Re: ? About TAking Pain Meds After SCS

[Guest guest]

Hi Kim..

I received my scs in Feb 08... While I say I love it,  I to still have some

pain. I also have fibromyalgia... My pm Dr also seems to think that all I need

is my scs... I am still on Tramadol.and Lidaderm patches.... Dr has taken me off

of Lyrica. I can tell a big diff since I stopped them last Monday...

I tell him I still have pain,, then he says that the scs isn't working,,, well

it is working,, i can tell when i turn it off, pain get much worse....so I do

know it is helping alot... . I love my PM Dr but at times I wish there was

another one in this area.... there are days that I do need more meds,,, then I

have my good days,,,, this cold weather makes for alot of bad days.... Merry

Christmas and I pray you have a less painful new year !!

         soft hugs

                    T

 lisa

From: kimleach <kimleach@...>

Subject: ? About TAking Pain Meds After SCS

Stimulator

Date: Monday, December 22, 2008, 6:12 PM

Hi Guys

My Pain MGT doc alluded to the fact that a lot of his patients were able to

control thier pain totally with the SCS and did not have to have pain meds

afterwards.

While my pain is better yes and my nerve pain is a whole lot better I still need

to take my pain meds for the pain in my mid back and some low back stuff that is

still there. I do not have to take nearly as much medication and have been able

to cut down on a whole lot of the muscle relaxers. I am hoping to get off the

Topamax too.

My question is how many of you were able to get off medicaiton or did you just

cut back what you were taking after the SCS? I know of the ones I remember

talking about it before none of them were able to go off meds completely and

even the Medtronics rep told me the goal is to relieve 50% of the pain.

I would say mine is about 50-60% better but definitely not enough to go off all

pain meds.

Kim

Freelance Copywriter and Blogger

Articles on Suite 101

http://ghosts- hauntings. suite101. com/article. cfm/the_haunting _of_carnton_

mansion

http://psychic- abilities. suite101. com/article. cfm/live_ online_psychic_

readings_ guide

My Blogs

http://dealwithchro nicpain.org

http://naturalcures review.org

http://msfrugalmcdo ugal.org

My Ehow Articles

http://www.ehow. com/members/ starchild47. html

[Guest guest]

I was told the goal was 50% reduction in pain. Initially, I was able to go off

all meds....my pain doc weaned me off over 2 months. But six months later I

started having more pain and ended up back on the meds. So I know, my pain

level is actually higher than it was before the surgery, but I'm able to control

it with both meds and the SCS.

Take Care,

B. in TEXAS

________________________________

From: kimleach <kimleach@...>

Stimulator

Sent: Monday, December 22, 2008 5:12:45 PM

Subject: ? About TAking Pain Meds After SCS

Hi Guys

My Pain MGT doc alluded to the fact that a lot of his patients were able to

control thier pain totally with the SCS and did not have to have pain meds

afterwards.

While my pain is better yes and my nerve pain is a whole lot better I still need

to take my pain meds for the pain in my mid back and some low back stuff that is

still there. I do not have to take nearly as much medication and have been able

to cut down on a whole lot of the muscle relaxers. I am hoping to get off the

Topamax too.

My question is how many of you were able to get off medicaiton or did you just

cut back what you were taking after the SCS? I know of the ones I remember

talking about it before none of them were able to go off meds completely and

even the Medtronics rep told me the goal is to relieve 50% of the pain.

I would say mine is about 50-60% better but definitely not enough to go off all

pain meds.

Kim

Freelance Copywriter and Blogger

Articles on Suite 101

http://ghosts-hauntings.suite101.com/article.cfm/the_haunting_of_carnton_mansion

http://psychic-abilities.suite101.com/article.cfm/live_online_psychic_readings_g\

uide

My Blogs

http://dealwithchronicpain.org

http://naturalcuresreview.org

http://msfrugalmcdougal.org

My Ehow Articles

http://www.ehow.com/members/starchild47.html

[Guest guest]

B, I also live in Texas my name is Dawn been in the group over Two

years don't post lots because hard to type. any way I have RSD upper

boday now into leggs and feet. I have SCS and have never been off any

meds. Actually they increased. So I can understand your feelings. Each

body respons differently but I know alot of people with SCS that have

had to stay on meds. Yes the hope is 50% but I have not heared of many

people reaching that point permanently. Don't give up hope you may need

to have your unit reprogramed it is easy they hook you up to computer

read all usages times dates levels and then they can change settings or

feeling if you will...... I have had mind reprogramed twice going on

three in January( got it in Feb 07) but still on hight dose meds....

just remember sensetivity( things that touch, movement, all that

aggrivated it before) really only changes to a different feeling- not

pain free just different sensation. I hope I helped your qyestion if you

ever want to email me personaly please feel free to do so

dde_1@... <mailto:dde_1@...> . I have been to hell

and back and on my way again, but most of us will say that just in a

nicer way. Focus on Christmas and happy, we have a life to deal with

this... ol?

Take care and God bless

Have a light pain day as best you can

Dawn

>

> I was told the goal was 50% reduction in pain. Initially, I was able

to go off all meds....my pain doc weaned me off over 2 months. But six

months later I started having more pain and ended up back on the meds.

So I know, my pain level is actually higher than it was before the

surgery, but I'm able to control it with both meds and the SCS.

>

>

> Take Care,

> B. in TEXAS

>

>

>

>

>

> ________________________________

> From: kimleach kimleach@...

> Stimulator

> Sent: Monday, December 22, 2008 5:12:45 PM

> Subject: ? About TAking Pain Meds After SCS

>

> Hi Guys

> My Pain MGT doc alluded to the fact that a lot of his patients were

able to control thier pain totally with the SCS and did not have to have

pain meds afterwards.

> While my pain is better yes and my nerve pain is a whole lot better I

still need to take my pain meds for the pain in my mid back and some low

back stuff that is still there. I do not have to take nearly as much

medication and have been able to cut down on a whole lot of the muscle

relaxers. I am hoping to get off the Topamax too.

> My question is how many of you were able to get off medicaiton or did

you just cut back what you were taking after the SCS? I know of the ones

I remember talking about it before none of them were able to go off meds

completely and even the Medtronics rep told me the goal is to relieve

50% of the pain.

> I would say mine is about 50-60% better but definitely not enough to

go off all pain meds.

>

> Kim

> Freelance Copywriter and Blogger

> Articles on Suite 101

>

http://ghosts-hauntings.suite101.com/article.cfm/the_haunting_of_carnton\

_mansion

>

http://psychic-abilities.suite101.com/article.cfm/live_online_psychic_re\

adings_guide

>

> My Blogs

>

>

> http://dealwithchronicpain.org

> http://naturalcuresreview.org

> http://msfrugalmcdougal.org

>

> My Ehow Articles

>

>

> http://www.ehow.com/members/starchild47.html

>

>

>

>

>

>

>

>

[Guest guest]

i too have other problems that appeared after my scs and am still on strong

meds my rsd spread also i'm in ohio any way i can help with the

fundraiser or maybe you can give me pointers on how to arrange one here

thanks lisa

**************One site keeps you connected to all your email: AOL Mail,

Gmail, and Mail. Try it now.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

[Guest guest]

Dawn,

Hey there, I am and I had an scs implanted for my lower left

leg in November of this year. While it has taken away the sharp pains

when I walk, the rsd pain is still there and I have a deep down bone

ache that I recently found out was due to an osteoporosis diagnosis

in Feburary that I was never told about. Following the ScS surgery,

the rsd in my arm accelerated. I have severe pain in my left arm, a

serious rash that wont go away, and lesions all over due to Rsd. I am

on more meds now than before the surgery, including methadone.

Unfortunatly, the scs has only helped me with walking, even though my

walking is very slow and I walk with a serious limp. I felt so bad

having to take an even stronger pain med because in my mind the scs

was the closest thing to a cure for me. Yhe trial gave me about 80%,

now I have about 50% relief. I am grateful for what it does for me,

however, now I have to deal with other problems I didntt consider

prior to the surgery.

Also, for you Texans, I am helping organize an Rsd 5k Run in late

April 2009 in McKinny Texas. The details are just now coming

together, but the organizer is hoping the race will be similar to

those held on the east coast. I will email with more inofrmation

about the date and stuff as I find out. We are hoping this will be an

annual event for the DFW Rsd'ers to gather and meet new friends that

also are afflicted with this terrible disease. Email me for any

questions, otherwise, I will post when I have more info.

Love

-- In Stimulator , " Dawn " <dde_1@...> wrote:

>

>

> B, I also live in Texas my name is Dawn been in the group

over Two

> years don't post lots because hard to type. any way I have RSD upper

> boday now into leggs and feet. I have SCS and have never been off

any

> meds. Actually they increased. So I can understand your feelings.

Each

> body respons differently but I know alot of people with SCS that

have

> had to stay on meds. Yes the hope is 50% but I have not heared of

many

> people reaching that point permanently. Don't give up hope you may

need

> to have your unit reprogramed it is easy they hook you up to

computer

> read all usages times dates levels and then they can change

settings or

> feeling if you will...... I have had mind reprogramed twice going on

> three in January( got it in Feb 07) but still on hight dose meds....

> just remember sensetivity( things that touch, movement, all that

> aggrivated it before) really only changes to a different feeling-

not

> pain free just different sensation. I hope I helped your qyestion

if you

> ever want to email me personaly please feel free to do so

> dde_1@... <mailto:dde_1@...> . I have been to hell

> and back and on my way again, but most of us will say that just in a

> nicer way. Focus on Christmas and happy, we have a life to deal with

> this... ol?

>

> Take care and God bless

>

> Have a light pain day as best you can

>

> Dawn

>

> >

> > I was told the goal was 50% reduction in pain. Initially, I was

able

> to go off all meds....my pain doc weaned me off over 2 months. But

six

> months later I started having more pain and ended up back on the

meds.

> So I know, my pain level is actually higher than it was before the

> surgery, but I'm able to control it with both meds and the SCS.

> >

> >

> > Take Care,

> > B. in TEXAS

> >

> >

> >

> >

> >

> > ________________________________

> > From: kimleach kimleach@

> > Stimulator

> > Sent: Monday, December 22, 2008 5:12:45 PM

> > Subject: ? About TAking Pain Meds After SCS

> >

> > Hi Guys

> > My Pain MGT doc alluded to the fact that a lot of his patients

were

> able to control thier pain totally with the SCS and did not have to

have

> pain meds afterwards.

> > While my pain is better yes and my nerve pain is a whole lot

better I

> still need to take my pain meds for the pain in my mid back and

some low

> back stuff that is still there. I do not have to take nearly as much

> medication and have been able to cut down on a whole lot of the

muscle

> relaxers. I am hoping to get off the Topamax too.

> > My question is how many of you were able to get off medicaiton or

did

> you just cut back what you were taking after the SCS? I know of the

ones

> I remember talking about it before none of them were able to go off

meds

> completely and even the Medtronics rep told me the goal is to

relieve

> 50% of the pain.

> > I would say mine is about 50-60% better but definitely not enough

to

> go off all pain meds.

> >

> > Kim

> > Freelance Copywriter and Blogger

> > Articles on Suite 101

> >

> http://ghosts-

hauntings.suite101.com/article.cfm/the_haunting_of_carnton\

> _mansion

> >

> http://psychic-

abilities.suite101.com/article.cfm/live_online_psychic_re\

> adings_guide

> >

> > My Blogs

> >

> >

> > http://dealwithchronicpain.org

> > http://naturalcuresreview.org

> > http://msfrugalmcdougal.org

> >

> > My Ehow Articles

> >

> >

> > http://www.ehow.com/members/starchild47.html

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Oh my, can you believe these drs. My pain mgmt dr, or shall I say old

pain mgmt dr, did the scs trial and referred me out forthe surgery,

however, he wanted to continue my post-op care. The surgeon I was

referred to also said that as soon as the stim is implanted, I should

be taken all of my meds. I mentioned that I still had Rsd in my left

upper arm and he didnt have a response other than saying I needed a

cervical stim for that.

This surgeon said I had too many meds at home and he didnt prescribe

me any med spost-op. I had hell post-op, severe pain, crying,

vomitting, severe nausea, the works. The prob was, I had built up a

tolerance to my meds, so it felt like I was taking nothing for the

post op pain. Also ,I was throwing up, it was terrible.

Then I went back to my old pain mgmt dr and he started saying how he

was going to take me off all my meds. Even though I was telling him

that my arm rsd was in a severe flare since surgery. Hello!!! This is

for lumbar people not for my arm!!

The pm also said that the scs was going to reheal my osteoporosis

bones and fix my rsd damage, what??? Whatever..

So I went to a new pm who also implants scs's and he put me on

methadone and he is takign me off meds that dont work. The methadone

is really helping and I am grateful someone listened to me.

The point is, dont let these drs tell you what your pain should be,

if he doesnt listen, drive to see another one, drive an hour away,

its worht it, thats what I am doing now. The drs seem to think this

thing is a miracle machine and we will be able to walk on water after

surgery, lol.. Im not certain where they get this, considering it

only takes a percentage of pain away, what are we supposed to do

about breakthrough pain or the rest? Suffer???

Stand up for yourself, tell your dr you need help and if he wont

listen, go elsewhere!

Love shannon

>

> From: kimleach <kimleach@...>

> Subject: ? About TAking Pain Meds After SCS

> Stimulator

> Date: Monday, December 22, 2008, 6:12 PM

>

>

>

>

>

>

> Hi Guys

> My Pain MGT doc alluded to the fact that a lot of his patients were

able to control thier pain totally with the SCS and did not have to

have pain meds afterwards.

> While my pain is better yes and my nerve pain is a whole lot better

I still need to take my pain meds for the pain in my mid back and

some low back stuff that is still there. I do not have to take nearly

as much medication and have been able to cut down on a whole lot of

the muscle relaxers. I am hoping to get off the Topamax too.

> My question is how many of you were able to get off medicaiton or

did you just cut back what you were taking after the SCS? I know of

the ones I remember talking about it before none of them were able to

go off meds completely and even the Medtronics rep told me the goal

is to relieve 50% of the pain.

> I would say mine is about 50-60% better but definitely not enough

to go off all pain meds.

>

> Kim

> Freelance Copywriter and Blogger

> Articles on Suite 101

> http://ghosts- hauntings. suite101. com/article. cfm/the_haunting

_of_carnton_ mansion

> http://psychic- abilities. suite101. com/article. cfm/live_

online_psychic_ readings_ guide

>

> My Blogs

>

> http://dealwithchro nicpain.org

> http://naturalcures review.org

> http://msfrugalmcdo ugal.org

>

> My Ehow Articles

>

> http://www.ehow. com/members/ starchild47. html

>

>

[Guest guest]

,

Tricia, the organizer, got the idea from a Run she attended in

California for Rsd. Im certain she would love to give you some tips

after she gets everything together. I know she is a little busy now

with everything, but once everything happens, I will give her your

info for some tips. Of course, if possible we would love for you to

come down for this one, maybe you could get inspired for Ohio!

Love Shan

>

> i too have other problems that appeared after my scs and am still

on strong

> meds my rsd spread also i'm in ohio any way i can help with the

> fundraiser or maybe you can give me pointers on how to arrange

one here thanks lisa

> **************One site keeps you connected to all your email: AOL

Mail,

> Gmail, and Mail. Try it now.

> (http://www.aol.com/?optin=new-

dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

>

>

>

[Guest guest]

I don't understand some of these Dr. they think they are mircile

workers. I had a Dise replacement C-5 and it failed. then I got another

surgoen and he Fixed C-5 and did C-6. After surgery he said I could do

anything I wanted to do, but I am I more Pain than before surgery. I

wonder where they grow those big heads. Now I am scared of surgeon's

and Pain management Dr's all they want to do is give injections which

help but not a cure !

> >

> > From: kimleach kimleach@

> > Subject: ? About TAking Pain Meds After SCS

> > Stimulator

> > Date: Monday, December 22, 2008, 6:12 PM

> >

> >

> >

> >

> >

> >

> > Hi Guys

> > My Pain MGT doc alluded to the fact that a lot of his patients were

> able to control thier pain totally with the SCS and did not have to

> have pain meds afterwards.

> > While my pain is better yes and my nerve pain is a whole lot better

> I still need to take my pain meds for the pain in my mid back and

> some low back stuff that is still there. I do not have to take nearly

> as much medication and have been able to cut down on a whole lot of

> the muscle relaxers. I am hoping to get off the Topamax too.

> > My question is how many of you were able to get off medicaiton or

> did you just cut back what you were taking after the SCS? I know of

> the ones I remember talking about it before none of them were able to

> go off meds completely and even the Medtronics rep told me the goal

> is to relieve 50% of the pain.

> > I would say mine is about 50-60% better but definitely not enough

> to go off all pain meds.

> >

> > Kim

> > Freelance Copywriter and Blogger

> > Articles on Suite 101

> > http://ghosts- hauntings. suite101. com/article. cfm/the_haunting

> _of_carnton_ mansion

> > http://psychic- abilities. suite101. com/article. cfm/live_

> online_psychic_ readings_ guide

> >

> > My Blogs

> >

> > http://dealwithchro nicpain.org

> > http://naturalcures review.org

> > http://msfrugalmcdo ugal.org

> >

> > My Ehow Articles

> >

> > http://www.ehow. com/members/ starchild47. html

> >

> >