egskb@... CILA'S This sounds like a good place for to go when the time comes. Anyone have a list in the Illinois area? I sure want to visit whatever is available in our area for the future. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Congrats on the birthday AND the very adult move forward of your daughter! Nice that two good milestones were reached...You launched your daughter into her own life... and you got to celebrate the start of a new year! All good stuff! Ellen Ellen Garber Bronfeld egskb@... Re: CILA'S You should be able to get a list from your PAS agent, also ask around. We found a new CILA home by asking at the day program where our daughter now goes. A person/family has to be in pretty dire straits to get funding for these homes, unfortunately. Maybe when the state realizes that not only do the people living in a CILA have a better quality of life, but it even makes more sense economically, maybe then funding will be easier. I visited one ICF_DD in McHenry that had alot of people, but it was bright, clean, had lots of room, was greeted and hugged by people who lived there and even heard the staff singing as they went in to work. It was also set in a beautiful setting with trees, etc. I visited another one in Chicago Heights that was dark, narrow, cramped, smelled, had a leaking roof, had no outdoor space and had a_/ very kind staff./_ Is the difference in the places that the one in McHenry gets some private pay support? I don't know but I'm guessing that might be the case. The one in Chicago Heights might rely only on Medicaid payments. It would be good if the choices weren't so different...meaning the one in Chicago Heights should be at least as bright and spacious as the one in McHenry, not to mention that a person needs some outdoor space, some nature, a back yard at least. Thank-you to everyone who shares here. The human stories are just as helpful (if not more so), as the technical information. Ellen K. (PS, I just had my 55th. birthday this past Sunday and my daughter moved into her CILA and new day program this past Monday and Tuesday. What a birthday present!) momofchris2007 wrote: > This sounds like a good place for to go when the time comes. > Anyone have a list in the Illinois area? I sure want to visit whatever > is available in our area for the future. > Shirley > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 You should be able to get a list from your PAS agent, also ask around. We found a new CILA home by asking at the day program where our daughter now goes. A person/family has to be in pretty dire straits to get funding for these homes, unfortunately. Maybe when the state realizes that not only do the people living in a CILA have a better quality of life, but it even makes more sense economically, maybe then funding will be easier. I visited one ICF_DD in McHenry that had alot of people, but it was bright, clean, had lots of room, was greeted and hugged by people who lived there and even heard the staff singing as they went in to work. It was also set in a beautiful setting with trees, etc. I visited another one in Chicago Heights that was dark, narrow, cramped, smelled, had a leaking roof, had no outdoor space and had a_/ very kind staff./_ Is the difference in the places that the one in McHenry gets some private pay support? I don't know but I'm guessing that might be the case. The one in Chicago Heights might rely only on Medicaid payments. It would be good if the choices weren't so different...meaning the one in Chicago Heights should be at least as bright and spacious as the one in McHenry, not to mention that a person needs some outdoor space, some nature, a back yard at least. Thank-you to everyone who shares here. The human stories are just as helpful (if not more so), as the technical information. Ellen K. (PS, I just had my 55th. birthday this past Sunday and my daughter moved into her CILA and new day program this past Monday and Tuesday. What a birthday present!) momofchris2007 wrote: > This sounds like a good place for to go when the time comes. > Anyone have a list in the Illinois area? I sure want to visit whatever > is available in our area for the future. > Shirley > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Yes, it is the adult move forward that Carolyn has wanted for awhile. EK Ellen Bronfeld wrote: > Congrats on the birthday AND the very adult move forward of your daughter! > Nice that two good milestones were reached...You launched your > daughter into her own life... and you got to celebrate the start of a > new year! All good stuff! > Ellen > Ellen Garber Bronfeld > egskb@... <mailto:egskb%40sbcglobal.net> > Re: CILA'S > > You should be able to get a list from your PAS agent, also ask around. > We found a new CILA home by asking at the day program where our daughter > now goes. > A person/family has to be in pretty dire straits to get funding for > these homes, unfortunately. > Maybe when the state realizes that not only do the people living in a > CILA have a better quality of life, but it even makes more sense > economically, maybe then funding will be easier. > I visited one ICF_DD in McHenry that had alot of people, but it was > bright, clean, had lots of room, was greeted and hugged by people who > lived there and even heard the staff singing as they went in to work. > It was also set in a beautiful setting with trees, etc. I visited > another one in Chicago Heights that was dark, narrow, cramped, smelled, > had a leaking roof, had no outdoor space and had a_/ very kind staff./_ > Is the difference in the places that the one in McHenry gets some > private pay support? I don't know but I'm guessing that might be the > case. The one in Chicago Heights might rely only on Medicaid payments. > It would be good if the choices weren't so different...meaning the one > in Chicago Heights should be at least as bright and spacious as the one > in McHenry, not to mention that a person needs some outdoor space, some > nature, a back yard at least. > Thank-you to everyone who shares here. The human stories are just as > helpful (if not more so), as the technical information. > Ellen K. (PS, I just had my 55th. birthday this past Sunday and my > daughter moved into her CILA and new day program this past Monday and > Tuesday. What a birthday present!) > > momofchris2007 wrote: > > > This sounds like a good place for to go when the time comes. > > Anyone have a list in the Illinois area? I sure want to visit whatever > > is available in our area for the future. > > Shirley > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Happy Birthday. I am told that PACT will give me this info but I am still waiting for it. I just thought maybe someone has already visited a few places or has a list to share. I wouldn't mind visiting on my own even just a drive by. There is no urgency today but you never know what tomorrow brings. It should not be a big secret, everyone should be able to visit these living centers anytime. Thanks. Shirley Ellen Kelley <elendale@...> wrote: You should be able to get a list from your PAS agent, also ask around. We found a new CILA home by asking at the day program where our daughter now goes. A person/family has to be in pretty dire straits to get funding for these homes, unfortunately. Maybe when the state realizes that not only do the people living in a CILA have a better quality of life, but it even makes more sense economically, maybe then funding will be easier. I visited one ICF_DD in McHenry that had alot of people, but it was bright, clean, had lots of room, was greeted and hugged by people who lived there and even heard the staff singing as they went in to work. It was also set in a beautiful setting with trees, etc. I visited another one in Chicago Heights that was dark, narrow, cramped, smelled, had a leaking roof, had no outdoor space and had a_/ very kind staff./_ Is the difference in the places that the one in McHenry gets some private pay support? I don't know but I'm guessing that might be the case. The one in Chicago Heights might rely only on Medicaid payments. It would be good if the choices weren't so different...meaning the one in Chicago Heights should be at least as bright and spacious as the one in McHenry, not to mention that a person needs some outdoor space, some nature, a back yard at least. Thank-you to everyone who shares here. The human stories are just as helpful (if not more so), as the technical information. Ellen K. (PS, I just had my 55th. birthday this past Sunday and my daughter moved into her CILA and new day program this past Monday and Tuesday. What a birthday present!) momofchris2007 wrote: > This sounds like a good place for to go when the time comes. > Anyone have a list in the Illinois area? I sure want to visit whatever > is available in our area for the future. > Shirley > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 I have worked in an ICF/DD as a direct care staff, I was a program manager of a Day Program, and I currently work with CILA's so I have seen, first hand, alot of the different housing model's in action. I have to say that I do not prefer any model over the other. Each home is very different. I don't think that you can make a general blanket statement about all ICF/DD's or all CILA's. I have seen ICF/DD's that have all of their resident's go to bed at 8:00 every night and I have seen ICF/DD's that have " higher functioning " individuals that have weeknight curfew's of 10:00*. (*NOTE: there are restrictions to that and the individual had to prove to be able to handle that responsibility.) My point is that you really need to do your homework and find a place that will accomidate your child's needs the best! I also urge you to talk to the staff that work at those homes and get a good feel for them. Talk to the staff on all shift's, especally the evening and weekend staff. They are the ones that really spend the most time with them. Staff are the ones that really make the experence! Also, pay attention to the other residents in the home. Is there someone that is around the same functioning level? It does not do any good to have 5 roomates if you are unable to communicate with them or don't enjoy spending time with them. Another type of CILA is called a Host Home CILA - It is actually a private person's home that becomes licensed as a CILA. The home owner goes through all of the same training as a staff member at any other CILA. They are monitored by a community agency that provides nursing services as well. These homes can have up to two individual's living in them and they usually have their own bedroom. I believe that these are a great alternative as well. However, just like I said before, I don't think that their is one option that is always better, all of the time. > > > This sounds like a good place for to go when the time comes. > > Anyone have a list in the Illinois area? I sure want to visit whatever > > is available in our area for the future. > > Shirley > > > > > > Quote Link to comment Share on other sites More sharing options...
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