Re: Re: need advice and some suggestions....please

[Guest guest]

i also feel pain where i had a piece of my foot and toes removed by a running

push mower?when i fell under it? ?it's called ?phantom pain??? it's been about 6

yrs and i still have it now and again??? but as for ampu because of rsd i was

told the the rsd would go to the surgical area?? maybe i was mis informed?

Re: need advice and some suggestions....please

At 28 it would freak me out if my doctor said he thought the best

thing for my RSD was amputation. I'm very sorry to hear that you

have been given this news.

I've never had anything amputated, but know several people who have.

Of course, none of them have RSD. I'm sure amputating a body part

with RSD would be much different. The people I know with amputations

had to have amputations because of accidents. My dad is missing two

fingers because of a job accident, I have a third cousin missing a

leg, and a second cousin missing half a leg, half an arm, and half a

foot. The second cousin was in a car accident. Downed power lines

were on the vehicle and he tried to climb out. He's lucky to have

survive. I don't know about the second and third cousins, but dad

has had to deal with phantom feelings (I think that's what they are

called). Although the fingers aren't there he still feels them and

still has pain in them.

This info probably isn't very helpful, but that's all I know about

amputation.

>

> Hey gang...

>

> I have been back and forth to the docs last week...a ton of spasms

and

> increased burning pain. Scale of 9-10..

>

> I have been seen by Jefferson University, Cleveland Clinic, Temple

> University, and have had consults with records and photos of my

foot by the Mayo

> clinic, s Hopkins and two well known specialists in RSD...gurus

if you will.

>

> 98% of these doctors have strongly encouraged me to get a below the

knee

> amputation for my left foot and ankle RSD. I have had RSD now for

26 years. I

> have never had it this bad, but it is almost as bad in my right

wrist.

>

> Has ANYONE had an amputation for ANYTHING...and if so...what was

the outcome

> for you...

>

> Also...has anyone had an amputation for RSD...and if so....what was

the

> outcome for YOU...

>

> I know all the horror stories that are out there what COULD happen

with an

> amputated limb with RSD.but I would like to know first hand from

someone who

> has LIVED through it and can really honestly tell me their

story.and to see if

> I can safely have one done. I realy can no longer take this pain

and the

> spasms.they are slowly tearing me apart.and I realy can no longer

take them.

>

> I am sorry for complaining so much, guys, I know we all have pain

and

> suffering in this group, and not just me...I just really am

strugling and need my

> buddies to help me out.

>

> I love you all and wish for all of us pain free days and sleep

filled nights.

>

> Gentle hugs to you all,

>

> Kathy G.

> Co-Onwer

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>

>

>