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Bernice? Re: (unknown)

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,

Hi there. I'm 's mom. I can find some pictures.

I may take a while ( busy summer) but we are making a

website of 's surgeries and progress. I have a

lot on my plate right now, but I'll let you know when

it's up and running.

a Dubreuil

--- Noonnaanay@... wrote:

> In a message dated 5/21/02 11:13:30 PM Pacific

> Daylight Time,

> lortega57@... writes:

>

> << blepharophimosis >>

>

> Hi Bernice,

> Haven't heard from you in a while. How is Nina

> doing? How did her surgery go?

> We are finally getting closer to zeroing in on a

> doctor for its been a

> long process. We were referred to a Dr. Seiff at

> UCSF in San Francisco and he

> seems to be well known so I hope he is the one. Do

> you or any one else have

> any pictures of the children after surgery. I would

> really like to see how it

> looks. It would be much appreciated. I am worried

> about it. I hope to hear

> from some of you soon!!

> Thanks,

>

>

__________________________________________________

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Hi Stepanie

When will you meet dr seiff? Hope he is indeed 'the one'.

I added two more pictures of nina some weeks after surgery and one

of her about a month ago onder the 'Photos' file of this egroup.

She's doing great.

We will visit the doctors next month and see what they say about her

vision etc. Because the next step after operating the ptosis is that

they are able to study her eyes themselfs a bit better. We tape her

right eye for 15 minutes a day because after our first consult the

doctors found that her left eye stands inward (sorry for my english,

this doesnt sound right). We are very curious at what the doctors

will say on our second meeting (after the operation) next month.

Hope all is well with you and all the others joined in this group.

Bye for now,

Bernice

> > > In a message dated 5/21/02 11:13:30 PM Pacific

> > > Daylight Time,

> > > lortega57@h... writes:

> > >

> > > << blepharophimosis@y... >>

> > >

> > > Hi Bernice,

> > > Haven't heard from you in a while. How is Nina

> > > doing? How did her surgery go?

> > > We are finally getting closer to zeroing in on a

> > > doctor for its been a

> > > long process. We were referred to a Dr. Seiff at

> > > UCSF in San Francisco and he

> > > seems to be well known so I hope he is the one. Do

> > > you or any one else have

> > > any pictures of the children after surgery. I would

> > > really like to see how it

> > > looks. It would be much appreciated. I am worried

> > > about it. I hope to hear

> > > from some of you soon!!

> > > Thanks,

> > >

> > >

> >

> >

> > __________________________________________________

> >

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