Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Hi. My name is Anita and I'm 36. I was really surprised and pleased to find this group for BPES. I've had many operations, from age 2 yrs to 21 yrs. My mother also has BPES and we've been involved in some genetic research in the UK through St 's Hospital in Manchester. They're still unable to tell me whether I have Type I or Type II BPES but think that it's unlikely that my fertility is affected given that my mother has been able to have children. I've been told that there is now a surgeon specialising in BPES at the Manchester Eye Hospital. My surgery was very successful and I'm sure there have been improvements since I had my operations. Most people don't even notice that I've got anything wrong with my eyes until I mention it. My only recollections of being in hospital are good memories about friends I made and having time off school rather than any of the operations themselves! I had a very normal childhood and I hope that this offers some reassurance to parents with newly diagnosed children facing surgery. Anita Quote Link to comment Share on other sites More sharing options...
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