Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 I'm so sorry that you had the flu, Heidi! That's very hard when you are pregnant. A good excuse to stay home from work though. Hope you won't be too stressed trying to get caught up on what you need to do on the job. Don't worry about us, we understand how easy it is to fall behind. Just rest a lot. You're body is very busy right now. [ ] Catching up! > Hi there everyone! > I'm behind... again lol! I spent four days in bed with flu, blerck! Seems > like it's going around the group although I'm impressed that I got it this > far away, who did that big a sneeze!? :-) > I'm feeling much better now, still a bit croaky voiced and stuffy nosed so > sound like a frog horn! > Since I missed 2 days of work I've got lots to catch up on so I'll be > catching up with you guys tomorrow. > Besides the flu Tadpole and I are doing well, I'll send an update tomorrow. > Sending all who need them right now (((((((((((((((((Hugs)))))))))))))) and > prayers, > love, > Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 Hi Heidi, Hope you are feeling better dear. You're in my thoughts and prayers. Love and hugs, Alan > Hi there everyone! > I'm behind... again lol! I spent four days in bed with flu, blerck! Seems > like it's going around the group although I'm impressed that I got it this > far away, who did that big a sneeze!? :-) > I'm feeling much better now, still a bit croaky voiced and stuffy nosed so > sound like a frog horn! > Since I missed 2 days of work I've got lots to catch up on so I'll be > catching up with you guys tomorrow. > Besides the flu Tadpole and I are doing well, I'll send an update tomorrow. > Sending all who need them right now (((((((((((((((((Hugs)))))))))))))) and > prayers, > love, > Heidi > > > > > > _________________________________________________________________ > Tired of spam? Get advanced junk mail protection with MSN 8. > http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2004 Report Share Posted March 21, 2004 Hi nne....I'm wee Ethan's mum, make sure you do keep us updated on Caroline, hope everything goes well with her 1st surgery!....Was it your decision for her to have surgery this young?, or the Dr's? We have been told here (in NZ) that our son won't be having surgery until he is about 4, and that would be the epicanthal surgery, then followed by the ptosis before he turns 5 and starts school, it's amazing the different opinions Dr's have all over the world of when surgery should be done ha?...Talk soon Leanne and family (NZ) -- blepharophimosis Catching up! Hello All!Haven't checked in for a while...and was so amazed by the activity level. Great! Thank you so much for sharing your stories and adding really valuable information - and all the work you have been doing Shireen - thanks a million. As for the database, I have added Caroline's information. As for the pictures - I can see that two of ours are quite big. I think I will delete them, and add new and smaller ones for you - if I can figure out how!The update here is that Caroline just turned 2 - and she is a handful!! Her vocabulary is - to say the least - very good, and she certainly has a will of her own :-). She just started nursery and is so happy. On the BPES side, we are going in for a short check up on March 25, and then 1st operation is scheduled for April 1 (fixing the epicanthus inversus). We will return home the same day. I will add before/after pictures as we go along. I am beginning to feel a bit anxious. I can't bear the thought of her in narkosis (is that the word) - on the other hand, we have decided that a operation will be helpful (seeing the pictures here only adds to this conviction), so I guess we will just have to wait and see and hope for the best. Again - thanks everyone for sharing - it is so helpful! I will certainly take some of this information to our doctor - just to make sure he is up-to-date!! Cheers, nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Hello there, Well, it was partly the doctor's partly our decision. The doctor decided a year ago that he wanted to operate after Caroline turned 2 (allowing 6 months between the two operations - and that it may not even be necessary for her to have both operations). We then decided that we might as well do the first one now, see the results and then decide if any more work is necessary. Am getting a bit nervous now, but will certainly keep you informed about outcome/progress etc. I will post pictures as we go along - which I hope will calm the rest of you waiting for ops. And by the way...we are in the 'cold North', we live in Denmark (Scandinavia). Brgds M P.S. And thanks for the comments to the pictures!! Will write back soon. > Hi nne....I'm wee Ethan's mum, make sure you do keep us updated on > Caroline, hope everything goes well with her 1st surgery!....Was it your > decision for her to have surgery this young?, or the Dr's? We have been > told here (in NZ) that our son won't be having surgery until he is about 4, > and that would be the epicanthal surgery, then followed by the ptosis before > he turns 5 and starts school, it's amazing the different opinions Dr's have > all over the world of when surgery should be done ha?...Talk soon > Leanne and family (NZ) > > -- blepharophimosis Catching up! > > Hello All! > Haven't checked in for a while...and was so amazed by the activity > level. Great! Thank you so much for sharing your stories and adding > really valuable information - and all the work you have been doing > Shireen - thanks a million. > As for the database, I have added Caroline's information. > As for the pictures - I can see that two of ours are quite big. I > think I will delete them, and add new and smaller ones for you - if I > can figure out how! > > The update here is that Caroline just turned 2 - and she is a > handful!! Her vocabulary is - to say the least - very good, and she > certainly has a will of her own :-). She just started nursery and is > so happy. > > On the BPES side, we are going in for a short check up on March 25, > and then 1st operation is scheduled for April 1 (fixing the > epicanthus inversus). We will return home the same day. I will add > before/after pictures as we go along. > I am beginning to feel a bit anxious. I can't bear the thought of her > in narkosis (is that the word) - on the other hand, we have decided > that a operation will be helpful (seeing the pictures here only adds > to this conviction), so I guess we will just have to wait and see and > hope for the best. > > Again - thanks everyone for sharing - it is so helpful! I will > certainly take some of this information to our doctor - just to make > sure he is up-to-date!! > > Cheers, > nne > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Thanks for the reply......do keep us updated....thinking of you.........ps how cold does it get there?.....I hate the cold, lived in hawaii for 9 years, so it's still hard getting used to these NZ winters! probably nothing compared to your winters I bet!...c-ya...leanne. -- blepharophimosis Catching up!> > Hello All!> Haven't checked in for a while...and was so amazed by the activity > level. Great! Thank you so much for sharing your stories and adding > really valuable information - and all the work you have been doing > Shireen - thanks a million. > As for the database, I have added Caroline's information. > As for the pictures - I can see that two of ours are quite big. I > think I will delete them, and add new and smaller ones for you - if I > can figure out how!> > The update here is that Caroline just turned 2 - and she is a > handful!! Her vocabulary is - to say the least - very good, and she > certainly has a will of her own :-). She just started nursery and is > so happy. > > On the BPES side, we are going in for a short check up on March 25, > and then 1st operation is scheduled for April 1 (fixing the > epicanthus inversus). We will return home the same day. I will add > before/after pictures as we go along. > I am beginning to feel a bit anxious. I can't bear the thought of her > in narkosis (is that the word) - on the other hand, we have decided > that a operation will be helpful (seeing the pictures here only adds > to this conviction), so I guess we will just have to wait and see and > hope for the best. > > Again - thanks everyone for sharing - it is so helpful! I will > certainly take some of this information to our doctor - just to make > sure he is up-to-date!! > > Cheers, > nne> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 Hi tawny: I am so sorry that you have been sick. I am sure you are run down from all the stress that you have been going through. I swear, when it rains, it pours. The flu can be so nasty, so I hope you feel better soon. I am sure you are resting as much as possible. What choice do you have with a bad case of flu. What a time for your RA to be in a bad flare. Have you called your Rheumy to tell him how sick you are? Perhaps he can give you some other meds. to help you through this bad time. I hope things settle down for you. You have way too much to handle right now. My thoughts and prayers are with you. I pray better days will be coming soon for you. I also pray you will have many pain free days ahead. I am so enjoying being with my daughter and 2 little ganddaughters. I so treasure my time with them. It is good to be home for a week. Hugs, Barbara > > Hi friends, > > I haven't been feeling well. The seasonal flu is going around, and I believe thats what I have. My youngest daughter was ill first, and then I caught it, of course. > I'm also flaring big time, with all the stress in my life right now. I'm not sure its going to settle down anytime soon. > My PC got fixed yesterday. The storm zapped it out,lol So, I'm going to try to be here a little more. Sorry being AWOL, but here I am. > I hope everyone is doing ok, and in less pain. Its always a struggle, but we just have to do the best with what we have to work with. > > You all have a bless day, > > > Tawny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 Hi - You know - I've kind of had the same question this year especially and to be honest, with so many of us taking these drugs that impair our immune system (even worse I might add!!!!) I am making sure I get all those suckers this year - last year I started getting the pneumonia shot as well and I think I will continue. And with the drain our system takes when on these biologics!! At least for me, I'm going for it. I AM going to talk to doc later this month when I go about the swine flu vaccine & if he recommends getting it, that's another needle in my arm for the year! Anyone have an opinion as to why we should NOT? I'd really love the input from the group both ways! Hugs to all! in SC From: tdianaok <tdianaok (DOT) com> Subject: [ ] Catching Up! @gro ups.com Date: Wednesday, September 2, 2009, 7:08 PM Hi friends, I haven't been feeling well. The seasonal flu is going around, and I believe thats what I have. My youngest daughter was ill first, and then I caught it, of course. I'm also flaring big time, with all the stress in my life right now. I'm not sure its going to settle down anytime soon. My PC got fixed yesterday. The storm zapped it out,lol So, I'm going to try to be here a little more. Sorry being AWOL, but here I am. I hope everyone is doing ok, and in less pain. Its always a struggle, but we just have to do the best with what we have to work with. You all have a bless day, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 it is just because of the lowered immunity that I fear these new flu shots. Does anyone know if adequate testing has been done? Raniolo From: tdianaok <tdianaok (DOT) com> Subject: [ ] Catching Up! @gro ups.com Date: Wednesday, September 2, 2009, 7:08 PM Hi friends, I haven't been feeling well. The seasonal flu is going around, and I believe thats what I have. My youngest daughter was ill first, and then I caught it, of course. I'm also flaring big time, with all the stress in my life right now. I'm not sure its going to settle down anytime soon. My PC got fixed yesterday. The storm zapped it out,lol So, I'm going to try to be here a little more. Sorry being AWOL, but here I am. I hope everyone is doing ok, and in less pain. Its always a struggle, but we just have to do the best with what we have to work with. You all have a bless day, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 I totally understand the fears!!! Gees - that's why this year - I'm discussing with my new rheumy before I do anything!! From: tdianaok <tdianaok (DOT) com> Subject: [ ] Catching Up! @gro ups.com Date: Wednesday, September 2, 2009, 7:08 PM Hi friends, I haven't been feeling well. The seasonal flu is going around, and I believe thats what I have. My youngest daughter was ill first, and then I caught it, of course. I'm also flaring big time, with all the stress in my life right now. I'm not sure its going to settle down anytime soon. My PC got fixed yesterday. The storm zapped it out,lol So, I'm going to try to be here a little more. Sorry being AWOL, but here I am. I hope everyone is doing ok, and in less pain. Its always a struggle, but we just have to do the best with what we have to work with. You all have a bless day, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 Hi Barbara, I am trying to take it easy. I haven't called the doc, you know me. I'm taking something for my sore throat, and just trying to rest. I just feel yucky, and not much anyone can do. I'm so glad your enjoying your family, its very important. You take care, and know your in my thoughts and prayers, Tawny > > > Hi tawny: I am so sorry that you have been sick. I am sure you are run > down from all the stress that you have been going through. I swear, > when it rains, it pours. The flu can be so nasty, so I hope you feel > better soon. > > I am sure you are resting as much as possible. What choice do you have > with a bad case of flu. > > What a time for your RA to be in a bad flare. Have you called your > Rheumy to tell him how sick you are? Perhaps he can give you some other > meds. to help you through this bad time. I hope things settle down for > you. You have way too much to handle right now. > > My thoughts and prayers are with you. I pray better days will be coming > soon for you. I also pray you will have many pain free days ahead. > > I am so enjoying being with my daughter and 2 little ganddaughters. I > so treasure my time with them. It is good to be home for a week. > > Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 , Its nice to be missed:) I'm not sure if I'm going to take the one for swine flu. I heard its a live vaccine. I'm not suppose to take that type of vaccine taking mtx and humira. I will talk to my doctor though. Its really scary, its so new you know. I just hope it helps stop this stuff. I will be staying in, as much as I can. Take care, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 My rheumy always makes sure that I've had a flu shot every year. The pneumonia shot is every five years, but I've heard that if you have it after the age of 65, you shouldn't need it again. But I expect I'll get another one when it's been five years. My rheumy said they're not recommending the shingles shot for those of us with these autoimmune diseases on immunosuppressant drugs. Sue On Sep 2, 2009, at 9:39 PM, wrote: > Hi - > You know - I've kind of had the same question this year especially > and to be honest, with so many of us taking these drugs that impair > our immune system (even worse I might add!!!!) I am making sure I > get all those suckers this year - last year I started getting the > pneumonia shot as well and I think I will continue. And with the > drain our system takes when on these biologics!! At least for me, > I'm going for it. I AM going to talk to doc later this month when I > go about the swine flu vaccine & if he recommends getting it, that's > another needle in my arm for the year! > > Anyone have an opinion as to why we should NOT? I'd really love the > input from the group both ways! > Hugs to all! > in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 Chas was talking the other day about how much I wash my hands, use sanitizer, etc. Also in public places like work or whatever, I turn the faucets, doorknobs, and light switches with a paper towel. She said people probably thought I had OCD, and we just laughed about that! of course they may be right....those of us on immunosuppressants have to be a little OCD about " cooties. " Hope you feel better soon, dear friend. Emailing you cyber-chicken-soup. love jane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Hi Tawny, I am sorry to hear that you have been struggling. It is great to see that you are feeling well enough to get back on line! ~Connie From: tdianaok <tdianaok@...> Subject: [ ] Catching Up! Date: Wednesday, September 2, 2009, 7:08 PM Hi friends, I haven't been feeling well. The seasonal flu is going around, and I believe thats what I have. My youngest daughter was ill first, and then I caught it, of course. I'm also flaring big time, with all the stress in my life right now. I'm not sure its going to settle down anytime soon. My PC got fixed yesterday. The storm zapped it out,lol So, I'm going to try to be here a little more. Sorry being AWOL, but here I am. I hope everyone is doing ok, and in less pain. Its always a struggle, but we just have to do the best with what we have to work with. You all have a bless day, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Connie, I'm not feeling much better. I've been trying to do something to keep my mind off my troubles. This group is so big, its hard to keep up, once you've been away. I hope your feeling ok. Take care, Tawny > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2009 Report Share Posted September 5, 2009 Tawny, I'm praying that you feel better soon. You are too nice to feel bad. I am doing ok - typing this in the morning so stiff but that is nothing new! My hubby on the other hand has been feverish & says his lungs are bothering him - I will be making a trip to Urgent Care with him today. ~Connie From: tdianaok <tdianaok@...> Subject: [ ] Re: Catching Up! Date: Friday, September 4, 2009, 6:50 PM Connie, I'm not feeling much better. I've been trying to do something to keep my mind off my troubles. This group is so big, its hard to keep up, once you've been away. I hope your feeling ok. Take care, Tawny > > > Quote Link to comment Share on other sites More sharing options...
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