Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Thanks I just wanted everyone to understand that there is a big difference between ICFs and CILA and although the CILAs aren't perfect they are a thousand times better that what was available before. Which is thanks to all the hardwork and fighting thats being done by parents with special needs kids. I only wish I could attend all these functions and do more than just write my legislators but unfortunately my current situation does not allow for more involvement. Maybe later. For now I write letters whenever you all or Family Support Network sends out the request. It does make me feel that I am part of the fight for better services. By the way happy birthday. I'll be celebrating my 14th anniversary of my 39th birthday on Monday. mar --------- Paperwork & funding > > > The past week has been a little crazy. Late Friday I received word > that there was an opening in an ICF-DD for . > Friday morning, I had checked out a CILA home. I was told there would > be an opening in that home within a couple months. I was impressed > with the facility & wanted to get in there if there was an > opening. > > The opening actually happened over this past weekend. > > But I was told from DDS that there isn't funding available for the > CILA unless there's an emergency situation (there is, but it doesn't > fit their criteria without a big fight.) Am told that he can get > placed if there's abuse, neglect or homelessness....okay, so when I > said " I guess I'd have to kick him out of the house, then? I was > asked why I'd want to do that....DUH (I wouldn't, but am thinking if > push came to shove.... > > Okay,so today I get the paperwork (release forms) for the agency that > has the ICF-DD AND the agency that has the CILA home. > > There's instructions for completing the DDPAS-10....but it's empty. > They want it signed....I'm thinking I shouldn't sign it without it > being filled in first by them. > > This is what is blank..... > On________(date)the individual/guardian met with the following > agency___________to visit or discuss the following program(s) > ________________________________ > > There are 6 of these on the top of the paper.... > > Any comments are welcome about this. I should note that when we had > his IEP, I wouldn't sign it when it was blank. > > Does anybody know if & HOW to get funding available when there is an > opening in a CILA facility? I really think would do better in a > smaller home with 6 people as opposed to 16. > > Thanks, > > Liz > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Enjoy the YOUNG birthday!!! It sounds like you are a great advocate...It is wonderful that you do what you can to advocate. AND yes...you are right...CILA is am improvement over many past housing models. What I like people to be thinking about is what does your son or daughter really want, what do you think is best for them, and then we need to try to move the system toward self-directed choice, not trying to fit every person into a " slot " , " bed " or " model " . Our children are individuals and their needs vary from one another and certainly so do their hopes, dreams and desires. I don't think we, as parents and advocates and our children as consumers and advocates should ever have to settle or be content with someone else's notion of what is right for them. Ellen Ellen Garber Bronfeld egskb@... Paperwork & funding > > > The past week has been a little crazy. Late Friday I received word > that there was an opening in an ICF-DD for . > Friday morning, I had checked out a CILA home. I was told there would > be an opening in that home within a couple months. I was impressed > with the facility & wanted to get in there if there was an > opening. > > The opening actually happened over this past weekend. > > But I was told from DDS that there isn't funding available for the > CILA unless there's an emergency situation (there is, but it doesn't > fit their criteria without a big fight.) Am told that he can get > placed if there's abuse, neglect or homelessness....okay, so when I > said " I guess I'd have to kick him out of the house, then? I was > asked why I'd want to do that....DUH (I wouldn't, but am thinking if > push came to shove.... > > Okay,so today I get the paperwork (release forms) for the agency that > has the ICF-DD AND the agency that has the CILA home. > > There's instructions for completing the DDPAS-10....but it's empty. > They want it signed....I'm thinking I shouldn't sign it without it > being filled in first by them. > > This is what is blank..... > On________(date)the individual/guardian met with the following > agency___________to visit or discuss the following program(s) > ________________________________ > > There are 6 of these on the top of the paper.... > > Any comments are welcome about this. I should note that when we had > his IEP, I wouldn't sign it when it was blank. > > Does anybody know if & HOW to get funding available when there is an > opening in a CILA facility? I really think would do better in a > smaller home with 6 people as opposed to 16. > > Thanks, > > Liz > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 I agree we can't expect each individual to fit into one type of scenario that is why we need to all allow for each individuals differences and needs. Thanks. mar --------- Paperwork & funding > > > The past week has been a little crazy. Late Friday I received word > that there was an opening in an ICF-DD for . > Friday morning, I had checked out a CILA home. I was told there would > be an opening in that home within a couple months. I was impressed > with the facility & wanted to get in there if there was an > opening. > > The opening actually happened over this past weekend. > > But I was told from DDS that there isn't funding available for the > CILA unless there's an emergency situation (there is, but it doesn't > fit their criteria without a big fight.) Am told that he can get > placed if there's abuse, neglect or homelessness....okay, so when I > said " I guess I'd have to kick him out of the house, then? I was > asked why I'd want to do that....DUH (I wouldn't, but am thinking if > push came to shove.... > > Okay,so today I get the paperwork (release forms) for the agency that > has the ICF-DD AND the agency that has the CILA home. > > There's instructions for completing the DDPAS-10....but it's empty. > They want it signed....I'm thinking I shouldn't sign it without it > being filled in first by them. > > This is what is blank..... > On________(date)the individual/guardian met with the following > agency___________to visit or discuss the following program(s) > ________________________________ > > There are 6 of these on the top of the paper.... > > Any comments are welcome about this. I should note that when we had > his IEP, I wouldn't sign it when it was blank. > > Does anybody know if & HOW to get funding available when there is an > opening in a CILA facility? I really think would do better in a > smaller home with 6 people as opposed to 16. > > Thanks, > > Liz > > > > > > Quote Link to comment Share on other sites More sharing options...
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