Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Hi! Do you see Dr. ? My 2 year old sees her but will not have surgery until four or five also. It would be wonderful to know someone who has seen the end result of her work. Especially since you were so happy wiith your doctor's work. Thanks, >From: " sweeney1992 " <kisweerney@...> >Reply-blepharophimosis >blepharophimosis >Subject: blepharophimosis BPES surgery series >Date: Tue, 10 Feb 2004 15:06:48 -0000 >MIME-Version: 1.0 >X-Originating-IP: 68.74.221.33 >X-Sender: kisweeney@... >Received: from n36.grp.scd. ([66.218.66.104]) by >mc1-f1.hotmail.com with Microsoft SMTPSVC(5.0.2195.6824); Tue, 10 Feb 2004 >07:08:06 -0800 >Received: from [66.218.67.195] by n36.grp.scd. with NNFMP; 10 Feb >2004 15:07:33 -0000 >Received: (qmail 49261 invoked from network); 10 Feb 2004 15:07:28 -0000 >Received: from unknown (66.218.66.172) by m2.grp.scd. with QMQP; >10 Feb 2004 15:07:28 -0000 >Received: from unknown (HELO n26.grp.scd.) (66.218.66.82) by >mta4.grp.scd. with SMTP; 10 Feb 2004 15:07:28 -0000 >Received: from [66.218.67.135] by n26.grp.scd. with NNFMP; 10 Feb >2004 15:06:52 -0000 >X-Message-Info: JGTYoYF78jF51QmtcJpz5GrbMRc39mE/ >X-eGroups-Return: >sentto-1507948-873-1076425650-llogan2=hotmail.com@... >X-Apparently-blepharophimosis >Message-ID: <c0as28+6nfleGroups> >User-Agent: eGroups-EW/0.82 >X-Mailer: Message Poster >X-eGroups-Remote-IP: 66.218.66.82 >X--Profile: sweeney1992 >Mailing-List: list blepharophimosis ; contact >blepharophimosis-owner >Delivered-mailing list blepharophimosis >Precedence: bulk >List-Unsubscribe: <mailto:blepharophimosis-unsubscribe > >Return-Path: >sentto-1507948-873-1076425650-llogan2=hotmail.com@... >X-OriginalArrivalTime: 10 Feb 2004 15:08:06.0429 (UTC) >FILETIME=[AFE944D0:01C3EFE7] > >Our daugther, who just turned seven this week recently completed the >three surgeries for BPES. She was diagnosised with this syndrome at >a 6 months and we had to hold off on surgery until age 4 at which >time she had the slings created to hold open her eyelids.(This was >the most difficult proceedure of the three). > >She had a second surgery at 5 and her final surgery was completed at >age 6,December of 2003. For those parents who are considering surgery >our experience was positive. Although it was difficult to explain to >our daugther why she was having surgery, and the days immediately >following the surgeries were hard, she recovered amazingly quickly >and is doing quite well now. Here eyes are beautiful, she sees well >and she feels good about herself. The only on-going need is that she >will have to use eye ointment every night to keep her cornea moist >and she is so used to this now it's like brushing her teeth at night. >She our little hero!!!! > >I want to let families who recently had a child diagnosised with BPES >or families that are preparing for surgery to know that it is worth >all stress. I will locate some before and after photos for each >surgery and share them with the group. Our surgeon is AMAZING and all >three surgeries were completed through the Kellogg Eye Center in Ann >Arbor,MI. > > > > > _________________________________________________________________ Find great local high-speed Internet access value at the MSN High-Speed Marketplace. http://click.atdmt.com/AVE/go/onm00200360ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 HI, THIS IS GREAT TO HEAR ISN'T IT... FOWARD THE PICTURES IF YOU GET THEM ... MISAS YOU ABD LOVE YOU LOTS MOM >From: " L Logan " <llogan2@...> >Reply-blepharophimosis >blepharophimosis >Subject: RE: blepharophimosis BPES surgery series >Date: Tue, 10 Feb 2004 18:57:45 -0900 > >Hi! >Do you see Dr. ? My 2 year old sees her but will not have surgery >until four or five also. >It would be wonderful to know someone who has seen the end result of her >work. >Especially since you were so happy wiith your doctor's work. >Thanks, > > > > > > > >From: " sweeney1992 " <kisweerney@...> > >Reply-blepharophimosis > >blepharophimosis > >Subject: blepharophimosis BPES surgery series > >Date: Tue, 10 Feb 2004 15:06:48 -0000 > >MIME-Version: 1.0 > >X-Originating-IP: 68.74.221.33 > >X-Sender: kisweeney@... > >Received: from n36.grp.scd. ([66.218.66.104]) by > >mc1-f1.hotmail.com with Microsoft SMTPSVC(5.0.2195.6824); Tue, 10 Feb >2004 > >07:08:06 -0800 > >Received: from [66.218.67.195] by n36.grp.scd. with NNFMP; 10 >Feb > >2004 15:07:33 -0000 > >Received: (qmail 49261 invoked from network); 10 Feb 2004 15:07:28 -0000 > >Received: from unknown (66.218.66.172) by m2.grp.scd. with >QMQP; > >10 Feb 2004 15:07:28 -0000 > >Received: from unknown (HELO n26.grp.scd.) (66.218.66.82) by > >mta4.grp.scd. with SMTP; 10 Feb 2004 15:07:28 -0000 > >Received: from [66.218.67.135] by n26.grp.scd. with NNFMP; 10 >Feb > >2004 15:06:52 -0000 > >X-Message-Info: JGTYoYF78jF51QmtcJpz5GrbMRc39mE/ > >X-eGroups-Return: > >sentto-1507948-873-1076425650-llogan2=hotmail.com@... > >X-Apparently-blepharophimosis > >Message-ID: <c0as28+6nfleGroups> > >User-Agent: eGroups-EW/0.82 > >X-Mailer: Message Poster > >X-eGroups-Remote-IP: 66.218.66.82 > >X--Profile: sweeney1992 > >Mailing-List: list blepharophimosis ; contact > >blepharophimosis-owner > >Delivered-mailing list blepharophimosis > >Precedence: bulk > >List-Unsubscribe: <mailto:blepharophimosis-unsubscribe > > >Return-Path: > >sentto-1507948-873-1076425650-llogan2=hotmail.com@... > >X-OriginalArrivalTime: 10 Feb 2004 15:08:06.0429 (UTC) > >FILETIME=[AFE944D0:01C3EFE7] > > > >Our daugther, who just turned seven this week recently completed the > >three surgeries for BPES. She was diagnosised with this syndrome at > >a 6 months and we had to hold off on surgery until age 4 at which > >time she had the slings created to hold open her eyelids.(This was > >the most difficult proceedure of the three). > > > >She had a second surgery at 5 and her final surgery was completed at > >age 6,December of 2003. For those parents who are considering surgery > >our experience was positive. Although it was difficult to explain to > >our daugther why she was having surgery, and the days immediately > >following the surgeries were hard, she recovered amazingly quickly > >and is doing quite well now. Here eyes are beautiful, she sees well > >and she feels good about herself. The only on-going need is that she > >will have to use eye ointment every night to keep her cornea moist > >and she is so used to this now it's like brushing her teeth at night. > >She our little hero!!!! > > > >I want to let families who recently had a child diagnosised with BPES > >or families that are preparing for surgery to know that it is worth > >all stress. I will locate some before and after photos for each > >surgery and share them with the group. Our surgeon is AMAZING and all > >three surgeries were completed through the Kellogg Eye Center in Ann > >Arbor,MI. > > > > > > > > > > > >_________________________________________________________________ >Find great local high-speed Internet access value at the MSN High-Speed >Marketplace. http://click.atdmt.com/AVE/go/onm00200360ave/direct/01/ > _________________________________________________________________ Take off on a romantic weekend or a family adventure to these great U.S. locations. http://special.msn.com/local/hotdestinations.armx Quote Link to comment Share on other sites More sharing options...
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