Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Kim I'm Dannella aka danne I'm also in Texas. Im in Sulphur Springs. One hour south of the Oklahoma / Texas state line. In the north east corner of Texas. I'm very glad you have found a trial. I have had no insurance and substandard care since I was dx'd in 2002. Living as close as you do to Houston, will work to your advantage. University Medical Centers are a great place to get really good care if needed after the study is complete. I'm glad you found this group. Honey they are really a great family. Welcome love and hugs d > > Hi, > Thanks for all the encouragement. I don't know anything more than that the study is an escalating dose sponsored by Roche. I don't know about the antidepressants, but one of the inclusion criteria is no hx of anti physcotic drugs. So, I will defintely ask them about that before I start. I really don't have a choice though, because I really don't have the $$ for tx. Unless I had to, and then I suppose I would find the $$. Pat, I live outside of Houston in a small rural community called New Caney. THanks for everything and I will keep everyone informed. Suzie, let me know how your dr. visit goes. > Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 I didn't have a binder or a brace.....but it makes complete sense to me. Although I had a brace for my IDET n I hated it!!! Deanna Sent from my iPhone On Dec 9, 2008, at 3:58 PM, " kimleach " <kimleach@...> wrote: HI All Mike thanks for asking about me. Everything went very well yesterday according to the docs and the Medtronics Rep. I was snookered and could not remember anything at all about the surgery itself. In the trial I remember being asked about where I felt this and that as they programmed the leads. I guess that they did that in surgery but gave me something so I don't remember what I said or did. I woke up right at the end when he was stitching something! OUCH. Anyway got home late last night with my antibiotics, my Scope patch so I would not get nauseated and some break through pain meds. I got an abdominal binder and a back brace to wear for 6 weeks while this thing heals.I don't remember anyone else mentioning that they had to do this? I think its a good idea to keep me from twisting and turning when I should not. Far as how I am feeling, I am very very very sore at both the incision sites. They put in the Restore Ultra. I was given the choice of the rechargable or not and chose the rechargable due to that battery lasting up to 9 years while the other one would only last 4-5 according to what they told me. I am getting around the house ok. I am trying to move around a lot within reason to work out the soreness. Sleeping has been very hard for me. I decided to leave the SCS on to sleep as I was so sore I could not stand anything touching the incision sites. It did help a lot and I was able to sleep in short spurts 1-2 hrs at a time. I took a nap today and I do feel a bit more energetic tonight since I did. I am noticing that this SCS I have to turn up way higher than the one for the trial. I also have noticed that when I use the little outside antannae for it, I get an error code unless it is right over the spot. I am trying to get used to the diff programs and what not. I can tell its really helping my leg and low back pain. Now I just need to get these incisions under control pain wise and that will come. I really really liked the surgeon who did my SCS. His office has been great through all this. I sure as heck wish he was my pain mgt doc! I go back to see him next week. Kim update I will be getting chat soon. I want to check chats first. anyway there a possibility I might be getting a morphine pump not now anyway Kim how you feeling? I hpe stimulator helps you. keep us posted. Mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Yeah this brace is a pain. I know that i need it but the darn thing keeps rubbing my incision and that hurts like heck. Hubby put socks in between me and it last night to help. Well, once the incision heals it will be better I am sure Still hanging in there! update I will be getting chat soon. I want to check chats first. anyway there a possibility I might be getting a morphine pump not now anyway Kim how you feeling? I hpe stimulator helps you. keep us posted. Mike group owner Quote Link to comment Share on other sites More sharing options...
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