Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Hi Sorry its taken a while to get back to you, I haven't been feeling to good. I got in contact with my friend who also has Bleph & she gave me the address of her web site which has information about other Bleph people there are others in New York & theres a lady you can email called Lynne Schauble her address is on the site (I think!!) She may be able to tell you of any support groups in USA I really hope that helps. The address is :- http://freespace.virgin.net/andy.bowles/index.html Hugs to Aedan - hope he is well! Let me know how you get on Love Re: blepharophimosis Just diagnosed > Dear , > Hello I an allison, mother of Aedan a 31/2 month old who just had his > first eye-lid lifting surgury 3 weeks ago. We live in NYC, did you get > support from anyone other than family when you were growing up? I am curious > about support groups for Aedan as he grows. Thankyou, > > > Quote Link to comment Share on other sites More sharing options...
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