Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Hi Mare: Never feel like you are whining. It is our pleasure to listen. I remember very clearly being extremely depressed a few years back when my knee started acting up, and my pain was nowhere NEAR what you are experiencing. I cannot pretend to understand what you are going through, but I am sorry. The good news is, it sounds like you've finally found a doctor who knows what she is doing. The fact that she found a problem in your hips is a great sign. Feel free to ask me about prolo before, during and/or after your injections. I went through about 8 rounds of injections myself, over a six month period. We'll keep our collective fingers crossed for you. I know it is hard, but try to stay positive! Take care, Doug dougfromct2002@... > Every so often the depression that comes with chronic pain takes > over. I go to PT twice a week and do my exercises every day but the > pain persists. I tape my knees, wear braces, take Gloucosamin, don't > use stairs, don't run, barely walk, and the pain goes on. My husband, > friends and even my doctors are sick of hearing about my knees so I > feel like this is the only place I can go where people understand. > > PT is concentrating on strengthening my hips and pelvis area which is > what my new doctor thinks is causing my CP. My PT told me last week > that she doesn't think there is anything she can do for my pain but > if I don't get some relief soon, I think I'll go bonkers. I feel like > my last hope is Prolo which will start next month. > > Sometimes I envy the people at PT with torn ACLs or a torn meniscus > because at least they know what is wrong and the doctors know how to > fix them. With most of us, doctors are just guessing. Sometimes when > the pain is as bad as it is today I think that total amputation above > each knee is the only thing that will relieve my pain. > > It was tough enough turning 50 but feeling like this it is almost > unbearable. > > Thanks for listening, (I know,Waa Waa) > Mare Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi Mare- Thanks for your post about the correlation of pain and depression. I think most of us on the board can unfortunately relate all too well to this! I can really empathsize with you! I am 26 and have had 12 knee surgeries (8 rt and 4 left) for CP including 2 patella realignments. Doctors told me last week there is nothing else they can do for me until I turn 50 and can have replacements. Now I am not a math major but that is quite a few years- 24 I think! Needless to say, I am searching the world really for something to help although I know that my options are limited. I live in North Carolina but even with some of the good university hospitals here they still can't really help me. I am contemplating a very early replacement- 2.8% of replacements are done on patients 18-39 in extreme cases and I think I am about there. Not to bore you with my history but I got a referral from my physician to a pain management specialist. Tney have put me in the chronic category. My pain management physician is an anesthesiologist so he is well versed in controlling pain. Many advances have been made in pain management. I finally am on a pain medicine that is working for me most days which is wonderful. Nerve blocks are also an option sometimes. I don't know about the rest of you, but I tend to get anxiety attacks when the pain gets really bad especially in PT. My doctor said there are a lot of medications that are for both depression and anxiety. I don't particularly like to be on a lot of medicine, but I guess you have to find what works. Maybe pain management would be an option. I am not sure but I just wanted to offer it as one suggestion because I know how frustrating all of this is! Feel free to vent anytime! Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Dear Margaret, good post..well done. I too am staring down the barrel of a knee replacement and have been told I am too young at 44!! Unless Rob and Chuck bounce back after seeing Chuck's uncle, in a couple of months time, I will probably start investigating this avenue next year. Like you I am no stranger to pain and all the anxieties that go with all that as well. Taking painkillers everyday is not fun but I am on an excellent sustained release one which I started taking earlier this year called Tramal SR 200mg (Tramadol Hydrochloride)which takes the edge off the pain over a 24 hour period and then I don't have to take a " hit " so often with stronger nsaids during the day. I have always had two concerns about knee replacements; a) infection what happens when you go back 15 years later for the second replacement?? how do they get the new part to rebond to the bone after the first operation has been cut and shut to fit it?? If someone could walk me through the second and subsequently the third replacment procedure then I would be a lot happier with looking at this angle. Everyone I have seen who had a knee replacement feels great after post op etc, but I have never met anyone who is on their second one! Mark. > Hi Mare- > Thanks for your post about the correlation of pain and depression. > I think most of us on the board can unfortunately relate all too well > to this! I can really empathsize with you! I am 26 and have had 12 > knee surgeries (8 rt and 4 left) for CP including 2 patella > realignments. Doctors told me last week there is nothing else they > can do for me until I turn 50 and can have replacements. Now I am not > a math major but that is quite a few years- 24 I think! Needless to > say, I am searching the world really for something to help although I > know that my options are limited. I live in North Carolina but even > with some of the good university hospitals here they still can't > really help me. I am contemplating a very early replacement- 2.8% of > replacements are done on patients 18-39 in extreme cases and I think > I am about there. > Not to bore you with my history but I got a referral from my > physician to a pain management specialist. Tney have put me in the > chronic category. My pain management physician is an anesthesiologist > so he is well versed in controlling pain. Many advances have been > made in pain management. I finally am on a pain medicine that is > working for me most days which is wonderful. Nerve blocks are also an > option sometimes. > I don't know about the rest of you, but I tend to get anxiety > attacks when the pain gets really bad especially in PT. My doctor > said there are a lot of medications that are for both depression and > anxiety. I don't particularly like to be on a lot of medicine, but I > guess you have to find what works. > Maybe pain management would be an option. I am not sure but I > just wanted to offer it as one suggestion because I know how > frustrating all of this is! Feel free to vent anytime! Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Amen to that! I have had quite a few good days this last month and believe me it is EVEN worse when the darn pain comes back on an emotional level. I just get used to being able to do some things again and then WHACK! I go back to the doctor tomorrow to cuss and discuss SCS, the pain pump and removing hardware which I am not having done! I will let you guys know how it goes. Kim Re: Pain and Depression I'd really like to have more good days, it's been so long since I had any good days. > > > > > > I know first hand what its like to be depressed and have alot pain. I > > > am on total disability and being in my home all day every day takes a > > > toll on me i feel shut in my wife had to go from psrt time work to > > > fulltime so I also alone feel alone every day its the same ol daily > > > pain and being depresed get over welming I been sitting here 10 years > > > not albe to go to work and also having problem cleaning my house > trying > > > to be a house dad I cant get much done so it affects my marriage > having > > > my wife working fulltime then having to do work around the house for > > > the 2 days she off. It affects me mentally not being able to help > more. > > > This is life. I just wanted you to know we all are in same boat. it > > > hard to deal with pain. my kids are here watching me. it hurts not > > > beig able to be a better father. Just wanted you ro know this Mike > > > group owner > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Kim, I hope your appt. goes well tomorrow. I see my doctor on Friday morning. I have to document my pain on a chart for today every hour. It's going to be hard to stay up until 9pm, I go to bed between 7:30-8:00 pm every night. > > > > > > > > I know first hand what its like to be depressed and have alot > pain. I > > > > am on total disability and being in my home all day every day > takes a > > > > toll on me i feel shut in my wife had to go from psrt time work to > > > > fulltime so I also alone feel alone every day its the same ol daily > > > > pain and being depresed get over welming I been sitting here 10 > years > > > > not albe to go to work and also having problem cleaning my house > > trying > > > > to be a house dad I cant get much done so it affects my marriage > > having > > > > my wife working fulltime then having to do work around the house > for > > > > the 2 days she off. It affects me mentally not being able to help > > more. > > > > This is life. I just wanted you to know we all are in same boat. it > > > > hard to deal with pain. my kids are here watching me. it hurts not > > > > beig able to be a better father. Just wanted you ro know this Mike > > > > group owner > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Unfortunatly...medicare does not pay for therapists (if you have plain old A and it will pay for a psychiatrist...but they just want to medicate you....for the.....cobra I am not sure if you are currently seeing a psychiatrist or a psychologist....I would assume you meant the first...if you can find one that will talk to you......you are extremely lucky. How much longer do you have to wait for the insurance....have you started looking at the plans that you might want to sign up for? Deb rom: Stimulator [mailto:Stimulator ] On Behalf Of cobranine Sent: Wednesday, October 15, 2008 7:48 AM Stimulator Subject: Re: Pain and Depression I see a psychrist and very greatful to her . She is someone I can talk to and can trust, Getting my insurance he soon and I can start to see her on a regular bases. I know I need help and will be getting it soon. > > > > I know first hand what its like to be depressed and have alot pain. I > > am on total disability and being in my home all day every day takes a > > toll on me i feel shut in my wife had to go from psrt time work to > > fulltime so I also alone feel alone every day its the same ol daily > > pain and being depresed get over welming I been sitting here 10 years > > not albe to go to work and also having problem cleaning my house trying > > to be a house dad I cant get much done so it affects my marriage having > > my wife working fulltime then having to do work around the house for > > the 2 days she off. It affects me mentally not being able to help more. > > This is life. I just wanted you to know we all are in same boat. it > > hard to deal with pain. my kids are here watching me. it hurts not > > beig able to be a better father. Just wanted you ro know this Mike > > group owner > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Hello to my friends: Hey Mike! I totally agree with what you are saying! I totally agree that pain goes hand in hand with depression...but especially chronic pain. I have had RSD now for 26 years....I really, truly can understand what you mean, Mike. Hey Sue....I keep you in my morning prayers every day...mind you, I am not the kind of person who walks around with her hands held tightly in prayers 24 hours a day...but I do say my night prayers before bed...asking to wake up without pain..and to bless and keep my loved ones safe...and my morning prayers asking to go to bed without pain...and to keep my loved ones safe during the day...and thanking God for all of them. All of you have become special to me...but I have become very close with of course, my co_owner Mike, Sue and , & Kathy Sweet. I thank you three for all your love, understanding and pep talks. I really appreciate all the other folks who have helped me in the past few months. With my pain and disabilities, then Lenny's MVA...we just had so much on our shoulders...it was great to be able to chat and then chill with you...thank you all... of you awesome folks!! I wish everyone a beautiful and pain free holiday season! Please know that I am her to listen and to be a shoulder for those who need to vent. In answer to your question, Sue. Lenny is doing a wee bit better, thankfully. He will still be out of work for at least a nother month....without pay. He has no sick or vacation time left..so we are getting by as best as we can. three months and no paycheck really is hard. I love you all. I wish us pain free days and sleep filled nights, Gentle Hugs to all, Kathy G. Co_Owner **************Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Pain and deppression goes hand in hand. What frustrate me most is not being able to do more Every since my back injury since 1999 I struggled with the limtiedation I had to be the homekepper verses the going to a job I struggle with trying to take care of our house I fall short of getting everything done. using my stimulator and taking pain medication is not enough If i bend down it sets my nerve pain off. Life we pain patients live other who dont suffer with pain have no clue what we go through. When some people sat I understand it makes me bite my tounge unless you have pain 24/7 everty day you dont get it. Mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 MAN you said two mouthfulls when you said that! The people in your family think they know what you are going through but they have not one clue! Unless someone goes through this for a bit of time, they could not imagine the energy that it takes just some days to get out of bed and get going at least that is how it is for me. I know what you mean about work around the house too Mike. I work from my home and also am expected to do house work as well. I am the one who does 90% of the cooking here. My adult son can cook however he works a lot of hours. My husband cannot cook anything but maybe heat up a frozen pizza or cook hot dogs. He will do that without fussing but my kids don't like it on and on. It is hard to have to clean up behind everyone all the time on and on. I almost went off this weekend when I walked from room to room and picked up item after item after item that had just been left and not thrown in the trash. Yes I know I am depressed rigth now. I know I am menopausal too which does not help matters. BUT that does not make it right for them to take advantage of the fact that just because I am here its ok to make messes and leave them for me to clean up either! Pain and Depression Pain and deppression goes hand in hand. What frustrate me most is not being able to do more Every since my back injury since 1999 I struggled with the limtiedation I had to be the homekepper verses the going to a job I struggle with trying to take care of our house I fall short of getting everything done. using my stimulator and taking pain medication is not enough If i bend down it sets my nerve pain off. Life we pain patients live other who dont suffer with pain have no clue what we go through. When some people sat I understand it makes me bite my tounge unless you have pain 24/7 everty day you dont get it. Mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 You are so right Mike. Pain and depression go hand in hand. Living in chronic pain every minute of every day causes depression. The deeper the depression the worse the pain gets. This becomes a vicious cycle that's so hard to break. I have been in horrific pain flares that I am having a hard time dealing with. I'm getting nerve block injections to calm down the pain and had my pain pump increased today. I haven't been posting because it's painful to type.. Kim - I hope you get approval ASAP Margie - I hope you get to your drs appt next week Deb & - Sorry to hear about your neighbors - Welcome to the group Kathy G - Hope you and Lenny are feeling better Mike - Hope you get some relief for your back Everyone else who is going in for any procedure or surgery - good luck. Please keep me in your thoughts and prayers that my pain flares will calm down and I'll start to get some relief. Hopefully we can all get some relief.. Â Sue C Moderator From: Mike <mike2boys@...> Subject: Pain and Depression Stimulator Date: Wednesday, December 3, 2008, 10:04 PM Pain and deppression goes hand in hand. What frustrate me most is not being able to do more Every since my back injury since 1999 I struggled with the limtiedation I had to be the homekepper verses the going to a job I struggle with trying to take care of our house I fall short of getting everything done. using my stimulator and taking pain medication is not enough If i bend down it sets my nerve pain off. Life we pain patients live other who dont suffer with pain have no clue what we go through. When some people sat I understand it makes me bite my tounge unless you have pain 24/7 everty day you dont get it. Mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 I have to bite my tongue a lot also. So many people think they understand, but they really don't. Everyone thinks they know exactly what you are going through, but in reality " everyone " doesn't know. I didn't know what pain was until I started having this pain that I'm having with RSD. I can remember when I was 16, my grandfather used to say that it wasn't right for me to be in so much pain. He said old people like him were supposed to have pain, not young people like me. He had a lot of joint pain. Both his sisters had knee replacement and he needed it, but never had it. I think he understood better than anyone else. He passed away 4 1/2 yrs. ago. I miss him, but I know he's gone on to a better place. > > Pain and deppression goes hand in hand. What frustrate me most is not > being able to do more Every since my back injury since 1999 I struggled > with the limtiedation I had to be the homekepper verses the going to a > job I struggle with trying to take care of our house I fall short of > getting everything done. using my stimulator and taking pain medication > is not enough If i bend down it sets my nerve pain off. Life we pain > patients live other who dont suffer with pain have no clue what we go > through. When some people sat I understand it makes me bite my tounge > unless you have pain 24/7 everty day you dont get it. Mike group owner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Hon in your case I totally agree with your grandfather. I cannot imagine being your age and having to deal with all that you have. I know that he must have been a great support person for you to have. Re: Pain and Depression I have to bite my tongue a lot also. So many people think they understand, but they really don't. Everyone thinks they know exactly what you are going through, but in reality " everyone " doesn't know. I didn't know what pain was until I started having this pain that I'm having with RSD. I can remember when I was 16, my grandfather used to say that it wasn't right for me to be in so much pain. He said old people like him were supposed to have pain, not young people like me. He had a lot of joint pain. Both his sisters had knee replacement and he needed it, but never had it. I think he understood better than anyone else. He passed away 4 1/2 yrs. ago. I miss him, but I know he's gone on to a better place. > > Pain and deppression goes hand in hand. What frustrate me most is not > being able to do more Every since my back injury since 1999 I struggled > with the limtiedation I had to be the homekepper verses the going to a > job I struggle with trying to take care of our house I fall short of > getting everything done. using my stimulator and taking pain medication > is not enough If i bend down it sets my nerve pain off. Life we pain > patients live other who dont suffer with pain have no clue what we go > through. When some people sat I understand it makes me bite my tounge > unless you have pain 24/7 everty day you dont get it. Mike group owner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Kim I am feelin ya.... I don't work, however I live with 2 grown men n 2 kids. I have gone rounds with them over just because I don't work doesn't mean I am the maid. I can't work for a reason n it has nothing to do with waiting on them hand n foot. My brother in law has been the worst...when he isn't working he sits at a freakin computer all day....where's his freakin contribution???, he isn't working.... I would trade my pain for the ability to go to work in a heartbeat!!!!! How little do they realize I would gladly work or go to school n let them do my job for a while....they couldn't hack it with no pain, much less do what I do with pain. I would gladly trade roles with any of them. My sister is a huge complainer n attention hog, she has to be better at things, sicker or in more pain, have better or more stuff....it's quite sad really, especially since she strives most of this towards me....she hasn't even begun to experience what I have been thru.... Where she gets the idea that being me is so wonderful I am clueless! I so understand being sick n tired of cleaning up after able bodied people!!!!!!! Deanna Sent from my iPhone On Dec 3, 2008, at 4:26 PM, " kimleach " <kimleach@...> wrote: MAN you said two mouthfulls when you said that! The people in your family think they know what you are going through but they have not one clue! Unless someone goes through this for a bit of time, they could not imagine the energy that it takes just some days to get out of bed and get going at least that is how it is for me. I know what you mean about work around the house too Mike. I work from my home and also am expected to do house work as well. I am the one who does 90% of the cooking here. My adult son can cook however he works a lot of hours. My husband cannot cook anything but maybe heat up a frozen pizza or cook hot dogs. He will do that without fussing but my kids don't like it on and on. It is hard to have to clean up behind everyone all the time on and on. I almost went off this weekend when I walked from room to room and picked up item after item after item that had just been left and not thrown in the trash. Yes I know I am depressed rigth now. I know I am menopausal too which does not help matters. BUT that does not make it right for them to take advantage of the fact that just because I am here its ok to make messes and leave them for me to clean up either! Pain and Depression Pain and deppression goes hand in hand. What frustrate me most is not being able to do more Every since my back injury since 1999 I struggled with the limtiedation I had to be the homekepper verses the going to a job I struggle with trying to take care of our house I fall short of getting everything done. using my stimulator and taking pain medication is not enough If i bend down it sets my nerve pain off. Life we pain patients live other who dont suffer with pain have no clue what we go through. When some people sat I understand it makes me bite my tounge unless you have pain 24/7 everty day you dont get it. Mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 I've never known any other teen that was diagnosed with RSD. While I was student teaching there was a third grader diagnosed with RSD and it nearly broke my heart. However, she went to PT and everything got better. Hopefully that means she didn't have RSD, but if it was hopefully it will never cause problems again. By the way I don't know if I ever mentioned this, but my university accomodated my student teaching by making it half days for two semesters instead of whole days for one semester. I would have never been able to complete my bachelor degree without that accomodation. Now I'm working on an online master's degree in educational technology. At least now that I'm 28, I can find people somewhat close to my age to talk to about my medical problems. People who understand RSD pain and spinal cord stimulators. Until I joined this group I had no one who " truly " understood. I do know a couple people with SCS, but they are my parent's age and have nothing in common with me. The one man I know that has a SCS for a " bad " back rides a motorcycle, repairs cars and lawnmowers, etc. I don't understand any of that. My pain is worsened by riding in a car, sitting, standing, etc. If I could ride a motorcycle, repair cars and lawnmowers, etc. I would think I had life made. > > > > Pain and deppression goes hand in hand. What frustrate me most is not > > being able to do more Every since my back injury since 1999 I > struggled > > with the limtiedation I had to be the homekepper verses the going to > a > > job I struggle with trying to take care of our house I fall short of > > getting everything done. using my stimulator and taking pain > medication > > is not enough If i bend down it sets my nerve pain off. Life we pain > > patients live other who dont suffer with pain have no clue what we go > > through. When some people sat I understand it makes me bite my > tounge > > unless you have pain 24/7 everty day you dont get it. Mike group > owner > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 I've never known any other teen that was diagnosed with RSD. While I was student teaching there was a third grader diagnosed with RSD and it nearly broke my heart. However, she went to PT and everything got better. Hopefully that means she didn't have RSD, but if it was hopefully it will never cause problems again. By the way I don't know if I ever mentioned this, but my university accomodated my student teaching by making it half days for two semesters instead of whole days for one semester. I would have never been able to complete my bachelor degree without that accomodation. Now I'm working on an online master's degree in educational technology. At least now that I'm 28, I can find people somewhat close to my age to talk to about my medical problems. People who understand RSD pain and spinal cord stimulators. Until I joined this group I had no one who " truly " understood. I do know a couple people with SCS, but they are my parent's age and have nothing in common with me. The one man I know that has a SCS for a " bad " back rides a motorcycle, repairs cars and lawnmowers, etc. I don't understand any of that. My pain is worsened by riding in a car, sitting, standing, etc. If I could ride a motorcycle, repair cars and lawnmowers, etc. I would think I had life made. > > > > Pain and deppression goes hand in hand. What frustrate me most is not > > being able to do more Every since my back injury since 1999 I > struggled > > with the limtiedation I had to be the homekepper verses the going to > a > > job I struggle with trying to take care of our house I fall short of > > getting everything done. using my stimulator and taking pain > medication > > is not enough If i bend down it sets my nerve pain off. Life we pain > > patients live other who dont suffer with pain have no clue what we go > > through. When some people sat I understand it makes me bite my > tounge > > unless you have pain 24/7 everty day you dont get it. Mike group > owner > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 I didn't know anyone my age either who had a SCS until after I got mine. And I had never heard of them before. Then my Aunt who is 82 got one and I talked to her on the phone and she raved about it. And it just so happened at my next pain mgt appt my doc recommended it for me. Since then my daughter's sister-in-law has gotten one (she heard about me and called me). But even though her trial didn't work very well, she went ahead and got the permanent and now can't use it. It makes her legs itch severely (she says) and she scratches so much she has drawn blood. She said she is not going to have it taken out though. I believe she is leaning towards the pain pump now. I talk to people at my doctor's office though and so far haven't met anyone who regrets getting it. Take Care, B. in TEXAS Re: Pain and Depression I've never known any other teen that was diagnosed with RSD. While I was student teaching there was a third grader diagnosed with RSD and it nearly broke my heart. However, she went to PT and everything got better. Hopefully that means she didn't have RSD, but if it was hopefully it will never cause problems again. By the way I don't know if I ever mentioned this, but my university accomodated my student teaching by making it half days for two semesters instead of whole days for one semester. I would have never been able to complete my bachelor degree without that accomodation. Now I'm working on an online master's degree in educational technology. At least now that I'm 28, I can find people somewhat close to my age to talk to about my medical problems. People who understand RSD pain and spinal cord stimulators. Until I joined this group I had no one who " truly " understood. I do know a couple people with SCS, but they are my parent's age and have nothing in common with me. The one man I know that has a SCS for a " bad " back rides a motorcycle, repairs cars and lawnmowers, etc. I don't understand any of that. My pain is worsened by riding in a car, sitting, standing, etc. If I could ride a motorcycle, repair cars and lawnmowers, etc. I would think I had life made. > > > > Pain and deppression goes hand in hand. What frustrate me most is not > > being able to do more Every since my back injury since 1999 I > struggled > > with the limtiedation I had to be the homekepper verses the going to > a > > job I struggle with trying to take care of our house I fall short of > > getting everything done. using my stimulator and taking pain > medication > > is not enough If i bend down it sets my nerve pain off. Life we pain > > patients live other who dont suffer with pain have no clue what we go > > through. When some people sat I understand it makes me bite my > tounge > > unless you have pain 24/7 everty day you dont get it. Mike group > owner > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 That reminds me when someone asked the question " can you run with a stimulator " all I could think was I cant run without one.....and then my statement to the person was if you could run before you can run after....maybe without some of the pain you were having. Deb Rn From: Stimulator [mailto:Stimulator ] On Behalf Of robbd1980 Sent: Thursday, December 04, 2008 11:33 AM Stimulator Subject: Re: Pain and Depression I've never known any other teen that was diagnosed with RSD. While I was student teaching there was a third grader diagnosed with RSD and it nearly broke my heart. However, she went to PT and everything got better. Hopefully that means she didn't have RSD, but if it was hopefully it will never cause problems again. By the way I don't know if I ever mentioned this, but my university accomodated my student teaching by making it half days for two semesters instead of whole days for one semester. I would have never been able to complete my bachelor degree without that accomodation. Now I'm working on an online master's degree in educational technology. At least now that I'm 28, I can find people somewhat close to my age to talk to about my medical problems. People who understand RSD pain and spinal cord stimulators. Until I joined this group I had no one who " truly " understood. I do know a couple people with SCS, but they are my parent's age and have nothing in common with me. The one man I know that has a SCS for a " bad " back rides a motorcycle, repairs cars and lawnmowers, etc. I don't understand any of that. My pain is worsened by riding in a car, sitting, standing, etc. If I could ride a motorcycle, repair cars and lawnmowers, etc. I would think I had life made. > > > > Pain and deppression goes hand in hand. What frustrate me most is not > > being able to do more Every since my back injury since 1999 I > struggled > > with the limtiedation I had to be the homekepper verses the going to > a > > job I struggle with trying to take care of our house I fall short of > > getting everything done. using my stimulator and taking pain > medication > > is not enough If i bend down it sets my nerve pain off. Life we pain > > patients live other who dont suffer with pain have no clue what we go > > through. When some people sat I understand it makes me bite my > tounge > > unless you have pain 24/7 everty day you dont get it. Mike group > owner > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 I am glad that your university at least did give you some lee way in completing your degrees. I know that when I was in college they could give a crap less if anyone was dying with the flu or whatever. You went to class or else. Glad to see things are not as they once were. Re: Pain and Depression I've never known any other teen that was diagnosed with RSD. While I was student teaching there was a third grader diagnosed with RSD and it nearly broke my heart. However, she went to PT and everything got better. Hopefully that means she didn't have RSD, but if it was hopefully it will never cause problems again. By the way I don't know if I ever mentioned this, but my university accomodated my student teaching by making it half days for two semesters instead of whole days for one semester. I would have never been able to complete my bachelor degree without that accomodation. Now I'm working on an online master's degree in educational technology. At least now that I'm 28, I can find people somewhat close to my age to talk to about my medical problems. People who understand RSD pain and spinal cord stimulators. Until I joined this group I had no one who " truly " understood. I do know a couple people with SCS, but they are my parent's age and have nothing in common with me. The one man I know that has a SCS for a " bad " back rides a motorcycle, repairs cars and lawnmowers, etc. I don't understand any of that. My pain is worsened by riding in a car, sitting, standing, etc. If I could ride a motorcycle, repair cars and lawnmowers, etc. I would think I had life made. > > > > Pain and deppression goes hand in hand. What frustrate me most is not > > being able to do more Every since my back injury since 1999 I > struggled > > with the limtiedation I had to be the homekepper verses the going to > a > > job I struggle with trying to take care of our house I fall short of > > getting everything done. using my stimulator and taking pain > medication > > is not enough If i bend down it sets my nerve pain off. Life we pain > > patients live other who dont suffer with pain have no clue what we go > > through. When some people sat I understand it makes me bite my > tounge > > unless you have pain 24/7 everty day you dont get it. Mike group > owner > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 OT but kind of reminds me of the old joke, Does it hurt to do that? Well then silly dont do that! Oh me! When are people gonna figure out that there is NO magic cure??? Re: Pain and Depression I've never known any other teen that was diagnosed with RSD. While I was student teaching there was a third grader diagnosed with RSD and it nearly broke my heart. However, she went to PT and everything got better. Hopefully that means she didn't have RSD, but if it was hopefully it will never cause problems again. By the way I don't know if I ever mentioned this, but my university accomodated my student teaching by making it half days for two semesters instead of whole days for one semester. I would have never been able to complete my bachelor degree without that accomodation. Now I'm working on an online master's degree in educational technology. At least now that I'm 28, I can find people somewhat close to my age to talk to about my medical problems. People who understand RSD pain and spinal cord stimulators. Until I joined this group I had no one who " truly " understood. I do know a couple people with SCS, but they are my parent's age and have nothing in common with me. The one man I know that has a SCS for a " bad " back rides a motorcycle, repairs cars and lawnmowers, etc. I don't understand any of that. My pain is worsened by riding in a car, sitting, standing, etc. If I could ride a motorcycle, repair cars and lawnmowers, etc. I would think I had life made. > > > > Pain and deppression goes hand in hand. What frustrate me most is not > > being able to do more Every since my back injury since 1999 I > struggled > > with the limtiedation I had to be the homekepper verses the going to > a > > job I struggle with trying to take care of our house I fall short of > > getting everything done. using my stimulator and taking pain > medication > > is not enough If i bend down it sets my nerve pain off. Life we pain > > patients live other who dont suffer with pain have no clue what we go > > through. When some people sat I understand it makes me bite my > tounge > > unless you have pain 24/7 everty day you dont get it. Mike group > owner > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 I have been a homemaker for the past 10 years plus, not by choice. I was an executive programmer who lost her job due to a company that sold out. My husband has been holding everything together while I have been going back to school in the meantime. The intention was to go back after my Bachelors degree however I had the opportunity to continue forward and take my MBA so I did it since it was only two more years and I could finish in less, which I did since it was accelerated. In the mean time, my husband and I have been care takers of his grandmother as well which has been a job in itself. As of this past June, she passed away due to renal failure from cancer. It has been a difficult road for all of us however she was a lady full of energy who will be missed. Because my husband and I were her caretakers, she left us her 3 bedroom mobile home. It needs work as his grandmother either ignored issues or did not have the finances to correct matters. The situation we are currently in is difficult because it is one income. Because of my situation, I am rebuilding my web consulting business. I want to work outside of the home and take advantage of my MBA degree which I achieved in September 2008 however because of my back issues and the migraines that are starting to act up again, I don't know how quickly I will be able to. I did write a letter to my Congressman regarding the issue of telecommuting and how I feel more corporations should begin doing this to benefit those who can provide top notch skills and education but are unable to travel to the business location. So, I suppose you could say that I am really pushing this issue into Congress because I feel that businesses actually do need to start giving professionals the respect they are worth and the right to work and the right to employment. SueLynn Quote Link to comment Share on other sites More sharing options...
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