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Just diagnosed

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Hi. I have a 3 year old boy that was just today diagnosed with

Blepharophimosis Syndrome. I have been looking on line for

information. It all seems to focus on the physical appearance of the

person. I am more interested in any physical problems that this may

cause.

He is a happy, energetic, bright, 3 year old. I did come across a

couple of sites that mentioned borderline retardation. Is this

common? I have a hard time believing that, as he has been ahead of

the curve for almost every stage of developement.

They have also recently found a VSD in his heart. Is this normal?

Are their any other health issues I should be on the look out for?

Are there any sites that are written in laymans terms?

I would really appreciate any information or assistance.

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