Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Couldn't help but chime in here since I had this from an earlier e-mail. State Operated Developmental Centers Nine of them around Illinois, an old, segregated, heartbreaking, and expensive model. Lincoln has closed, Howe is in the news now. Incredibly expensive places for people to be segregated because of their disability. Local Grant Funding - started with parent advocacy in the 1950's. " We're not going to institutionalize OUR CHILDREN! " Started with programs in church basements and were funded with bake sales and volunteer time. Eventually organizations asked the state for help. Many of these programs live on. Organizations receive funding for specific programs, typically a specific service, limited enrollment, sometimes well over taxed by well meaning providers. You've got to hope that you've got the right kind of disability or challenge, that there is no waiting list, and that once you're in they're able to offer services that are actually helpful because they're not stretched too thin. In short, these programs which can vary widely in quality, are not " Person Driven " . It's take it or leave it. A great way to identify providers of services in your area is to contact the Illinois LifeSpan Project at www.illinoislifespan.org. They are the 411 of disability services, have a HUGE website, trying to track everything. You can interact with the website only or contact them for real people help at 800-588-7002. ICF/DDS These are the typically large settings that are actually a nursing home model, but only for people with dd. They can be huge. State Ops are technically ICF/DDs. Or some people run them relatively small, between 8 and 16 people. Most ICF/DDs are downstate. Don't ask me why. There is probably some kind of historical answer. Interestingly, ICF/DDs are entitlements. But, who wants to live in a nursing home? In most ICF/DDs people don't have any choice about what they eat, when they go to bed, when they get up, and many of the other simple choices of life. Traditionally, once you are in an ICF/DD you have a very had time moving into a CILA (or waiver funded) group home. Medicaid Waivers These are programs that you know as the Adult and Children's Home-Based Support Services Programs, Community Integrated Living Arrangements (CILA, the supports adults receive typically in group homes), and the Children's Residential Waiver. Paperwork & funding > > > The past week has been a little crazy. Late Friday I received word > that there was an opening in an ICF-DD for . > Friday morning, I had checked out a CILA home. I was told there would > be an opening in that home within a couple months. I was impressed > with the facility & wanted to get in there if there was an > opening. > > The opening actually happened over this past weekend. > > But I was told from DDS that there isn't funding available for the > CILA unless there's an emergency situation (there is, but it doesn't > fit their criteria without a big fight.) Am told that he can get > placed if there's abuse, neglect or homelessness. ...okay, so when I > said " I guess I'd have to kick him out of the house, then? I was > asked why I'd want to do that....DUH (I wouldn't, but am thinking if > push came to shove.... > > Okay,so today I get the paperwork (release forms) for the agency that > has the ICF-DD AND the agency that has the CILA home. > > There's instructions for completing the DDPAS-10.... but it's empty. > They want it signed....I' m thinking I shouldn't sign it without it > being filled in first by them. > > This is what is blank..... > On________(date) the individual/guardian met with the following > agency______ _____to visit or discuss the following program(s) > ____________ _________ _________ __ > > There are 6 of these on the top of the paper.... > > Any comments are welcome about this. I should note that when we had > his IEP, I wouldn't sign it when it was blank. > > Does anybody know if & HOW to get funding available when there is an > opening in a CILA facility? I really think would do better in a > smaller home with 6 people as opposed to 16. > > Thanks, > > Liz > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Thanks, Charlotte. Ellen Ellen Garber Bronfeld egskb@... Paperwork & funding > > > The past week has been a little crazy. Late Friday I received word > that there was an opening in an ICF-DD for . > Friday morning, I had checked out a CILA home. I was told there would > be an opening in that home within a couple months. I was impressed > with the facility & wanted to get in there if there was an > opening. > > The opening actually happened over this past weekend. > > But I was told from DDS that there isn't funding available for the > CILA unless there's an emergency situation (there is, but it doesn't > fit their criteria without a big fight.) Am told that he can get > placed if there's abuse, neglect or homelessness. ...okay, so when I > said " I guess I'd have to kick him out of the house, then? I was > asked why I'd want to do that....DUH (I wouldn't, but am thinking if > push came to shove.... > > Okay,so today I get the paperwork (release forms) for the agency that > has the ICF-DD AND the agency that has the CILA home. > > There's instructions for completing the DDPAS-10.... but it's empty. > They want it signed....I' m thinking I shouldn't sign it without it > being filled in first by them. > > This is what is blank..... > On________(date) the individual/guardian met with the following > agency______ _____to visit or discuss the following program(s) > ____________ _________ _________ __ > > There are 6 of these on the top of the paper.... > > Any comments are welcome about this. I should note that when we had > his IEP, I wouldn't sign it when it was blank. > > Does anybody know if & HOW to get funding available when there is an > opening in a CILA facility? I really think would do better in a > smaller home with 6 people as opposed to 16. > > Thanks, > > Liz > > > > > > Quote Link to comment Share on other sites More sharing options...
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