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Re: Ruths surgery

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glad to hear all went well.. great to see the photos. have a good weekend

blepharophimosis Ruths surgery

Ruths surgery went well. She seems to be looking at thw world in a whole new way. I posted new pics. You can really see her big beautiful blue eyes now. Thank you all again for all the info and words of encouragement, Jill

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Hi Jill,

So glad to hear the surgery went ok for Ruth:)...How old is she?, where are you guys from? My son Ethan, (the younger ethan in the pix, on his tummy as a baby flying:), looks a lot like your Ruth eyes before surgery, he hasn't had any surgery yet, Drs said to wait til he is about 4! seems so long, but he insists at this point we'll get better results waiting, as they are more matured, what was the reason Ruth had surgery done now?...Looking forward to hearing back from you:)

Leanne:)

-- blepharophimosis Ruths surgery

Ruths surgery went well. She seems to be looking at thw world in a whole new way. I posted new pics. You can really see her big beautiful blue eyes now. Thank you all again for all the info and words of encouragement, Jill

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-Hi, Leanne,

Ruth is six months old. Her Doctor wanted her to have the surgery

because sometimes her pupils were partially blocked by her eyelids

and the doc was worried she could start to loose vision from not

totally using her pupils. We are from Massachusetts, USA. Where are

you from? Ruths Doctor works out of the Boston Childrens Hospital.

The doctor said she will probably not need another surgery until she

isa older if we decide she needs the permanent surgery. How old is

your little guy now. He is a cutey. Hope to talk with you again, Jill-

- In blepharophimosis , leelee <tltne@c...> wrote:

> Hi Jill,

>

> So glad to hear the surgery went ok for Ruth:)...How old is she?,

where are

> you guys from? My son Ethan, (the younger ethan in the pix, on his

tummy as

> a baby flying:), looks a lot like your Ruth eyes before surgery, he

hasn't

> had any surgery yet, Drs said to wait til he is about 4! seems so

long, but

> he insists at this point we'll get better results waiting, as they

are more

> matured, what was the reason Ruth had surgery done now?...Looking

forward to

> hearing back from you:)

>

> Leanne:)

>

> -- blepharophimosis Ruths surgery

>

> Ruths surgery went well. She seems to be looking at thw world in a

> whole new way. I posted new pics. You can really see her big

> beautiful blue eyes now. Thank you all again for all the info and

> words of encouragement, Jill

>

>

>

>

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- leanne, the doctors did make a small incision on the outsides of

Ruths eyes to make them open wider. They also used a sling, not a

tendon, for her eyes. Before Ruth had her surgery we thought she

could see fine but since the surgery its incredible how much more she

seems to notice and how excited she seems to get. She also has the

biggest smile. Her smile could brighten any room. We get alot of

questions about Ruth, especially from my other childrens friends. I

worry about how it will be for her when she is older and starts

school but I guess thats along way away. Goodbye for now,

Jill

-- In blepharophimosis , " tonikka "

<lyndenhunter@t...> wrote:

> Leanne

>

> hi again, it is always a risk with the tear ducts but in lyndens

case he had

> lots of extra skin to spare. yah Lyn gets the stares I mean he

probably does

> not get as much as I think he gets but I am very over protective,

we want to

> buy a house but I don't want to move out of my area ( no houses for

sale

> here) because I do not want to have to change his school. I think

of it as

> the kids there accept him for who he is and I do not want him to go

through

> all of the what's wrongs and whys at a new school, kids can be

cruel.!!!!!

> Lynden can still have surgeries in the future but I am leaving that

up to

> him. he ahs really good vision, I think that is because we got it

fixed so

> early, I do know that when he was younger he really seemed to have

no depth

> perception and was very clumsy too. he grew out of it though. I do

notice

> that when he is looking down instead of just bringing his eyes down

to the

> thing he is looking at he basically puts his whole head down over

it and

> looks at it from above the object. ( confusing sorry). he does

tell me that

> he ahs eyes like this because he has superpowers and that god made

him

> special , and that everyone looks at him because they are jealous (

kids

> ey!!!!!!)

>

> Tonikka

>

> blepharophimosis Ruths surgery

> >

> > Ruths surgery went well. She seems to be looking at

thw

> world in a

> > whole new way. I posted new pics. You can really

see her big

> > beautiful blue eyes now. Thank you all again for

all the

> info and

> > words of encouragement, Jill

> >

> >

> >

> >

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