RE: Digest Number 287

[Guest guest]

In a message dated 3/7/00 3:34:43 AM Eastern Standard Time,

candidiasisonelist writes:

<< kosmik@...> >>

Thank you everybody for all rhe information-good and bad-that I get from this

site

aA special thanks to Margaret and Cliff.

Cliff I would like to read anything you have on candidiiasis/dybiosis/IBS

Is it too much to paste on this site or is that not acceptable?

Please continue the feedback

Blessings and good luck to everyone in our quest for serene intestinal

environments!

Aine

[Guest guest]

In a message dated 3/7/00 3:34:43 AM Eastern Standard Time,

candidiasisonelist writes:

<< kosmik@...> >>

I was on probiotics for two weeks - reacted very badly to it Intestinally

speaking! - and discovered I have an added sensitivity to FOS so will have to

observe an even more specific carbohydrate sensitive Diet ( which seemingly

works for people with Crohns Disease as well)

Any feedback on htis or book by Elaine Gotshall?

[Guest guest]

Gail, you're doing the right thing which is seeking out people who understand

exactly what you're going through (US!). And even though I totally

understand about not wanting another item on your list, another appointment

etc, therapy/counseling is so necessary. Doesn't even have to be long term.

You go, maybe your husband comes too. (I started about a year and a half

ago. My husband came with me a few times, then started going on his own. We

still go together occasionally.)

Therapy is so hard. It bring up all those issues we've been so good at

forgetting and hiding from. But it's also a gift to yourself and your kids

for the long term. You too can be one of those people who put their heads

down on the pillow and actually go right to sleep. I'm not, but I'm working

on it!!

As for stay-at-home moms not getting any positive reinforcement....so true.

But I will tell one little story: when my older son was about 4 I was

singing him to sleep, I think it was " Edelweiss " from The Sound of Music.

When I was done he put his hands on my cheeks and said, " You did a really

good job singing that song, Mom. "

So sometimes it does happen!

Gail, hang in there. These periods will come and go. Hope this one goes

soon. We're all thinking about you with love and good thoughts.

love Debbi mom to Logan (almost 6) Eli (DS) and Milo, 3 1/2.

[Guest guest]

Diane, let's swap away!!

debbi

[Guest guest]

Dear Jennie,

Congratulations on Isaac's backtalk. I can't wait for my daughter to tell me

" no " or " let go " . KEEP UP THE GREAT WORK!

[Guest guest]

In a message dated 08/29/2000 4:41:59 AM Eastern Daylight Time,

egroups writes:

<<

Is there any material on how essential reinforcers are, and exactly why

reinforcers are supposed to be individualized, etc? I know that probably

sounds stupid, but his current teacher meaning well, when asked what they

were doing to reinforce said, " I take a graham cracker and break it into

fourths. " That was it. Her standard reinforcer and she wondered why Isaac

was not exactly thrilled, and spent most of a session trying to escape.

(They are truly emerging learners, and the most experienced ABAer at the

table is Isaac.)

I am utterly baffled how anyone can think that a cracker is a reinforcer

for each child on a regular basis when none of us would appreciate being

handed the same old thing every single coffee break or some pre-determined

pay versus money that gives us choices as individuals. I know if I was

working and my boss said, " Hey, I was thinking every week I would give you

ice cream now, " I wouldn't be too excited even though I like ice cream fine.

>>

Jennie--- there IS literature to support the use of preference assements with

students. basically, you identify 16 potential reinforcers and presente them

paired many different ways and find out which ones the child picked most

often. then there are always students like I had that will pick a reinforcer

at the beginning of a token board, and not want anything to do with it by the

the tme they traded in.

1. check the literature.... Pace et al... Iwata et al... do a search on

JABA

2. Ask your son's teacher to have variety of SR+ available at all

times...before you do a pref. assesment, parents are always the best resource

to know what to have around

Create a choice board for him to pick items from.... include a " free choice "

token so he can decide later....

Children do better when the reinforcement is powerful... I have had students

ask for 1 reinforcer and then change their mind... losing motivation,

increasing behaviors, when i switch the SR+ the behavior goes down, and

attending increases.... it is basic ABA....

Best of luck!

Beth M.S.Ed.

[Guest guest]

Sounds good to me, are youu buying???? MartyYou know.. if I don't go pcr

neg at 6th month, I'm gonna pig out on

chocolate ice cream!!! Let a shrink analyze THAT haaaaaaaaaaaaa. Just

kidding. I didn't want yall to think I was a chocoholic anyway. but

man..

sure is good. Hubby was so good to me today, took me to the bookstore

till I

got tired then we drove thru Braum's and got big fat chocolate malts.

yum!!!!!!!!!!!!!!!!! I'm good to go now

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

[Guest guest]

Sounds good to me, are youu buying???? MartyYou know.. if I don't go pcr

neg at 6th month, I'm gonna pig out on

chocolate ice cream!!! Let a shrink analyze THAT haaaaaaaaaaaaa. Just

kidding. I didn't want yall to think I was a chocoholic anyway. but

man..

sure is good. Hubby was so good to me today, took me to the bookstore

till I

got tired then we drove thru Braum's and got big fat chocolate malts.

yum!!!!!!!!!!!!!!!!! I'm good to go now

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

[Guest guest]

heck ya! I'm buying.. come on down to Texas and lets do the chocolate mombo!

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

[Guest guest]

heck ya! I'm buying.. come on down to Texas and lets do the chocolate mombo!

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

[Guest guest]

Dear all again, just a ps to last message - I hope some of you saw

the ad for the RA to work with me anad might be considering it.

Closing date Friday 18th: details from 020-7040- 8088

Ros

[Guest guest]

Hi, I am replying to the lady who had a son that only grunts.

My daughter is 6yrs old and she has apraxia too, but she has a habit of

playing with her hair, because she is nervous because the way she talks so

most of the time she shys away when she doesnt know someone. But see little

kids do that all the time and they dont always respond, or talk when you want

them too.he is being a kid, and you need to remember no matter the disabilty

they are kids, not robots, I use to think making her talk all the time will

show people she can say things like everyone else. But the truth is it was

for my benefit not hers! Food for thought you wouldnt like it if someone

pushed you to constantly talk when you know you dont speak very well and

maybe scared of what people would say! And to reply to the lady who wanted to

give the proefa as a suppositories I think that idea isnt so and the

reason I am saying this its a oil that should be given oraly not any other

way or you wont get the results you may be looking for. Try to put some food or

chocolate milk and then add the oil in it !

[Guest guest]

Hi,

This url doesn't work. Any suggestions?

>

>

[Guest guest]

I'm not sure what you mean since I don't view the messages in digest

form. Can you post the actual URL for us?

Thanks,

> Hi,

> This url doesn't work. Any suggestions?

>

>

> >

> >

>

>

>

>

>

[Guest guest]

Debbie,

Hi, thank-you for your interesting comment on the

night waking related to hypoglycemia. Aside from the

night waking, what symptoms did your son show to

indicate hypoglycemia?

Thank you,

__________________________________________________

[Guest guest]

Hi Lyn and thanks for the welcome!

I became very ill about four years ago and, despite undergoing a significant

number of tests, all the doctors could tell me was that various parts of by

body were not functioning effectively. As for what I could actually DO

about it, that was something they disagreed upon.

In the end, I found two things that have brought me back to almost full

health.

One was finding an incredible kinesiologist who worked with me to unblock

several energy paths.

The other was to start truly listening to my body and, although I am

essentially a very positive person, to always be conscious of what I was

saying and thinking - and ensuring that maintained a positive focus.

As I mentioned, that was approximately four years ago and I am now at a

point where I can usually 'feel' energy blocks in my system, even before the

result of that blockage becomes obvious.

In most instances I am able to remove the blockage but not always. This is

where I will turn to this group for assistance from time to time.

Thanks, again for the welcome and I look forward to learning more and

contributing where I can.

Kind regards

Leigh

Email: mailto:LeighSt@...

Profile: http://www.AboutAchievement.com.au/Profile.html

Web Site: http://www.AboutAchievement.com.au

Message: 6

Date: Mon, 22 Apr 2002 10:09:50 -0700 (PDT)

From: Laffin Lyn <rayofsunn@...>

Subject: Re: Introduction

Hi Leigh:

Welcome to the list . This list is a bit limited

to meridian techniques, some other body techniques

such as kinesiology and mostly EFT, however, I'm sure

we could somewhat segue inot a bit of " networking "

with what you do.

You might share some things if you have any

achievements in regards to EFT or similar types of

activities and if others from your magazine would like

to share as well you can forward some of the articles

as long as they are within this particular topic line

for this list.

I look forward to hearing more from you.

Lyn Keller

Co-moderator

--- Leigh St

<LeighSt@...> wrote:

> Hi

>

> As I have just joined this group, I thought I should

> send through a quick

> introduction.

>

> My name is Leigh St and I am a writer, trainer

> and Managing Director of

> About Achievement Pty Ltd.

>

> My background is quite varied (

> www.AboutAchievement.com.au/Profile.html )

> and I live on the Gold Coast in Australia.

>

> Kind regards

>

> Leigh

>

> Leigh St - Managing Director,

> http://www.AboutAchievement.com.au

> Email: mailto:LeighSt@...

> Postal Address: PO Box 702, Paradise Point,

> Queensland 4216 Australia

> Success is often the result of taking a misstep in

> the right direction.

> Al Bernstein

>

>

[Guest guest]

THis question is for . My daughter is 21y/o and has surgery at 5 & thn

revisions at 16 & 19.

first had epicanthal folds done; then slings 3 months later. We were told to

delay surgeries until her head/face was grown and developed. BUt that if the

lids interfered w/her vision that it would have to be done at an earlier age.

She is glad she had the surgeries, but experienced many of the emotional aspects

you mentioned.

She is chronically bothered by irritation (wind, dust)...I've heard of lower lid

skin grafts to correct that problem. DId it help symptoms or appearance? can

you tell me more about it? who? where?

thanks

Cheryl Vahl

Iowa City IA USA

Re: Techniques?

Leanne, the surgeon wants to do the 'sling' soon as her lids are boarderline

with interferring with her sight. He would prefer to do the surgeries in order,

therefore is going to make a start. (Hope you can understand my explaination?).

Hows things going with Ethan care?

To the group, I posted the following message some time ago, and I'm wondering if

maybe no-one is familiar with this procedure hence the lack of replies?? Any

suggestions would be much appreciated. Thanks,

blepharophimosis Techniques?

Hi everyone, we saw Alyssa's (15 Months) surgeon yesterday who is going

to correct her epicanthus folds soon. He talked of a technique he is going to

use called " Retro.... something. We are wondering if someone can fill us in on

this particular technique? Alyssa is on his waiting list for surgery and we

anticipate it happening in about 2-3 months time.

Thanks heaps,

[Guest guest]

Vahl, Cheryl wrote:

> THis question is for .

You didn't really mean that. Slip of the finger. What you meant to say

was " This question is for anyone who can help. If it has for only,

I'd have e-mailed her privately, of course " .

> She is chronically bothered by irritation (wind, dust)...I've heard

> of lower lid skin grafts to correct that problem. DId it help

> symptoms or appearance? can you tell me more about it? who? where?

My son has/had the same problem. A combination of (1) thinness of the

lower lid (not uncommon with BPEI), allowing the lid to turn inwards -

called entropion - or outwards (like mine does) - called ectropion, and

(2) trichiasis and/or distichiasis - eyelashes pointing inwards (among

other directions, due to the lid's' thinness). The eyelashes therefore

rub against the cornea and irritate (or, worst case, ulcerate), causing

sensitivity and pain in windy or dusty conditions.

There are a number of procedures to fix the problem, among the worst of

which is skin grafts, often taken from the palate (roof of the mouth),

used to thicken & stiffen the lid. We avoided that for our son, opting

for less brutal and more effective (i.e. modern) techniques. He's had no

problems since then. I strongly suggest you do some homework in this

area, and acquaint yourself with the available techniques (the OTHER

ones, that is), and as usual, grill your candidate surgeons without mercy.

> thanks

You're welcome. I'll help you whether you want it or not.

Rob " All my friends call me . No, really. "

[Guest guest]

Hey Sandy - As usual your posts are very informative and right on target. I was

wondering however, could you state the nutritional needs for the bandster in a

different format? For example, how many lay people know what 50-60 grams of

protein looks like? Or 25 grams of fiber? Could you convert these numbers to

ounces or cups? Maybe then the recurrent question of how much would be

resolved. Just a thought

Norma

[Guest guest]

Thank you all again for all your help & support.

If I am remembering correctly, doesn't Dr. LaGrone let you send your films to him first so he can determine if he can help you or not? I think I read that about him on another list. And since I think he does A & P revisions in one day, that would be great.

Does anyone know if Dr. Kumar does the same thing? Or perhaps Boachie?

I am trying to do this as inexpensively as possible. I'm sure I can get Angel Flight to handle the actual flights, but then there are the lodging expenses for dd & I.

ON ANOTHER NOTE: what on earth is a "ducktail" or a "backwaist"? I hate to sound like an idiot, but since I do it SOOOO well - lol.

Again, I really do appreciate everyone's help & input. I've waited some time to even "go there" again. I have made a few decisions about what I will & will not accept as far as my care goes. I was wondering if anyone had ever completely weaned off their pain meds prior to their surgery? It really sounds like there are not any surgeons who give a rats behind if you are opiod tolerant or not, & that they are not willing to use higher than normal doses to accomodate those of us whose pain is much harder to control. With this in mind, I am thinking of asking my pain management doc to start weaning me off. Of course, I don't know how on earth I will function, as my pain is really not well controlled as it is. But the only med I'll let them increase is my Neurontin from time to time, as I don't want to become more tolerant. I do need to do something very soon though, b/c I'm starting to require the actual amounts I'm allowed to have with my meds. I had been "getting by" for some time on approx. 2/3 of what I was allowed. But lately, I've been in more pain & have had several days recently where I required the full doses.

Please keep me in your prayers. I'm not sure what to do about meds/pain mgt. at this point. But I absolutely am not willing to be basically tortured again b/c of an idiot doctor. When I had my last surgery, I was on MORE medication PREoperatively, that I was even IMMEDIATELY postop. Then a stupid nurse started decreasing my doses on her own, WITHOUT an order, just b/c that's how she does things. I couldn't believe that they let her pretty much run the floor & she was just an LPN - not even the charge nurse. So I'm very hesitant to trust anything the hospitals tell me. I researched these issues very well before my surgery & pretty much everything I was told was a lie. And the sad thing is that several other patients had the same experience, but ALL of them asked me not to tell the surgeon for some strange reason. So when I reported it, he didn't believe me & said none of the other patients had any problems.

Blessings,

Carla Kay

Ps. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...

[Guest guest]

You know, Carla, I bet a lot of people here would LOVE to know what hospital that was!

Sharon

Re: [ ] Digest Number 287

Thank you all again for all your help & support. If I am remembering correctly, doesn't Dr. LaGrone let you send your films to him first so he can determine if he can help you or not? I think I read that about him on another list. And since I think he does A & P revisions in one day, that would be great.Does anyone know if Dr. Kumar does the same thing? Or perhaps Boachie?I am trying to do this as inexpensively as possible. I'm sure I can get Angel Flight to handle the actual flights, but then there are the lodging expenses for dd & I. ON ANOTHER NOTE: what on earth is a "ducktail" or a "backwaist"? I hate to sound like an idiot, but since I do it SOOOO well - lol.Again, I really do appreciate everyone's help & input. I've waited some time to even "go there" again. I have made a few decisions about what I will & will not accept as far as my care goes. I was wondering if anyone had ever completely weaned off their pain meds prior to their surgery? It really sounds like there are not any surgeons who give a rats behind if you are opiod tolerant or not, & that they are not willing to use higher than normal doses to accomodate those of us whose pain is much harder to control. With this in mind, I am thinking of asking my pain management doc to start weaning me off. Of course, I don't know how on earth I will function, as my pain is really not well controlled as it is. But the only med I'll let them increase is my Neurontin from time to time, as I don't want to become more tolerant. I do need to do something very soon though, b/c I'm starting to require the actual amounts I'm allowed to have with my meds. I had been "getting by" for some time on approx. 2/3 of what I was allowed. But lately, I've been in more pain & have had several days recently where I required the full doses. Please keep me in your prayers. I'm not sure what to do about meds/pain mgt. at this point. But I absolutely am not willing to be basically tortured again b/c of an idiot doctor. When I had my last surgery, I was on MORE medication PREoperatively, that I was even IMMEDIATELY postop. Then a stupid nurse started decreasing my doses on her own, WITHOUT an order, just b/c that's how she does things. I couldn't believe that they let her pretty much run the floor & she was just an LPN - not even the charge nurse. So I'm very hesitant to trust anything the hospitals tell me. I researched these issues very well before my surgery & pretty much everything I was told was a lie. And the sad thing is that several other patients had the same experience, but ALL of them asked me not to tell the surgeon for some strange reason. So when I reported it, he didn't believe me & said none of the other patients had any problems. Blessings,Carla KayPs. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...

[Guest guest]

Carla Kay, I did send Dr. LaGrone some films back in 2001, and at that time he was reviewing them for free, and writing letters in reply, rather than giving a telephone consultation. The letter I received was hand-written and very courteous, asking me not to hesitate to contact him if he could be of further assistance.

At the time I was not well-aquainted with the reputations of other revision surgeons closer to me, and would have considered making the flight to Texas if needed.

Before my first appointment with Dr. Rand I was asked to mail him a copy of my surgical report from my original surgery. He didn't ask for the films; I carried them to the appointment. I have not heard of him accepting films or giving free pre-consultations, but I'm sure the surgical report was enough to let him know neither he nor I would be wasting our time.

Sharon

Re: [ ] Digest Number 287

Thank you all again for all your help & support. If I am remembering correctly, doesn't Dr. LaGrone let you send your films to him first so he can determine if he can help you or not? I think I read that about him on another list. And since I think he does A & P revisions in one day, that would be great.Does anyone know if Dr. Kumar does the same thing? Or perhaps Boachie?I am trying to do this as inexpensively as possible. I'm sure I can get Angel Flight to handle the actual flights, but then there are the lodging expenses for dd & I. ON ANOTHER NOTE: what on earth is a "ducktail" or a "backwaist"? I hate to sound like an idiot, but since I do it SOOOO well - lol.Again, I really do appreciate everyone's help & input. I've waited some time to even "go there" again. I have made a few decisions about what I will & will not accept as far as my care goes. I was wondering if anyone had ever completely weaned off their pain meds prior to their surgery? It really sounds like there are not any surgeons who give a rats behind if you are opiod tolerant or not, & that they are not willing to use higher than normal doses to accomodate those of us whose pain is much harder to control. With this in mind, I am thinking of asking my pain management doc to start weaning me off. Of course, I don't know how on earth I will function, as my pain is really not well controlled as it is. But the only med I'll let them increase is my Neurontin from time to time, as I don't want to become more tolerant. I do need to do something very soon though, b/c I'm starting to require the actual amounts I'm allowed to have with my meds. I had been "getting by" for some time on approx. 2/3 of what I was allowed. But lately, I've been in more pain & have had several days recently where I required the full doses. Please keep me in your prayers. I'm not sure what to do about meds/pain mgt. at this point. But I absolutely am not willing to be basically tortured again b/c of an idiot doctor. When I had my last surgery, I was on MORE medication PREoperatively, that I was even IMMEDIATELY postop. Then a stupid nurse started decreasing my doses on her own, WITHOUT an order, just b/c that's how she does things. I couldn't believe that they let her pretty much run the floor & she was just an LPN - not even the charge nurse. So I'm very hesitant to trust anything the hospitals tell me. I researched these issues very well before my surgery & pretty much everything I was told was a lie. And the sad thing is that several other patients had the same experience, but ALL of them asked me not to tell the surgeon for some strange reason. So when I reported it, he didn't believe me & said none of the other patients had any problems. Blessings,Carla KayPs. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...

[Guest guest]

Dear Carla,

just caught up on posts since I'm leaving this week for a funeral in California, and I'll answer about Kumar. He did my surgery in one day, but I do think he does stage them now since he does the surgery by himself since Dr. O'Brien has relocated to Miami. You would have to discuss that with him if you choose to get an opinion from him. As far as pain control, I think you should bring up your problem with each doc you go to, addressing before surgery is a good idea, and go with the doc that you feel most comfortable with.

Re: [ ] Digest Number 287

Thank you all again for all your help & support. If I am remembering correctly, doesn't Dr. LaGrone let you send your films to him first so he can determine if he can help you or not? I think I read that about him on another list. And since I think he does A & P revisions in one day, that would be great.Does anyone know if Dr. Kumar does the same thing? Or perhaps Boachie?I am trying to do this as inexpensively as possible. I'm sure I can get Angel Flight to handle the actual flights, but then there are the lodging expenses for dd & I. ON ANOTHER NOTE: what on earth is a "ducktail" or a "backwaist"? I hate to sound like an idiot, but since I do it SOOOO well - lol.Again, I really do appreciate everyone's help & input. I've waited some time to even "go there" again. I have made a few decisions about what I will & will not accept as far as my care goes. I was wondering if anyone had ever completely weaned off their pain meds prior to their surgery? It really sounds like there are not any surgeons who give a rats behind if you are opiod tolerant or not, & that they are not willing to use higher than normal doses to accomodate those of us whose pain is much harder to control. With this in mind, I am thinking of asking my pain management doc to start weaning me off. Of course, I don't know how on earth I will function, as my pain is really not well controlled as it is. But the only med I'll let them increase is my Neurontin from time to time, as I don't want to become more tolerant. I do need to do something very soon though, b/c I'm starting to require the actual amounts I'm allowed to have with my meds. I had been "getting by" for some time on approx. 2/3 of what I was allowed. But lately, I've been in more pain & have had several days recently where I required the full doses. Please keep me in your prayers. I'm not sure what to do about meds/pain mgt. at this point. But I absolutely am not willing to be basically tortured again b/c of an idiot doctor. When I had my last surgery, I was on MORE medication PREoperatively, that I was even IMMEDIATELY postop. Then a stupid nurse started decreasing my doses on her own, WITHOUT an order, just b/c that's how she does things. I couldn't believe that they let her pretty much run the floor & she was just an LPN - not even the charge nurse. So I'm very hesitant to trust anything the hospitals tell me. I researched these issues very well before my surgery & pretty much everything I was told was a lie. And the sad thing is that several other patients had the same experience, but ALL of them asked me not to tell the surgeon for some strange reason. So when I reported it, he didn't believe me & said none of the other patients had any problems. Blessings,Carla KayPs. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...