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Thank you Mike

Sent from my iPhone

On Nov 22, 2008, at 6:29 AM, " Mike " <mike2boys@...> wrote:

Happy bbirthday You are a wonderful person and you have been the best

moderator thank you for everything mike group owner

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Thank you T.

Sent from my iPhone

On Nov 22, 2008, at 8:54 AM, lisa thompson <bluejeans412003@...> wrote:

Happy Birthday Deanna,, Hope you have a wonderful and pain free birthday !!!!!

soft hugs

T

lisa

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  • 1 month later...

I compeletly agree with you that acting on feelings and thoughts is

the worst thing any of us could do. I think we have all probably

been there at some point.

I've only been a part of this group a couple months, but I feel I can

talk to you all about my problems because you all face similar

problems.

>

> I have fallen so many times and injured my back. I had a

> stimulator placed in my lower back March 2008 in Oklahoma City by a

> doctor. My chronic pain has progressed and now my stimulator isn't

> doing me any good. The doctor is owed big amount of $$ because my

> medicare didn't pay alot of it. We can't pay with my husband didn't

> get the income he was promised at his job. He has now quit and

> looking for another job. The doctor won't see me and or take the

> stimulator out because of the a mount owed him he wants it in full

> first.

> I am in alot of pain and don't know if I just maybe need more

> little feeders to help cover more of my back area or what. I don't

> know how to go about finding a doctor or if there is one in

Oklahoma

> City that also works with Medotronics (my stimulator) company brand

> to help me with this issue.

> I am in ALOT of pain and the doors are closing on me more and

> more and once my husband is gone I can't be falling or in so much

> pain he worries about me and will quit the job because of it. Any

> suggestions. Please let me know I am so desperate. I am thinking of

> doing horrible things to myself to be out of pain and so people

won't

> have to deal with me and the pain I am in anymore and it is getting

> me so depressed.

> I am sorry if there is anything in this email that I

> shouldn't write I am so desperate for help and in so much pain

right

> now. Thank you very much!!!

>

> Denene

>

>

>

>

>

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Thanks Deanna.. Yep these contracts are a bunch of bull.. I am going to see him

tomorrow, but taking my soon to be ex with me. I know he wont be mean to me with

Greg there.. But it will be the last visit.. And I have called my Medtronic rep.

waiting on his call back so I can get an adjustment.. Does anyone else have lots

of pain at times??? Am I the only one that uses the scs and still complains

about pain?? my PM acts like I shouldn't have ANY pain with my scs.. He knows

I'm not a drug seeker,, Its been years since he has given me any type of

narcotics.. I'm on tramadol... what a joke lol...

 But anyways,, thanks for the encouragement, !!!  And yes Kathy is a

sweetheart,, She really helped me thru yesterday,, We are ALL very lucky to have

her in our group !!!

             soft hugs

                      lisa T

 lisa

From: Deanna Ramsey <Photobug33777@...>

Subject:

" SCS support group " <Stimulator >

Date: Tuesday, January 6, 2009, 7:15 PM

I am so glad Kathy was available to u after ur ordeal with the dr. That dr was

obnoxious! I am so glad that u are looking for another.

I hate those pain contracts only because not all drs hold up their end of the

deal. If they aren't available how can they expect u to suffer until whenever

they should return, whether a day or a vacation. I get the purpose is trust and

to try to avoid drug seekers, but there are just enough chronic pain people who

really are in unspeakable amounts of pain. There should be some inclusions for

those times....obviously if u are going to er daily there's issues, but

occasionally or rarely needs to have an exception.

It's to bad some of these ruthless drs can't experience our levels of pain for

like a month with no pain medication, just to get a taste of what we go thru.

One day wouldn't be enough, because they would see the light at the end of the

tunnel making it easier to cope.

You get my drift......

Deanna

Sent from my iPhone

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NO you are not the only one having pain flair ups with the SCS. As I said in my

earlier email I do not know what is going on with me and my pain issues. The SCS

is defintiely not covering it.

SIGH yes my PM acts like yours does to a certain extent. However the reps both

told me when I was being instructed before the trial that the goal is to take

care of 50% of the pain that you are having. If the SCS does that they consider

it effective. They also said the SCS is not meant to be a magic bullet to take

care of all things.

HTH

Kim

" SCS support group " <Stimulator >

Date: Tuesday, January 6, 2009, 7:15 PM

I am so glad Kathy was available to u after ur ordeal with the dr. That dr was

obnoxious! I am so glad that u are looking for another.

I hate those pain contracts only because not all drs hold up their end of the

deal. If they aren't available how can they expect u to suffer until whenever

they should return, whether a day or a vacation. I get the purpose is trust and

to try to avoid drug seekers, but there are just enough chronic pain people who

really are in unspeakable amounts of pain. There should be some inclusions for

those times....obviously if u are going to er daily there's issues, but

occasionally or rarely needs to have an exception.

It's to bad some of these ruthless drs can't experience our levels of pain for

like a month with no pain medication, just to get a taste of what we go thru.

One day wouldn't be enough, because they would see the light at the end of the

tunnel making it easier to cope.

You get my drift......

Deanna

Sent from my iPhone

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  • 3 months later...
Guest guest

I've been using a CPAP for about 4 years now. Initially, I had the mask that

completely covered my entire nose. I hated it. But when I changed to the nasal

pillow mask, it didn't bother me at all. And I'm with you, when I don't wear

it, I feel really tired the next day, I know I toss and turn all night. But

sometimes I'm watching TV in bed at night and fall asleep without it. I try to

remember to just put it on when I move to my bedroom because the machine I have

now is quiet. But don't always remember to do that. I also have to remember to

check my water level in the humidifier. I can't use it without the humidifier,

it drys out my sinuses so bad they actually hurt. So I just try to remember to

check it every day and bring the level up to the max line. Would I rather no

have to use a CPAP....absolutely!!! But I think I have the best set up I can

have since I do need it. Over the last 5 years, it's just been one thing after

another.....I

feel like my body is just falling apart. And we're still adding to the list!

I wish it would stop and at least let me get used to everything I have before

slamming me with more problems. But I guess that is what happens when you get

old! lol And I also know it could be worse, so I try not to complain too much.

And that causes problems, holding things in. I need to figure out how to

balance this whole mess out!

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

________________________________

From: Deanna Ramsey <Photobug33777@...>

SCS support group <Stimulator >

Sent: Sunday, April 26, 2009 1:01:21 AM

Subject: Re:

U have cpap too? So do I. It made a big difference when I first got it. It was

like night n day! I hate having to wear a mask every night but I hate the side

effects of not wearing it even more!

Deanna

Sent from my iPhone

On Apr 25, 2009, at 6:08 PM, B <muttsmom55@...> wrote:

Yes, I do have Advanced Bionics stim and a black charger. It's the second one

I've had, the first one (same type) stopped working after a year. But I've never

had this problem before. I put it right on my skin and my stim is high enough I

just have to pull the back part of my pants down a few inches. So it's exposed

and shouldn't be overheating. I've done it like this since I've had it. And

sometimes it has me charged up but doesn't do the double beep....so I don't know

I'm charged......I take it off, the green light is on but it doesn't beep at all

to tell me it's not on my stim. I turn it off then back on and it starts beeping

and when I put it over my stim it double beeps. It's just doing crazy things. I

go this next week on Friday to Pain Mgt (who did my stim), I'm going to call

them the beginning of the week and see if they can make sure there is a rep

there for me to talk to. I've been pretty lucky so far if I needed to talk to a

rep, it

seems there is almost always one in the office on my appt day. I'm just scared

to wait and have it stop working completely. Even though when the other one

stopped, the company overnighted me a new charger....but that's been 1 1/2

years, who knows how long it would take this time if I need one. And I have

different insurance, I was on Cigna (COBRA) when I got my stim and now I'm on

Medicare. I'm sure they'd have to get it approved through Medicare. It took me 3

months to get a new CPAP machine approved with Medicare. So I'm just trying to

stay one step ahead of a possible disaster.....my stem going dead!!!

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

________________________________

From: Corn <butterfliesrfree309@...>

stimulator

Sent: Saturday, April 25, 2009 7:41:24 PM

Subject: (unknown)

I think I remember you saying you have the Advanced Bionics stim. Do you have

the new black charger? If you do, it does take longer to charge than the older

one. Once I got the new charger, I found it was taking much longer to charge

than the older one. I spoke to the company, and was told that it will. The new

charger has a heat sensor in it. If it gets too hot, it will shut off, then turn

back on, taking longer to charge. Hope this helps.

Sue C

Moderator

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That's amazing. I wish it worked that way with me! Even though I got my back

injury at age 20, I was a work out addict all my life until about the last 10

years when the pain started getting so bad....the doc told me to throw away my

running shoes, no more step aerobics (because my peripheral neuropathy had

gotten so bad and the numbness makes me really clumsy), one by one they took

away what I should do....until I was left with walking and swimming. And now,

I'm not really supposed to be walking (I use a cane and I never know when my

knee or left leg is going to give out on me), but I've started taking my dog to

a park right outside my apt complex. They have a walking path that goes on and

on for miles, it's beautiful (I've only seen most of it from the roads), but

there is a loop that only takes 10 - 15 minutes and so we do that. He is

overweight and needs to lose weight and I need to strengthen the muscles in my

legs to help my knees (physical

therapy made my knees worse). I only need to lose 5 - 10 lbs so I'm hoping

this little bit is better than nothing. Plus I am going to try to swim this

summer. Going to have to swallow my pride and face all the younger crowd at the

apt pool I guess. But hey, they'll be old one day too....that's what I'm

telling myself. But it must be great to be able to be eating whatever you want

and not worrying about the weight. I didn't lose weight when I got my CPAP

initially, about 2 years of using it I lost about 30 lbs. I don't know if the

CPAP had anything to do with it because I was really watching what I was eating

at the time.....so it was probably the diet. I know you've mentioned it, but

I've missed it or just don't remember, but when is your baby due?

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

________________________________

From: Deanna Ramsey <Photobug33777@...>

SCS support group <Stimulator >

Sent: Sunday, April 26, 2009 12:44:44 PM

Subject: Re: group question

I have had the sleep apnea for many years....long before my injury n pain. I was

finally diagnosed around 29 years old. Took them years to figure it out because

I stopped snoring when my tonsils were removed.

I also lost weight when I started using mine...it was a freakin miracle! I was

very active, ate healthy, and exercised daily and I couldn't even lose a

pound...then I got cpap and it melted off like butter!

The weight loss happened after the injury and the exercise n activity

stopped....go figure!

Deanna

Sent from my iPhone

On Apr 26, 2009, at 8:28 AM, Corn <butterfliesrfree309@...> wrote:

How long have you all had sleep apnea? Did you have this problem before your

pain or did it develop after. My dr wants me to go for the sleep test. I'm

wondering if there could be a connection between chronic pain and sleep apnea or

is this just a coincidence. Thanks for your help.

Sue C

Moderator

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Guest guest

My little man is due Sept. 7th.....

It is nice to eat whatever I want n not gain weight, but I'm sure it's only

going to be a short lived dream come true....

Deanna

Sent from my iPhone

On Apr 26, 2009, at 11:22 AM, B <muttsmom55@...> wrote:

That's amazing. I wish it worked that way with me! Even though I got my back

injury at age 20, I was a work out addict all my life until about the last 10

years when the pain started getting so bad....the doc told me to throw away my

running shoes, no more step aerobics (because my peripheral neuropathy had

gotten so bad and the numbness makes me really clumsy), one by one they took

away what I should do....until I was left with walking and swimming. And now,

I'm not really supposed to be walking (I use a cane and I never know when my

knee or left leg is going to give out on me), but I've started taking my dog to

a park right outside my apt complex. They have a walking path that goes on and

on for miles, it's beautiful (I've only seen most of it from the roads), but

there is a loop that only takes 10 - 15 minutes and so we do that. He is

overweight and needs to lose weight and I need to strengthen the muscles in my

legs to help my knees (physical

therapy made my knees worse). I only need to lose 5 - 10 lbs so I'm hoping this

little bit is better than nothing. Plus I am going to try to swim this summer.

Going to have to swallow my pride and face all the younger crowd at the apt pool

I guess. But hey, they'll be old one day too....that's what I'm telling myself.

But it must be great to be able to be eating whatever you want and not worrying

about the weight. I didn't lose weight when I got my CPAP initially, about 2

years of using it I lost about 30 lbs. I don't know if the CPAP had anything to

do with it because I was really watching what I was eating at the time.....so it

was probably the diet. I know you've mentioned it, but I've missed it or just

don't remember, but when is your baby due?

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

________________________________

From: Deanna Ramsey <Photobug33777@...>

SCS support group <Stimulator >

Sent: Sunday, April 26, 2009 12:44:44 PM

Subject: Re: group question

I have had the sleep apnea for many years....long before my injury n pain. I was

finally diagnosed around 29 years old. Took them years to figure it out because

I stopped snoring when my tonsils were removed.

I also lost weight when I started using mine...it was a freakin miracle! I was

very active, ate healthy, and exercised daily and I couldn't even lose a

pound...then I got cpap and it melted off like butter!

The weight loss happened after the injury and the exercise n activity

stopped....go figure!

Deanna

Sent from my iPhone

On Apr 26, 2009, at 8:28 AM, Corn <butterfliesrfree309@...> wrote:

How long have you all had sleep apnea? Did you have this problem before your

pain or did it develop after. My dr wants me to go for the sleep test. I'm

wondering if there could be a connection between chronic pain and sleep apnea or

is this just a coincidence. Thanks for your help.

Sue C

Moderator

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Guest guest

You can try exercises in the water to help strengthen the knee.  In the water

you aren't putting any stress on the joints. They have arthritis classes at the

Y and probably at other locations that are designed especially for people with

disabilities. You could probably also take out a DVD at the library to get an

idea of some of the exercises if you want to do them on your own.

Sue C

Moderator

________________________________

From: B <muttsmom55@...>

Stimulator

Sent: Sunday, April 26, 2009 2:22:44 PM

Subject: Re: Deanna

That's amazing. I wish it worked that way with me! Even though I got my back

injury at age 20, I was a work out addict all my life until about the last 10

years when the pain started getting so bad....the doc told me to throw away my

running shoes, no more step aerobics (because my peripheral neuropathy had

gotten so bad and the numbness makes me really clumsy), one by one they took

away what I should do....until I was left with walking and swimming. And now,

I'm not really supposed to be walking (I use a cane and I never know when my

knee or left leg is going to give out on me), but I've started taking my dog to

a park right outside my apt complex. They have a walking path that goes on and

on for miles, it's beautiful (I've only seen most of it from the roads), but

there is a loop that only takes 10 - 15 minutes and so we do that. He is

overweight and needs to lose weight and I need to strengthen the muscles in my

legs to help my knees (physical

therapy made my knees worse). I only need to lose 5 - 10 lbs so I'm hoping this

little bit is better than nothing. Plus I am going to try to swim this summer.

Going to have to swallow my pride and face all the younger crowd at the apt pool

I guess. But hey, they'll be old one day too....that' s what I'm telling myself.

But it must be great to be able to be eating whatever you want and not worrying

about the weight. I didn't lose weight when I got my CPAP initially, about 2

years of using it I lost about 30 lbs. I don't know if the CPAP had anything to

do with it because I was really watching what I was eating at the time.....so it

was probably the diet. I know you've mentioned it, but I've missed it or just

don't remember, but when is your baby due?

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

____________ _________ _________ __

From: Deanna Ramsey <Photobug33777@ sbcglobal. net>

SCS support group <Stimulator@gro ups.com>

Sent: Sunday, April 26, 2009 12:44:44 PM

Subject: Re: group question

I have had the sleep apnea for many years....long before my injury n pain. I was

finally diagnosed around 29 years old. Took them years to figure it out because

I stopped snoring when my tonsils were removed.

I also lost weight when I started using mine...it was a freakin miracle! I was

very active, ate healthy, and exercised daily and I couldn't even lose a

pound...then I got cpap and it melted off like butter!

The weight loss happened after the injury and the exercise n activity

stopped....go figure!

Deanna

Sent from my iPhone

On Apr 26, 2009, at 8:28 AM, Corn <butterfliesrfree309 @> wrote:

How long have you all had sleep apnea? Did you have this problem before your

pain or did it develop after. My dr wants me to go for the sleep test. I'm

wondering if there could be a connection between chronic pain and sleep apnea or

is this just a coincidence. Thanks for your help.

Sue C

Moderator

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Guest guest

Well, you're off to a good start!! I only gained 17 lbs with my first and 19

with my second. And I ate like a horse!!! The doctor kept asking me if I was

eating, kept making get blood drawn, I guess he thought I wasn't eating, but I

was.......I craved tacos of all things when I was pregnant and I packed away

quite a few of them!!!

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

________________________________

From: Deanna Ramsey <Photobug33777@...>

SCS support group <Stimulator >

Sent: Sunday, April 26, 2009 2:04:41 PM

Subject: Re: Deanna

My little man is due Sept. 7th.....

It is nice to eat whatever I want n not gain weight, but I'm sure it's only

going to be a short lived dream come true....

Deanna

Sent from my iPhone

On Apr 26, 2009, at 11:22 AM, B <muttsmom55@...> wrote:

That's amazing. I wish it worked that way with me! Even though I got my back

injury at age 20, I was a work out addict all my life until about the last 10

years when the pain started getting so bad....the doc told me to throw away my

running shoes, no more step aerobics (because my peripheral neuropathy had

gotten so bad and the numbness makes me really clumsy), one by one they took

away what I should do....until I was left with walking and swimming. And now,

I'm not really supposed to be walking (I use a cane and I never know when my

knee or left leg is going to give out on me), but I've started taking my dog to

a park right outside my apt complex. They have a walking path that goes on and

on for miles, it's beautiful (I've only seen most of it from the roads), but

there is a loop that only takes 10 - 15 minutes and so we do that. He is

overweight and needs to lose weight and I need to strengthen the muscles in my

legs to help my knees (physical

therapy made my knees worse). I only need to lose 5 - 10 lbs so I'm hoping this

little bit is better than nothing. Plus I am going to try to swim this summer.

Going to have to swallow my pride and face all the younger crowd at the apt pool

I guess. But hey, they'll be old one day too....that's what I'm telling myself.

But it must be great to be able to be eating whatever you want and not worrying

about the weight. I didn't lose weight when I got my CPAP initially, about 2

years of using it I lost about 30 lbs. I don't know if the CPAP had anything to

do with it because I was really watching what I was eating at the time.....so it

was probably the diet. I know you've mentioned it, but I've missed it or just

don't remember, but when is your baby due?

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

________________________________

From: Deanna Ramsey <Photobug33777@...>

SCS support group <Stimulator >

Sent: Sunday, April 26, 2009 12:44:44 PM

Subject: Re: group question

I have had the sleep apnea for many years....long before my injury n pain. I was

finally diagnosed around 29 years old. Took them years to figure it out because

I stopped snoring when my tonsils were removed.

I also lost weight when I started using mine...it was a freakin miracle! I was

very active, ate healthy, and exercised daily and I couldn't even lose a

pound...then I got cpap and it melted off like butter!

The weight loss happened after the injury and the exercise n activity

stopped....go figure!

Deanna

Sent from my iPhone

On Apr 26, 2009, at 8:28 AM, Corn <butterfliesrfree309@...> wrote:

How long have you all had sleep apnea? Did you have this problem before your

pain or did it develop after. My dr wants me to go for the sleep test. I'm

wondering if there could be a connection between chronic pain and sleep apnea or

is this just a coincidence. Thanks for your help.

Sue C

Moderator

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Share on other sites

Guest guest

Swimming has worked well for me cause it's easy on the joints n I don't fall or

trip. I'm not that old but I hate getting in a swimsuit especially around

younger thinner women. This is gonna be my summer though since I'm supposed to

have a belly this year....

I've also been a modest girl my whole life...never did like swimsuit season, to

revealing and potentially embarrassing...yikes!

Deanna

Sent from my iPhone

On Apr 26, 2009, at 11:22 AM, B <muttsmom55@...> wrote:

That's amazing. I wish it worked that way with me! Even though I got my back

injury at age 20, I was a work out addict all my life until about the last 10

years when the pain started getting so bad....the doc told me to throw away my

running shoes, no more step aerobics (because my peripheral neuropathy had

gotten so bad and the numbness makes me really clumsy), one by one they took

away what I should do....until I was left with walking and swimming. And now,

I'm not really supposed to be walking (I use a cane and I never know when my

knee or left leg is going to give out on me), but I've started taking my dog to

a park right outside my apt complex. They have a walking path that goes on and

on for miles, it's beautiful (I've only seen most of it from the roads), but

there is a loop that only takes 10 - 15 minutes and so we do that. He is

overweight and needs to lose weight and I need to strengthen the muscles in my

legs to help my knees (physical

therapy made my knees worse). I only need to lose 5 - 10 lbs so I'm hoping this

little bit is better than nothing. Plus I am going to try to swim this summer.

Going to have to swallow my pride and face all the younger crowd at the apt pool

I guess. But hey, they'll be old one day too....that's what I'm telling myself.

But it must be great to be able to be eating whatever you want and not worrying

about the weight. I didn't lose weight when I got my CPAP initially, about 2

years of using it I lost about 30 lbs. I don't know if the CPAP had anything to

do with it because I was really watching what I was eating at the time.....so it

was probably the diet. I know you've mentioned it, but I've missed it or just

don't remember, but when is your baby due?

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

________________________________

From: Deanna Ramsey <Photobug33777@...>

SCS support group <Stimulator >

Sent: Sunday, April 26, 2009 12:44:44 PM

Subject: Re: group question

I have had the sleep apnea for many years....long before my injury n pain. I was

finally diagnosed around 29 years old. Took them years to figure it out because

I stopped snoring when my tonsils were removed.

I also lost weight when I started using mine...it was a freakin miracle! I was

very active, ate healthy, and exercised daily and I couldn't even lose a

pound...then I got cpap and it melted off like butter!

The weight loss happened after the injury and the exercise n activity

stopped....go figure!

Deanna

Sent from my iPhone

On Apr 26, 2009, at 8:28 AM, Corn <butterfliesrfree309@...> wrote:

How long have you all had sleep apnea? Did you have this problem before your

pain or did it develop after. My dr wants me to go for the sleep test. I'm

wondering if there could be a connection between chronic pain and sleep apnea or

is this just a coincidence. Thanks for your help.

Sue C

Moderator

Link to comment
Share on other sites

Guest guest

I crave so much bad foods that I would normally never allow myself to have. I

have been eating so much more than I would normally and have lost weight...it's

crazy!

Deanna

Sent from my iPhone

On Apr 26, 2009, at 12:10 PM, B <muttsmom55@...> wrote:

Well, you're off to a good start!! I only gained 17 lbs with my first and 19

with my second. And I ate like a horse!!! The doctor kept asking me if I was

eating, kept making get blood drawn, I guess he thought I wasn't eating, but I

was.......I craved tacos of all things when I was pregnant and I packed away

quite a few of them!!!

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

________________________________

From: Deanna Ramsey <Photobug33777@...>

SCS support group <Stimulator >

Sent: Sunday, April 26, 2009 2:04:41 PM

Subject: Re: Deanna

My little man is due Sept. 7th.....

It is nice to eat whatever I want n not gain weight, but I'm sure it's only

going to be a short lived dream come true....

Deanna

Sent from my iPhone

On Apr 26, 2009, at 11:22 AM, B <muttsmom55@...> wrote:

That's amazing. I wish it worked that way with me! Even though I got my back

injury at age 20, I was a work out addict all my life until about the last 10

years when the pain started getting so bad....the doc told me to throw away my

running shoes, no more step aerobics (because my peripheral neuropathy had

gotten so bad and the numbness makes me really clumsy), one by one they took

away what I should do....until I was left with walking and swimming. And now,

I'm not really supposed to be walking (I use a cane and I never know when my

knee or left leg is going to give out on me), but I've started taking my dog to

a park right outside my apt complex. They have a walking path that goes on and

on for miles, it's beautiful (I've only seen most of it from the roads), but

there is a loop that only takes 10 - 15 minutes and so we do that. He is

overweight and needs to lose weight and I need to strengthen the muscles in my

legs to help my knees (physical

therapy made my knees worse). I only need to lose 5 - 10 lbs so I'm hoping this

little bit is better than nothing. Plus I am going to try to swim this summer.

Going to have to swallow my pride and face all the younger crowd at the apt pool

I guess. But hey, they'll be old one day too....that's what I'm telling myself.

But it must be great to be able to be eating whatever you want and not worrying

about the weight. I didn't lose weight when I got my CPAP initially, about 2

years of using it I lost about 30 lbs. I don't know if the CPAP had anything to

do with it because I was really watching what I was eating at the time.....so it

was probably the diet. I know you've mentioned it, but I've missed it or just

don't remember, but when is your baby due?

Take Care,

B. in TEXAS

Until one has loved an animal, part of their soul remains in darkness

________________________________

From: Deanna Ramsey <Photobug33777@...>

SCS support group <Stimulator >

Sent: Sunday, April 26, 2009 12:44:44 PM

Subject: Re: group question

I have had the sleep apnea for many years....long before my injury n pain. I was

finally diagnosed around 29 years old. Took them years to figure it out because

I stopped snoring when my tonsils were removed.

I also lost weight when I started using mine...it was a freakin miracle! I was

very active, ate healthy, and exercised daily and I couldn't even lose a

pound...then I got cpap and it melted off like butter!

The weight loss happened after the injury and the exercise n activity

stopped....go figure!

Deanna

Sent from my iPhone

On Apr 26, 2009, at 8:28 AM, Corn <butterfliesrfree309@...> wrote:

How long have you all had sleep apnea? Did you have this problem before your

pain or did it develop after. My dr wants me to go for the sleep test. I'm

wondering if there could be a connection between chronic pain and sleep apnea or

is this just a coincidence. Thanks for your help.

Sue C

Moderator

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I also have a cpap i have the facemask with straps behind my head. was dx with

sleep apena 5 years ago doctor told me i was not breathing over 100 times night.

i font go a night with out using it Mike Group owner

>

>

>

> Yes, I do have Advanced Bionics stim and a black charger. It's the second one

I've had, the first one (same type) stopped working after a year. But I've never

had this problem before. I put it right on my skin and my stim is high enough I

just have to pull the back part of my pants down a few inches. So it's exposed

and shouldn't be overheating. I've done it like this since I've had it. And

sometimes it has me charged up but doesn't do the double beep....so I don't know

I'm charged......I take it off, the green light is on but it doesn't beep at all

to tell me it's not on my stim. I turn it off then back on and it starts beeping

and when I put it over my stim it double beeps. It's just doing crazy things. I

go this next week on Friday to Pain Mgt (who did my stim), I'm going to call

them the beginning of the week and see if they can make sure there is a rep

there for me to talk to. I've been pretty lucky so far if I needed to talk to a

rep, it

> seems there is almost always one in the office on my appt day. I'm just scared

to wait and have it stop working completely. Even though when the other one

stopped, the company overnighted me a new charger....but that's been 1 1/2

years, who knows how long it would take this time if I need one. And I have

different insurance, I was on Cigna (COBRA) when I got my stim and now I'm on

Medicare. I'm sure they'd have to get it approved through Medicare. It took me 3

months to get a new CPAP machine approved with Medicare. So I'm just trying to

stay one step ahead of a possible disaster.....my stem going dead!!!

>

> Take Care,

> B. in TEXAS

>

> Until one has loved an animal, part of their soul remains in darkness

>

> ________________________________

> From: Corn <butterfliesrfree309@...>

> stimulator

> Sent: Saturday, April 25, 2009 7:41:24 PM

> Subject: (unknown)

>

>

>

> I think I remember you saying you have the Advanced Bionics stim. Do you have

the new black charger? If you do, it does take longer to charge than the older

one. Once I got the new charger, I found it was taking much longer to charge

than the older one. I spoke to the company, and was told that it will. The new

charger has a heat sensor in it. If it gets too hot, it will shut off, then turn

back on, taking longer to charge. Hope this helps.

>

> Sue C

> Moderator

>

>

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