Thanks - Claire

[Guest guest]

Thank you for taking the time - much appreciated.

I am happy to hear that you are doing so well, and that you had

strong parents! However, I am sorry to hear about the fertility

problems.

As for Caroline, I do not think that her eyes are that bad. They are

small, the bridge of her nose is very wide, and she looks tired - but

her vision is fine and her 'pupil' is free so she can see easily, she

puts her head a bit backwards when looking straight ahead - but all

in all they could be much worse. However, operation will be necessary

at some point, and I am very interested in hearing about your doctor

at Morefield. I will insist on having her examined by specialists

abroad since there seems to be very limited knowledge here - and I

definitely do not want her to be 'test material'. So if you have a

chance, it would be great if you could drop me a name+address of your

surgeon.

We have no other family members affected by this so it came as a big

surprise - and because of the limited knowledge here, she has been

tested for Down's, I have been asked if her father is Chinese.., and

the first eye specialist told that she 'just had some extra skin for

her nose to develop, which would happen shortly'.

You write that you still have special eyes - what have the operations

done for you? Have they been able to make your eyes 'wider' or more

open? What about your family history - anyone before you? Any

siblings affected?

, I hope I do not bother you with all my questions but I am

really in the dark here, and I want to 'well-dressed' for my next

meeting at the hospital, since another big worry is that Caróline

does not get the care available because of the limited knowledge.

Hope you can assist me,

thanks and have a great day, nne