Re: Pain Management doctor's notes

[Guest guest]

Ohh I agree a secod aponion is one way, BUT most of us have had to see

many doctors to come to a conclution of rsd and how to deal with it. I

have a seven member team of doc's that all stay in contact with each

other to help me find some ( little) comfort. I do not think you have a

team working, it's more like each dr working for them selg and not all

for you. Make sence? The one thing to remember is it is your body and

you have a right to answers now not later and if they can't stand the

heat in the kitchen they need not be there. You should not have to sit

in pain untill insurance, dr office, or what ever gets around to you!!

It may be hard to stand up to them with all the PHD, MD, blah blah blah

I took my husband going with me every visit everytime and we both spoke

up for me. So try to keep your chin up and do what is right for your

body today not six weeks from today, I learned that the hard way..

Try to have a light pain day

Dawn

> > >

> > > Margee

> > > I am glad that you at least got some partial answers. What bothers

> > me here is what are you supposed to do for the pain in the meantime

> > while they figure out what they are going to do here?

> > >

> > > To me that is cruel that they will not give you medication to

allow

> > you to have some comfort in the interim. What are you going to do if

> > you decide you do not want to go the surgical route?

> > >

> > > Have you discussed this with the the pain mgt doc? As I said I

> > think I would get a second opinion here. I dont think it would be

out

> > of reason in this situation.

> > > Kim

> > > This is from my Pain Management doctor's

> > notes

> > >

> > >

> > > It's too long to type everything, but this is what he says about

> > me.

> > >

> > > He feels at this time the only realistic options of getting

> > > significant pain relief would be either surgical intervention or

> > > implantation of a spinal cord stimulator.

> > > Due to my spinal stenosis however the only way to get a spinal

> > cord

> > > stimulator lead into my upper spine would be to do it with an open

> > > laminectomy. He could try to use percutaneous occipital leads for

> > the

> > > treatment for my headaches but this would only address one part

> > of my

> > > severe pain.

> > >

> > > So now we are waiting to see what my Neurosurgeon sees in my scan

> > that

> > > was done today and see what plan they come up with.

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thank you Dawn, my husband will be going with me on the 6th.

I'm a rather soft spoken person and don't talk much, but my husband is

not! He will ask them many questions.

Just seems I don't get the care I thought I'd be getting, they just

must have too many patients all of the time, but I need help now!

Hoping I can deal with the pain without ending up in ER, it's totally

crazy when I go there.

> > > >

> > > > Margee

> > > > I am glad that you at least got some partial answers. What bothers

> > > me here is what are you supposed to do for the pain in the meantime

> > > while they figure out what they are going to do here?

> > > >

> > > > To me that is cruel that they will not give you medication to

> allow

> > > you to have some comfort in the interim. What are you going to do if

> > > you decide you do not want to go the surgical route?

> > > >

> > > > Have you discussed this with the the pain mgt doc? As I said I

> > > think I would get a second opinion here. I dont think it would be

> out

> > > of reason in this situation.

> > > > Kim

> > > > This is from my Pain Management doctor's

> > > notes

> > > >

> > > >

> > > > It's too long to type everything, but this is what he says about

> > > me.

> > > >

> > > > He feels at this time the only realistic options of getting

> > > > significant pain relief would be either surgical intervention or

> > > > implantation of a spinal cord stimulator.

> > > > Due to my spinal stenosis however the only way to get a spinal

> > > cord

> > > > stimulator lead into my upper spine would be to do it with an open

> > > > laminectomy. He could try to use percutaneous occipital leads for

> > > the

> > > > treatment for my headaches but this would only address one part

> > > of my

> > > > severe pain.

> > > >

> > > > So now we are waiting to see what my Neurosurgeon sees in my scan

> > > that

> > > > was done today and see what plan they come up with.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Margee

Something that will be very helpful for you and your husband will be to write

down all the questions you want answered before you go to the doc on the 6th

Take them with you and read them to the doctor.

That way you are assured of not forgetting something that needs answering. It

helps me. Dang drugs like Topamax or Neurotin kill our short and long term

memories.

HTH

This is from my Pain Management doctor's

> > > notes

> > > >

> > > >

> > > > It's too long to type everything, but this is what he says about

> > > me.

> > > >

> > > > He feels at this time the only realistic options of getting

> > > > significant pain relief would be either surgical intervention or

> > > > implantation of a spinal cord stimulator.

> > > > Due to my spinal stenosis however the only way to get a spinal

> > > cord

> > > > stimulator lead into my upper spine would be to do it with an open

> > > > laminectomy. He could try to use percutaneous occipital leads for

> > > the

> > > > treatment for my headaches but this would only address one part

> > > of my

> > > > severe pain.

> > > >

> > > > So now we are waiting to see what my Neurosurgeon sees in my scan

> > > that

> > > > was done today and see what plan they come up with.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Thank you Kim, I hope to discuss this with my husband.

Memory loss, I've had that ever since the auto accident. Being on

Gabapentin, generic for Neurontin, will that add to my Memory problems?

> > > > >

> > > > > Margee

> > > > > I am glad that you at least got some partial answers. What

bothers

> > > > me here is what are you supposed to do for the pain in the

meantime

> > > > while they figure out what they are going to do here?

> > > > >

> > > > > To me that is cruel that they will not give you medication to

> > allow

> > > > you to have some comfort in the interim. What are you going

to do if

> > > > you decide you do not want to go the surgical route?

> > > > >

> > > > > Have you discussed this with the the pain mgt doc? As I said I

> > > > think I would get a second opinion here. I dont think it

would be

> > out

> > > > of reason in this situation.

> > > > > Kim

> > > > > This is from my Pain Management doctor's

> > > > notes

> > > > >

> > > > >

> > > > > It's too long to type everything, but this is what he says

about

> > > > me.

> > > > >

> > > > > He feels at this time the only realistic options of getting

> > > > > significant pain relief would be either surgical

intervention or

> > > > > implantation of a spinal cord stimulator.

> > > > > Due to my spinal stenosis however the only way to get a spinal

> > > > cord

> > > > > stimulator lead into my upper spine would be to do it with

an open

> > > > > laminectomy. He could try to use percutaneous occipital

leads for

> > > > the

> > > > > treatment for my headaches but this would only address one

part

> > > > of my

> > > > > severe pain.

> > > > >

> > > > > So now we are waiting to see what my Neurosurgeon sees in

my scan

> > > > that

> > > > > was done today and see what plan they come up with.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Margee

All of the seizure meds that they use for nerve pain can definitely mess

especially with short term memory. It is a yucky side effect we have to

tolerate.

This is from my Pain Management doctor's

> > > > notes

> > > > >

> > > > >

> > > > > It's too long to type everything, but this is what he says

about

> > > > me.

> > > > >

> > > > > He feels at this time the only realistic options of getting

> > > > > significant pain relief would be either surgical

intervention or

> > > > > implantation of a spinal cord stimulator.

> > > > > Due to my spinal stenosis however the only way to get a spinal

> > > > cord

> > > > > stimulator lead into my upper spine would be to do it with

an open

> > > > > laminectomy. He could try to use percutaneous occipital

leads for

> > > > the

> > > > > treatment for my headaches but this would only address one

part

> > > > of my

> > > > > severe pain.

> > > > >

> > > > > So now we are waiting to see what my Neurosurgeon sees in

my scan

> > > > that

> > > > > was done today and see what plan they come up with.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Does it also have to cause migraines? My head always feels like it's

going to burst!

> > > > > >

> > > > > > Margee

> > > > > > I am glad that you at least got some partial answers. What

> bothers

> > > > > me here is what are you supposed to do for the pain in the

> meantime

> > > > > while they figure out what they are going to do here?

> > > > > >

> > > > > > To me that is cruel that they will not give you

medication to

> > > allow

> > > > > you to have some comfort in the interim. What are you going

> to do if

> > > > > you decide you do not want to go the surgical route?

> > > > > >

> > > > > > Have you discussed this with the the pain mgt doc? As I

said I

> > > > > think I would get a second opinion here. I dont think it

> would be

> > > out

> > > > > of reason in this situation.

> > > > > > Kim

> > > > > > This is from my Pain Management

doctor's

> > > > > notes

> > > > > >

> > > > > >

> > > > > > It's too long to type everything, but this is what he says

> about

> > > > > me.

> > > > > >

> > > > > > He feels at this time the only realistic options of getting

> > > > > > significant pain relief would be either surgical

> intervention or

> > > > > > implantation of a spinal cord stimulator.

> > > > > > Due to my spinal stenosis however the only way to get a

spinal

> > > > > cord

> > > > > > stimulator lead into my upper spine would be to do it with

> an open

> > > > > > laminectomy. He could try to use percutaneous occipital

> leads for

> > > > > the

> > > > > > treatment for my headaches but this would only address one

> part

> > > > > of my

> > > > > > severe pain.

> > > > > >

> > > > > > So now we are waiting to see what my Neurosurgeon sees in

> my scan

> > > > > that

> > > > > > was done today and see what plan they come up with.

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

NO The Neurontin should not cause Migraines.I bet all the stress and strain that

you are under is causing the migraines to be worse. I hate to say that but I

know when I am stressed it causes mine to flare up.

Kim

This is from my Pain Management

doctor's

> > > > > notes

> > > > > >

> > > > > >

> > > > > > It's too long to type everything, but this is what he says

> about

> > > > > me.

> > > > > >

> > > > > > He feels at this time the only realistic options of getting

> > > > > > significant pain relief would be either surgical

> intervention or

> > > > > > implantation of a spinal cord stimulator.

> > > > > > Due to my spinal stenosis however the only way to get a

spinal

> > > > > cord

> > > > > > stimulator lead into my upper spine would be to do it with

> an open

> > > > > > laminectomy. He could try to use percutaneous occipital

> leads for

> > > > > the

> > > > > > treatment for my headaches but this would only address one

> part

> > > > > of my

> > > > > > severe pain.

> > > > > >

> > > > > > So now we are waiting to see what my Neurosurgeon sees in

> my scan

> > > > > that

> > > > > > was done today and see what plan they come up with.

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

Wish I knew how to get rid of the stress then!

Then on top of that my bickering twins are at it again!

> > > > > > >

> > > > > > > Margee

> > > > > > > I am glad that you at least got some partial answers. What

> > bothers

> > > > > > me here is what are you supposed to do for the pain in the

> > meantime

> > > > > > while they figure out what they are going to do here?

> > > > > > >

> > > > > > > To me that is cruel that they will not give you

> medication to

> > > > allow

> > > > > > you to have some comfort in the interim. What are you going

> > to do if

> > > > > > you decide you do not want to go the surgical route?

> > > > > > >

> > > > > > > Have you discussed this with the the pain mgt doc? As I

> said I

> > > > > > think I would get a second opinion here. I dont think it

> > would be

> > > > out

> > > > > > of reason in this situation.

> > > > > > > Kim

> > > > > > > This is from my Pain Management

> doctor's

> > > > > > notes

> > > > > > >

> > > > > > >

> > > > > > > It's too long to type everything, but this is what he says

> > about

> > > > > > me.

> > > > > > >

> > > > > > > He feels at this time the only realistic options of

getting

> > > > > > > significant pain relief would be either surgical

> > intervention or

> > > > > > > implantation of a spinal cord stimulator.

> > > > > > > Due to my spinal stenosis however the only way to get a

> spinal

> > > > > > cord

> > > > > > > stimulator lead into my upper spine would be to do it with

> > an open

> > > > > > > laminectomy. He could try to use percutaneous occipital

> > leads for

> > > > > > the

> > > > > > > treatment for my headaches but this would only address one

> > part

> > > > > > of my

> > > > > > > severe pain.

> > > > > > >

> > > > > > > So now we are waiting to see what my Neurosurgeon sees in

> > my scan

> > > > > > that

> > > > > > > was done today and see what plan they come up with.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

That one is hard to do I know I have my kids home today its parent teacher

conference. Ugggh. So no school. I told my girls they have to clean their rooms

today. Oh me you would have thought I said walk to the next state and back!

This is from my Pain Management

> doctor's

> > > > > > notes

> > > > > > >

> > > > > > >

> > > > > > > It's too long to type everything, but this is what he says

> > about

> > > > > > me.

> > > > > > >

> > > > > > > He feels at this time the only realistic options of

getting

> > > > > > > significant pain relief would be either surgical

> > intervention or

> > > > > > > implantation of a spinal cord stimulator.

> > > > > > > Due to my spinal stenosis however the only way to get a

> spinal

> > > > > > cord

> > > > > > > stimulator lead into my upper spine would be to do it with

> > an open

> > > > > > > laminectomy. He could try to use percutaneous occipital

> > leads for

> > > > > > the

> > > > > > > treatment for my headaches but this would only address one

> > part

> > > > > > of my

> > > > > > > severe pain.

> > > > > > >

> > > > > > > So now we are waiting to see what my Neurosurgeon sees in

> > my scan

> > > > > > that

> > > > > > > was done today and see what plan they come up with.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

Margee,

I highly suggest that whatever you do if you are going to see a

surgeon regarding this you get a second opinion to be sure that this

is correct. Not saying that the first is not however you want to be

sure as I will tell you from experience the persons I have dealt with

are in it for money, not the patients welfare. If it was not for me

finding a second neurosurgeon and correcting the first neurosurgeon's

error I would not be where I am today.

As for medications causing migraines, I honestly couldn't answer that

because the medications that are being mentioned are ones used to fend

them off. For example, Topomax is one that many patients are taking

now because it works to suit their chronic migraines. For myself, I

take a low dose for the epilepsy and it does nothing to help my

chronic migraine issue. As a matter of fact, I am actually on a

narcotic at the moment (Tramadol) because of the migraine flare up.

Every patient is different with medication treatment as what may work

for one person might not be the answer to solve another patient's pain

management issues. That is why there are multiple options of drugs on

the market. It would be valuable to keep a log of your migraines if

you haven't been as this may help determine the cause. I have been

tracking mine since the August flare up and we are finally beginning

to seeing a slight difference. It is not that much of a difference but

they are slowing down a little which is good.

I wish you well.

Sue