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In a message dated 9/2/00 10:04:09 PM Pacific Daylight Time,

egroups writes:

<< i'm dropping teardrops on this frigging keyboard,

which by the way has ANTS in it that come running out every time I type. >>

Sherry:

You are TOO funny! It's just that has reached a " milestone " in her

life......that's why you're so emotional! I guess as much as we want our

kids to progress, do any of us really want them to " grow up " ??? This is how

I see it, anyway.....

Ants in the keyboard? Stop eating at the computer and maybe, just maybe

they'll go away!

Hugs,

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  • 2 years later...

>>Truly, though, to all of you with problem children, I can

honestly say that life has gotten better as Gareth has gotten

older. His last 4-5 yrs. have been the COMPLETE opposite of the

yrs. from 3-10 yrs. old. His speech, patience level, school

participation, home life.....every aspect, basically, has turned

completely around. Don't give up hope...

I must agree here to. also has improved in many ways as he

has gotten older. Pick and choose the right intervention programs

which often a battle for the requested programs that will meet the

greatest need and for those that receive the loudest demand from us

parents. You'll be more effective when you can show educators you've

given enough thought and done enough research to show you really

understand what you are asking of them. It's safe to say almost any

child is capable of doing more than he/she does. It's a matter of

setting reasonable goals. It's a matter of trying different

approaches until you find one that succeeds. I've learned this the

hard way and realized unconsciously denying him a chance to show how

capable he is. Ok, this was not easy as a parent with a semi-older

child whom I thought would never learn these skills. But, he proved

me wrong as I had to get educated in this arena. The sooner the

better because once they reach the age 12, its time to concentrate

on transition service, especially once they reach the 8th grade.

>> Irma.....I thought of you today when I heard about the shuttle.

Are you in that flight path where it exploded?

I'm on the central part of TX, this is East Texas. Just the thought

of the shower of the explosion, scattered all over. I hope they find

out what happened? They were so close to coming home. I do know many

of their family mentioned that they gave their lives of what they

loved and dreamed of. I wish the same for should I one day

happen not to be around. That I accomplish some happiness his way in

his well-deserved of belonging in this world.

Irma,14,DS/ASD

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  • 4 months later...
Guest guest

Hi Sara,

Today, I had tried teaching the steps of showering on his own

and he just started rocking/stimming away. I'm assuming he was

following the rhythm of the water. It just made me nervous that he

was going to lose his balance and hit his head. Eh, I guess I have

to make sure he gets desentized in this area first to follow the

steps required with the cleansing. I'm just glad he can tolerate the

running water during the showering as one of his OT had mentioned

that before he probably felt like a lot of needles hitting him.

Yeah! On Elie.

I still assist with his shaving with an electric shaver that

was given to him for Christmas. He can tolerate wearing deodrant and

cologne which were also given to him. I come from a large family so

what a collection. Armani, Cool Water, Curve, & Nautica which I try

to teach him not too much and taking turns of which one to use on a

weekly basis. He applies the deodrant on his own but then he has a

habit of wiping with his underarms with his hands after that. Having

two older brothers he wants to do the same thing. Whats next?

Irma,14,DS/ASD

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Sara, I chocked on my coffee this morning over this one! TOO CUTE!! YEAH,

got THAT picture in my head! LOL!!

Montyman wont bother brushing his teeth/hair/ ...he wont

shave/bathe/wash his face .....ALL that is MY job! I have a song I play for him

everyday on the piano, it's called " I Am The King of EVERYTHING! He loves it.

.. .

cause it's TRUE.

Donna, Montyman's Royal servent (one of many)

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Irma, I cant imagine Montyman doing ANYTHING on his own! He does like to

stand in the shower, so after I bathe him, I leave the room so he can have his

privacy and 'take his shower'...I worry so about him falling, but he has the

rail and is careful, he has fallen twice in the tub and I worry.....try to keep

it all non slick. not an easy task. He wont let me apply deod, (i have to

force him all the time)...he loves the blow dryer and powder...im thankful he

loves having his teeth brushed...and lets us bathe him....but do it himself?

That's OUR job! Im surprised he feeds himself! I know it's all our fault,

cause

once he starts doing something we are SOOO surprised and excited...and he's

so routine, we just have been doing it for, what, 20 years? jeese. the bum.

Donna, Montyman the spoiled bum's mom, I mean the King's Mom

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Ahem,MM's mom. Correction 21 yrs., right? Montyman has a birthday

coming around next month, right? Sill you're ahead with experiences.

Any plans? Whoa! Time surely flies by pretty quick as will

turn 15 y/o, next month. He's my youngest. I too, feel that he has

me wrapped around his little finger. Yep! Thats my Master , he

can do no wrong. I know my can do lots of things its just me

finding ways to work around him.

I better investigate and consider installing some rails. Both our

restrooms have those sliding glass doors, looks lovely but I know

there not safe for him.

Have you looked or have you gotten a Guardianship or a Will ready?

Sorry if you brought this subject up before. I missed out on some

past messages when I was working too much.

Ok, heading out to deal with the MHMR, again. They need a letter

with my last date of employment. Eh, the things to do for

assistance, they want this and that. Never-ending.

Irma,14,DS/ASD.

GO SPURS GO! WTG!! Home of the NBA Championship 2003!

Awesome game last night. What a Glorious day! : )

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  • 10 months later...
Guest guest

I got a note today from Nic's teacher saying Nic inappropriately touched the

aide and the bus staff's chests.

No other details...

This from a kid who they don't think can make a connection between getting a

reward at home for something he did at school. I wanted that in his behavior

plan and the BS doesn't think he can do it. But the kid knows his BOOBS!.

Di

growing up

I have a questions for those of you with older boys. Ben is 11 and has

gotten his pubic hair. What can I expect next as far as voice, body hair

etc...What typically comes next in development. I don't have any books yet and

have two boys and Ben is the oldest.

Thanks in advance,

M.

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is 18 but has always had an exceptionally deep voice because he has had

hearing loss at times. He had all his body hair early and at the ripe old age

of 17 had a full beard which he thought was way cool. He refuses to even

consider shaving the goatee that remains. What is it with men and their facial

hair. LOL He loves the women and kinda scopes them without their knowledge.

He also HAS to have his private time in his room. I don't know if this will

help you. Also, he tends to be hormonally moody. They have always claimed that

only women have this problem but that's baloney.

Elaine

growing up

I have a questions for those of you with older boys. Ben is 11 and has

gotten his pubic hair. What can I expect next as far as voice, body hair

etc...What typically comes next in development. I don't have any books yet and

have two boys and Ben is the oldest.

Thanks in advance,

M.

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  • 7 months later...

In a message dated 1/10/2005 9:32:21 AM Central Standard Time,

huie@... writes:

looked at me and said " Can you teach me to drive a car now? "

Boy, is she ready!!

Sharon H.

Mom to , (13, DS) and , (9)

South Carolina

HI Sharon :)

Sara would say " when can I get married??? " she is soooooooooo in love with

's son Mav :) This is her goal in life lol

Next would be working at the Gap :) the girls at the Gap let Sara go behind

the counter and ring up my purchases ........... this makes her day.

She played some driving game at a pizza parlor we have here and she jumped

off the machine and let this boy who was watching finish her game. She said

" Mom that machine is crazy " lol I don't look for her to push to drive :)

Kathy mom to Sara 13

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

As for me and my house, we will serve the Lord.

Josh. 24:15

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In a message dated 1/10/2005 9:32:21 AM Central Standard Time,

huie@... writes:

looked at me and said " Can you teach me to drive a car now? "

Boy, is she ready!!

Sharon H.

Mom to , (13, DS) and , (9)

South Carolina

HI Sharon :)

Sara would say " when can I get married??? " she is soooooooooo in love with

's son Mav :) This is her goal in life lol

Next would be working at the Gap :) the girls at the Gap let Sara go behind

the counter and ring up my purchases ........... this makes her day.

She played some driving game at a pizza parlor we have here and she jumped

off the machine and let this boy who was watching finish her game. She said

" Mom that machine is crazy " lol I don't look for her to push to drive :)

Kathy mom to Sara 13

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

As for me and my house, we will serve the Lord.

Josh. 24:15

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  • 2 years later...
Guest guest

Please reply to the list!

Diane, I feel for you, Faith is almost 10

so this is surely on the way. Do you mind telling her height and weight? The

endocrinologist said the ovaries start functioning at about 70 lb. Faith was 63

lb, 46 in. and now is about 60 lb, at his recommendation. He also said there

are many ways to suppress menstruation until they are ready to handle it.

Hope all goes well for you and .

ette

From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of ladydi6664

Sent: Wednesday, June 27, 2007

11:22 AM

Down Syndrome Treatment

Subject:

Growing Up

My daughter , 12, DS just got her first

menstrual period. I was

wondering if other mom's of young women would share their experiences

with this issue with me. I'm trying to teach her what to do, but will

be back to work tomorrow and she will be with her babysitter. Thinking

about using something like pull-ups. Also, I was wondering if anyone

out there has researched or uses any of the menstrual suppression

medications. I've been trying to research this via the internet and

have only found some info. on the medications, but not in respect to

DS. Feel free to reply to me off the list.

Thank you,

Diane Kopistecki

mom to , 16, Dan, 15 & 12, DS

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I agree, I would love it if folks would reply to the list! is 10 and this is looming in our future.

Kathy

-------------- Original message -------------- From: "ette Beurrier" <pbeurrier@...>

Please reply to the list!

Diane, I feel for you, Faith is almost 10 so this is surely on the way. Do you mind telling her height and weight? The endocrinologist said the ovaries start functioning at about 70 lb. Faith was 63 lb, 46 in. and now is about 60 lb, at his recommendation. He also said there are many ways to suppress menstruation until they are ready to handle it.

Hope all goes well for you and .

ette

From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of ladydi6664Sent: Wednesday, June 27, 2007 11:22 AMDown Syndrome Treatment Subject: Growing Up

My daughter , 12, DS just got her first menstrual period. I was wondering if other mom's of young women would share their experiences with this issue with me. I'm trying to teach her what to do, but will be back to work tomorrow and she will be with her babysitter. Thinking about using something like pull-ups. Also, I was wondering if anyone out there has researched or uses any of the menstrual suppression medications. I've been trying to research this via the internet and have only found some info. on the medications, but not in respect to DS. Feel free to reply to me off the list.Thank you,Diane Kopisteckimom to , 16, Dan, 15 & 12, DS

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Both of my girls started at 12y and it has actually been quite uneventful for us...we use ‘pads’ (Kotex Maxi, regular or long)*...and, they have a change of clothes at school. They keep a little pouch (looks a lot like a cd case) containing a couple pads in their book bags in case ‘it’ happens at school. I didn’t even consider suppressing/hormones...beverly (-17y, yesterday; nah-14y)

*we don’t have an interest in, nor profit from -, we simply find the product works for us.

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My daughter is going through precocious puberty (since 5...she's 7 now...) We've given her Lupron Depot for a little over a year. It stops all progress of puberty itself, including her period, until we're ready for it to begin, then we'll just stop giving the shot. That's different than stopping flow, though, and I know tons of families on the SB sites have information on that. Check out SBAA.org. I think that they have (or did) a section on puberty issues and the different ways to address it...it's a major issue for teen girls who have to cath and a frequent topic on SB listservs. I know we're in a little bit different situation that you guys are, but I have known DS to come w/ precocious puberty, too. There are shots that will stop both, and I think you can find the particular names on the SBAA site. Your OB should be able to tell you as well. Sorry I don't have time to check right this moment, but thought I'd share this if you wanted to follow up til I have more time to look...hope it helps. Mattheiss, Executive DirectorLifeLine, Inc.Reaching Families of Those with Special Needs With Support, Education, and Respitewww.HamiltonBaptist.net/LifeLine-- Beverly Spurlock <spurzoo5@...> wrote:

Both of my girls started at 12y and it has actually been quite uneventful for us...we use ‘pads’ (Kotex Maxi, regular or long)*...and, they have a change of clothes at school. They keep a little pouch (looks a lot like a cd case) containing a couple pads in their book bags in case ‘it’ happens at school. I didn’t even consider suppressing/hormones...beverly (-17y, yesterday; nah-14y) *we don’t have an interest in, nor profit from -, we simply find the product works for us.

_____________________________________________________________Click for free info on college degrees and make $150K/ year

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My daughter is 11 yrs old. We have not entered this phase yet but

I am sure it is going to happen soon. It was recommended to us to use

pullups as my daughter still has trouble with potty accidents quite often

also. I think it is great if you don't have to consider the option of

suppressing it but my daughter will not be able to change pads herself and

I am concerned about how this all will affect her behavior. She has some

pretty significant sensory issues also so we will be considering the

methods of stopping her periods at least until she is more able to handle

it. Sorry I don't have any advice as I haven't experienced it yet. I

would be very interested in how things go and what information you find

out.

Carla

> My daughter , 12, DS just got her first menstrual period. I was

> wondering if other mom's of young women would share their experiences

> with this issue with me. I'm trying to teach her what to do, but will

> be back to work tomorrow and she will be with her babysitter. Thinking

> about using something like pull-ups. Also, I was wondering if anyone

> out there has researched or uses any of the menstrual suppression

> medications. I've been trying to research this via the internet and

> have only found some info. on the medications, but not in respect to

> DS. Feel free to reply to me off the list.

> Thank you,

> Diane Kopistecki

> mom to , 16, Dan, 15 & 12, DS

>

>

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ette - is 4ft. 3in. & 84 lbs.

>

> My daughter , 12, DS just got her first menstrual period. I was

> wondering if other mom's of young women would share their experiences

> with this issue with me. I'm trying to teach her what to do, but

will

> be back to work tomorrow and she will be with her babysitter.

Thinking

> about using something like pull-ups. Also, I was wondering if anyone

> out there has researched or uses any of the menstrual suppression

> medications. I've been trying to research this via the internet and

> have only found some info. on the medications, but not in respect to

> DS. Feel free to reply to me off the list.

> Thank you,

> Diane Kopistecki

> mom to , 16, Dan, 15 & 12, DS

>

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I really appreciate everyone sharing their growing up stories. My little one is only 5 but I wanted to armed and ready, well as prepared as I can be! Thank you, marcySee what's free at AOL.com.

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De-lurking here .. My eldest daughter has multiple disabilities and is now 15 years old (approaching 16!).  Thankfully Therese (DS) is nowhere near approaching puberty (she's only 2 after all).  However our experience with Rebekah may help someone here.  Rebekah's looming puberty was such a frightening prospect for me a few years back and some of the concerns have proven true (pads sometimes get chewed or used pads stuck onto windows or left lying about the house for us to step onto etc).  We also discovered that when she has her period the local inflammation and swelling results in her becoming night-time incontinent during her periods (a total mess!).  We solved that problem with incontinence pants at night during her period.  Pads still work fine during the day as the incontinence doesn't seem to be such an issue during the days.  One problem however was getting her used to wearing pads.  We solved this one by gettting her used to wearing Panty Liners every day even before she had her periods.  This way pads weren't going to be an irritant to her that 'demanded' that she remove the pad.  Now she only needs to consider which type of pad or liner she wears every day.  If she gets it 'wrong' then it's not immediately a total mess.  The liner buys you little time to 'fix it' too or to catch the beginning of her period.  We don't change the pads when "they're full" but according to a timed schedule .. regardless of the state of the pad.  Her schedule is 3 hourly because we've found this to be a reasonable time-frame for her periods.  We'd make it more frequent if they were heavier but 3 works for her.  We have never mentioned Tampons to her and never will (shudder the thought of her thinking anything  can go 'up there' - this is a child that sticks pencils up her nose to make it bleed).  By using the clock instead of the state of the pad we are providing her with an absolute not an interpretative measure.  I am guessing that a lot of the kids on this forum would function better with this too.  She has now been started on a contraceptive pill (taking the 'active' pills continuously) to stop her periods but this wasn't started until she's had her periods for two full years and they had become regular.  This was to allow her body the chance to mature at it's own pace before forcing it's function with hormonal intervention.  We're now waiting for them to 'kick-in' and lose the periods.UrsulaMum of Rebekah 15, Grace 5, and Therese 2 (DS).

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That was very helpful, thanks for sharing.

Kathy

Re:Growing Up

De-lurking here .. My eldest daughter has multiple disabilities and is now 15 years old (approaching 16!). Thankfully Therese (DS) is nowhere near approaching puberty (she's only 2 after all). However our experience with Rebekah may help someone here.

Rebekah's looming puberty was such a frightening prospect for me a few years back and some of the concerns have proven true (pads sometimes get chewed or used pads stuck onto windows or left lying about the house for us to step onto etc). We also discovered that when she has her period the local inflammation and swelling results in her becoming night-time incontinent during her periods (a total mess!). We solved that problem with incontinence pants at night during her period. Pads still work fine during the day as the incontinence doesn't seem to be such an issue during the days.

One problem however was getting her used to wearing pads. We solved this one by gettting her used to wearing Panty Liners every day even before she had her periods. This way pads weren't going to be an irritant to her that 'demanded' that she remove the pad. Now she only needs to consider which type of pad or liner she wears every day. If she gets it 'wrong' then it's not immediately a total mess. The liner buys you little time to 'fix it' too or to catch the beginning of her period. We don't change the pads when "they're full" but according to a timed schedule .. regardless of the state of the pad. Her schedule is 3 hourly because we've found this to be a reasonable time-frame for her periods. We'd make it more frequent if they were heavier but 3 works for her. We have never mentioned Tampons to her and never will (shudder the thought of her thinking anything can go 'up there' - this is a child that sticks pencils up her nose to make it bleed). By using the clock instead of the state of the pad we are providing her with an absolute not an interpretative measure. I am guessing that a lot of the kids on this forum would function better with this too.

She has now been started on a contraceptive pill (taking the 'active' pills continuously) to stop her periods but this wasn't started until she's had her periods for two full years and they had become regular. This was to allow her body the chance to mature at it's own pace before forcing it's function with hormonal intervention. We're now waiting for them to 'kick-in' and lose the periods.

Ursula

Mum of Rebekah 15, Grace 5, and Therese 2 (DS).

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  • 3 weeks later...
Guest guest

Well we have joined this group now. started while we were on vacation this week. She is 11 yrs old. Just seems too young to me. She doesn't seem to have even noticed as she still needs to wear pullups due to potty training issues as I mentioned before. It was pretty light so this worked fine. I haven't called her doctor yet. I figure he will want to wait and see if it comes again and when. I am fighting being sad because I had hoped this would wait until we had the potty training figured out.

Carla

Growing Up

My daughter , 12, DS just got her first menstrual period. I was wondering if other mom's of young women would share their experiences with this issue with me. I'm trying to teach her what to do, but will be back to work tomorrow and she will be with her babysitter. Thinking about using something like pull-ups. Also, I was wondering if anyone out there has researched or uses any of the menstrual suppression medications. I've been trying to research this via the internet and have only found some info. on the medications, but not in respect to DS. Feel free to reply to me off the list.Thank you,Diane Kopisteckimom to , 16, Dan, 15 & 12, DS

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11 years old - YIKES, is 10, that could be NEXT YEAR! If you don't mind me asking did she have other signs of puberty like breast growth or body hair and if so when did that start for ?

Thanks,

Kathy

Growing Up

My daughter , 12, DS just got her first menstrual period. I was wondering if other mom's of young women would share their experiences with this issue with me. I'm trying to teach her what to do, but will be back to work tomorrow and she will be with her babysitter. Thinking about using something like pull-ups. Also, I was wondering if anyone out there has researched or uses any of the menstrual suppression medications. I've been trying to research this via the internet and have only found some info. on the medications, but not in respect to DS. Feel free to reply to me off the list.Thank you,Diane Kopisteckimom to , 16, Dan, 15 & 12, DS

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No I don't mind. Yes did have other signs of puberty. Body hair started probably a year ago. Breast growth has been noticeable in the last year but more so the last 6 months. I had talked to another mother who said her daughter started her period on her 11th birthday. So I was afraid it was coming but still was hoping for more time.

Carla

Growing Up

My daughter , 12, DS just got her first menstrual period. I was wondering if other mom's of young women would share their experiences with this issue with me. I'm trying to teach her what to do, but will be back to work tomorrow and she will be with her babysitter. Thinking about using something like pull-ups. Also, I was wondering if anyone out there has researched or uses any of the menstrual suppression medications. I've been trying to research this via the internet and have only found some info. on the medications, but not in respect to DS. Feel free to reply to me off the list.Thank you,Diane Kopisteckimom to , 16, Dan, 15 & 12, DS

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Thanks for your honesty. Might not be such a bad thing for her to have this as long as she's wearing pull ups anyway. I'm kind of dreading the whole pad thing!

Good luck!

Kathy

--------- Growing Up

My daughter , 12, DS just got her first menstrual period. I was wondering if other mom's of young women would share their experiences with this issue with me. I'm trying to teach her what to do, but will be back to work tomorrow and she will be with her babysitter. Thinking about using something like pull-ups. Also, I was wondering if anyone out there has researched or uses any of the menstrual suppression medications. I've been trying to research this via the internet and have only found some info. on the medications, but not in respect to DS. Feel free to reply to me off the list.Thank you,Diane Kopisteckimom to , 16, Dan, 15 & 12, DS

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  • 1 year later...
Guest guest

--I can so relate so much of what everyone is saying

I also had a rough childhod

I had a brother in law that raped and threathed me, that went on

from the time i was 10 - 15. I could never tell anyone.. back then

it was something you dont talk about ,,, when I was 15 they got

divorsed. he told my sister that he had sex with me,, she called

mom,, I came home that night and Mom asked me if something had ever

happened between Bob and I,,, i cryed and not a another word was

ever said.

then when I was 15 I moved to Fla. with another sister and her

hubby and kids.. well then Ed started rapeing me,,,,I dont think she

ever found out,, I have never talked to my family about it.. But I

had heard that he had raped another one of my sisters.

so when i was 17 i got married,,, the day after the wedding ,, he

started beating me,,, that was march 3rd 1979, by the 1st of Oct. he

had beatin me so bad that was not recognizable... Oh by the way,,, I

was 8 months pregnet...The last big beating was on oct 1 my son was

born nov 29.....

now I am 46 and on my 5th marriage,,, every one has been abusive

in one way or another,,, The mental abuse is as bad if not worse the

the beatings were...and here I sit in another abusive

marriage,,,an alcoholic,gambling and very verbaly abusive...

I am totalaly disabled with my RSD and Fibro.. I can not live on my

own,,,, so now im kinda stuck,, I want to leave but i cant,

Sorry for the rambblin,,, Oh yeah !!! i forgot,,

back in 2000, my boyfriend and I was sitting in a resterant,,, A

couple came in and right away I told my b.f. that someone from my

past just ame in,,, well I ended up not being able to eat after

seeing this man,,, I had my b.f. go on out.. i'll be right there,,,

well I walked up to this couples table and looked right at him and

asked " are you Bob c..??? he was like ,, Yeahhh,,, who are you,,, I

said,,, what you dont remember the 10 yr girl you raped for

years,,,,,you should have seen his face ,, lol ,,,he said he knew

nothing of what i was talking about ,,I looked at his wife and asked

her if she knew she was married to a child rapest.... lol

that made me fell so good,,, took alot off of my shoulders that i

carried for many yrs lol

hope everyone is doing good today,,,

soft hugs to all

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--

Deanna,,

Thanks,,,, I had to,, it made me feel so good,,lol,, It did take

alot of b--- but it took many years of fear and worries off my

shoulders,,

Thanks again

Soft hugs

- In Stimulator , Deanna Ramsey

<Photobug33777@...> wrote:

>

> ,

> You have got some serious nerve! I would never have had the nerve

to do what u did, especially out in public n in front of his current

wife. Wow, that's some serious growing a set of b****.

> You go girl !!!!!!!!!

>

> Deanna

>

> Sent from my iPhone

> > soft hugs to all

>

>

>

>

>

>

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