Thanks

[Guest guest]

Dalia and ,

Thank you so much for your reply - that helped a lot. My daughter,

Caroline, seems smart - but it is hard to tell at this early stage -

but she is extremely curious and seems very interested in her

surroundings, so I found it hard to believe that she should have

mental difficulties.

Dalia, good luck at law school - I am sure that lawyers are

intelligent - at least they are able to consume huge amounts of

material :-). I would be happy to hear more details about BPES from

you since it seems as though you and your family have lived with this

for years. It would be great if you could share your experiences as

to operations, results etc.

, hope the operation will go well. Who is the doctor you

are seeing? He seems to know something about this, and I am left in

the dark here, since doctors in Denmark appears to have very limited

knowledge, and I am afraid that wrong choices will be made if I am

not persistent and know more factual information. Message yesterday

was 'that there was no rush', and that this was just a small

thing...and after the operation she would look perfectly normal. But

I do not think that any here have performed this operation yet, so I

want to find some experts - who can either provide advice to us, or

maybe put some pressure on getting her to surgery in the US. Your

help will be much appreciated.

Would be great if he is right about the low set ears/intelligent

remark - Caroline has low, cupped ears, so I hope he is right!

Thanks again for your time,

nne